2. --Only 200,000 or so patients in the USA
--typical patient is a woman, in 30'/40's but
younger patients all the time.
--Usually the disease starts in one limb but
typically spreads to other areas in about 75-80% of
patients
3.
4. --Only 8-10% of patients have it "full body or
"Systemic"
-- YOU can have this disease in any part of
your body…ANY!!
-- RSD/CRPS is known as the most painful
form of chronic pain known that exists today!
***Suicides are far less today than they
were ten years ago, when this was called the
"SUICIDE DISEASE"!!
--Chronic Pain is called the "INVISIBLE
DISABILITY!!
5. RSD/CRPS aka "Reflex Sympathetic
Dystrophy/"Complex Regional Pain Syndrome"
What Can Loved Ones Do?
**Listen, Love, Learn and *BELIEVE
What Can a Patient Do?
**EDUCATE themselves !!!!!!
YOU ARE THE CHIEF MEDICAL OFFICER OF
YOUR OWN BODY!!!!
9. HOW CAN I HELP????:
• SPREAD AWARENESS
• GET INVOLVED
• BE AWARE & CARE
• EDUCATE YOURSELF
• BE UNDERSTANDING OF
SOMETHING THAT YOU
CANNOT ALWAYS SEE!!!
• DONATIONS OR Question's
• YOU CAN GO TO:
• RSDHOPE.ORG….OR
• RSDS.ORG **KNOWN
AS:
REFLEX SYMPATHETIC DYSTROPHY
ASSOCIATION OF AMERICA
10. SUICIDE CRISIS INFORMATION:
**IF YOU OR A LOVED ONE ARE IN CRISIS
---PLEASE CALL 1-800-SUICIDE(800-784-2433)
----HOPE LINE OR THE NTL. SUICIDE PREVENTION
LIFELINE….800-273-TALK (8255) – (888-628-9454 *en
ESPANOL)