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Medicaid Waivers:
Legal Framework & Litigation
Leonardo Cuello
March 21, 2018
About NHeLP
• National non-profit committed to improving health care
access and quality for low income and underserved
individuals and families
• State & local partners:
• Disability rights advocates – 50 states + DC
• Poverty & legal aid advocates – 50 states + DC
• Join our mailing list at
www.healthlaw.org
• Follow us on Social Media
@nhelp_org on Twitter &
@NHeLProgram on Facebook
Overview
• Key context
• Legal framework to § 1115
• Litigation & advocacy
• Concluding theme
3
Things Have Gotten Much Worse
1. Worse waivers are being requested
and approved…
2. With no new expansions…
3. And targeting traditional Medicaid
populations
4
5
Kentucky Waivers Impacts
1. Premiums Terminations
2. Lockout: Premiums Lockouts
3. Lockout: Redetermination Lockouts
4. Lockout: Reporting changes Lockouts
5. Enrollment Waiting Period Less Coverage
6. No Retroactive Coverage Less Coverage
7. Work Requirements Terminations
8. No Transportation Less Services
§ 1115 Statutory Language Excerpt
Sec. 1115. [42 U.S.C. § 1315]
In the case of any experimental, pilot, or
demonstration project which, in the judgment of
the Secretary, is likely to assist in promoting the
objectives of [Medicaid] … the Secretary may
waive compliance with any of the requirements of
section … 1902 … to the extent and for the period
he finds necessary to enable such State … to
carry out such project…
6
KEEP
CALM
AND
READ THE
STATUTE
Key Legal Limits of § 1115 Statute
1. § 1115 project must be an experiment
7
• Congress:
 Test out a unique approach
 Detailed research methodology and
comprehensive evaluation
• Courts:
 A simple benefit cut, which might save
money, but has no research or
experimental goal, would not satisfy this
requirement.
Key Legal Limits of § 1115 Statute
Key Legal Limits of § 1115 Statute
1. § 1115 project must be a “demonstration”
2. Must promote the “objectives of” Medicaid
9
The “Objectives” of Medicaid
Sec. 1901. [42 U.S.C. 1396-1]
APPROPRIATION
For the purpose of enabling each State … to furnish
(1) medical assistance on behalf of families with
dependent children and of aged, blind, or disabled
individuals, whose income and resources are
insufficient to meet the costs of necessary medical
services, and (2) rehabilitation and other services
to help such families and individuals attain or retain
capability for independence or self-care…
10
TANF: Stark Contrast
42 U.S. Code § 601
Purpose
(a) IN GENERAL The purpose of this part is to increase the
flexibility of States in operating a program designed to—
(1) provide assistance to needy families so that children may be
cared for in their own homes or in the homes of relatives;
(2) end the dependence of needy parents on government benefits
by promoting job preparation, work, and marriage;
(3) prevent and reduce the incidence of out-of-wedlock
pregnancies and establish annual numerical goals for preventing
and reducing the incidence of these pregnancies; and
(4) encourage the formation and maintenance of two-parent
families.
11
New Medicaid Objectives Criteria
+ “…promote upward mobility…”
+ “…promote responsible decision-making…”
+ “…[align with] commercial health insurance…”
- “Increase and strengthen overall coverage of
low-income individuals in the state.”
