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A Community of people living with HIV




HIV Awareness



Aidan Hanrath
Buddy Scheme Volunteer
aidan.hanrath.10@ucl.ac.uk
HIV
Aims
Assess our current knowledge, and increase our
understanding of HIV: its global and social contexts, its
consequences and the therapy available.

Gain an overview of the human immune system and
the effect of HIV

Dispel some of the many damaging myths surrounding
this condition.
What kind of illnesses are
 caused by infection?
What kind of illnesses are
 caused by infection?
Bacterium
Pneumonia, strep throat, ear infections

Virus
Cold, flu, chickenpox, measles, HIV

Fungus
Athlete‟s foot, thrush, candida infection
Viruses




Viruses aren‟t technically alive, and need living cells
to live and replicate themselves in
Human
Immunodeficiency Virus
HIV in the UK

There are about 90 thousand people in the UK with HIV. It‟s
likely that around a quarter of these people in the UK do
not know they have it.

In the UK about two thirds are men, and a third are
women.

Gay and bisexual men and black African heterosexuals are
the groups who are most affected.
The immune system
The immune system
First defence (physical): skin and barriers in GI tract



Second defence (innate): automatic and unspecific



Third defence (adaptive): specialised but destructive
T Helper Cell


                T                                T
               CD4                              CD8
                                                       Kill infected cells

              Coordinate defence




                                     Innat
                B                      e

Release antibodies                 Cause inflammation and clear debris
Damaged T Helper Cell



    T                           T
   CD4                          CD8




                        Innat
    B                     e
Stigma and discrimination
Stigma and discrimination
Stigma: the shame or disgrace attached to something
   regarded as socially unacceptable.

Types of stigma
• Self-stigma: self-hatred, shame, blame; people feel
   they are being judged by others so they isolate
   themselves. People who practise self-stigma isolate
   themselves from their families and communities.
• Felt stigma – perceptions or feelings towards others.
• Discrimination – enacted stigma; attitudes or
   thoughts put into action.
Stigma is a process that:
• points out or labels differences – “He is different from
   us: he coughs a lot”
• attributes differences to negative behaviour – “His
   sickness is caused by his sinful and promiscuous
   behaviour”
• separates „us‟ and „them‟, e.g. shunning, isolation,
   rejection
• creates loss of status, and discrimination (loss of
   respect, isolation).
Try and think of a time in your life when you felt
   isolated or rejected for being seen as different from
   others.

How does it feel for that to happen to you? Did you try
  to ignore it, or fight it, or find talked to others about
  it? What impact might it have it have for your self
  confidence?
Why might people living with HIV feel stigmatised?
Morality – view that people living with HIV are sinners,
  promiscuous, unfaithful, sleeping around. People‟s
  beliefs about pollution, contagion, impurity. Fear of
  infection, of the unknown, of death.
Ignorance – lack of knowledge and misconceptions
  makes people fear physical contact.
Misconceptions. Inferiority and superiority complex.
  Gender and poverty – women and poor people
  more stigmatised than men/rich people.
Prejudice. Tendency to judge others.
How might people living with HIV experience stigma or
  discrimination?
Name-calling. Scapegoating. Finger-pointing. Teasing.
   Ridicule. Labelling.
Blaming. Shaming. Judging. Backbiting. Rumour.
   Gossiping. Making assumptions. Suspecting.
   Neglecting. Rejecting. Isolating. Separating.
Not sharing utensils. Hiding. Staying at a distance.
   Harassment. Physical violence. Abuse. Self-stigma –
   blaming and isolating oneself. Stigma by
   association – whole family or friends also affected
   by stigma. Stigma by looks/appearance.
   Associated stigma – family and friends also affected
   by stigma
What might be the consequences of people living
 with HIV feeling stigmatised?
Shame. Denial. Self-isolation. Loneliness. Neglect. Loss of hope.
Depression. Death. Alcoholism. Isolation. Self-rejection – give up on
yourself. Self-blame. Self-pity. Self-hatred. Anger. Violence. Withdraw from
public activities, e.g. church membership. Become very quiet. Commit
suicide or start thinking about suicide. Die alone, without love. Feel
unproductive/useless/not contributing. Forced to leave community. Family
disruption. Divorce or separation. Kicked out of family. Fired from work.
Loss of promotion, scholarship opportunities, rented accommodation.
Decline in school performance or dropout from school. AIDS orphans and
street kids. Abuse or poor treatment by relatives. Deprived of medical care –
health staff argue that this is a “waste of resources”. Sent back to the
village and property grabbing. Quarrels within the family – argue over who
is responsible for this situation and who will take care of the sick PLHIV.
Stop making use of clinics, voluntary counselling and testing programme,
and home-based care programme. Reluctance to take medication. No
treatment. Spread of infection.
Do only drug users and
gay men need to know
     about HIV?
Do only drug users and
     gay men need to know
          about HIV?
No

