Lilly's Patient Centric Engagement Overview

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Tom Krohn, Business Lead for the Lilly Clinical Open Innovation Team, gave this presentation at the Patients at the Center of Clinical Research Workshop on Nov. 14, 2013. In it, he discusses ways in which patients can become collaborators in drug development

Gesundheit & Medizin Business

Patient-at-the-Center
of Clinical Trials Workshop
Lilly’s Patient Centric Engagement Overview

14 November 2013
Tom Krohn

Company Confidential
Copyright © 2013 Eli Lilly and Company

What if patients…
• were viewed as collaborators in drug development, not
sources of data?
• considered of clinical studies as part of their healthcare
treatment options?
• could bring their own data and in real-time determine if
they were a match for study eligibility?
• could explore what it was like to be in a study, BEFORE
they visited the site?
• received study information in a form that was easy to
understand – in THEIR context?
• were viewed as the real heroes of clinical research?

Today’s environment
Patients
• Have choice
• Are becoming empowered
• Are knowledgeable about their disease
• Have unmet needs
• Often view clinical trials as last resort
• Are willing to engage in research, but often do know how
Sponsors (Lilly)
• Is committed to innovation
• Is targeting unmet needs and therapeutic areas with innovation
• Thinks, processes and communicates through a scientific perspective
• Primarily reaches patients through investigator sites

Lilly’s Patient-Centric Engagement Strategy
•
•
•
•
•
•

Voice of patient in development
Patient-centric communication
Enabling marketplace for trial matching
Targeted/Tailored Therapeutics
Patient simulation of study for deep understanding
Patient Experience – before, during and after study

Patient-Centric Communication & Design Input

1
Study Representation
PatientCentric
Design

Ct.Gov

Informed Consent
Document

Open

Study Design

2

Patients
Patient
Voice

Platform

Enabling marketplace for trial matching
Study Sponsors

Patient &
Communities
Patient Study
“Target Profiles”

Open
Open
Web
REST
API

Daily
Updates

Patients
Platform

Match
Process

Consent
to
Match

Personal Electronic
Medical Records

api.lillycoi.com
April 2014 POC

Targeted/Tailored Therapeutics

phenotype

biomarkers
Personalized

genome

Medicine

quantified self

Patient Experience

Informed Consent

Streamlined visits

Study mobile app

Continuity of care

Breakout Group Themes

•
•
•
•

Understanding clinical trials (pre-trial)
Joining a clinical trial (consent)
Support while in a CT
CT Integration into patient lifestyle

• Other?

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