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Achieving Health Equity
Framework and tools for quality

      Camara Phyllis Jones, MD, MPH, PhD
       Social Determinants of Health and Equity

                   Health Equity Grand Rounds
                        Mt. Sinai Hospital
                    Toronto, Ontario, Canada
                        February 7, 2012

    Office of Surveillance, Epidemiology, and Laboratory Services
    Epidemiology and Analysis Program Office
Achieving Health Equity
Framework and tools for quality


     The findings and conclusions in this presentation
                  are those of the author,

and do not necessarily represent the official position of the
     U.S. Centers for Disease Control and Prevention.




       Office of Surveillance, Epidemiology, and Laboratory Services
       Epidemiology and Analysis Program Office
Our agenda
   Levels of health intervention: A Cliff Analogy
   The impacts of racism on health
     Definition
     Levels of racism: A Gardener’s Tale
     Data
   Achieving health equity
Levels of health intervention
Addressing the                  Primary prevention
social determinants of health




                                Safety net programs and
                                secondary prevention




                                Medical care and
                                tertiary prevention
But how do disparities arise?
   Differences in the quality of care received within the
    health care system

   Differences in access to health care, including
    preventive and curative services

   Differences in life opportunities, exposures, and
    stresses that result in differences in underlying health
    status
Differences in




                                         Differences in access to care
                        exposures and
                        opportunities




Differences in quality of care
(ambulance slow or goes the wrong way)
Addressing the
social determinants of equity:

Why are there differences
in resources
along the cliff face?

Why are there differences
in who is found
at different parts of the cliff?
3 dimensions of health intervention
3 dimensions of health intervention

Health services
3 dimensions of health intervention

Health services

Addressing social determinants of health
3 dimensions of health intervention

Health services

Addressing social determinants of health

Addressing social determinants of equity




Source: Jones CP et al. J Health Care Poor Underserved 2009.
What is racism?
A system
What is racism?
A system of structuring opportunity and assigning
value
What is racism?
A system of structuring opportunity and assigning
value based on the social interpretation of how we look
(“race”)
What is racism?
A system of structuring opportunity and assigning
value based on the social interpretation of how we look
(“race”)

 Unfairly disadvantages some individuals and communities
What is racism?
A system of structuring opportunity and assigning
value based on the social interpretation of how we look
(“race”)

 Unfairly disadvantages some individuals and communities
 Unfairly advantages other individuals and communities
What is racism?
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (“race”)

        Unfairly disadvantages some individuals and communities
        Unfairly advantages other individuals and communities
        Saps the strength of the whole society through the waste of
         human resources




Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
Levels of Racism
    Institutionalized
    Personally-mediated
    Internalized




Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Institutionalized racism
   Differential access to the goods, services, and
    opportunities of society, by “race”

   Examples
       Housing, education, employment, income
       Medical facilities
       Clean environment
       Information, resources, voice


   Explains the association between social class and “race”
Personally-mediated racism
   Differential assumptions about the abilities, motives,
    and intents of others, by “race”
   Differential actions based on those assumptions

   Prejudice and discrimination
   Examples
       Police brutality
       Physician disrespect
       Shopkeeper vigilance
       Waiter indifference
       Teacher devaluation
Internalized racism
   Acceptance by the stigmatized “races” of negative
    messages about our own abilities and intrinsic worth

   Examples
     Self-devaluation
     White man’s ice is colder
     Resignation, helplessness, hopelessness


   Accepting limitations to our full humanity
Levels of Racism: A Gardener’s Tale


Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
Who is the gardener?


                Power to decide
                Power to act
                Control of resources


              Dangerous when
                Allied with one group
                Not concerned with equity
Measuring institutionalized racism
    Scan for evidence of “racial” disparities
        “Could racism be operating here?”
        Routinely monitor opportunities as well as outcomes by “race”


    Identify mechanisms
        “How is racism operating here?”
        Structures: the who?, what?, when?, and where?
         of decision-making
        Policies: the written how?
        Practices and norms: the unwritten how?
        Values: the why?

Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
“Reactions to Race” module
   Six-question optional module on the Behavioral Risk
    Factor Surveillance System since 2002

     “How do other people usually classify you in this country?”
     “How often do you think about your race?”
     Perceptions of differential treatment at work or when seeking
      health care
     Reports of physical symptoms or emotional upset as a result of
      “race”-based treatment
States using the “Reactions to Race” module
                         2002 to 2010 BRFSS




Arkansas, California, Colorado, Delaware, District of Columbia, Florida, Georgia, Indiana, Kentucky,
Massachusetts, Michigan, Mississippi, Nebraska, New Hampshire, New Mexico, North Carolina,
Ohio, Rhode Island, South Carolina, Tennessee, Vermont, Virginia, Washington, Wisconsin
States using the “Reactions to Race” module
Arkansas                           2004
California           2002
Colorado                           2004
Delaware             2002          2004   2005
District of Columbia               2004

