SlideShare ist ein Scribd-Unternehmen logo
1 von 53
Noah’s Journey Born July 27 th , 2008 5lbs 13oz Noah’s Journey
[object Object]
We soon realized Noah’s health was not what we thought. At 6wks he started projectile vomiting & after 3wks of testing he was placed on a predigested formula. This helped the vomiting but he would still randomly vomit with no known illness.
He developed a kidney infection at 4 months old. He was then tested for kidney reflux & also had an ultrasound to make sure his kidneys were properly developed. All tests were normal.  Noah was placed on high dose antibiotics.
Other than your occasional cold & ear infections Noah seemed to be doing much better. He always had a smile on his face!
Before we knew it he was turning one!  Wow how fast time passes!
We took Noah on his 1 st  trip to the ocean! He had lots of fun but developed a nasty cyst on his gum.  By the end of the week we were ready to get him home to the dentist!
Once we got home things changed.  Noah began spacing out & moving his hands in front of his face.  The first time I saw him do this I was overwhelmed with this horrible feeling that there was something seriously wrong with my little bug. I videoed his new behavior & took him to the pediatrician.  She thought this might be seizures & wanted to do an EEG & MRI. She scheduled the tests & an appointment with a pediatric neurologist.  That day in the office was the day that Noah’s journey began.
Noah had a 30 minute sleep deprived EEG.  His arms were wrapped tight in a blanket to help restrain him.  He screamed & cried until he finally feel asleep.  We were terrified! We had never seen Noah so scared.  Little did we know this was just the beginning.
He then had a MRI of the brain. He was sedated for the MRI.
[object Object]
[object Object]
[object Object]
[object Object]
[object Object]
[object Object]
[object Object]
He was such a trooper!
His head was so itchy from the glue!
The Playroom made everything better!
Today was the day for his CT Scan.  He had to get an IV to be sedated.  Took forever to get the IV.  Once they got it he was sedated & had a reaction to the sedation.  Was out of it for almost 10 hours!  Very scary!
[object Object]
[object Object]
[object Object]
[object Object]
Noah woke up one day from his nap & after taking a couple steps he clasped to the floor screaming in pain.  I took him to the pediatrician who ordered an x-ray of his hip & knee.  Again the tests showed nothing!  What was happening to my son?  Everyone looked at me as if I was crazy & no one could give me answers!
[object Object]
[object Object]
[object Object]
[object Object]
[object Object]
[object Object],Noah waiting patiently!
[object Object]
[object Object]
On September 22, 2010 our lives were forever changed. I did something I never thought I could do.  I laid my son on the operating table & watched as they sedated him. I was then taken out of the operating room.  Thank God for the nurse who held me tightly in her arms & walked me very quickly down the hall.  For the first time it hit me what was really happening & there was nothing I could do to stop it!  This fear no one should every have to feel.
We sat in the waiting room with our family by our side.  Time stood still.  Finally they called & said we are starting the surgery.  I didn’t want to know when it started just when it was over.  2 ½ hours later they called & the neurosurgeon said everything went well.  He said “Noah should have a much happier brain.”  Ah this was music to my ears!  We finally get to see our little bug!
We went to the PICU & after seeing Noah we quickly realized he was having issues.  He had an allergic reaction to the anesthesia & had developed strider causing him to stop breathing.  We were terrified!  He was repositioned all night to help him breath.
