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CULTURAL
COMPETENCY IN END OF
LIFE CARE IN THE ICU:
WHAT STUDENTS
LEARNED IN A PILOT
CURRICULUM
Amy Chi, MD
Elisabeth E. Bennett, PhD
Rebecca D. Blanchard, PhD
Background
 Decisions about end of life (EOL) care are
complex and influenced by factors such as:
 Understanding prognosis, preferences in life-
prolonging treatment, family beliefs, patient-
physician communication and culture
 Navigating EOL care discussions can be
challenging with families/patients of different
cultures
 Limited literature describing implementation
and impact of a cultural competencycurriculum
inEOLcare
Cultural Competency Pilot
Curriculum in End of Life Care
• Funding from Innovation in Diversity Education
Award (Tufts Medical School)
• Implemented cultural competency in end of life
care curriculum from 2011-2012
• Target: Medical Students during 4th
year ICU
clerkship
• Duration of curriculum: 4 weeks during ICU
clerkship/block
• Total 69 students participated over ten blocks
– 32 completed the curriculum (including pre-/post-tests
and observation form)
Observation Tool
Outcome Measures:
Quantitative
Survey
(n=32)
Pre-Post Testing
Physician Health Belief
Attitude
(15 items. 6 point Likert
scale)
No Change
Knowledge Assessment
(25 items)
No Change
Level of Comfort with
Cultural Competency
(5 point scale)
Improvement
(pre 3.31 vs post 4.01,
p<0.01)
Dobbie, 2002, Family Physicians Health Conference
Results: Qualitative Analysis
Observation Forms
• Observations from reflection tools:
– All observations forms analyzed using general
inductive methods, resulting in 3 categories
• Students learnedthat in navigating cultural
competency:
(1) Level of understanding influenced care
decisions
(2) Conversations must balance information and
feelings
(3) Balance between individual and family
dynamics is important (specifically conflicts and
consensus)
(1) Level of understanding
influenced care decisions
 “With the non-English speaking, wife at the
bedside day-in and day-out she was witness to
muchshedidnot understand. Inability to reach
the HCP (patient’s daughter) on a regular
basis meant that her main source of
information on the patient’s status was via her
mother’s interpretationof herhusband’s care.
This situation led to miscommunicationand
frustrationon both sides with the patient stuck
in the middle…I felt very frustrated that our
ability to explain the patient’s condition to him
(2) Conversations must balance
information and feelings
 “The care providers did listento the family’s
sufferingandunderstandingof what the
patient’s illness was. The family didnot seem
to fullyunderstandhow ill he was, and how
high the chances of brain death were.”
(3) Balance between individual &
family dynamics
 Conflict: “There was conflict between the two
daughters involved in the care. One wanted all
possiblemeasures taken to ‘cure’ their father
and help him live longer and the other wanted
to let naturetakeits coursewhen he was
extubated…[The care team] realized the
complicated family dynamics and were careful
not to take sides but instead deal with the
HCP.”
(3) Balance between individual
& family dynamics
 Consensus: “The two sons were able to both
express their concerns and have their
questions answered about their mother’s
current situation. It was vital to hear where
each of them were coming from in order to
provide them with helpful information and
guide the discussion. While oneof thebrothers
[the HCP] seemed at peace with the decision
to pursue hospice, the other was having a
moredifficult timeaccepting her prognosis…
Finally, the HCP made the decision to pursue
hospice, and hewas ableto convincehis
Conclusion:
 Communication surrounding EOL care can be
challenging
 Witnessing family meetings allowed students a
deeper understanding of the complexities of
culturally competent care in the ICU
 Family meetings are not simply conveying
information, they must allow for an exchange
for ideas and emotion, and manage complex
individual and group dynamics
Questions?
achi@tuftsmedicalcenter.org
Curriculum Outline:
 Objectives:
 Integrate how culture influences end of life
decision making
 Improve knowledge and attitudes about how
culture influences end of life decision making
 Teaching Framework:
 LEARN framework
 Components: Lecture, On-line modules,
Observation of family meeting, Reflection
Tool, Small group debriefing
The LEARN Model
Be rlin and Fo wke s
Listen to the patient’s perception of the problem
Explain your perception of the problem
Acknowledge and discuss
differences/similarities
Recommend treatment
Negotiate treatment
Berlin EA et al. West J Med 1983: 139: 934 – 938. Helen Fernandez, MD, MPH
Negea2013