Florida             2002
Georgia                                                                      2010
Indiana                                                               2009
Kentucky                                                                     2010
Massachusetts                                    2006

Michigan                                         2006
Mississippi                        2004
Nebraska                                                       2008   2009
New Hampshire       2002
New Mexico          2002

North Carolina      2002
Ohio                        2003          2005
Rhode Island                       2004                 2007                 2010
South Carolina              2003   2004
Tennessee                                 2005

Vermont                                                        2008
Virginia                                                       2008
Washington                         2004
Wisconsin                          2004   2005   2006
States using the “Reactions to Race” module
Arkansas                           2004
California           2002
Colorado                           2004
Delaware             2002          2004   2005
District of Columbia               2004

Florida             2002
Georgia                                                                      2010
Indiana                                                               2009
Kentucky                                                                     2010
Massachusetts                                    2006

Michigan                                         2006
Mississippi                        2004
Nebraska                                                       2008   2009
New Hampshire       2002
New Mexico          2002

North Carolina      2002
Ohio                        2003          2005
Rhode Island                       2004                 2007                 2010
South Carolina              2003   2004
Tennessee                                 2005

Vermont                                                        2008
Virginia                                                       2008
Washington                         2004
Wisconsin                          2004   2005   2006
Socially-assigned “race”
   How do other people usually classify you in this
    country? Would you say:

       White
       Black or African-American
       Hispanic or Latino
       Asian
       Native Hawaiian or Other Pacific Islander
       American Indian or Alaska Native
       Some other group
Socially-assigned “race”
    On-the-street “race” quickly and routinely assigned
     without benefit of queries about self-identification,
     ancestry, culture, or genetic endowment

    Ad hoc racial classification, an influential basis for
     interactions between individuals and institutions for
     centuries

    Substrate upon which racism operates


Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race”
to probe White advantages in health status. Ethn Dis 2008;18(4):496-504.
General health status
   Would you say that in general your health is:

       Excellent
       Very good
       Good
       Fair
       Poor
General health status by socially-assigned "race", 2004 BRFSS
                          100
                          80
percent of res pondents
                          60
                          40
                          20




                                58.3                  43.7                   41.2                 36.1
                          0




                                White                 Blac k                Hispanic              AIAN
                                                Report excellent or very good health
General health status by socially-assigned "race", 2004 BRFSS
                          100
                          80
percent of res pondents
                          60
                          40
                          20




                                58.3                  43.7                   41.2                 36.1
                          0




                                White                 Blac k                Hispanic              AIAN
                                                Report excellent or very good health
General health status by socially-assigned "race", 2004 BRFSS

                                                      Report fair or poor health
                          100


                                13.9                  21.5                     20.9               22.1
                          80
percent of res pondents
                          60
                          40
                          20




                                58.3                  43.7                     41.2               36.1
                          0




                                White                 Blac k                 Hispanic             AIAN
                                                Report excellent or very good health
General health status and “race”
   Being perceived as White is associated with better
    health
Self-identified ethnicity
   Are you Hispanic or Latino?

     Yes
     No
Self-identified “race”
   Which one or more of the following would you say is
    your race?

       White
       Black or African-American
       Asian
       Native Hawaiian or Other Pacific Islander
       American Indian or Alaska Native
       Other


   Which one of these groups would you say best
    represents your race?
Self-identified “race”/ethnicity
   Hispanic
     “Yes” to Hispanic/Latino ethnicity question
     Any response to race question
   White
     “No” to Hispanic/Latino ethnicity question
     Only one response to race question, “White”
   Black
     “No” to Hispanic/Latino ethnicity question
     Only one response to race question, “Black”
   American Indian/Alaska Native
     “No” to Hispanic/Latino ethnicity question
     Only one response to race question, “AI/AN”
Two measures of “race”
                              How usually classified by others
                             White    Black    Hispanic    AIAN   ...
                     White
                             98.4       0.1       0.3       0.1   1.1
How self-identify




                    26,373
                     Black
                              0.4      96.3       0.8       0.3   2.2
                     5,246
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
How self-identify




                     26,373
                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
How self-identify




                     26,373
                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
General health status, by self-identified and socially-assigned "race", 2004
                         100
                         80
percent of respondents
                         60




                                                                                                  58.6
                                                                         53.7



                                          39.8
                         40
                         20
                         0




                                    Hispanic-Hispanic               Hispanic-White             White-White
                                                        Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 Hispanic-Hispanic versus White-White
                                 p < 0.0001
percent of respondents
                         60




                                                                                                  58.6




                                          39.8
                         40
                         20
                         0




                                    Hispanic-Hispanic                                          White-White
                                                        Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 Hispanic-Hispanic versus Hispanic-White
                                 p = 0.0019
percent of respondents
                         60