The second day we thought would be better but Noah had developed to much acid in his blood & again he was struggling to breath. On top of the breathing difficulties Noah was alert & in lots of pain. He started vomiting mid day. His blood pressure spiked to 188/120 & he began running a low grade fever. I actually thought to myself “what did we let them do to our son!”
By the third day he was feeling some better & we were ready to take him home.  He did his physical therapy but was still having problems walking. He had difficulty walking for almost 2 weeks after surgery.
Noah was released to go home!  We were so happy but dreading the 3 hour trip home.  They gave him a big dose of pain meds & he did great.  He was so happy to be home & really hungry. This was Noah’s new smile.  It really hurt to turn his head.
After being home 2 days I noticed Noah wouldn’t eat & he started vomiting again. I called his neurosurgeon & he said to take him to his pediatrician.  Noah had developed chemical meningitis & was put on high dose steroids for the next week. 6 days post op
After a couple of weeks Noah started getting sick again.  He didn’t eat all day & that night he started vomiting.  We called the neurosurgeon & he told us to take him to the ER.  He was running a low grade temp & had vomited for the an hour & a half.  They did blood work & his blood count was elevated.  They then decided to transport him to Duke by the critical care life flight ambulance. They arrived at 4am. Only one person could ride up front in the ambulance so Nathan followed us down.
After arriving at the hospital Noah had a spinal tap & a CT Scan.  The spinal tap was done to rule out bacterial meningitis & hydrocephalus.  The CT scan was done to rule out pockets of CSF. Because of Noah's reaction to anesthesia after surgery he was required to have the tests without sedation.  He was given a medication to help him forget.  It took me, Nathan, & 2 nurses to hold him down while they did the spinal tap.  Thank God for Nathans strength because I didn’t know if we could do this & for the meds to help Noah forget that horrible day!
All of Noah’s   tests were negative. He had developed chemical meningitis for the second time!  We were sent home with another round of steroids & prayed for him to recover this time!
The steroids worked & within a few days he was feeling much better.  He was finally recovering from his surgery! 9 days post op
He was feeling so much better!  Within a month he was starting to get back to himself! 4 wks post op
Noah was scheduled for a repeat MRI 8 weeks after his surgery.  He was again sedated but this time had his cousin with him which made him feel much better!
The before & after MRIs proves how much better Noah is doing!  Its amazing! Before After
Each day Noah is getting better!
And Better!
Noah is 4 months post op & we are amazed at how well he is doing.  All of the symptoms before surgery have improved dramatically.  He is now enjoying each day of his life!  His bad days are few & far between.  Each day we see an improvement in Noah.  We are praying that he will one day be free of all of his symptoms.  For now we will thank God for the improvements that we see with Noah.
Noah’s Journey has taught me to never give up!  To always follow my heart!
Noah, the day that I held you in my arms for the first time I never dreamed that you would have to go through so much.  You are the most amazing little boy I have ever met.  Your courage, bravery, and strength amazes me.  My promise to you: I will never stop holding your hand.  I will always be here for you & I will never give up on my fight to help you become 100 percent better!  I love you my little bug!

