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Raising a Child with a
                 Chronic Illness



By Sheri C.
Turner
Which of the following is an actual law
 that protects the rights of your child

Plan 504

IDEA

ADA

All of the Above


                        Provided by JDRF and ADA
Know Your Rights!




Provided by JDRF and ADA
Allow Yourself and Your Family to
               Grieve

A diagnosis of any type of chronic illness results in a loss of some
kind – a loss of the original dreams you had for your child, a loss of
security in their health and long life.You have to allow yourself time
to acknowledge the loss, grieve for it and then MOVE FORWARD
                                                   Music by Rascal Flatts, used for
                                                   educational purposes only.
       Click Here
Now You’re Ready To Advocate!


 Once you have moved into the acceptance stage you may find
 advocacy to be a great outlet for you and your child. Get involved in
 fund raising events, find out what type of camps are offered to your
 child, join websites and foundations.
What’s Wrong With Your Kid?


Ahhh, the words guaranteed to produce an almost
immediate reaction of anger. Don’t let it! Your reaction, or
lack of it, can help change the way people treat kids with
a chronic illness!
I know someone who has that and
         they don’t…….
Ahhh, the ever present mass of people who know nothing
about your situation or the illness that has moved smack
into the middle of your family; but they know what it is
best or they always know someone who has the same thing
and they handle it better.
This is sometimes easier said than done; the trick is going
to be the support system you have in place. Connect with
other families who are living with the same illness;
develop friendships that you trust when you need to vent
or need advice that really applies to you.
Rolling On The Floor Laughing!!

 As odd as it may sound, one of the most important things you
can do for your child is find humor in a situation you would not
     ordinarily consider funny. After all, this is no ordinary
                       situation…..right?!
 The next few slides will use the example of Diabetes Humor –
all of the remarks, scenarios and quotes are taken directly from
                          my own family.
An 11 Year Olds
Definition of Diabetes




 You know you’re the parent of diabetic
 child when you ask her how her day at
 school was and she responds with a
 number.
Gotta Add A Little Seuss
     Finding an inspirational source to help you find humor can come
   from most anywhere. Like this example of a Seuss-like poem – It’s a
     humorous look how the mom of a diabetic handles her daughter’s
      hamster nipping her finger and causing a little drop of blood…..



       When my hamster nips, Mom gets a strip
     She tells me not to trip, if I do I’ll drop the drip
              Then I test and that’s not a jest
                  But now I’m on a quest
        I’m searching here, I’m searching there
                I’m searching everywhere
           At last! My gloves are lost no more
              Now my fingers won’t get sore
        When my hamster nips, don't get a strip
      No test, no jest and I think you know the rest


Graphic courtesy of
Suessville.com
Empower Your Child
Celebrate! – Excuse Me –
                              Celebrate?
            Nope, you understood me. Celebrate, not the illness or the
            disease but the grace and strength with which your child
              faces his or her monster: their monster is their illness.

            It is very important that children understand that we see
          their struggles and we admire the way they tackle them head
                                        on.




Graphic courtesy of
juvenilediabetic.com
Words of Inspiration


    Let me leave you with an audio reading from one of the
    most inspirational stories ever put to print. Oh, The Places
    You’ll Go by Dr. Seuss. The story was the last ever written
    by Dr. Seuss and contains a message that applies to many
    but especially to children with a chronic illness and their
    parents.




Graphic courtesy of
Suessville.com
References
American Diabetes Association , 2009. Legal Information. Retrieved
June, 2009 from http://www.ada.org

Animated Factory.com (2009). Royalty Free Website. Graphics.
  Retrieved June, 2009 from: http://www.animationfactory.com/en/

Dr. Seuss, (1990). Oh, The Places You’ll Go. New York: Random
   House.

Juvenile Diabetes Research Foundation, 2009. Legal Information.
   retrieved June, 2009 from http://www.jdrf.org

Junk Science.com (2009). Graphics. Retrieved June, 2009 from
   http://wwwjunkscience.com website.
References

Pyzam.com, (2009). Graphics. Retrieved June, 2009 from:
  http://www.pyzam.com

Rascal Flatts (2007). Stand. Music Single, Me and My
  Gang Album. Daly, Blair, Orton, Danny (Writers)

Suessville, (2009). Graphics. Retrieved June, 2009 from
  http://www.suessville.com

Zwani.com, (2009). Graphics. Retrieved June, 2009 from:
  http://www.zwani.com
Click to
                      Return