                                                                         53.7



                                          39.8
                         40
                         20
                         0




                                    Hispanic-Hispanic               Hispanic-White
                                                        Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 Hispanic-White versus White-White
                                 p = 0.1895
percent of respondents
                         60




                                                                                                58.6
                                                                      53.7
                         40
                         20
                         0




                                                                 Hispanic-White              White-White
                                                   Report excellent or very good health
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
How self-identify




                     26,373
                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
                       AIAN
                               47.6       3.4       7.3      35.9   5.8
                        321
Two measures of “race”
                                How usually classified by others
                               White    Black    Hispanic    AIAN   ...
                      White
                               98.4       0.1       0.3       0.1   1.1
How self-identify




                     26,373
                      Black
                                0.4      96.3       0.8       0.3   2.2
                      5,246
                    Hispanic
                               26.8       3.5      63.0       1.2   5.5
                       1,528
                       AIAN
                               47.6       3.4       7.3      35.9   5.8
                        321
General health status, by self-identified and socially-assigned "race", 2004
                         100
                         80
percent of respondents
                         60




                                                                                                58.6
                                                                     52.6
                         40




                                           32
                         20
                         0




                                       AIAN-AIAN                  AIAN-White                 White-White
                                                   Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 AIAN-AIAN versus White-White
                                 p < 0.0001
percent of respondents
                         60




                                                                                                58.6
                         40




                                           32
                         20
                         0




                                       AIAN-AIAN                                             White-White
                                                   Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 AIAN-AIAN versus AIAN-White
                                 p = 0.0122
percent of respondents
                         60




                                                                      52.6
                         40




                                           32
                         20
                         0




                                       AIAN-AIAN                  AIAN-White
                                                   Report excellent or very good health
General health status, by self-identified and socially-assigned "race", 2004
                         100

                                 Test of H0: That there is no difference in proportions
                                 reporting excellent or very good health
                         80




                                 AIAN-White versus White-White
                                 p = 0.3070
percent of respondents
                         60




                                                                                                58.6
                                                                      52.6
                         40
                         20
                         0




                                                                  AIAN-White                 White-White
                                                   Report excellent or very good health
General health status and “race”
   Being perceived as White is associated with better
    health
     Even within non-White self-identified “race”/ethnic groups
General health status and “race”
   Being perceived as White is associated with better
    health
     Even within non-White self-identified “race”/ethnic groups
     Even within the same educational level
General health status and “race”
   Being perceived as White is associated with better
    health
     Even within non-White self-identified “race”/ethnic groups
     Even within the same educational level


   Being perceived as White is associated with higher
    education
Key questions
   Why is socially-assigned “race” associated with self-
    rated general health status?
     Even within non-White self-identified “race”/ethnic groups
     Even within the same educational level


   Why is socially-assigned “race” associated with
    educational level?
Racism
     A system of structuring opportunity and assigning
     value based on the social interpretation of how we look
     (“race”), which

        Unfairly disadvantages some individuals and communities
        Unfairly advantages other individuals and communities
        Saps the strength of the whole society through the waste of
         human resources



Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.

Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race” to probe
White advantages in health status. Ethn Dis 2008;18(4):496-504.
Could this be true in Canada?
   Colour Coded Health Care: The Impact of Race and
    Racism on Canadians’ Health
    Sheryl Nestel
    The Wellesley Institute
    http://www.wellesleyinstitute.com/wp-
    content/uploads/2012/02/Colour-Coded-Health-Care-Sheryl-
    Nestel.pdf


   Public launch this evening
    6:00 pm at The 519 Church Street Community Centre
    Free and open to the public
What is [inequity] ?
A system of structuring opportunity and assigning
value based on [fill in the blank]
What is [inequity] ?
A system of structuring opportunity and assigning
value based on [fill in the blank], which

 Unfairly disadvantages some individuals and communities
 Unfairly advantages other individuals and communities
 Saps the strength of the whole society through the waste of
  human resources
Many axes of inequity
   “Race”
   Gender
   Ethnicity
   Labor roles and social class markers
   Nationality, language, and legal status
   Sexual orientation
   Disability status
   Geography
   Religion

These are risk markers, not risk factors
Achieving health equity
    “Health equity” is assurance of the conditions for
     optimal health for all people

    Achieving health equity requires
        Valuing all individuals and populations equally
        Recognizing and rectifying historical and contemporary injustices
        Providing resources according to need


    Health disparities will be eliminated when health
     equity is achieved

Source: Jones CP 2010, adapted from the National Partnership for Action to End Health Disparities.
ICERD: International Convention on the
    Elimination of all forms of Racial Discrimination
   International anti-racism treaty adopted by the UN
    General Assembly in 1965
    http://www2.ohchr.org/english/law/cerd.htm