Weitere ähnliche Inhalte

Andere mochten auch

Desiderata
DesiderataDesiderata
Desiderata
Haley
 

Andere mochten auch (9)

12 Inspirational Quotes from the Talented Maya Angelou
12 Inspirational Quotes from the Talented Maya Angelou12 Inspirational Quotes from the Talented Maya Angelou
12 Inspirational Quotes from the Talented Maya Angelou
 
Seen the movie marvel
Seen the movie   marvelSeen the movie   marvel
Seen the movie marvel
 
Inspirational Geography
Inspirational GeographyInspirational Geography
Inspirational Geography
 
Desiderata
DesiderataDesiderata
Desiderata
 
Today Only
Today OnlyToday Only
Today Only
 
Inspirational Tweets for the Soul - Chapter Six
Inspirational Tweets for the Soul - Chapter SixInspirational Tweets for the Soul - Chapter Six
Inspirational Tweets for the Soul - Chapter Six
 
Mighty man and the tiny Ant
Mighty man and the tiny AntMighty man and the tiny Ant
Mighty man and the tiny Ant
 
In The Noah's Ark
In The Noah's ArkIn The Noah's Ark
In The Noah's Ark
 
Noah’s ark
Noah’s arkNoah’s ark
Noah’s ark
 

Ähnlich wie Noah’s journey

Joshua's story
Joshua's story Joshua's story
Joshua's story
ATuteur
 
Joshua's story -_dr_amy2_-_2011
Joshua's story -_dr_amy2_-_2011Joshua's story -_dr_amy2_-_2011
Joshua's story -_dr_amy2_-_2011
ATuteur
 
A letter to josh
A letter to joshA letter to josh
A letter to josh
steph0599
 
Pathophysiology Across The Lifespan Week 9 Discussion.docx
Pathophysiology Across The Lifespan Week 9 Discussion.docxPathophysiology Across The Lifespan Week 9 Discussion.docx
Pathophysiology Across The Lifespan Week 9 Discussion.docx
sdfghj21
 
Nephrectomy journal
Nephrectomy journalNephrectomy journal
Nephrectomy journal
Simon Balfre
 
Portfolio Powerpoint
Portfolio PowerpointPortfolio Powerpoint
Portfolio Powerpoint
Kayla Clark
 
The journey for our little Koumentis family
The journey for our little Koumentis familyThe journey for our little Koumentis family
The journey for our little Koumentis family
Bre Koumentis
 
Leighs Disease Power Point
Leighs Disease Power PointLeighs Disease Power Point
Leighs Disease Power Point
dayle1994
 
Sleep and pain 2011
Sleep and pain 2011Sleep and pain 2011
Sleep and pain 2011
drgominak
 
Case#1A 24-year-old male graduate student without prior medical .docx
Case#1A 24-year-old male graduate student without prior medical .docxCase#1A 24-year-old male graduate student without prior medical .docx
Case#1A 24-year-old male graduate student without prior medical .docx
troutmanboris
 
Dq 1 week 5 Nursing homework help.docx
Dq 1 week 5 Nursing homework help.docxDq 1 week 5 Nursing homework help.docx
Dq 1 week 5 Nursing homework help.docx
write31
 

Ähnlich wie Noah’s journey (20)

Joshua's story
Joshua's story Joshua's story
Joshua's story
 
Joshua's story -_dr_amy2_-_2011
Joshua's story -_dr_amy2_-_2011Joshua's story -_dr_amy2_-_2011
Joshua's story -_dr_amy2_-_2011
 
A letter to josh
A letter to joshA letter to josh
A letter to josh
 
A letter to josh
A letter to joshA letter to josh
A letter to josh
 
Pathophysiology Across The Lifespan Week 9 Discussion.docx
Pathophysiology Across The Lifespan Week 9 Discussion.docxPathophysiology Across The Lifespan Week 9 Discussion.docx
Pathophysiology Across The Lifespan Week 9 Discussion.docx
 
Nephrectomy journal
Nephrectomy journalNephrectomy journal
Nephrectomy journal
 
200846599 case-study
200846599 case-study200846599 case-study
200846599 case-study
 
A baffling case
A baffling caseA baffling case
A baffling case
 
Portfolio Powerpoint
Portfolio PowerpointPortfolio Powerpoint
Portfolio Powerpoint
 
Mn 551 unit 9 dq 1.docx
Mn 551 unit 9 dq 1.docxMn 551 unit 9 dq 1.docx
Mn 551 unit 9 dq 1.docx
 
The journey for our little Koumentis family
The journey for our little Koumentis familyThe journey for our little Koumentis family
The journey for our little Koumentis family
 
PNES/functional neurology CME AKUH Nairobi 12th January 2015
PNES/functional neurology CME AKUH Nairobi 12th January 2015PNES/functional neurology CME AKUH Nairobi 12th January 2015
PNES/functional neurology CME AKUH Nairobi 12th January 2015
 
Leighs Disease Power Point
Leighs Disease Power PointLeighs Disease Power Point
Leighs Disease Power Point
 
Sleep and pain 2011
Sleep and pain 2011Sleep and pain 2011
Sleep and pain 2011
 
Case#1A 24-year-old male graduate student without prior medical .docx
Case#1A 24-year-old male graduate student without prior medical .docxCase#1A 24-year-old male graduate student without prior medical .docx
Case#1A 24-year-old male graduate student without prior medical .docx
 
