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10 Reasons Why Patients Blog




5 Reasons Why They Don’t Tell Their Doctors

 By Shirley Williams                                                      1

              Copyright 2013    Image: Walking Gallery, Regina Holliday
Based on my post




Copyright 2013                      2
Research has shown

! Just over 40% of patient bloggers shared their patient
  blogs with a health care provider

! Most patient bloggers (90%) shared their writing with
  friends and family

! The patient panel at the Medicine 2.0 congress
  [2012] revealed why patients blog and why they did
  not share them with their doctor



             Copyright 2013                     Image: owenwbrown   3
Why Patients blog
They have a story to tell




     Copyright 2013         Image: Walking Gallery, Regina Holliday   4
Why Patients blog




They need an outlet for expression
    Copyright 2013                                               5
                       Image: Walking Gallery, Regina Holliday
Why Patients blog

 They need to
 regain a sense
 on inclusion
 and purpose


They need to
connect with
others who may
share the same
experience


          Copyright 2013   Image: Walking Gallery, Regina Holliday   6
Why Patients blog

Patients need to describe
their illness without scrutiny



Patients find a sense of
control in blogging




                                 Image: <<saigerowe>>
         Copyright 2013                                 7
Why Patients blog

A cry for help



Blogging provides
a way to manage
their situation




       Copyright 2013   Image: Walking Gallery, Regina Holliday   8
Why Patients blog


Blogging provides support to both the blogger and reader




Blogging provides a forum to be heard




            Copyright 2013                    Image by Bill Bouton   9
Why Patients don’t tell their doctors




Patients did not
want their
writing
discounted by
clinicians



         Copyright 2013       Image: Walking Gallery, Regina Holliday   10
Why Patients don’t tell their doctors



Patients felt invisible to health care providers




                                          Image: DazT
         Copyright 2013                                 11
Why Patients don’t tell their doctors




Patients did not want to be shamed




     Copyright 2013                     12
Why Patients don’t tell their doctors




Patients did not want their work minimized




         Copyright 2013              Photo by Nakeva   13
Why Patients don’t tell their doctors

  Patients did not want their feelings
      and thoughts “clinicalized”




                                     Image by aussiegal
     Copyright 2013                                       14
About Shirley Williams.!


  Shirley Williams has had a dynamic and assertive management career

  that has led to a reputation of a visionary, result-driven and passionate

  leader with excellent strategic implementation and motivational abilities.!


  Shirley has had 20+ years in the Pharmaceuticals, Healthcare and

  Information Technology. She has led Global Supply, Global Program

  Management, Operations Management, Research and Development.
                                                                                    Thank You
  Shirley is the Chief Transformation Officer and owner at William Pearl and

  Social Media Pearls. Shirley consults in strategy, business transformation,
                                                                                  www.williampearl.com
  team development and social media. Shirley also has her own Talk Radio        www.socialmediapearls.com
  Show on Social Business Environment and Healthcare. !


  !
Also check out the Walking Gallery By Regina Holliday
                                                                                       Follow Me



                                                                                                       15
                             Copyright 2013

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Why patients blog and don't tell their doctors

  • 1. 10 Reasons Why Patients Blog 5 Reasons Why They Don’t Tell Their Doctors By Shirley Williams 1 Copyright 2013 Image: Walking Gallery, Regina Holliday
  • 2. Based on my post Copyright 2013 2
  • 3. Research has shown ! Just over 40% of patient bloggers shared their patient blogs with a health care provider ! Most patient bloggers (90%) shared their writing with friends and family ! The patient panel at the Medicine 2.0 congress [2012] revealed why patients blog and why they did not share them with their doctor Copyright 2013 Image: owenwbrown 3
  • 4. Why Patients blog They have a story to tell Copyright 2013 Image: Walking Gallery, Regina Holliday 4
  • 5. Why Patients blog They need an outlet for expression Copyright 2013 5 Image: Walking Gallery, Regina Holliday
  • 6. Why Patients blog They need to regain a sense on inclusion and purpose They need to connect with others who may share the same experience Copyright 2013 Image: Walking Gallery, Regina Holliday 6
  • 7. Why Patients blog Patients need to describe their illness without scrutiny Patients find a sense of control in blogging Image: <<saigerowe>> Copyright 2013 7
  • 8. Why Patients blog A cry for help Blogging provides a way to manage their situation Copyright 2013 Image: Walking Gallery, Regina Holliday 8
  • 9. Why Patients blog Blogging provides support to both the blogger and reader Blogging provides a forum to be heard Copyright 2013 Image by Bill Bouton 9
  • 10. Why Patients don’t tell their doctors Patients did not want their writing discounted by clinicians Copyright 2013 Image: Walking Gallery, Regina Holliday 10
  • 11. Why Patients don’t tell their doctors Patients felt invisible to health care providers Image: DazT Copyright 2013 11
  • 12. Why Patients don’t tell their doctors Patients did not want to be shamed Copyright 2013 12
  • 13. Why Patients don’t tell their doctors Patients did not want their work minimized Copyright 2013 Photo by Nakeva 13
  • 14. Why Patients don’t tell their doctors Patients did not want their feelings and thoughts “clinicalized” Image by aussiegal Copyright 2013 14
  • 15. About Shirley Williams.! Shirley Williams has had a dynamic and assertive management career that has led to a reputation of a visionary, result-driven and passionate leader with excellent strategic implementation and motivational abilities.! Shirley has had 20+ years in the Pharmaceuticals, Healthcare and Information Technology. She has led Global Supply, Global Program Management, Operations Management, Research and Development. Thank You Shirley is the Chief Transformation Officer and owner at William Pearl and Social Media Pearls. Shirley consults in strategy, business transformation, www.williampearl.com team development and social media. Shirley also has her own Talk Radio www.socialmediapearls.com Show on Social Business Environment and Healthcare. ! ! Also check out the Walking Gallery By Regina Holliday Follow Me 15 Copyright 2013