12
Key Legal Limits of § 1115 Statute
3. Only items in one section (§ 1902) can be
waived
4. Can only waive to “extent and for the period”
necessary to carry out experiment
5. Must comply with transparency requirements
 § 1916(f) sets strict requirements for any waivers
of cost-sharing rules
 Historically, HHS has applied a non-statutory
“budget neutrality” test to § 1115 projects
13
§ 1115 Application & Review Process -
Comments & Hearings (42 CFR 431.420)
State Level
• Notice & “comprehensive
description” of demonstration
• Min. 30 day comment period
• At least 2 public hearings
• Summary & response to
public comments, including
any changes made
Federal Level
• 15 days to determine
completeness
• Min. 30 day comment period
• CMS approval/denial no sooner
than 15 days after comments
close
• Usually negotiations last longer
Kentucky Litigation Overview
• Class action with 15 plaintiffs
• Filed against HHS, CMS, and leadership
• Filed in U.S. District Court, DC
• Co-counsel: Kentucky Equal Justice
Center, Southern Poverty Law Center
• Additional help from law firm Jenner & Block
• Asking the court to (1) declare waivers
illegal and (2) enjoin the waivers
15
Kentucky Litigation: Legal Claims
1. Constitutional: “Take Care Clause”
• The Executive branch can implement
Congress’s laws, but not re-write the law
2. Federal Law: Administrative Procedure Act
• Federal agency actions cannot be “arbitrary,
capricious, an abuse of discretion, or otherwise
not in accordance with law”
• Multiple claims: One for each waiver and one
for the work requirements guidance
16
Going Forward
• Litigation is just one piece of a larger campaign
that is needed to stop bad waivers & protect the
integrity of the Medicaid program
17
• Each state will be
a separate case
• Litigation will not
be a “one and
done” solution
Key Theme: What Makes Medicaid
• Congress wrote, and for 50+ years has
expanded upon, a Medicaid statute chock
full of extraordinary standards protecting
low income people
• These standards are not a part of other
health insurance systems
• These standards are federal minimums
applying to all states
18
New CMS § 1115 Criteria
19
Washington DC Office Los Angeles Office North Carolina Office
1444 I Street NW, Suite 1105
Washington, DC 20005
ph: (202) 289-7661
fx: (202) 289-7724
nhelpdc@healthlaw.org
3701 Wilshire Blvd, Suite #750
Los Angeles, CA 90010
ph: (310) 204-6010
fx: (213) 368-0774
nhelp@healthlaw.org
101 East Weaver Street, Suite G-7
Carrboro, NC 27510
ph: (919) 968-6308
fx: (919) 968-8855
nhelpnc@healthlaw.org
www.healthlaw.org
Thank You

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  • 1. Medicaid Waivers: Legal Framework & Litigation Leonardo Cuello March 21, 2018
  • 2. About NHeLP • National non-profit committed to improving health care access and quality for low income and underserved individuals and families • State & local partners: • Disability rights advocates – 50 states + DC • Poverty & legal aid advocates – 50 states + DC • Join our mailing list at www.healthlaw.org • Follow us on Social Media @nhelp_org on Twitter & @NHeLProgram on Facebook
  • 3. Overview • Key context • Legal framework to § 1115 • Litigation & advocacy • Concluding theme 3
  • 4. Things Have Gotten Much Worse 1. Worse waivers are being requested and approved… 2. With no new expansions… 3. And targeting traditional Medicaid populations 4
  • 5. 5 Kentucky Waivers Impacts 1. Premiums Terminations 2. Lockout: Premiums Lockouts 3. Lockout: Redetermination Lockouts 4. Lockout: Reporting changes Lockouts 5. Enrollment Waiting Period Less Coverage 6. No Retroactive Coverage Less Coverage 7. Work Requirements Terminations 8. No Transportation Less Services
  • 6. § 1115 Statutory Language Excerpt Sec. 1115. [42 U.S.C. § 1315] In the case of any experimental, pilot, or demonstration project which, in the judgment of the Secretary, is likely to assist in promoting the objectives of [Medicaid] … the Secretary may waive compliance with any of the requirements of section … 1902 … to the extent and for the period he finds necessary to enable such State … to carry out such project… 6 KEEP CALM AND READ THE STATUTE
  • 7. Key Legal Limits of § 1115 Statute 1. § 1115 project must be an experiment 7