   Canada signed in 1966
   Canada ratified in 1970

   19th and 20th periodic report submitted by Canada to
    the UN Committee on the Elimination of Racial
    Discrimination (CERD) in 2011
    http://www2.ohchr.org/english/bodies/cerd/cerds80.htm
CERD Concluding Observations
   Canada on agenda for the 80th session of CERD
     Scheduled for discussion 22 and 23 February 2012


   9-page document (25 May 2007) available online
    http://www2.ohchr.org/english/bodies/cerd/cerds70.htm
   Concerns and recommendations include:
       Paucity of disaggregated data (para 11)
       Use of term “visible minorities” (para 13)
       Racial profiling for national security (para 14)
       Disproportionate use of force and incarceration (para 19)
       Violence against Aboriginal women (para 20)
       Dramatic inequality in living standards (para 21)
Our goal: To expand the conversation
Health services
Our goal: To expand the conversation
Health services




Social determinants
of health
Our goal: To expand the conversation
Health services




Social determinants
of health




Social determinants
of equity




Source: Jones CP et al. J Health Care Poor Underserved 2009.
Our tasks
   Put racism on the agenda
     Name racism as a force determining the other social determinants
      of health
     Routinely monitor for differential exposures and opportunities as
      well as outcomes by “race”
Our tasks
   Ask , “How is racism operating here?”
     Identify mechanisms in structures, policies, practices, norms, and
      values
     Attend to both what exists and what is lacking
Our tasks
   Organize and strategize to act
     Join in grassroots organizing around the conditions of people’s
      lives
     Identify the structural factors creating and perpetuating those
      conditions
     Link with similar efforts across the country and around the world
Camara Phyllis Jones, MD, MPH, PhD

1600 Clifton Road NE
Mailstop E-33
Atlanta, Georgia 30333

(404) 498-1128 phone
(404) 498-1111 fax
cdj9@cdc.gov
For more information please contact Centers for Disease Control and Prevention

1600 Clifton Road NE, Atlanta, GA 30333
Telephone, 1-800-CDC-INFO (232-4636)/TTY: 1-888-232-6348
E-mail: cdcinfo@cdc.gov     Web: www.cdc.gov

The findings and conclusions in this report are those of the authors and do not necessarily represent the official
position of the Centers for Disease Control and Prevention.




                   Office of Surveillance, Epidemiology, and Laboratory Services
                   Epidemiology and Analysis Program Office
Resources
   Colour Coded Health Care: The Impact of Race and
    Racism on Canadians’ Health
    Sheryl Nestel
    The Wellesley Institute
    http://www.wellesleyinstitute.com/wp-
    content/uploads/2012/02/Colour-Coded-Health-Care-Sheryl-
    Nestel.pdf
Resources
   Report of the Secretary’s Task Force on Black and
    Minority Health
    Margaret M. Heckler, Secretary
    U.S. Department of Health and Human Services
    http://collections.nlm.nih.gov/ext/heckler/8602912V1/PDF/86029
    12V1.pdf
Resources
   Unequal Treatment: Confronting Racial and Ethnic
    Disparities in Health Care
    Brian D. Smedley, Adrienne Y. Stith, Alan R. Nelson, Editors
    Committee on Understanding and Eliminating Racial and Ethnic
    Disparities in Health Care
    Institute of Medicine of the National Academies
    http://www.nap.edu/openbook.php?isbn=030908265X
Resources
   Race: The Power of an Illusion
    California Newsreel
    http://www.pbs.org/race
    http://newsreel.org/video/RACE-THE-POWER-OF-AN-ILLUSION


   Unnatural Causes: Is Inequality Making Us Sick?
    California Newsreel
    http://www.unnaturalcauses.org
Resources
   3rd World Conference Against Racism, Racial
    Discrimination, Xenophobia and Related Intolerance
    Convened by the United Nations in Durban, South Africa in 2001
    http://www.un.org/WCAR/


   RACE – Are We So Different?
    American Anthropological Association
    http://www.understandingrace.org/home.html
Resources
   World Conference on Social Determinants of Health
    Convened by the World Health Organization in Rio de Janeiro,
    Brasil in 2011
    http://www.who.int/sdhconference/en/


   Closing the gap in a generation: Health equity through
    action on the social determinants of health
    WHO Commission on Social Determinants of Health
    http://www.who.int/social_determinants/thecommission/finalrep
    ort/en/index.html
Resources
   International Convention on the Elimination of all
    forms of Racial Discrimination (ICERD)
    Adopted by the United Nations General Assembly in 1965
    http://www2.ohchr.org/english/law/cerd.htm


   Committee to Eliminate Racial Discrimination (CERD)
    Office of the United Nations High Commissioner for Human Rights
    http://www2.ohchr.org/english/bodies/cerd/
Resources
   The Gardener’s Tale podcast
    CityMatCH Health Equity and Social Justice Action Group
    http://www.citymatch.org/UR_tale.php
Camara Phyllis Jones, MD, MPH, PhD

