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EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Chat
1. fromPaul WoodleytoAll Participants:
Morningall
fromJanetto All Participants:
Good morningeveryone.
fromBeckyto All Participants:
Good Morning!I am inkindof sunnyLondon
fromBev Matthewsto All Participants:
Morning!I'm in a verysunnyBirmingham
fromLynne Bowersto All Participants:
HI Lynne froma WelshMonastery
fromBen GilchristtoAll Participants:
Morning.I'm the projectleadfor the GreaterManchesterCancer Championsprojectwhichispartof
the NHSE fundedhealthasa social movementworkinthe UK
frommaggie woodsto All Participants:
Morning,maggie woods
fromFionaMcKenzie toAll Participants:
Morningall from sunnyBattersea.I'ma patientandpatientinsightandinvolvementconsultant
interestedinthe potential of social movementstochange powerrelationsbetweenstaff and
patientsinhealthandcare.
fromJane Moore to All Participants:
Good morningall,lookingforwardtothiseventtoday.
fromAngie McClarrento All Participants:
Morninglookingforwardtothe eventAngie
fromJanetto All Participants:
So greatthat you couldjoinustoday.Please letusknow yourthoughtsandquestions.
fromBen GilchristtoAll Participants:
Spoton
fromJane Moore to All Participants:
Social isnot digital - straightinwitha paradigmshiftforme!
2. fromBen GilchristtoAll Participants:
Collaborationaroundacause and valuesiskeyandwhyi thinkthe voluntarysectorissomuch at the
heartof this
fromBen GilchristtoAll Participants:
Can we getthe detailsof thatsummitplease?
fromJanetto All Participants:
What do youthinkof the 5C's?
fromJanetto All Participants:
Hi Ben,So agree thatthe voluntarysectorisat the heart of thisbut how can we bringthis intothe
system?
fromBen GilchristtoAll Participants:
Yes I like the 5C's
fromZayna Khayatto All Participants:
questionforthe gang: doyou thinkitisok to be make it "required"forpeople onaninnovation
teamto be onsocial channels(Twitter,Slack,etc.) - we are runninganInnovationSchool inthe
Netherlandswith50 participantsinthe firstcohort.We askedeveryone toprovide aTwitterhandle -
around20% saidthey"don't doTwitter". My gut is to make itrequiredinorderto experiencethe
social learningmodel of the School.Thoughts?....ordopeople needtogetthere attheirownpace?
fromFionaMcKenzie toAll Participants:
I love these - theyfeel more rightforme,particularlyinthe NHSwhere we have astrong cause and
valuesaroundcare.
fromLynne Bowers to All Participants:
cannot start social movementfromaninstitution - love it!
fromBen GilchristtoAll Participants:
The healthas a social movementpilotsare experimentingwithbringthe voluntarysectorinto
dialogue withthe system
fromLynne Bowersto All Participants:
role of curation:)
fromBen GilchristtoAll Participants:
it hasgot to be grassrootsandbottomup in myview
fromJanetto All Participants:
3. Equal players - somethingaboutwhatwe do withpowerwhenwe wanttodo change.
fromLynne Bowersto All Participants:
whatgiveslife <3
fromFionaMcKenzie toAll Participants:
re: requiredtobe part of social channels - I don't know.IguessI thinkthere are people whouse
face-to-face social channelsreallywell whomightnotuse social media.I'dbe inclinedtoaskthem
abouthow theydothe 5 c's here.
fromBen GilchristtoAll Participants:
communityandsense of communityiskey
fromBen GilchristtoAll Participants:
agree withFiona
fromJanetto All Participants:
Strategy, visionversusstories - thatisthe start of a change conversation.
fromLynne Bowersto All Participants:
individualwiring- the difference thatmakesadifference
fromZayna Khayatto All Participants:
thx Fiona
fromJane Moore to All Participants:
Corporate social mediagoeswrongsomany times(twitterchatshijacked!),maybe becausewe
know it’snot genuine orfromthe heart.
fromFionaMcKenzie toAll Participants:
q - can you be a citizenif you're notcontributingtosocial good?