  • 8. • Congress:  Test out a unique approach  Detailed research methodology and comprehensive evaluation • Courts:  A simple benefit cut, which might save money, but has no research or experimental goal, would not satisfy this requirement. Key Legal Limits of § 1115 Statute
  • 9. Key Legal Limits of § 1115 Statute 1. § 1115 project must be a “demonstration” 2. Must promote the “objectives of” Medicaid 9
  • 10. The “Objectives” of Medicaid Sec. 1901. [42 U.S.C. 1396-1] APPROPRIATION For the purpose of enabling each State … to furnish (1) medical assistance on behalf of families with dependent children and of aged, blind, or disabled individuals, whose income and resources are insufficient to meet the costs of necessary medical services, and (2) rehabilitation and other services to help such families and individuals attain or retain capability for independence or self-care… 10
  • 11. TANF: Stark Contrast 42 U.S. Code § 601 Purpose (a) IN GENERAL The purpose of this part is to increase the flexibility of States in operating a program designed to— (1) provide assistance to needy families so that children may be cared for in their own homes or in the homes of relatives; (2) end the dependence of needy parents on government benefits by promoting job preparation, work, and marriage; (3) prevent and reduce the incidence of out-of-wedlock pregnancies and establish annual numerical goals for preventing and reducing the incidence of these pregnancies; and (4) encourage the formation and maintenance of two-parent families. 11
  • 12. New Medicaid Objectives Criteria + “…promote upward mobility…” + “…promote responsible decision-making…” + “…[align with] commercial health insurance…” - “Increase and strengthen overall coverage of low-income individuals in the state.” 12
  • 13. Key Legal Limits of § 1115 Statute 3. Only items in one section (§ 1902) can be waived 4. Can only waive to “extent and for the period” necessary to carry out experiment 5. Must comply with transparency requirements  § 1916(f) sets strict requirements for any waivers of cost-sharing rules  Historically, HHS has applied a non-statutory “budget neutrality” test to § 1115 projects 13
  • 14. § 1115 Application & Review Process - Comments & Hearings (42 CFR 431.420) State Level • Notice & “comprehensive description” of demonstration • Min. 30 day comment period • At least 2 public hearings • Summary & response to public comments, including any changes made Federal Level • 15 days to determine completeness • Min. 30 day comment period • CMS approval/denial no sooner than 15 days after comments close • Usually negotiations last longer
  • 15. Kentucky Litigation Overview • Class action with 15 plaintiffs • Filed against HHS, CMS, and leadership • Filed in U.S. District Court, DC • Co-counsel: Kentucky Equal Justice Center, Southern Poverty Law Center • Additional help from law firm Jenner & Block • Asking the court to (1) declare waivers illegal and (2) enjoin the waivers 15
  • 16. Kentucky Litigation: Legal Claims 1. Constitutional: “Take Care Clause” • The Executive branch can implement Congress’s laws, but not re-write the law 2. Federal Law: Administrative Procedure Act • Federal agency actions cannot be “arbitrary, capricious, an abuse of discretion, or otherwise not in accordance with law” • Multiple claims: One for each waiver and one for the work requirements guidance 16
  • 17. Going Forward • Litigation is just one piece of a larger campaign that is needed to stop bad waivers & protect the integrity of the Medicaid program 17 • Each state will be a separate case • Litigation will not be a “one and done” solution
  • 18. Key Theme: What Makes Medicaid • Congress wrote, and for 50+ years has expanded upon, a Medicaid statute chock full of extraordinary standards protecting low income people • These standards are not a part of other health insurance systems • These standards are federal minimums applying to all states 18
  • 19. New CMS § 1115 Criteria 19
  • 20. Washington DC Office Los Angeles Office North Carolina Office 1444 I Street NW, Suite 1105 Washington, DC 20005 ph: (202) 289-7661 fx: (202) 289-7724 nhelpdc@healthlaw.org 3701 Wilshire Blvd, Suite #750 Los Angeles, CA 90010 ph: (310) 204-6010 fx: (213) 368-0774 nhelp@healthlaw.org 101 East Weaver Street, Suite G-7 Carrboro, NC 27510 ph: (919) 968-6308 fx: (919) 968-8855 nhelpnc@healthlaw.org www.healthlaw.org Thank You