HIV, unlike human beings, does not discriminate against
  drug users, gay men, women, Africans, British, Baptists,
  Roman Catholics or Atheists. Every member of the
  Human Race can be affected by this virus.
If I were infected with
HIV would I feel sick?
If I were infected with
    HIV would I feel sick?

Not necessarily

Although many people get flu-like symptoms in the
first few weeks after infection (sometimes called
seroconversion illness) some do not, and the virus can
take as long as 10 years to reveal itself. An HIV test is
the only way of diagnosing infection.
What are the main routes
 of HIV transmission?
What are the main routes
 of HIV transmission?
                  Sharing
       Sexual
                   drug
       Contact
                  needles



      Mother to    (Blood
       baby       products)
Can you become infected
with HIV through oral sex?
Can you become infected
with HIV through oral sex?

Yes

The risk is very remote (0.01% for the person performing
oral sex, 0.005% for the person receiving it) but may be
increased by sores in the mouth or pre-existing
immune suppression
HIV is a devastatingly effective virus in many ways, but
it is relatively ineffective at transmitting itself from
person to person. Apart from a direct blood
transfusion (and birth without prophylactic treatment),
the risks of infection are perhaps surprisingly low.
Exposure Route                                      Risk per exposure to an
                                                    infected source
Blood transfusion                                             90%
Mother to child without treatment                             25%
Mother to child with treatment and other measures            1 – 2%
Needle sharing in drug use                                   0.67%
Needle stick through the skin                                 0.3%
Receptive anal intercourse                                    1.7%
Insertive anal intercourse (uncircumcised men)               0.62%
Insertive anal intercourse (circumcised men)                 0.11%
Vaginal intercourse male to female                            0.1%
Vaginal intercourse female to male                           0.05%
Performing oral sex                                          0.01%
Receiving oral sex                                           0.005%
How is HIV transmitted
     most often?
How is HIV transmitted
       most often?

Heterosexual intercourse is how HIV is most often
transmitted world wide
Is HIV/AIDS not a
problem now that we
     have a cure?
Is HIV/AIDS not a
        problem now that we
             have a cure?
False

There is no cure for HIV currently or in the foreseeable
future – it is a lifelong condition. However the virus and
thus the symptoms can be controlled with
antiretroviral therapy.
Is HIV present in male
       semen?
Is HIV present in male
             semen?
Yes

The semen of infected men is the perfect medium for
HIV transmission, as well as blood and vaginal fluids of
infected women.
Is it safe for an HIV
 positive woman to
breastfeed her baby?
Is it safe for an HIV
       positive woman to
      breastfeed her baby?
No

Unfortunately, breastfeeding can also transmit HIV, so
in „developed‟ countries where formula milk is
available and safe it should be used instead. In this
instance breast is not best.
How can you tell if
someone has HIV or
      AIDS?
What protects you most
against HIV infection?
What protects you most
  against HIV infection?

(Apart from not reusing needles)

ABC

• Abstinence
• Being faithful
• Condoms
Is AIDS another name for
          HIV?
Is AIDS another name for
           HIV?
No

Acquired Immunodeficiency Syndrome is a term used
to describe an advanced stage of HIV infection. AIDS
is typically diagnosed in HIV patients with a very low
level of circulating CD4 T cells (<200 per mm3 of
blood) and one or more characteristic opportunistic
infections and cancers which would otherwise be
stopped by the immune system. Some of these are
almost unheard of in the general population.
Opportunistic infections
  System       Examples of infection/cancer
  Repiratory   Pneumocystis jirovecii pneumonia (PJP)
               Tuberculosis
  Gastro-      Cryptosporidiosis
  Intestinal   Candida
               Cytomegalovirus
  Nervous      Toxoplasmosis
  System       Cryptococcosis
               Non Hodgkin’s lymphoma
  Skin         Herpes simplex
               Kaposi’s sarcoma
How is HIV treated?
Behind every statistic