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Negea2013

  • 1. CULTURAL COMPETENCY IN END OF LIFE CARE IN THE ICU: WHAT STUDENTS LEARNED IN A PILOT CURRICULUM Amy Chi, MD Elisabeth E. Bennett, PhD Rebecca D. Blanchard, PhD
  • 2. Background  Decisions about end of life (EOL) care are complex and influenced by factors such as:  Understanding prognosis, preferences in life- prolonging treatment, family beliefs, patient- physician communication and culture  Navigating EOL care discussions can be challenging with families/patients of different cultures  Limited literature describing implementation and impact of a cultural competencycurriculum inEOLcare
  • 3. Cultural Competency Pilot Curriculum in End of Life Care • Funding from Innovation in Diversity Education Award (Tufts Medical School) • Implemented cultural competency in end of life care curriculum from 2011-2012 • Target: Medical Students during 4th year ICU clerkship • Duration of curriculum: 4 weeks during ICU clerkship/block • Total 69 students participated over ten blocks – 32 completed the curriculum (including pre-/post-tests and observation form)
  • 5. Outcome Measures: Quantitative Survey (n=32) Pre-Post Testing Physician Health Belief Attitude (15 items. 6 point Likert scale) No Change Knowledge Assessment (25 items) No Change Level of Comfort with Cultural Competency (5 point scale) Improvement (pre 3.31 vs post 4.01, p<0.01) Dobbie, 2002, Family Physicians Health Conference
  • 6. Results: Qualitative Analysis Observation Forms • Observations from reflection tools: – All observations forms analyzed using general inductive methods, resulting in 3 categories • Students learnedthat in navigating cultural competency: (1) Level of understanding influenced care decisions (2) Conversations must balance information and feelings (3) Balance between individual and family dynamics is important (specifically conflicts and consensus)
  • 7. (1) Level of understanding influenced care decisions  “With the non-English speaking, wife at the bedside day-in and day-out she was witness to muchshedidnot understand. Inability to reach the HCP (patient’s daughter) on a regular basis meant that her main source of information on the patient’s status was via her mother’s interpretationof herhusband’s care. This situation led to miscommunicationand frustrationon both sides with the patient stuck in the middle…I felt very frustrated that our ability to explain the patient’s condition to him
  • 8. (2) Conversations must balance information and feelings  “The care providers did listento the family’s sufferingandunderstandingof what the patient’s illness was. The family didnot seem to fullyunderstandhow ill he was, and how high the chances of brain death were.”
  • 9. (3) Balance between individual & family dynamics  Conflict: “There was conflict between the two daughters involved in the care. One wanted all possiblemeasures taken to ‘cure’ their father and help him live longer and the other wanted to let naturetakeits coursewhen he was extubated…[The care team] realized the complicated family dynamics and were careful not to take sides but instead deal with the HCP.”
  • 10. (3) Balance between individual & family dynamics  Consensus: “The two sons were able to both express their concerns and have their questions answered about their mother’s current situation. It was vital to hear where each of them were coming from in order to provide them with helpful information and guide the discussion. While oneof thebrothers [the HCP] seemed at peace with the decision to pursue hospice, the other was having a moredifficult timeaccepting her prognosis… Finally, the HCP made the decision to pursue hospice, and hewas ableto convincehis
  • 11. Conclusion:  Communication surrounding EOL care can be challenging  Witnessing family meetings allowed students a deeper understanding of the complexities of culturally competent care in the ICU  Family meetings are not simply conveying information, they must allow for an exchange for ideas and emotion, and manage complex individual and group dynamics
  • 13. Curriculum Outline:  Objectives:  Integrate how culture influences end of life decision making  Improve knowledge and attitudes about how culture influences end of life decision making  Teaching Framework:  LEARN framework  Components: Lecture, On-line modules, Observation of family meeting, Reflection Tool, Small group debriefing
  • 14. The LEARN Model Be rlin and Fo wke s Listen to the patient’s perception of the problem Explain your perception of the problem Acknowledge and discuss differences/similarities Recommend treatment Negotiate treatment Berlin EA et al. West J Med 1983: 139: 934 – 938. Helen Fernandez, MD, MPH

Hinweis der Redaktion

  1. Physician Health Belief Attitude Survey 15 items assessed in a 6-point Likert scale Principle Components (4): Opinion: Assess pt perspective/opinion about disease Belief: Determine pt’s health beliefs Context: Assess pt social/cultural context Quality: Determine pt perspective for “good health”
  2. The ability to communicate with families affected how much information was conveyed during family meetings When communication was easy, often more headway was made in reaching treatment decisions that satisfied all How did this affect the outcome of the case (review in medical student #1) 76 yo M Chinese admitted multiple times with respir failure in the setting of advanced/non-curable NSCLC. Intubated x 3. And now discussion terminal extubation. Language and interpreter issues the biggest barrier.
  3. Family Meetings are a give and take, soliciting what the patient understands and what the medical team knows Feelings have to be addressed, both from the family but also from the care team. Sometimes information cannot be communicated until family members can set aside feelings Get background information on the case (student #6) Patient admitted s/p PEA arrest in the field. After &gt;72 hours of care the patient had not neurologic function. Team wanted to get neurology involved to determine brain death. The family was distraught and uncomfortable having this family meeting. In part b/c of the unexpected suddenness of this tragic event. Members of the family felt uncomfortable with conversation and there lacked an alliance between family and physicians.
  4. Although there is often one healthcare proxy, the family meetings often elicited the perspective of each individual Family and group dynamics were apparent and needed to be balanced with individual concerns Conflict – When conflict was present it either led to consensus or led to the healthcare proxy making a solo decision Consensus – Some family members were synchronized in their perspectives from the start, and some reached consensus after being able to share their perspectives in the family meetings Find out background information in the case #18: Patient with multiple comorbidities and multiple hospitalizations, intubated &gt;14 days and family meeting to discuss DNR/DNI upon extubation with goals to go home. Conflict between family members….But also med student feeling conflicted by lack of ability of the patient to participate in this decision as the student values autonomy.
  5. Find out background of student #4: 78 yo female with 2 sons admitted with large multifocal stroke causing left sided weakness, inability to walk and dysarthria. She received TPA without improvement  persistent dysarthria and weakness. Family had a difficult time understanding that she would not be able to swallow and needed a feeding tube vs CMO. When the MD acknowledged the difficulty of the decision, the family became open to further discussion and trust/relationship was established.