Case ii – neurology
Case ii – neurologyCase ii – neurology
Case ii – neurology
 
Pain and Depression
Pain and DepressionPain and Depression
Pain and Depression
 
When the faith rubber meets the road mile 3
When the faith rubber meets the road   mile 3When the faith rubber meets the road   mile 3
When the faith rubber meets the road mile 3
 
Dq 1 week 5 Nursing homework help.docx
Dq 1 week 5 Nursing homework help.docxDq 1 week 5 Nursing homework help.docx
Dq 1 week 5 Nursing homework help.docx
 
Angelman syndrome
Angelman syndromeAngelman syndrome
Angelman syndrome
 

Kürzlich hochgeladen

Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)
Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)
Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)
Business Bay Call Girls || 0529877582 || Call Girls Service in Business Bay Dubai
 
architect Hassan Khalil portfolio Year 2024
architect Hassan Khalil portfolio  Year 2024architect Hassan Khalil portfolio  Year 2024
architect Hassan Khalil portfolio Year 2024
hassan khalil
 
FULL NIGHT — 9999894380 Call Girls In Mahipalpur | Delhi
FULL NIGHT — 9999894380 Call Girls In Mahipalpur | DelhiFULL NIGHT — 9999894380 Call Girls In Mahipalpur | Delhi
FULL NIGHT — 9999894380 Call Girls In Mahipalpur | Delhi
SaketCallGirlsCallUs
 
FULL NIGHT — 9999894380 Call Girls In Ashok Vihar | Delhi
FULL NIGHT — 9999894380 Call Girls In Ashok Vihar | DelhiFULL NIGHT — 9999894380 Call Girls In Ashok Vihar | Delhi
FULL NIGHT — 9999894380 Call Girls In Ashok Vihar | Delhi
SaketCallGirlsCallUs
 
Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)
Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)
Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)
Business Bay Call Girls || 0529877582 || Call Girls Service in Business Bay Dubai
 
Van Gogh Powerpoint for art lesson today
Van Gogh Powerpoint for art lesson todayVan Gogh Powerpoint for art lesson today
Van Gogh Powerpoint for art lesson today
lucygibson17
 
❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...
❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...
❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...
Sheetaleventcompany
 
UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)
UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)
UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)
Business Bay Call Girls || 0529877582 || Call Girls Service in Business Bay Dubai
 
FULL NIGHT — 9999894380 Call Girls In Delhi Cantt | Delhi
FULL NIGHT — 9999894380 Call Girls In Delhi Cantt | DelhiFULL NIGHT — 9999894380 Call Girls In Delhi Cantt | Delhi
FULL NIGHT — 9999894380 Call Girls In Delhi Cantt | Delhi
SaketCallGirlsCallUs
 
FULL NIGHT — 9999894380 Call Girls In Patel Nagar | Delhi
FULL NIGHT — 9999894380 Call Girls In Patel Nagar | DelhiFULL NIGHT — 9999894380 Call Girls In Patel Nagar | Delhi
FULL NIGHT — 9999894380 Call Girls In Patel Nagar | Delhi
SaketCallGirlsCallUs
 
FULL NIGHT — 9999894380 Call Girls In Dwarka Mor | Delhi
FULL NIGHT — 9999894380 Call Girls In Dwarka Mor | DelhiFULL NIGHT — 9999894380 Call Girls In Dwarka Mor | Delhi
FULL NIGHT — 9999894380 Call Girls In Dwarka Mor | Delhi
SaketCallGirlsCallUs
 
Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...
Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...
Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...
Business Bay Call Girls || 0529877582 || Call Girls Service in Business Bay Dubai
 
Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...
Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...
Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...
Business Bay Call Girls || 0529877582 || Call Girls Service in Business Bay Dubai
 

