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Don't move disabled residents - Sutton
1. Don't move disabled residents, experts say
Specialists argue patients at risk
Ian Sutton, The Ottawa Citizen Published: Monday, November 07, 2005
Senior medical professionals, including two retired psychologists who have spent their careers
caring for developmentally disabled Ontarians, have expressed serious concern about the risks
involved in an Ontario government plan to move residents from three provincial institutions into
small community facilities.
The head of the Canadian Mental Health Association branch in Ottawa, meanwhile, questions
whether radical changes involved in moving residents out of Rideau Regional Centre at Smiths
Falls and two facilities in central and southwestern Ontario are a humane course of action.
Dr. Joseph Molino and Dr. Bruce McCreary have filed affidavits with the Ontario Superior Court
of Justice in support of about 150 families of residents at Rideau Regional Centre who had been
seeking an injunction against moving their relatives out of the facilities into the community.
Rideau Regional Centre continues to be a supportive community for the men and women who
reside there, Dr. Molino said in his affidavit.
But residents still living there, he said, lack the cognitive and legal capacity to provide the
informed consent required by law for their transfer from the centre.
"These men and women have developed longstanding bonds with staff and their peers and have
enjoyed tremendous freedom of movement and security because of the size and opportunities
presented by the therapeutic community," his affidavit states.
While Dr. Molino supports group homes and other community-based residences, which he
agrees have provided a positive move for those who wish to live in "properly supported settings,"
he does not agree that group homes are the best solution for every developmentally-disabled
person.
"My experience supports my opinion that for some individuals the cost of transferring out of
RRC to a group home would be too high."
Superior Court Justice Robert Smith ruled on Sept. 30 that none of about 430 residents remaining
at the Smiths Falls facility should be relocated pending a judicial review of the impact on their
quality of life.
As well, a class action suit was launched last summer by families of residents at Rideau Regional
Centre in a constitutional challenge under the Charter of Rights and Freedoms. A similar action
has been filed by families of residents at the Huronia Regional Centre in Orillia.
About 1,000 residents in total, many in their 60s, 70s and 80s, are housed at the three institutions,
including the Southwestern Ontario Regional Centre in Chatham. The average age of the
2. residents at the Smiths Falls centre is 53, many of whom have lived there since the facility
opened in the mid-1950s.
Lawyers for the family groups and for the Ontario Ministry of Community and Social Services
will present arguments Dec. 12 and 13 during Divisional Court hearings on the judicial review in
Ottawa.
Before retiring, Dr. McCreary was on staff at both the Huronia Centre and Rideau Regional,
where he still serves as a consulting psychiatrist. He expresses similar concerns to Dr. Molino's
about the legal requirement for informed consent of residents for their relocation. Family
members who are expressing concerns about the need to assess risks and benefits to their loves
ones "would be acting reasonably," he says.
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Don't move disabled residents, experts say
Specialists argue patients at risk
Ian Sutton, The Ottawa Citizen
Published: Monday, November 07, 2005
Senior medical professionals, including two retired psychologists who have spent their careers
caring for developmentally disabled Ontarians, have expressed serious concern about the risks
involved in an Ontario government plan to move residents from three provincial institutions into
small community facilities.
The head of the Canadian Mental Health Association branch in Ottawa, meanwhile, questions
whether radical changes involved in moving residents out of Rideau Regional Centre at Smiths
Falls and two facilities in central and southwestern Ontario are a humane course of action.
Dr. Joseph Molino and Dr. Bruce McCreary have filed affidavits with the Ontario Superior Court
of Justice in support of about 150 families of residents at Rideau Regional Centre who had been
seeking an injunction against moving their relatives out of the facilities into the community.
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Rideau Regional Centre continues to be a supportive community for the men and women who
reside there, Dr. Molino said in his affidavit.
But residents still living there, he said, lack the cognitive and legal capacity to provide the
informed consent required by law for their transfer from the centre.
"These men and women have developed longstanding bonds with staff and their peers and have
enjoyed tremendous freedom of movement and security because of the size and opportunities
presented by the therapeutic community," his affidavit states.
While Dr. Molino supports group homes and other community-based residences, which he
agrees have provided a positive move for those who wish to live in "properly supported settings,"
he does not agree that group homes are the best solution for every developmentally-disabled
person.
"My experience supports my opinion that for some individuals the cost of transferring out of
RRC to a group home would be too high."
Superior Court Justice Robert Smith ruled on Sept. 30 that none of about 430 residents remaining
at the Smiths Falls facility should be relocated pending a judicial review of the impact on their
quality of life.
As well, a class action suit was launched last summer by families of residents at Rideau Regional
Centre in a constitutional challenge under the Charter of Rights and Freedoms. A similar action
has been filed by families of residents at the Huronia Regional Centre in Orillia.
About 1,000 residents in total, many in their 60s, 70s and 80s, are housed at the three institutions,
including the Southwestern Ontario Regional Centre in Chatham. The average age of the
residents at the Smiths Falls centre is 53, many of whom have lived there since the facility
opened in the mid-1950s.
Lawyers for the family groups and for the Ontario Ministry of Community and Social Services
will present arguments Dec. 12 and 13 during Divisional Court hearings on the judicial review in
Ottawa.
Before retiring, Dr. McCreary was on staff at both the Huronia Centre and Rideau Regional,
where he still serves as a consulting psychiatrist. He expresses similar concerns to Dr. Molino's
about the legal requirement for informed consent of residents for their relocation. Family
members who are expressing concerns about the need to assess risks and benefits to their loves
ones "would be acting reasonably," he says.
Don't move disabled residents, experts say
4. Specialists argue patients at risk
Ian Sutton, The Ottawa Citizen
Published:Monday,November07,2005
"Group homes can offer an alternative to institutions," Dr. McCreary agrees.
"However, the Ontario group home system is significantly under-resourced at present, relative to
the needs of those residents." In addition, he says, "it will take time to develop resources in the
community for the remaining residents, who generally have high needs -- I have seen some
former residents of institutions who have done well in group home settings. I have seen others
whose health has declined, and who have done poorly, relative to their time in an institutional
setting."
Paul Doig, a spokesman for the ministry, declined to comment on the expert affidavits filed late
last month, since the matter is before the courts.
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Residents still housed at Rideau Regional Centre and the other facilities are "clearly the most
severely disabled and probably the most difficult to care for," says Dr. Walter Rosser, chief of
family medicine at Queen's University, where many physicians who provide medical care to
developmentally disabled patients obtain their specialized training.
"Although I don't have clear numbers, it certainly seems that generally it will be more expensive
to care for these people in small group homes where there are six or eight people, than in a larger
institution, where one would expect economy of scale," he said.
"When I talk to the physicians there, they always talk about the staff being absolutely critical in
determining if someone is not doing well," Dr. Rosser said.
"Administering medical care to this group is very difficult because these people aren't capable of
giving a history or saying, 'I don't feel well' or 'I have a pain in my chest.' It's very difficult to
recruit physicians into this facility because there are very few doctors with the interest or the
skills -- this kind of medicine requires a very specific set of skills."