This presentation was delivered as part of the inaugural meeting of the NIHR Manchester Clinical Research Facility Young Person’s Advisory Group, to provide young people with some context about how young people have become involved in research, and the important role that they play in shaping research, care and treatment for the future.

1. Your VOICE, Your story,
your life: You Matter
Simon Stones
@SimonRStones

2. 2,730,000People living in Greater Manchester
New Economy Greater Manchester Key Facts (2016)

3. “YOU’RE NEVER
TOO YOUNG TO
CHANGE THE
WORLD”

6. YOUR RHEUM
A Manchester-based group
with a national reach,
enabling young people to
influence paediatric and
adolescent rheumatology
research.
A group for 11 to 24
year olds across the
UK with diagnosed
rheumatic
conditions to advise,
input and shape
current adolescent
and young adult
rheumatology
research.

7. GENERATIONR
Five groups of young people across the
UK (Bristol, Birmingham, Liverpool,
London and Nottingham) working with
researchers on a variety of different
projects.
“We contribute to future research…”
“We make new friends and build confidence”
“We extend our knowledge and skills”
“We have a voice and make a difference…”

9. The NIHR-funded TRECA
study has developed
multimedia information
(MMI) resources with
text, animations, videos
and diagrams to inform
children, adolescents
and parents about
clinical trials.

10. “No matter what
people tell you,
words and ideas
can change the
world.”