Kürzlich hochgeladen (20)

Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)
Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)
Dubai Call Girls Service # +971588046679 # Call Girls Service In Dubai # (UAE)
 
architect Hassan Khalil portfolio Year 2024
architect Hassan Khalil portfolio  Year 2024architect Hassan Khalil portfolio  Year 2024
architect Hassan Khalil portfolio Year 2024
 
8377087607, Door Step Call Girls In Kalkaji (Locanto) 24/7 Available
8377087607, Door Step Call Girls In Kalkaji (Locanto) 24/7 Available8377087607, Door Step Call Girls In Kalkaji (Locanto) 24/7 Available
8377087607, Door Step Call Girls In Kalkaji (Locanto) 24/7 Available
 
FULL NIGHT — 9999894380 Call Girls In Mahipalpur | Delhi
FULL NIGHT — 9999894380 Call Girls In Mahipalpur | DelhiFULL NIGHT — 9999894380 Call Girls In Mahipalpur | Delhi
FULL NIGHT — 9999894380 Call Girls In Mahipalpur | Delhi
 
FULL NIGHT — 9999894380 Call Girls In Ashok Vihar | Delhi
FULL NIGHT — 9999894380 Call Girls In Ashok Vihar | DelhiFULL NIGHT — 9999894380 Call Girls In Ashok Vihar | Delhi
FULL NIGHT — 9999894380 Call Girls In Ashok Vihar | Delhi
 
AaliyahBell_themist_v01.pdf .
AaliyahBell_themist_v01.pdf             .AaliyahBell_themist_v01.pdf             .
AaliyahBell_themist_v01.pdf .
 
Call Girls Ludhiana Just Call 98765-12871 Top Class Call Girl Service Available
Call Girls Ludhiana Just Call 98765-12871 Top Class Call Girl Service AvailableCall Girls Ludhiana Just Call 98765-12871 Top Class Call Girl Service Available
Call Girls Ludhiana Just Call 98765-12871 Top Class Call Girl Service Available
 
Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)
Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)
Dubai Call Girl Number # 0522916705 # Call Girl Number In Dubai # (UAE)
 
Hire 💕 8617370543 Mumbai Suburban Call Girls Service Call Girls Agency
Hire 💕 8617370543 Mumbai Suburban Call Girls Service Call Girls AgencyHire 💕 8617370543 Mumbai Suburban Call Girls Service Call Girls Agency
Hire 💕 8617370543 Mumbai Suburban Call Girls Service Call Girls Agency
 
Van Gogh Powerpoint for art lesson today
Van Gogh Powerpoint for art lesson todayVan Gogh Powerpoint for art lesson today
Van Gogh Powerpoint for art lesson today
 
❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...
❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...
❤️Call girls in Chandigarh ☎️8264406502☎️ Call Girl service in Chandigarh☎️ C...
 
UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)
UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)
UAE Call Girls # 971526940039 # Independent Call Girls In Dubai # (UAE)
 
FULL NIGHT — 9999894380 Call Girls In Delhi Cantt | Delhi
FULL NIGHT — 9999894380 Call Girls In Delhi Cantt | DelhiFULL NIGHT — 9999894380 Call Girls In Delhi Cantt | Delhi
FULL NIGHT — 9999894380 Call Girls In Delhi Cantt | Delhi
 
FULL NIGHT — 9999894380 Call Girls In Patel Nagar | Delhi
FULL NIGHT — 9999894380 Call Girls In Patel Nagar | DelhiFULL NIGHT — 9999894380 Call Girls In Patel Nagar | Delhi
FULL NIGHT — 9999894380 Call Girls In Patel Nagar | Delhi
 
FULL NIGHT — 9999894380 Call Girls In Dwarka Mor | Delhi
FULL NIGHT — 9999894380 Call Girls In Dwarka Mor | DelhiFULL NIGHT — 9999894380 Call Girls In Dwarka Mor | Delhi
FULL NIGHT — 9999894380 Call Girls In Dwarka Mor | Delhi
 
Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...
Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...
Pakistani Bur Dubai Call Girls # +971528960100 # Pakistani Call Girls In Bur ...
 
THE ARTS OF THE PHILIPPINE BALLET PRESN
THE ARTS OF  THE PHILIPPINE BALLET PRESNTHE ARTS OF  THE PHILIPPINE BALLET PRESN
THE ARTS OF THE PHILIPPINE BALLET PRESN
 
Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...
Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...
Pakistani Dubai Call Girls # 971528960100 # Pakistani Call Girls In Dubai # (...
 
❤Personal Whatsapp Srinagar Srinagar Call Girls 8617697112 💦✅.
❤Personal Whatsapp Srinagar Srinagar Call Girls 8617697112 💦✅.❤Personal Whatsapp Srinagar Srinagar Call Girls 8617697112 💦✅.
❤Personal Whatsapp Srinagar Srinagar Call Girls 8617697112 💦✅.
 
sources of Hindu law kdaenflkjwwfererger
sources of Hindu law kdaenflkjwwferergersources of Hindu law kdaenflkjwwfererger
sources of Hindu law kdaenflkjwwfererger
 

Noah’s journey

  • 1. Noah’s Journey Born July 27 th , 2008 5lbs 13oz Noah’s Journey
  • 2.
  • 3. We soon realized Noah’s health was not what we thought. At 6wks he started projectile vomiting & after 3wks of testing he was placed on a predigested formula. This helped the vomiting but he would still randomly vomit with no known illness.
  • 4. He developed a kidney infection at 4 months old. He was then tested for kidney reflux & also had an ultrasound to make sure his kidneys were properly developed. All tests were normal. Noah was placed on high dose antibiotics.
  • 5. Other than your occasional cold & ear infections Noah seemed to be doing much better. He always had a smile on his face!
  • 6. Before we knew it he was turning one! Wow how fast time passes!
  • 7. We took Noah on his 1 st trip to the ocean! He had lots of fun but developed a nasty cyst on his gum. By the end of the week we were ready to get him home to the dentist!
  • 8. Once we got home things changed. Noah began spacing out & moving his hands in front of his face. The first time I saw him do this I was overwhelmed with this horrible feeling that there was something seriously wrong with my little bug. I videoed his new behavior & took him to the pediatrician. She thought this might be seizures & wanted to do an EEG & MRI. She scheduled the tests & an appointment with a pediatric neurologist. That day in the office was the day that Noah’s journey began.
  • 9. Noah had a 30 minute sleep deprived EEG. His arms were wrapped tight in a blanket to help restrain him. He screamed & cried until he finally feel asleep. We were terrified! We had never seen Noah so scared. Little did we know this was just the beginning.
  • 10. He then had a MRI of the brain. He was sedated for the MRI.
  • 11.
  • 12.
  • 13.
  • 14.
  • 15.
  • 16.
  • 17.
  • 18. He was such a trooper!
  • 19. His head was so itchy from the glue!
  • 20. The Playroom made everything better!
  • 21. Today was the day for his CT Scan. He had to get an IV to be sedated. Took forever to get the IV. Once they got it he was sedated & had a reaction to the sedation. Was out of it for almost 10 hours! Very scary!
  • 22.
  • 23.
  • 24.
  • 25.
  • 26. Noah woke up one day from his nap & after taking a couple steps he clasped to the floor screaming in pain. I took him to the pediatrician who ordered an x-ray of his hip & knee. Again the tests showed nothing! What was happening to my son? Everyone looked at me as if I was crazy & no one could give me answers!
  • 27.
  • 28.
  • 29.
  • 30.
  • 31.
  • 32.
  • 33.
  • 34.
  • 35. On September 22, 2010 our lives were forever changed. I did something I never thought I could do. I laid my son on the operating table & watched as they sedated him. I was then taken out of the operating room. Thank God for the nurse who held me tightly in her arms & walked me very quickly down the hall. For the first time it hit me what was really happening & there was nothing I could do to stop it! This fear no one should every have to feel.
  • 36. We sat in the waiting room with our family by our side. Time stood still. Finally they called & said we are starting the surgery. I didn’t want to know when it started just when it was over. 2 ½ hours later they called & the neurosurgeon said everything went well. He said “Noah should have a much happier brain.” Ah this was music to my ears! We finally get to see our little bug!