1600 Clifton Road NE
Mailstop E-33
Atlanta, Georgia 30333

(404) 498-1128 phone
(404) 498-1111 fax
cdj9@cdc.gov
For more information please contact Centers for Disease Control and Prevention

1600 Clifton Road NE, Atlanta, GA 30333
Telephone, 1-800-CDC-INFO (232-4636)/TTY: 1-888-232-6348
E-mail: cdcinfo@cdc.gov     Web: www.cdc.gov

The findings and conclusions in this report are those of the authors and do not necessarily represent the official
position of the Centers for Disease Control and Prevention.




                   Office of Surveillance, Epidemiology, and Laboratory Services
                   Epidemiology and Analysis Program Office

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Achieving Health Equity: Framework and Tools for Quality

  • 1. Achieving Health Equity Framework and tools for quality Camara Phyllis Jones, MD, MPH, PhD Social Determinants of Health and Equity Health Equity Grand Rounds Mt. Sinai Hospital Toronto, Ontario, Canada February 7, 2012 Office of Surveillance, Epidemiology, and Laboratory Services Epidemiology and Analysis Program Office
  • 2. Achieving Health Equity Framework and tools for quality The findings and conclusions in this presentation are those of the author, and do not necessarily represent the official position of the U.S. Centers for Disease Control and Prevention. Office of Surveillance, Epidemiology, and Laboratory Services Epidemiology and Analysis Program Office
  • 3. Our agenda  Levels of health intervention: A Cliff Analogy  The impacts of racism on health  Definition  Levels of racism: A Gardener’s Tale  Data  Achieving health equity
  • 4. Levels of health intervention
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  • 17. Addressing the Primary prevention social determinants of health Safety net programs and secondary prevention Medical care and tertiary prevention
  • 18. But how do disparities arise?  Differences in the quality of care received within the health care system  Differences in access to health care, including preventive and curative services  Differences in life opportunities, exposures, and stresses that result in differences in underlying health status
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  • 26. Differences in Differences in access to care exposures and opportunities Differences in quality of care (ambulance slow or goes the wrong way)
  • 27. Addressing the social determinants of equity: Why are there differences in resources along the cliff face? Why are there differences in who is found at different parts of the cliff?
  • 28. 3 dimensions of health intervention
  • 29. 3 dimensions of health intervention Health services
  • 30. 3 dimensions of health intervention Health services Addressing social determinants of health
  • 31. 3 dimensions of health intervention Health services Addressing social determinants of health Addressing social determinants of equity Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 33. What is racism? A system of structuring opportunity and assigning value
  • 34. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (“race”)
  • 35. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (“race”)  Unfairly disadvantages some individuals and communities
  • 36. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (“race”)  Unfairly disadvantages some individuals and communities  Unfairly advantages other individuals and communities
  • 37. What is racism? A system of structuring opportunity and assigning value based on the social interpretation of how we look (“race”)  Unfairly disadvantages some individuals and communities  Unfairly advantages other individuals and communities  Saps the strength of the whole society through the waste of human resources Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 38. Levels of Racism  Institutionalized  Personally-mediated  Internalized Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 39. Institutionalized racism  Differential access to the goods, services, and opportunities of society, by “race”  Examples  Housing, education, employment, income  Medical facilities  Clean environment  Information, resources, voice  Explains the association between social class and “race”
  • 40. Personally-mediated racism  Differential assumptions about the abilities, motives, and intents of others, by “race”  Differential actions based on those assumptions  Prejudice and discrimination  Examples  Police brutality  Physician disrespect  Shopkeeper vigilance  Waiter indifference  Teacher devaluation
  • 41. Internalized racism  Acceptance by the stigmatized “races” of negative messages about our own abilities and intrinsic worth  Examples  Self-devaluation  White man’s ice is colder  Resignation, helplessness, hopelessness  Accepting limitations to our full humanity
  • 42. Levels of Racism: A Gardener’s Tale Source: Jones CP. Levels of Racism: A Theoretic Framework and a Gardener’s Tale. Am J Public Health 2000;90(8):1212-1215.
  • 43. Who is the gardener?  Power to decide  Power to act  Control of resources  Dangerous when  Allied with one group  Not concerned with equity