Graphic courtesy of
junkscience.com
Click Here




Graphic courtesy of junkscience.com

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Raising A Child With A Chronic Illness

  • 1. Raising a Child with a Chronic Illness By Sheri C. Turner
  • 2. Which of the following is an actual law that protects the rights of your child Plan 504 IDEA ADA All of the Above Provided by JDRF and ADA
  • 3. Know Your Rights! Provided by JDRF and ADA
  • 4. Allow Yourself and Your Family to Grieve A diagnosis of any type of chronic illness results in a loss of some kind – a loss of the original dreams you had for your child, a loss of security in their health and long life.You have to allow yourself time to acknowledge the loss, grieve for it and then MOVE FORWARD Music by Rascal Flatts, used for educational purposes only. Click Here
  • 5. Now You’re Ready To Advocate! Once you have moved into the acceptance stage you may find advocacy to be a great outlet for you and your child. Get involved in fund raising events, find out what type of camps are offered to your child, join websites and foundations.
  • 6. What’s Wrong With Your Kid? Ahhh, the words guaranteed to produce an almost immediate reaction of anger. Don’t let it! Your reaction, or lack of it, can help change the way people treat kids with a chronic illness!
  • 7. I know someone who has that and they don’t……. Ahhh, the ever present mass of people who know nothing about your situation or the illness that has moved smack into the middle of your family; but they know what it is best or they always know someone who has the same thing and they handle it better.
  • 8. This is sometimes easier said than done; the trick is going to be the support system you have in place. Connect with other families who are living with the same illness; develop friendships that you trust when you need to vent or need advice that really applies to you.
  • 9. Rolling On The Floor Laughing!! As odd as it may sound, one of the most important things you can do for your child is find humor in a situation you would not ordinarily consider funny. After all, this is no ordinary situation…..right?! The next few slides will use the example of Diabetes Humor – all of the remarks, scenarios and quotes are taken directly from my own family.
  • 10. An 11 Year Olds Definition of Diabetes You know you’re the parent of diabetic child when you ask her how her day at school was and she responds with a number.
  • 11. Gotta Add A Little Seuss Finding an inspirational source to help you find humor can come from most anywhere. Like this example of a Seuss-like poem – It’s a humorous look how the mom of a diabetic handles her daughter’s hamster nipping her finger and causing a little drop of blood….. When my hamster nips, Mom gets a strip She tells me not to trip, if I do I’ll drop the drip Then I test and that’s not a jest But now I’m on a quest I’m searching here, I’m searching there I’m searching everywhere At last! My gloves are lost no more Now my fingers won’t get sore When my hamster nips, don't get a strip No test, no jest and I think you know the rest Graphic courtesy of Suessville.com
  • 13. Celebrate! – Excuse Me – Celebrate? Nope, you understood me. Celebrate, not the illness or the disease but the grace and strength with which your child faces his or her monster: their monster is their illness. It is very important that children understand that we see their struggles and we admire the way they tackle them head on. Graphic courtesy of juvenilediabetic.com
  • 14. Words of Inspiration Let me leave you with an audio reading from one of the most inspirational stories ever put to print. Oh, The Places You’ll Go by Dr. Seuss. The story was the last ever written by Dr. Seuss and contains a message that applies to many but especially to children with a chronic illness and their parents. Graphic courtesy of Suessville.com
  • 15. References American Diabetes Association , 2009. Legal Information. Retrieved June, 2009 from http://www.ada.org Animated Factory.com (2009). Royalty Free Website. Graphics. Retrieved June, 2009 from: http://www.animationfactory.com/en/ Dr. Seuss, (1990). Oh, The Places You’ll Go. New York: Random House. Juvenile Diabetes Research Foundation, 2009. Legal Information. retrieved June, 2009 from http://www.jdrf.org Junk Science.com (2009). Graphics. Retrieved June, 2009 from http://wwwjunkscience.com website.
  • 16. References Pyzam.com, (2009). Graphics. Retrieved June, 2009 from: http://www.pyzam.com Rascal Flatts (2007). Stand. Music Single, Me and My Gang Album. Daly, Blair, Orton, Danny (Writers) Suessville, (2009). Graphics. Retrieved June, 2009 from http://www.suessville.com Zwani.com, (2009). Graphics. Retrieved June, 2009 from: http://www.zwani.com
  • 17. Click to Return Graphic courtesy of junkscience.com
  • 18. Click Here Graphic courtesy of junkscience.com