Transition in the Netherlands through patients eyes

1. Transition in the
Netherlands trough
patients eyes
ANNELIES HOEKSTRA

2. Index
 My own transition experience
 Transition in most university hospitals
 Experience from others
 Differences between child clinic and adult clinic

3. Me, myself and I
 24 years old
 Clinical Neuropsychologist
 Board member of the JIA-association in the Netherlands
 Polyarticular
 Crohn’s disease

4. My own experience
 University hospital of Groningen
 Already seen my adult rheumatologist
 Appointment with both rheumatologists
 Arthritis consultant

5. University Hospital of Groningen
 Already see an adult rheumatologist as a child
 Multiple double appointments

6. Netherlands
 One or more appointments with both rheumatologists
 Confidence of patient
 16-18 years old
 Arthritis consultant

7. Quotes of other patients
 “I’ve had two appointments with both rheumatologists and after
this appointment I went to a special transition-nurse, who has
contact with both rheumatologists.”
 “There was one appointment with both doctors. If there were three
of this appointments it would be better. One was nice, but it was
not complete.”
 “There should be a transition, but I’ve never had one. They just
made an appointment at the adult clinic. I didn’t even like my
adult doctor, so I went to another hospital.”

8. Differences between clinics
Child Clinic
 Less rheumatologists
 More clinics at one location
 Children
 Time to talk about life
 Parents are responsible
Adult Clinic
 More rheumatologists
 More seperated clinics
 Majority of old people
 Shorter appointments
 You are in charge

9. Conclusion
 Transition gives confidence
 Do not skip it because of the lack of time
 Let patient and family adjust
 Focus on the differences between clinics

10. Questions?