Be Your Own Patient Advocate (Really!)
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A deck built for a women's event in Richmond VA. It exhorts people, particularly women, to be their own patient advocates. Don't be a meat puppet!
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Be Your Own Patient Advocate (Really!)
- 1. Women + Healthcare This presentation was built for HCA Virginia's Spirit of Women Girls' Day Out on Oct. 7, 2011 (the message works for ALL women!)
- 2. ... 'cause you'll do the best job. Really. Be Your Own Patient Advocate
- 3. Patients
- 4. Patients
- 5. Customers
- 6. Without Patients Customers A doctor's just another dude (or dude-ette) in a white coat.
- 7. We are ALL patients customers
- 8. Who makes 80%+ of all household decisions? I'll give you three guesses. 1st two don't count...
- 9. Health care = SHOPPING?
- 10. Act like a CUSTOMER, get treated like one.
- 11. Ask friends. Ask colleagues. Use the web.
- 12. If you're not comfortable with the healthcare shopping metaphor ...
- 14. HIRE your doctors! No. I'm NOT kidding.
- 15. Healthcare is ... Collaboration Teamwork Research Project management Data management A WORKING RELATIONSHIP!
- 16. Data, data, who's got my data? If doctors and patients could freely exchange information and data, who knows what might happen?
- 17. Doctors + Patients X Data Sharing = REAL Health Care Reform
- 18. Alphabet soup is an issue HIPAA HIE FHITSOP HITRUST HITECH BHIE CCHIT E-I-E-I-O
- 19. So what's a grrl to do? Know your history Know your risk factors Keep your own records
- 21. Personal History Smoking Weight Activity level Stress level Geographic location (this is MUCH bigger than you'd expect) Geographic history (where did you grow up? where have you lived?)
- 22. Record Keeping Excel spreadsheets are AWESOME tools RIP Google Health: build your own on Mozy.com or Box.net If your provider has an online patient portal: USE IT
- 23. "Airplane Rules" Take care of YOURSELF first Monitor your habits: what can you change? You are what you eat
- 25. "My doctor won't play" Two words: YOU'RE FIRED.
- 26. Digital Patients Bill of Rights Shared access to my data Attitude of collaboration and mutual respect The patient is the largest stakeholder Transparency and authenticity across all areas Voice of the patient is a legitimate (clinical) source The right to efficient communication with providers who utilize the technology that we need ~Philadelphia PA, September 19, 2011 (I was there!)
- 27. Let's review: Ask questions Work to understand the answers If you don't understand, keep asking Don't be a diva, but do be fierce on your own behalf Keep your own records Ask for copies of everything Don't be a meat-puppet Stay INSIDE the car YOU healthcare system
- 28. Resources e-Patients movement: e-patients.net WEGO Health: WEGOhealth.com Health Central: HealthCentral.com Dept. of Health + Human Services: Health.gov Condition-related pages: Cancer.gov/.org Diabetes.org [name-that-disease].org
- 29. Our Bodies, Ourselves? YOUR body. YOUR self. YOUR responsibility.