Inside the World of Pediatric Healthcare Advocacy

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This presentation discusses pediatric advocacy issues and the patient-centered medical home.

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[object Object],Finances and education – short or long term issue Finances and education – long term issue Caregiver needs – immediate, unanticipated requirements Caregiver needs – better-known, long term plan Advocacy Skills – learned as you go but stressful Advocacy Skills – mastered by child and parents Family Support – Immediate and inexperienced participants Family Support – Long term systems needed Treatment decisions – often urgent under duress Treatment Decisions – gradual, change over time Learning about the illness or diagnosis – FAST, stressful Learning about the condition – ongoing and in depth Provider Team - FAST Provider Team – Long term relationship Acute Illness Chronic Condition

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