     There is a human being
        A human family
             A history
              A face

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Cara presentation

  • 1. A Community of people living with HIV HIV Awareness Aidan Hanrath Buddy Scheme Volunteer aidan.hanrath.10@ucl.ac.uk
  • 2. HIV Aims Assess our current knowledge, and increase our understanding of HIV: its global and social contexts, its consequences and the therapy available. Gain an overview of the human immune system and the effect of HIV Dispel some of the many damaging myths surrounding this condition.
  • 3. What kind of illnesses are caused by infection?
  • 4. What kind of illnesses are caused by infection? Bacterium Pneumonia, strep throat, ear infections Virus Cold, flu, chickenpox, measles, HIV Fungus Athlete‟s foot, thrush, candida infection
  • 5. Viruses Viruses aren‟t technically alive, and need living cells to live and replicate themselves in
  • 7.
  • 8. HIV in the UK There are about 90 thousand people in the UK with HIV. It‟s likely that around a quarter of these people in the UK do not know they have it. In the UK about two thirds are men, and a third are women. Gay and bisexual men and black African heterosexuals are the groups who are most affected.
  • 10. The immune system First defence (physical): skin and barriers in GI tract Second defence (innate): automatic and unspecific Third defence (adaptive): specialised but destructive
  • 11. T Helper Cell T T CD4 CD8 Kill infected cells Coordinate defence Innat B e Release antibodies Cause inflammation and clear debris
  • 12. Damaged T Helper Cell T T CD4 CD8 Innat B e
  • 14. Stigma and discrimination Stigma: the shame or disgrace attached to something regarded as socially unacceptable. Types of stigma • Self-stigma: self-hatred, shame, blame; people feel they are being judged by others so they isolate themselves. People who practise self-stigma isolate themselves from their families and communities. • Felt stigma – perceptions or feelings towards others. • Discrimination – enacted stigma; attitudes or thoughts put into action.
  • 15. Stigma is a process that: • points out or labels differences – “He is different from us: he coughs a lot” • attributes differences to negative behaviour – “His sickness is caused by his sinful and promiscuous behaviour” • separates „us‟ and „them‟, e.g. shunning, isolation, rejection • creates loss of status, and discrimination (loss of respect, isolation).
  • 16. Try and think of a time in your life when you felt isolated or rejected for being seen as different from others. How does it feel for that to happen to you? Did you try to ignore it, or fight it, or find talked to others about it? What impact might it have it have for your self confidence?
  • 17. Why might people living with HIV feel stigmatised?
  • 18. Morality – view that people living with HIV are sinners, promiscuous, unfaithful, sleeping around. People‟s beliefs about pollution, contagion, impurity. Fear of infection, of the unknown, of death. Ignorance – lack of knowledge and misconceptions makes people fear physical contact. Misconceptions. Inferiority and superiority complex. Gender and poverty – women and poor people more stigmatised than men/rich people. Prejudice. Tendency to judge others.
  • 19. How might people living with HIV experience stigma or discrimination?
  • 20. Name-calling. Scapegoating. Finger-pointing. Teasing. Ridicule. Labelling. Blaming. Shaming. Judging. Backbiting. Rumour. Gossiping. Making assumptions. Suspecting. Neglecting. Rejecting. Isolating. Separating. Not sharing utensils. Hiding. Staying at a distance. Harassment. Physical violence. Abuse. Self-stigma – blaming and isolating oneself. Stigma by association – whole family or friends also affected by stigma. Stigma by looks/appearance. Associated stigma – family and friends also affected by stigma
  • 21. What might be the consequences of people living with HIV feeling stigmatised?
  • 22. Shame. Denial. Self-isolation. Loneliness. Neglect. Loss of hope. Depression. Death. Alcoholism. Isolation. Self-rejection – give up on yourself. Self-blame. Self-pity. Self-hatred. Anger. Violence. Withdraw from public activities, e.g. church membership. Become very quiet. Commit suicide or start thinking about suicide. Die alone, without love. Feel unproductive/useless/not contributing. Forced to leave community. Family disruption. Divorce or separation. Kicked out of family. Fired from work. Loss of promotion, scholarship opportunities, rented accommodation. Decline in school performance or dropout from school. AIDS orphans and street kids. Abuse or poor treatment by relatives. Deprived of medical care – health staff argue that this is a “waste of resources”. Sent back to the village and property grabbing. Quarrels within the family – argue over who is responsible for this situation and who will take care of the sick PLHIV. Stop making use of clinics, voluntary counselling and testing programme, and home-based care programme. Reluctance to take medication. No treatment. Spread of infection.