fromLynne Bowersto All Participants:
lovingreference tocivicandcitizen - we have lostour democraticpowerandthe democratic
accountabilityof all
fromLynne Bowersto All Participants:
*local*
fromBen GilchristtoAll Participants:
4. goodQ Fiona.alwaysworthtakinganassetsbasedview.inmyview almosteveryone iscontributing
to some social goodwe justall needto recognise it
fromFionaMcKenzie toAll Participants:
Agree Lynne!
fromJanetto All Participants:
Such a challenge - isitwhat we do or whowe are,or bothindeed?
fromTom Harrison to All Participants:
Q from RSA:where doesasocial mediacampaignendanda movementthatusesavarietyof tactics,
start?
fromLynne Bowersto All Participants:
lack of connectionand collaboration alsohighduplicationisvexasperatingandnotin the best
interestsof people
fromsasah to All Participants:
interestingpointsthatlinktopurpose andcommunity. Topdownisincreasinglyanti-social butare
we all preparedtotake accountabilityforoutcomes?
fromJanetto All Participants:
How can we improve energyforpeoplewhoare exhaustedbythe systemtogetintothisspace?
fromFionaMcKenzie toAll Participants:
yeah.i had the same thought - i guessI’mthinkingthatmyversionof social goodisdifferentto
others(dare I mentionTrump) andthat'sgot me lostdowna rabbithole.
fromFionaMcKenzie toAll Participants:
Good q Janet!
fromLynne Bowersto All Participants:
Energycomesfrom the heart - make sure you protectyoursno matterhow toxicthe environment
fromGill PhillipstoAll Participants:
Helloeveryone.Enjoyingthe talk.Lotsof goodstuff happeninginBirmingham.Take alookat
'ForwardThinkingBirmingham'tooasa powerful wayof connectingorganisationsaddressingsimilar
issues.
fromBen GilchristtoAll Participants:
interestingbusinesssectorexample. we needtoconnectpublic,businessandvoluntarysectorsfor
bestoutcomes
5. fromBen GilchristtoAll Participants:
lotsof those businessideasare goingoninthe voluntarysector
fromBen GilchristtoAll Participants:
so inpowertermstheyneedtoletgo of powerandcontrol and serve the grassroots?
fromLynne Bowersto All Participants:
So powerful Jeremy - problemswe are all facinginourcommunities
fromBen GilchristtoAll Participants:
our GreaterManchestersloganseemstobe about the needforconnectors,catalystsandcurators
fromhelenbevantoAll Participants:
I followed Tom'sstoryat the time.It wasveryinspiring
fromBen GilchristtoAll Participants:
Food,food,food! That's beenafocus inGreaterManchester
fromLynne Bowersto All Participants:
Yes!Reach outto your Thirdsector colleagues - create protectedtime andspace. Don’tassume free
of charge
fromLynne Bowersto All Participants:
Great workin Grtr Manchestertoo
fromBen GilchristtoAll Participants:
Yes absolutelyLynne
fromBen GilchristtoAll Participants:
All sectorsneedtolearnfromthisgreat Facebookexample
fromJanetto All Participants:
The Manchesterexample issopowerful andwill staywithusforever.
fromJanetto All Participants:
I struggledusingFacebookforprivate use butreallyenjoyusingitforsocial.
fromLynnette toAll Participants:
I love this initiative!Sosimple butverypowerful.
fromBen GilchristtoAll Participants:
6. It has beenatragic but alsoinspiringtime tolive inthiscity
fromJane Moore to All Participants:
'Movedpeople fromwhatare theygoingtodo to what are we goingto do' - that’sso important-
verytopical andrelevant.
fromBen GilchristtoAll Participants:
yesequalitymatters
fromLynne Bowersto All Participants:
Titlesmeannothing- sotrue.regardlessof title assoonas someone speaksoracts - speaksvolumes
fromBev Matthewsto All Participants:
FabulousexampleinStatesof "myfunnyfamily" - friendsandcommunitywhocome togetherand
organise themselvestosupport those whoneedit@sharethecare org
fromBen GilchristtoAll Participants:
nowwouldthatsort of referral happensoquicklyinthe UK??
fromLynne Bowersto All Participants:
Yes i thinkso !
