Conference presentation by Claire Gill, National Osteoporosis Foundation, and Brian Loew of Inspire, on topic of online patient support communities and how nonprofit patient advocacy organizations are leveraging members to help further their mission. Gill and Loew discussed how pharma companies can connect effectively with nonprofit patient advocacy organizations.

1. Real World Takeaway Strategies
for Successful Partnerships
Claire Gill
NOF Senior Director of Marketing
Brian Loew
Inspire Chief Executive Officer

2. Presentation Overview
• Who we are
• What makes online communities unique
• When is the right time to partner
• Where to start
• Why it matters
• How to leverage effective partnerships

3. About NOF
• The National Osteoporosis Foundation (NOF) is
the leading health organization dedicated to
preventing osteoporosis and broken bones,
promoting strong bones for life and reducing
human suffering through programs of public and
clinician awareness, education, advocacy and
research.
• Established in 1984, NOF is the nation's only
health organization solely dedicated to
osteoporosis and bone health.

4. What is Osteoporosis?
54 million Americans are affected by osteoporosis and low bone mass

5. The Impact of Osteoporosis and Bone Breaks

6. The Impact of Osteoporosis and Bone Breaks

7. Inspire Overview
A social network, organized by
health condition, that connects
pharmaceutical companies with
patients and caregivers in a
safe, permission-based manner.
• 525,000* members (+12K/
month)
• 207 health communities
• 2,500,000 visits/month
• 105 patient advocacy partners
• 700,000 unique visitors/month
• 6,376,000 posts (+4K/day)
* As of Sept. 2014

8. Inspire Patient Advocacy Programs
• Exclusive relationships
with 100+ national patient
advocacy organizations.
• Patient advocacy
organizations provide
authority and trust and play
an important role in organic
search and growth of
members.

9. • For patients and caregivers
(members), Inspire offers a high
quality, health-focused, social network,
organized by disease area
• For patient advocacy partners,
Inspire offers a free, branded, online
community platform
• For pharmaceutical companies,
Inspire offers access to engage with
members for clinical trial, market
research, and/or marketing initiatives

10. Inspire & NOF

11. Inspire & NOF
• 2.5+ million page views/year
• 560,000+ unique visitors/year
• 19,000+ registered members
(organically growing at 500/
month)
• 3,400+ new discussions, replies,
and journal entries/month
• 16,000+ (84%) have opted in to
receive targeted offers
• 10,400+ (55%) receive a daily
email from Inspire

12. Community Engagement
• Advocacy
– Motivated, active audience
• Clinical Trials
– Self-identified classification within a
disease group
• Research
– Seeking information, want to be “in
the know”

14. Popular topics -- why members connect
• Treatment and medication
• Supplements and vitamins
• Postmenopausal issues
• Medication side effects
• Exercise & physical therapy
• Diet and nutrition
• Osteopenia
• Clinical trials and research
• Complementary & alternative
medicine

15. Case Study: Medicare Part D
POPVOX.com is an advocacy
platform that meshes legislative data
with personal stories and public
sentiment. Individuals can find
information about bills pending in
Congress and see what advocacy
groups, trade associations and other
issue organizations have to say on
the issues. They can then write a
more informed message to Congress,
which is deliver to the appropriate
Congressional office.

16. Mobilizing the Masses
• Within a Week:
– Dedicated page hosting online tool for
consumer feedback
– Eblasts to 70,000+ database
– Call to action in e-newsletter to 45,000+
– Activated Inspire online community
– Facebook, Twitter and LinkedIn updates

17. Widget on Website

18. Nationwide Response

19. NOF Community Response

20. Getting it Right
ü Planning
ü Details
ü Follow up

21. What’s At Stake
• The number of adults over the age of 50 with osteoporosis or low
bone mass will grow dramatically:
– 2010: 54 Million
– 2020: 64.4 Million
– 2030: 71.2 Million
• Medicare pays for about 80 percent of the broken bones that occur
due to osteoporosis, making it one of the top 10 illnesses of highest
cost to the Medicare system
• Approximately 10,000 Americans turn 65 every day; by 2030 1 in 5
Americans will be over 65

22. Human Impact
• Worldwide a fragility fracture occurs every 3 seconds.
• The number of osteoporotic fractures annually currently
exceeds the incidence of heart attack, stroke and breast
cancer combined.
• Twenty percent of hip fracture patients die within the first
year.

23. Building Effective Partnerships
1. Start early
2. Align with common goals
3. Secure leadership approval
4. Be transparent
5. Stay connected

24. Contact Us
Claire Gill
Senior Director of Marketing
claire.gill@nof.org
Brian Loew
Chief Executive Officer
brian@inspire.com