This document describes the development of the BraineyApp, a mobile application created by Niamh Malone to help with self-recovery and rehabilitation following acquired brain injuries like stroke or traumatic brain injury. The app provides a personalized recovery journey broken into weekly and monthly goals. It underwent user testing and focus groups. Funding is being sought to further develop prototypes with input from medical experts and technology companies to expand the app's reach and features to support recovery from various neurological conditions and surgeries.

1. Niamh Malone.
Brainey App.
Self Recovery and RehabilitationSelf Recovery and Rehabilitation
PlatformPlatform

2. •
• Clinical Nurse Specialist in stroke rehabilitation.
• Brain Injury Feb 2013.
•
• Adjusting to life.
•
•
BackgroundBackground

3. •
• 3 months.
• Common themes- fatigue, dizziness, mood, insomnia and QOL.
•
• Based on rehabilitation experience with goals- weekly, monthly goals.
Psychological Motivational ProgrammePsychological Motivational Programme

4. • Still had deficits.
•
• Public Awareness.
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• Referred to NRH.
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• Created a new job.
6 months6 months

5. •
• Structure of app.
• Budget.
• Focus Groups.
• Support Groups.
• Link between Medical and survivor.
• Hospitals involved.
Recovery after Brain InjuryRecovery after Brain Injury

6. •
•
• Over 100 downloads.
• Feedback.
A year later.A year later.

7. Recovery Journey.Recovery Journey.
Click in here to typeBut more difficult to see
here
Click in here to typeClick in here to type
Person centred.
Quality of Life.
Own pace.
Everyone
individual and
different.
A journey
Discharge plan.
Self Recovery app.
(1-6 months after discharge) Realise deficits and
link with services in community.
Going back to work.
Not going back to work.
6 months onwards.
Mild cognitive and
communication
impairments.
Person’s way of adapting
to “real life” at home. What
works for them- broken
down into different apps.
Hobbies and pastimes.
Social aspect.
Re integrating back into community life,
living their life.

8. •
• Works with technology companies in identifying areas of unmet need for developing
technology- based solution amongst patients of all ages in TBI, ABI, and developed BI.
• 2 year contract- BraineyApp and University of Cambridge/ hospitals/ community affiliated to
it.
• Unpatented technical information, information related to inventions, discoveries, concepts,
methodologies, procedures, research, development and testing and trials, manufacturing
process, quality control data, analysis reports and submission not on public domain.
• Outcome measures and data protection.
• Funding- to be decided.
•
NIHR Brain Injury Healthcare TechnologyNIHR Brain Injury Healthcare Technology
Cooperation University of Cambridge..Cooperation University of Cambridge..

10. •
• Media publicity.
• Technologist.
• Buy in a number of acute hospitals.
• Buy in from Stroke Council.
•
National Stroke Study Day and StrokeNational Stroke Study Day and Stroke
Survivors DaySurvivors Day

11. •
• Material design.
• Structure.
• More interactive.
• Common themes broken down- accurate outcome measures.
• More choices and decisions.
• Progress.
•
PrototypePrototype

12. Self Recovery App and website.Self Recovery App and website.
• Person interface - iPhone and Android.
(free end user)
• Consultant/ General Practitioner/
Healthcare Professionals interface- responsive website.
( licence, monthly, 6 monthly, yearly).

13. • People after mild traumatic brain injury (concussion) up to severe traumatic
brain injury, strokes and post brain surgery.
• To see if people understand the app and its purpose.
• Understand how to get in and out of sections.
• Focus and concentration.
• Feedback.
• Testimonals.
•
•
Focus groups PrototypeFocus groups Prototype

14. Surgery:
Cerebral angiograms for
different brain
procedures e.g. coiling,
thrombectomy.
Brain surgery e.g.
clipping.
Lobectomy.
Neurological disorders.
• Early stage Alzheimer's
disease.
• Brain tumours.
• Early stage dementia.
• Dyslexia.
• Encephalitis.
• Epilepsy.
• Meningitis.
• Migraines.
• Multiple Sclerosis.
• Parkinson's disease.
• Vestibular migraines.
• Acquired brain injury.
• Traumatic brain injury.
•
•
•
Recovery:
Psychological.
Motivational
Fatigue.
Insomnia.
Headaches.
Dizziness.
Positive thinking.
Sensitivity to light and colour.
Irritability and impatience.
Common everyday deficits:
Memory –short term and long term,
Amnesia- not recognising places.
Communication- reading (too many
words, writing (difficulty writing) and
talking (right words not coming out).
Processing information.
Attention / Distraction.
One thing at a time.
Thinking/Concentration.
Decision making.
Mental Illness’s
Bipolar.
General Anxiety Disorder.
Depression.
Addiction.
Journey.

15. •
• Self Recovery and Rehabilitation following Concussion (general and sports).
• Self Recovery and Rehabilitation Multi-disciplinary discharge care plan.
•
• Cognitive Rehabilitation in the Community.
• Hobbies and pastimes.
•
•
Self Recovery and RehabilitationSelf Recovery and Rehabilitation
Platform.Platform.

16. Thank you.