fromBen GilchristtoAll Participants:
I'm proudto be part of social prescribingworkbutsomuch more couldbe done somuch quicker
fromBen Gilchrist toAll Participants:
gettingtothe rootsalwayscritical
fromBen GilchristtoAll Participants:
one root we've identified iscontrol andlackof control
fromLynne Bowersto All Participants:
Love In Actionmovement - #makingadifference collaboration - startwhere youare go where youcan
fromzayna khayatto All Participants:
I will neverlookatRadishesthe same wayagain!Radish(fromthe Latinword“radix”whichmeans
“root”) http://www.vegetablefacts.net/vegetable-history/radish-history/
fromBen GilchristtoAll Participants:
there isso much outthere to join
fromFionaMcKenzie toAll Participants:
7. I have a 'size'question - whenwhere youlive isabigcity,how do youfind/create the rightsize
community?
fromJane Moore to All Participants:
"We can’tsolve worldhungerbutcan do somethingaboutwhere we live" - that’sinspiring.
fromBen GilchristtoAll Participants:
we launchedourstate of the voluntarysectorresearchyesterday - 15,000 groupsin Greater
Manchesteralone!
fromBen GilchristtoAll Participants:
one of ourlearningsbetweenthe sitesworkingwithNESTA,RSA andNEFishow importantwe've
founditto championassetbasedapproachesbutthat language andculture are bigbarriersto this
fromLynne Bowersto All Participants:
Ben- can you tweetalinkto the VCS
fromJanetto All Participants:
ThisNestareportis great!
http://www.nesta.org.uk/sites/default/files/health_as_a_social_movement-sept.pdf
fromBen GilchristtoAll Participants:
checkout @10gmpartners
fromJanetto All Participants:
I like the ideaof puttingpressure onthe systemtochange butalso equippingleaderswithtoolsand
approachesthatwork inthisspace.
fromBen GilchristtoAll Participants:
on twitterI'm@bengilchristwhichhasall the linksyesterday toourreports
fromLynne Bowersto All Participants:
nestacan you doa newtweetre the powerof people
fromBen GilchristtoAll Participants:
vision,actionandmake sure storiesandvaluesare inthere
fromBen GilchristtoAll Participants:
see HelenBevan'spresentations
fromCarey Bamberto All Participants:
8. I hope thischat logis recordedsoI can read thisback as itlookslike some greatstuff here aswell as
whatwe are listeningtoo!
fromJanetto All Participants:
Yes I will make sure Carey.
fromPaul WoodleytoAll Participants:
chat is savedandwill be sharedonthe edgetalkswebpage
fromBen GilchristtoAll Participants:
some greatwork onthis inUK by @amirhannan
fromCarey Bamberto All Participants:
Great, thankyou
fromJanetto All Participants:
So muchgreat informationonmovementshere we canall learnfrom.
fromsarah to All Participants:
Hi everyone
fromBen GilchristtoAll Participants:
I thinksomethinginterestingwiththe NHSEnglandfundingishow we canbring movementsinto
dialogue withsystems
fromsarah to All Participants:
I'm doinga PhD oncontrol,and howit isusedwithpeople withautism. Iwantto do participatory
actionresearchwithpeople withautismtoexplore this. Are there anysocial movementsalready
available inthisareathatI couldlinkinwith? thanks
fromLynne Bowersto All Participants:
heart-breakingstatistics
fromGill PhillipstoAll Participants:
Interestingconversationhere re publichealth.ILOVEthe current 'Doctor inthe House'TV series -
spendingreal time withpeopletounderstandtheirlife stylesandlife challengesandcomingupwith
real solutionsnotjustlobbingoutpills.
fromBen GilchristtoAll Participants:
re autismmaybe ask@autistictales
fromEmma Lowe to All Participants:
9. Yes,doctor inthe house isgreat.More 'expensive'inthe shortterm - highinvestmentof time - but
surelycheaperandMUCH betteroutcomeslongterm
fromBen GilchristtoAll Participants:
Definitelygrowingleadersiskey
fromhelenbevantoAll Participants:
Here'smy slide deckthatwasmentionedearlierinthe chat
https://www.slideshare.net/HelenBevan/where-social-movements-meet-codesign-participation-in-
healthcare-improvement
fromJanetto All Participants:
People inpowerare people - keymessage
fromBen GilchristtoAll Participants:
if you readnothingelse readthisslidedeckeveryone!