  • 44. Measuring institutionalized racism  Scan for evidence of “racial” disparities  “Could racism be operating here?”  Routinely monitor opportunities as well as outcomes by “race”  Identify mechanisms  “How is racism operating here?”  Structures: the who?, what?, when?, and where? of decision-making  Policies: the written how?  Practices and norms: the unwritten how?  Values: the why? Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22.
  • 45. “Reactions to Race” module  Six-question optional module on the Behavioral Risk Factor Surveillance System since 2002  “How do other people usually classify you in this country?”  “How often do you think about your race?”  Perceptions of differential treatment at work or when seeking health care  Reports of physical symptoms or emotional upset as a result of “race”-based treatment
  • 46. States using the “Reactions to Race” module 2002 to 2010 BRFSS Arkansas, California, Colorado, Delaware, District of Columbia, Florida, Georgia, Indiana, Kentucky, Massachusetts, Michigan, Mississippi, Nebraska, New Hampshire, New Mexico, North Carolina, Ohio, Rhode Island, South Carolina, Tennessee, Vermont, Virginia, Washington, Wisconsin
  • 47. States using the “Reactions to Race” module Arkansas 2004 California 2002 Colorado 2004 Delaware 2002 2004 2005 District of Columbia 2004 Florida 2002 Georgia 2010 Indiana 2009 Kentucky 2010 Massachusetts 2006 Michigan 2006 Mississippi 2004 Nebraska 2008 2009 New Hampshire 2002 New Mexico 2002 North Carolina 2002 Ohio 2003 2005 Rhode Island 2004 2007 2010 South Carolina 2003 2004 Tennessee 2005 Vermont 2008 Virginia 2008 Washington 2004 Wisconsin 2004 2005 2006
  • 48. States using the “Reactions to Race” module Arkansas 2004 California 2002 Colorado 2004 Delaware 2002 2004 2005 District of Columbia 2004 Florida 2002 Georgia 2010 Indiana 2009 Kentucky 2010 Massachusetts 2006 Michigan 2006 Mississippi 2004 Nebraska 2008 2009 New Hampshire 2002 New Mexico 2002 North Carolina 2002 Ohio 2003 2005 Rhode Island 2004 2007 2010 South Carolina 2003 2004 Tennessee 2005 Vermont 2008 Virginia 2008 Washington 2004 Wisconsin 2004 2005 2006
  • 49. Socially-assigned “race”  How do other people usually classify you in this country? Would you say:  White  Black or African-American  Hispanic or Latino  Asian  Native Hawaiian or Other Pacific Islander  American Indian or Alaska Native  Some other group
  • 50. Socially-assigned “race”  On-the-street “race” quickly and routinely assigned without benefit of queries about self-identification, ancestry, culture, or genetic endowment  Ad hoc racial classification, an influential basis for interactions between individuals and institutions for centuries  Substrate upon which racism operates Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race” to probe White advantages in health status. Ethn Dis 2008;18(4):496-504.
  • 51. General health status  Would you say that in general your health is:  Excellent  Very good  Good  Fair  Poor
  • 52. General health status by socially-assigned "race", 2004 BRFSS 100 80 percent of res pondents 60 40 20 58.3 43.7 41.2 36.1 0 White Blac k Hispanic AIAN Report excellent or very good health
  • 53. General health status by socially-assigned "race", 2004 BRFSS 100 80 percent of res pondents 60 40 20 58.3 43.7 41.2 36.1 0 White Blac k Hispanic AIAN Report excellent or very good health
  • 54. General health status by socially-assigned "race", 2004 BRFSS Report fair or poor health 100 13.9 21.5 20.9 22.1 80 percent of res pondents 60 40 20 58.3 43.7 41.2 36.1 0 White Blac k Hispanic AIAN Report excellent or very good health
  • 55. General health status and “race”  Being perceived as White is associated with better health
  • 56. Self-identified ethnicity  Are you Hispanic or Latino?  Yes  No
  • 57. Self-identified “race”  Which one or more of the following would you say is your race?  White  Black or African-American  Asian  Native Hawaiian or Other Pacific Islander  American Indian or Alaska Native  Other  Which one of these groups would you say best represents your race?
  • 58. Self-identified “race”/ethnicity  Hispanic  “Yes” to Hispanic/Latino ethnicity question  Any response to race question  White  “No” to Hispanic/Latino ethnicity question  Only one response to race question, “White”  Black  “No” to Hispanic/Latino ethnicity question  Only one response to race question, “Black”  American Indian/Alaska Native  “No” to Hispanic/Latino ethnicity question  Only one response to race question, “AI/AN”
  • 59. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 How self-identify 26,373 Black 0.4 96.3 0.8 0.3 2.2 5,246
  • 60. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 How self-identify 26,373 Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528
  • 61. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 How self-identify 26,373 Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528
  • 62. General health status, by self-identified and socially-assigned "race", 2004 100 80 percent of respondents 60 58.6 53.7 39.8 40 20 0 Hispanic-Hispanic Hispanic-White White-White Report excellent or very good health