  • 23. Do only drug users and gay men need to know about HIV?
  • 24. Do only drug users and gay men need to know about HIV? No HIV, unlike human beings, does not discriminate against drug users, gay men, women, Africans, British, Baptists, Roman Catholics or Atheists. Every member of the Human Race can be affected by this virus.
  • 25. If I were infected with HIV would I feel sick?
  • 26. If I were infected with HIV would I feel sick? Not necessarily Although many people get flu-like symptoms in the first few weeks after infection (sometimes called seroconversion illness) some do not, and the virus can take as long as 10 years to reveal itself. An HIV test is the only way of diagnosing infection.
  • 27. What are the main routes of HIV transmission?
  • 28. What are the main routes of HIV transmission? Sharing Sexual drug Contact needles Mother to (Blood baby products)
  • 29. Can you become infected with HIV through oral sex?
  • 30. Can you become infected with HIV through oral sex? Yes The risk is very remote (0.01% for the person performing oral sex, 0.005% for the person receiving it) but may be increased by sores in the mouth or pre-existing immune suppression
  • 31. HIV is a devastatingly effective virus in many ways, but it is relatively ineffective at transmitting itself from person to person. Apart from a direct blood transfusion (and birth without prophylactic treatment), the risks of infection are perhaps surprisingly low.
  • 32. Exposure Route Risk per exposure to an infected source Blood transfusion 90% Mother to child without treatment 25% Mother to child with treatment and other measures 1 – 2% Needle sharing in drug use 0.67% Needle stick through the skin 0.3% Receptive anal intercourse 1.7% Insertive anal intercourse (uncircumcised men) 0.62% Insertive anal intercourse (circumcised men) 0.11% Vaginal intercourse male to female 0.1% Vaginal intercourse female to male 0.05% Performing oral sex 0.01% Receiving oral sex 0.005%
  • 33. How is HIV transmitted most often?
  • 34. How is HIV transmitted most often? Heterosexual intercourse is how HIV is most often transmitted world wide
  • 35. Is HIV/AIDS not a problem now that we have a cure?
  • 36. Is HIV/AIDS not a problem now that we have a cure? False There is no cure for HIV currently or in the foreseeable future – it is a lifelong condition. However the virus and thus the symptoms can be controlled with antiretroviral therapy.
  • 37. Is HIV present in male semen?
  • 38. Is HIV present in male semen? Yes The semen of infected men is the perfect medium for HIV transmission, as well as blood and vaginal fluids of infected women.
  • 39. Is it safe for an HIV positive woman to breastfeed her baby?
  • 40. Is it safe for an HIV positive woman to breastfeed her baby? No Unfortunately, breastfeeding can also transmit HIV, so in „developed‟ countries where formula milk is available and safe it should be used instead. In this instance breast is not best.
  • 41. How can you tell if someone has HIV or AIDS?
  • 42. What protects you most against HIV infection?
  • 43. What protects you most against HIV infection? (Apart from not reusing needles) ABC • Abstinence • Being faithful • Condoms
  • 44. Is AIDS another name for HIV?
  • 45. Is AIDS another name for HIV? No Acquired Immunodeficiency Syndrome is a term used to describe an advanced stage of HIV infection. AIDS is typically diagnosed in HIV patients with a very low level of circulating CD4 T cells (<200 per mm3 of blood) and one or more characteristic opportunistic infections and cancers which would otherwise be stopped by the immune system. Some of these are almost unheard of in the general population.
  • 46. Opportunistic infections System Examples of infection/cancer Repiratory Pneumocystis jirovecii pneumonia (PJP) Tuberculosis Gastro- Cryptosporidiosis Intestinal Candida Cytomegalovirus Nervous Toxoplasmosis System Cryptococcosis Non Hodgkin’s lymphoma Skin Herpes simplex Kaposi’s sarcoma
  • 47. How is HIV treated?
  • 48.
  • 49. Behind every statistic There is a human being A human family A history A face

Hinweis der Redaktion

  1. HIV is a virus (not a moral condition!) which attacks and weakens the immune system, making it difficult to fight off other infections. People cannot die of HIV, but they can die of other diseases which take the opportunity to attack. The immune system is also vital for fighting cancers, and so cancers are also more common in people infected with HIV.