A presentation and workshop held in New Zealand in Nov 16 - exploring the notion that Self Directed Support is for all.

1. Self
Directed
Support for
All
Kate Fulton

2. •Explore Self Directed Support
internationally
•Demonstrate how Self Directed Support
can be beneficial to all Citizens
•Consider elements that help
Self Directed Support for All2
Today

3. The world according to me – Kate Fulton

4. • Self-directed support is about people being in
control of the support they need to live the life they
choose.
In Control 2011
4
What is Self Directed Support?

5. Individual funding has been growing for
50 years

6. Many different words, many models

7. A significant shift in thinking
•What are your needs?
•How do you want your life to be and
what is going to work?

8. Our Jenny
• Jenny’s own home
• Team that shared our vision (not a
Providers vision)
• Exploration of what a good life
could look like
• Flexibility in approach and use of
budget
• Within budget and we could bank
money to reward and recognise
the team

9. Supporting Citizenship
• You are the expert
of your life
• You are in control of
your life and your
supports
• Your life is part of a
community of
friends and family
• Resources need to
be transparent and
best used for you

10. Institution Care Citizenship
The context of Human Services

11. Service Land

12. Work
Colleagues
Money
Home
Neighbours
Pets
Friends
Hobbies
Parties
Being ME!
Love
Marriage
College
Special Bus
Special
Swimming
Special College
Courses
Special homes
Special
Schools
Day Centres

13. Service Land
• The systems offer can isolate people from their peers, families
and community connections
• Services may be in the community, but don’t draw on it’s resources
• People’s ‘label’ or deficit becomes the most important thing,
not their capacities and resources (their real wealth)
• Power and autonomy - There is a tendency for staff to take over
decision-making and to make the rules
• People’s needs are seen through the service ‘frame’ and service
solutions become the only solutions.
Building centred, system centred, service centred NOT person centred

14. Service solutions become the solutions
• Placements – Young people
• Care Homes – Older people
• Day Centers – People with a disability or mental ill health
• Groups homes – people with intellectual disabilities
• Programs not entitlements

15. Needs V Outcomes
Our starting point makes a difference
Citizenship
Solutions to achieve
the outcomes
Needs
Human Services /
Supports

16. What if we focused on…
• You as a citizen not a service user or system recipient
• Your expertise on your own life in your context of
community and relationships
• Your idea of what a good life could look like is the one that
matters
• You know all of your resources to make the best use of
• Your vision of a what a good life looks like determines the
support network
• You have active partnerships with people / organisations
who can support you on your journey

17. How do we focus on the right stuff…
• You as a citizen not a service user or system recipient - Respected
Expert
• Your expertise on your own life in your context of community and relationships
- Real wealth
• Your idea of what a good life could look like is the one that matters –
Planning and exploration
• You know all of your resources to make the best use of – Individual
allocation alongside all other resources
• Your vision of a what a good life looks like determines the support network –
Good design and in your community
• You have active partnerships with people / organisations who can support you
on your journey – A partner of your choosing

19. Self Directed Support for all Citizens
• People with disabilities
• People who experience mental ill health
• Young people and families
• Early intervention
• Children in the looked after system
• People with significant health issues
• People who experience homelessness
• Older People who are frail
• Families
• Women who are victims of domestic violence

20. Worry less about the mechanism
It will change
Mechanisms can
constrict our
thinking

21. UK Model

22. Western Australia – HACC SDS

23. National Disability Insurance Scheme
Australia
Line Item $$
Agreed Plan
• Outcomes
• Strategies
= Budget
Planning
Shopping
Reasonable &
necessary

24. Features of other models
• Individual plans – Independent Facilitators / Brokers (independent of
the system – long term connection / problem solving)
• Support Providers individualizing block contracts - good planning and
individual design
• Focus on building connection and individual capacity
• Individualize existing system - using existing costs as the benchmark
and planning with families best use of it

25. Homelessness and SDS
• People who had been sleeping rough for between 4 and 45 years.
• Supports and a personal budget of up to £3000 / $6000
• Chosen Broker to hold your budget
• Good planning – what makes sense for you
• Trusted to make decisions on how to use the money responsibly
• Outcomes included contact with family, caravan, visits to
accommodation before taking up a tenancy , mobile phone to
reconnect

26. Children in the looked after system
• Amy and Mum long term contact with Child Protection
• Amy maintained contact with Mum
• Regular breakdown of placements
• Incidents in residential accommodation
• What would it take to support Amy and Mum to have a good life and what
would good support look like? (Good Design)
• Outcomes – money to pay bond on decent flat, support for Mum with
parenting (Mum’s choice of worker), Amy taking control of her travel (and
money)
• Cost £120k to £11,960k

27. • Support provided by kids critical
• Supporting the kids essential
• Flight for Daughter every month
• Support for others to attend retreat centre
• Mr Mandel and his family are the experts
and designed a solution that works for
them
Mr Mandel and his family

28. • Eamon was living in a group home
• Family desperate for a different future
• Family wanted more control but scared of
responsibility
• Saw other people and were inspired but
didn’t want to go it alone
• Looking for a partner
• Shared Management partnership -
designed support, built team, supported
Mum to manage what she could over time
• Active partnership
28
Eamon and his family

29. Context

30. OVERVIEW
Money to Agency
Employer / Purchaser
All management
responsibilities
Contractual
relationship is with the
Agency
Money to approved
Partner
Person manage day to
day support
Responsibility is shared
Contractual
relationship with
partner – based on a
partnership agreement
Money to Person
Employer or Purchaser
All management
responsibilities
Contractual
relationship is with the
person

31. A partnership
• Design
• Set Up & Establish
• Management
• Development
• Monitoring
• Acquittal & Accountability

32. • Share Manages with Avivo to direct and
manage most aspects of his wife's
support
‘shared management works for us
because we are not controlled but we
are not alone’
• Avivo supports over 1000 older people to
direct their supports. Third of this
population share manage
Robert
Robert
‘

33. NDIS NDIA
SUPPORT
CATALOGUE

34. Incentives
• UK Management Options
- Choice & Control
- Economic benefits – individual and Government level
• WA Management Options
- Choice & Control
- Economic benefits – addition / negotiation
• Early data suggests a reduction in overall costs over time – more control
& better outcomes

35. Human Services
NDIA
SUPPORT
CATALOGUE

36. Building capacity
Personal
Capital
Knowledge
Capital
Material
Capital
Social
Capital
$$$

37. Worth remembering
• People can and do direct their supports outside of human services
• If it’s easy to navigate
• If the assistance makes sense – timely
• If we expect and treat people like they can
• If it’s based on real choice and control

38. What people and families want will shape the
future of human services

39. www.avivo.org.au
Kate.fulton@avivo.org.au
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Stay in touch with Avivo

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