  • 63. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 Hispanic-Hispanic versus White-White p < 0.0001 percent of respondents 60 58.6 39.8 40 20 0 Hispanic-Hispanic White-White Report excellent or very good health
  • 64. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 Hispanic-Hispanic versus Hispanic-White p = 0.0019 percent of respondents 60 53.7 39.8 40 20 0 Hispanic-Hispanic Hispanic-White Report excellent or very good health
  • 65. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 Hispanic-White versus White-White p = 0.1895 percent of respondents 60 58.6 53.7 40 20 0 Hispanic-White White-White Report excellent or very good health
  • 66. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 How self-identify 26,373 Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528 AIAN 47.6 3.4 7.3 35.9 5.8 321
  • 67. Two measures of “race” How usually classified by others White Black Hispanic AIAN ... White 98.4 0.1 0.3 0.1 1.1 How self-identify 26,373 Black 0.4 96.3 0.8 0.3 2.2 5,246 Hispanic 26.8 3.5 63.0 1.2 5.5 1,528 AIAN 47.6 3.4 7.3 35.9 5.8 321
  • 68. General health status, by self-identified and socially-assigned "race", 2004 100 80 percent of respondents 60 58.6 52.6 40 32 20 0 AIAN-AIAN AIAN-White White-White Report excellent or very good health
  • 69. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 AIAN-AIAN versus White-White p < 0.0001 percent of respondents 60 58.6 40 32 20 0 AIAN-AIAN White-White Report excellent or very good health
  • 70. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 AIAN-AIAN versus AIAN-White p = 0.0122 percent of respondents 60 52.6 40 32 20 0 AIAN-AIAN AIAN-White Report excellent or very good health
  • 71. General health status, by self-identified and socially-assigned "race", 2004 100 Test of H0: That there is no difference in proportions reporting excellent or very good health 80 AIAN-White versus White-White p = 0.3070 percent of respondents 60 58.6 52.6 40 20 0 AIAN-White White-White Report excellent or very good health
  • 72. General health status and “race”  Being perceived as White is associated with better health  Even within non-White self-identified “race”/ethnic groups
  • 73. General health status and “race”  Being perceived as White is associated with better health  Even within non-White self-identified “race”/ethnic groups  Even within the same educational level
  • 74. General health status and “race”  Being perceived as White is associated with better health  Even within non-White self-identified “race”/ethnic groups  Even within the same educational level  Being perceived as White is associated with higher education
  • 75. Key questions  Why is socially-assigned “race” associated with self- rated general health status?  Even within non-White self-identified “race”/ethnic groups  Even within the same educational level  Why is socially-assigned “race” associated with educational level?
  • 76. Racism A system of structuring opportunity and assigning value based on the social interpretation of how we look (“race”), which  Unfairly disadvantages some individuals and communities  Unfairly advantages other individuals and communities  Saps the strength of the whole society through the waste of human resources Source: Jones CP. Confronting Institutionalized Racism. Phylon 2003;50(1-2):7-22. Source: Jones CP, Truman BI, Elam-Evans LD, Jones CA, Jones CY, Jiles R, Rumisha SF, Perry GS. Using “socially assigned race” to probe White advantages in health status. Ethn Dis 2008;18(4):496-504.
  • 77. Could this be true in Canada?  Colour Coded Health Care: The Impact of Race and Racism on Canadians’ Health Sheryl Nestel The Wellesley Institute http://www.wellesleyinstitute.com/wp- content/uploads/2012/02/Colour-Coded-Health-Care-Sheryl- Nestel.pdf  Public launch this evening 6:00 pm at The 519 Church Street Community Centre Free and open to the public
  • 78. What is [inequity] ? A system of structuring opportunity and assigning value based on [fill in the blank]
  • 79. What is [inequity] ? A system of structuring opportunity and assigning value based on [fill in the blank], which  Unfairly disadvantages some individuals and communities  Unfairly advantages other individuals and communities  Saps the strength of the whole society through the waste of human resources
  • 80. Many axes of inequity  “Race”  Gender  Ethnicity  Labor roles and social class markers  Nationality, language, and legal status  Sexual orientation  Disability status  Geography  Religion These are risk markers, not risk factors
  • 81. Achieving health equity  “Health equity” is assurance of the conditions for optimal health for all people  Achieving health equity requires  Valuing all individuals and populations equally  Recognizing and rectifying historical and contemporary injustices  Providing resources according to need  Health disparities will be eliminated when health equity is achieved Source: Jones CP 2010, adapted from the National Partnership for Action to End Health Disparities.
  • 82. ICERD: International Convention on the Elimination of all forms of Racial Discrimination  International anti-racism treaty adopted by the UN General Assembly in 1965 http://www2.ohchr.org/english/law/cerd.htm  Canada signed in 1966  Canada ratified in 1970  19th and 20th periodic report submitted by Canada to the UN Committee on the Elimination of Racial Discrimination (CERD) in 2011 http://www2.ohchr.org/english/bodies/cerd/cerds80.htm
  • 83. CERD Concluding Observations  Canada on agenda for the 80th session of CERD  Scheduled for discussion 22 and 23 February 2012  9-page document (25 May 2007) available online http://www2.ohchr.org/english/bodies/cerd/cerds70.htm  Concerns and recommendations include:  Paucity of disaggregated data (para 11)  Use of term “visible minorities” (para 13)  Racial profiling for national security (para 14)  Disproportionate use of force and incarceration (para 19)  Violence against Aboriginal women (para 20)  Dramatic inequality in living standards (para 21)
  • 84. Our goal: To expand the conversation Health services
  • 85. Our goal: To expand the conversation Health services Social determinants of health
  • 86. Our goal: To expand the conversation Health services Social determinants of health Social determinants of equity Source: Jones CP et al. J Health Care Poor Underserved 2009.
  • 87. Our tasks  Put racism on the agenda  Name racism as a force determining the other social determinants of health  Routinely monitor for differential exposures and opportunities as well as outcomes by “race”
  • 88. Our tasks  Ask , “How is racism operating here?”  Identify mechanisms in structures, policies, practices, norms, and values  Attend to both what exists and what is lacking
  • 89. Our tasks  Organize and strategize to act  Join in grassroots organizing around the conditions of people’s lives  Identify the structural factors creating and perpetuating those conditions  Link with similar efforts across the country and around the world
  • 90. Camara Phyllis Jones, MD, MPH, PhD 1600 Clifton Road NE Mailstop E-33 Atlanta, Georgia 30333 (404) 498-1128 phone (404) 498-1111 fax cdj9@cdc.gov For more information please contact Centers for Disease Control and Prevention 1600 Clifton Road NE, Atlanta, GA 30333 Telephone, 1-800-CDC-INFO (232-4636)/TTY: 1-888-232-6348 E-mail: cdcinfo@cdc.gov Web: www.cdc.gov The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention. Office of Surveillance, Epidemiology, and Laboratory Services Epidemiology and Analysis Program Office
  • 91. Resources  Colour Coded Health Care: The Impact of Race and Racism on Canadians’ Health Sheryl Nestel The Wellesley Institute http://www.wellesleyinstitute.com/wp- content/uploads/2012/02/Colour-Coded-Health-Care-Sheryl- Nestel.pdf
  • 92. Resources  Report of the Secretary’s Task Force on Black and Minority Health Margaret M. Heckler, Secretary U.S. Department of Health and Human Services http://collections.nlm.nih.gov/ext/heckler/8602912V1/PDF/86029 12V1.pdf
  • 93. Resources  Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care Brian D. Smedley, Adrienne Y. Stith, Alan R. Nelson, Editors Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care Institute of Medicine of the National Academies http://www.nap.edu/openbook.php?isbn=030908265X
  • 94. Resources  Race: The Power of an Illusion California Newsreel http://www.pbs.org/race http://newsreel.org/video/RACE-THE-POWER-OF-AN-ILLUSION  Unnatural Causes: Is Inequality Making Us Sick? California Newsreel http://www.unnaturalcauses.org
  • 95. Resources  3rd World Conference Against Racism, Racial Discrimination, Xenophobia and Related Intolerance Convened by the United Nations in Durban, South Africa in 2001 http://www.un.org/WCAR/  RACE – Are We So Different? American Anthropological Association http://www.understandingrace.org/home.html
  • 96. Resources  World Conference on Social Determinants of Health Convened by the World Health Organization in Rio de Janeiro, Brasil in 2011 http://www.who.int/sdhconference/en/  Closing the gap in a generation: Health equity through action on the social determinants of health WHO Commission on Social Determinants of Health http://www.who.int/social_determinants/thecommission/finalrep ort/en/index.html
  • 97. Resources  International Convention on the Elimination of all forms of Racial Discrimination (ICERD) Adopted by the United Nations General Assembly in 1965 http://www2.ohchr.org/english/law/cerd.htm  Committee to Eliminate Racial Discrimination (CERD) Office of the United Nations High Commissioner for Human Rights http://www2.ohchr.org/english/bodies/cerd/
  • 98. Resources  The Gardener’s Tale podcast CityMatCH Health Equity and Social Justice Action Group http://www.citymatch.org/UR_tale.php
  • 99. Camara Phyllis Jones, MD, MPH, PhD 1600 Clifton Road NE Mailstop E-33 Atlanta, Georgia 30333 (404) 498-1128 phone (404) 498-1111 fax cdj9@cdc.gov For more information please contact Centers for Disease Control and Prevention 1600 Clifton Road NE, Atlanta, GA 30333 Telephone, 1-800-CDC-INFO (232-4636)/TTY: 1-888-232-6348 E-mail: cdcinfo@cdc.gov Web: www.cdc.gov The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention. Office of Surveillance, Epidemiology, and Laboratory Services Epidemiology and Analysis Program Office