  • 37. We went to the PICU & after seeing Noah we quickly realized he was having issues. He had an allergic reaction to the anesthesia & had developed strider causing him to stop breathing. We were terrified! He was repositioned all night to help him breath.
  • 38. The second day we thought would be better but Noah had developed to much acid in his blood & again he was struggling to breath. On top of the breathing difficulties Noah was alert & in lots of pain. He started vomiting mid day. His blood pressure spiked to 188/120 & he began running a low grade fever. I actually thought to myself “what did we let them do to our son!”
  • 39. By the third day he was feeling some better & we were ready to take him home. He did his physical therapy but was still having problems walking. He had difficulty walking for almost 2 weeks after surgery.
  • 40. Noah was released to go home! We were so happy but dreading the 3 hour trip home. They gave him a big dose of pain meds & he did great. He was so happy to be home & really hungry. This was Noah’s new smile. It really hurt to turn his head.
  • 41. After being home 2 days I noticed Noah wouldn’t eat & he started vomiting again. I called his neurosurgeon & he said to take him to his pediatrician. Noah had developed chemical meningitis & was put on high dose steroids for the next week. 6 days post op
  • 42. After a couple of weeks Noah started getting sick again. He didn’t eat all day & that night he started vomiting. We called the neurosurgeon & he told us to take him to the ER. He was running a low grade temp & had vomited for the an hour & a half. They did blood work & his blood count was elevated. They then decided to transport him to Duke by the critical care life flight ambulance. They arrived at 4am. Only one person could ride up front in the ambulance so Nathan followed us down.
  • 43. After arriving at the hospital Noah had a spinal tap & a CT Scan. The spinal tap was done to rule out bacterial meningitis & hydrocephalus. The CT scan was done to rule out pockets of CSF. Because of Noah's reaction to anesthesia after surgery he was required to have the tests without sedation. He was given a medication to help him forget. It took me, Nathan, & 2 nurses to hold him down while they did the spinal tap. Thank God for Nathans strength because I didn’t know if we could do this & for the meds to help Noah forget that horrible day!
  • 44. All of Noah’s tests were negative. He had developed chemical meningitis for the second time! We were sent home with another round of steroids & prayed for him to recover this time!
  • 45. The steroids worked & within a few days he was feeling much better. He was finally recovering from his surgery! 9 days post op
  • 46. He was feeling so much better! Within a month he was starting to get back to himself! 4 wks post op
  • 47. Noah was scheduled for a repeat MRI 8 weeks after his surgery. He was again sedated but this time had his cousin with him which made him feel much better!
  • 48. The before & after MRIs proves how much better Noah is doing! Its amazing! Before After
  • 49. Each day Noah is getting better!
  • 51. Noah is 4 months post op & we are amazed at how well he is doing. All of the symptoms before surgery have improved dramatically. He is now enjoying each day of his life! His bad days are few & far between. Each day we see an improvement in Noah. We are praying that he will one day be free of all of his symptoms. For now we will thank God for the improvements that we see with Noah.
  • 52. Noah’s Journey has taught me to never give up! To always follow my heart!
  • 53. Noah, the day that I held you in my arms for the first time I never dreamed that you would have to go through so much. You are the most amazing little boy I have ever met. Your courage, bravery, and strength amazes me. My promise to you: I will never stop holding your hand. I will always be here for you & I will never give up on my fight to help you become 100 percent better! I love you my little bug!