fromLynne Bowersto All Participants:
youare speakingtoAutismUK yes?
fromBen GilchristtoAll Participants:
Yes make sure that happens
fromLynne Bowersto All Participants:
SimonBaron|Cohenat Oxford?
fromsarah to All Participants:
Hi all,notyetbut I will do,thankyou
fromGill PhillipstoAll Participants:
#CovMindTheGappeople regularlycome upwithextraordinarilysimplewaystohelpreal people
withreal health/life challenges'outside'of formal healthcare services(similarto'Doctorin the
House'thinking).Peoplemightenjoyourvideofilmedonaverysunnydayin Coventryandending
up witha 'magic mile walk'completewithstorytelling,streetdance,communitysingingandHeidi
goingwildona bike!;-) https://youtu.be/wlZ7EC3MPfw
fromhelenbevantoAll Participants:
QuestiontoJacqui:Havinglearntwhatyouhave learntfromthese inspiringsocial movements,what
wouldyouhave done differentlywhenyoustartedthe Healthasa Social Movementstrategy?
fromBen GilchristtoAll Participants:
https://www.campaignbootcamp.org one goodresource asis https://www.seedsforchange.org.uk/
10. fromLynne Bowersto All Participants:
act as a host:)
fromJuliaStackhouse toAll Participants:
AutismOxfordare well networkedwiththeircommunityinOxfordshire
fromEmma Lowe to All Participants:
Institutionscan'tstarta movement,buttheycanletgoof some powerandbe opendo servingthe
whole together.Theycanalsobe connectorsandenablers.
fromBen GilchristtoAll Participants:
I agree but local actioncan have a global focus. Igot involvedinsocial movementsthroughJubilee
2000 one of the firstglobal campaignstocancel unpayable poorcountrydebt
fromGill PhillipstoAll Participants:
"The bestthingyou can do ina social movementistoengage yourlocal people"saysJeremy - agree
- our #CovFlockrock!;-) #CovMindTheGap
fromBen GilchristtoAll Participants:
spoton Emma Lowe
fromLynne Bowersto All Participants:
couldwe linkinto17 global goals?
fromBen GilchristtoAll Participants:
yesthat couldbe a commoncause but needstobe made easyto follow asbeingsaid
fromLynne Bowersto All Participants:
we lose ourpeople inourcomplexityandprocesses
fromGill PhillipstoAll Participants:
Here is the #videowe usedin#CovFlock#CovMindTheGapsessionsJeremy - the firstfollower:
https://www.youtube.com/watch?v=fW8amMCVAJQ ;-)
fromBen GilchristtoAll Participants:
it takesa lotof efforttochange language andhelpyourmovementlanguage we understoodand
understandable
fromBen GilchristtoAll Participants:
shouldread'be understoodandunderstandable'
11. fromsarah to All Participants:
thishas beenfantastic,thankyou
fromBen GilchristtoAll Participants:
for me social action+ social justice =social movement
fromBen GilchristtoAll Participants:
it's easyto focuson one to the neglectof the other
fromGill PhillipstoAll Participants:
Thanksfor a great talkJeremy,Jacqueline and#Edgetalksteam - love all these differentsessionsto
inspire people tobuildsocial movementsinhealthandcare! x
fromFionaMcKenzie toAll Participants:
love thatBen!
fromBen GilchristtoAll Participants:
pleasure!
fromBen GilchristtoAll Participants:
thanksfor sharingeveryone
fromCarey Bamberto All Participants:
We needtowidelycirculate thiswebinar recording,it'sbeengreat,thankyouall
frommaggie woodsto All Participants:
Fab,session,thanks,
fromAngie McClarrento All Participants:
Thanksits beengreat
fromLaura CoopertoAll Participants:
Veryinteresting- thanks
fromEmma Lowe to All Participants:
Great session,thanks
fromhelenbevantoAll Participants:
Great session
fromFionaMcKenzie toAll Participants: