Association for Dementia Studies

1. © The Association for Dementia Studies
Association for Dementia Studies
Gina Dutton and Michal Herz
Association for Dementia Studies
March 2015

2. • Established in 2009 and aligned with the
National Dementia Strategy
• Multi-professional group of
educationalists, researchers and
practitioners inclusive of people living
with dementia
The Association for Dementia
Studies: Identity

3. Director Professor Dawn Brooker
Academic staff Gina Dutton (Head); Dr Simon Evans (Research lead); Michal Herz*
(Education lead); Isabelle Latham* (Care-homes); Karan Jutlla (BAME);
Mary Bruce (Health and hospitals); Christine Carter (Mental Health);
Nicola Jacobson (Practice Development Coach); Sue Pinfold-Brown
(Education contracts); Kate Read (Social care & Leadership)
Research staff Teresa Atkinson; Jennifer Bray; Claire Garabedian; Heather Yemm*;
Shirley Evans
Associate Specialists Helen Cain; Kate Durrant; Carole Edwards; Charmain Nichols; Guy Page;
Hazel Ratcliffe, Danuta Lipinska
UW Associates Sue Lillyman; Prof Liz Peel; Chris Russell,
Honorary staff Dr Bernie Coope; Dr Kay De Vries; Jenny La Fontaine; Dr Daryl Leung;
Experts by Experience
LINK
Pat Isherwood, Bob Isherwood, June Hennell, Robbie Duncan, Ros
Dibble, Roy Dibble, Andy Burley, Margaret Burley, Ken Howard, Hilary
Knaggs, Hugh Knaggs
Administrative team Laura Bond; Alex Cross; Helen Malbon; Mike Watts; Zuleika Sankey
*PhD Students Michal Herz; Heather Yemm, Isabelle Latham

4. • The experience of
people living with
dementia and their
families inform the
work of ADS at all
stages.
• ADS LINK group Sept 2014
University of Worcester Association for
Dementia Studies

5. Our aim
make a substantial contribution to
building evidence-based practical ways
of working with people living with
dementia and their families that
enables them to live well

6. Commitments
• person-centred approach in all our work
• value all people as unique individuals, be
respectful of the perspective of different
standpoints, and recognise the
interdependence of all of us
• raise awareness, challenging stigma and
improving quality of life and wellbeing

7. © The Association for Dementia Studies
Additional areas of expertise
• Evaluation of education and training in
dementia care
• Advice on policies relating to dementia at local,
regional and national level
Association for Dementia Studies
In addition to Prof. Dawn Brooker, the team comprises: Gina Dutton (Head of ADS); Dr Simon Evans (Principal Research Fellow); Michal Herz (Head of Education), Kate Read, Dr Karan Jutlla, Sue
Lillyman, Chris Russell, Isabelle Latham, Christine Carter and Mary Bruce (Senior Lecturers); Teresa Atkinson and Jennifer Bray (Research staff); Nicola Jacobson (Dementia Practice Development
Coaches); Sarah Milosevic, Heather Yemm (PhD students.); Hazel Ratcliffe, Helen Cain, Carole Edwards, Kate Durrant, Susan Pinfold-Brown, Guy Page and Charmain Nicholas (Associate
Specialists); Alex Cross, Mike Watts, Helen Malbon, Zuleika Sankey and Laura Bond (Administration Team);
Dr Bernie Coope, Dr Kay De Vries, Dr Andrew Papadopoulos and Jenny La Fontaine (Honorary staff); Peter Ashley, Rosemary Clarke, Barbara Stephens, Penny Venables, Jan Quallington,
Professor Dominic Upton & Professor Geoffrey Elliott are members of the ADS Steering Group.
Raising awareness
• Evaluation of the Prime Minister’s
Challenge - Intergenerational Schools
Project in primary and secondary schools
• Evaluation of ‘Carers as Educators’ project
for Dementia UK
• Evaluation of the Dementia Adventure
natural leaders programme
Accredited dementia education &
training
• Leadership & management in dementia care
• Specialist/champion courses in dementia care
• Specialist dementia care in acute and community
hospitals, care homes and domiciliary care
• Achieving cultural competency and safeguarding
within the context of a person-centred approach
• Foundation Degree in Dementia Studies (from Sept
2014)
₋ including safeguarding and MCA
• Stand by Me DVD and Education Package
International partnerships
• Member of the Executive Board for the EU Joint
Action on Alzheimer’s Initiative (ALCOVE)
• Member of INTERDEM
• Strong working relationships with
many countries worldwide
The ADS team
Led by its Director, Professor Dawn
Brooker, we are committed to a person-
centred approach in all our work. This is
our ethical code that values all people as
unique individuals, is respectful of the
perspective of different standpoints, and
recognises the interdependence of us all.
We are committed to raising awareness,
challenging stigma and improving quality
of life and wellbeing of individuals and
communities.
We offer impartial opinion based on best
evidence and promoting what supports
people to live well with dementia.
We work in partnership with health,
housing and social care providers,
communities, and commissioners, the
voluntary and community sector,
educational bodies and government
agencies.
Why not follow us:
ADS is a founder member of the DAA and supports
the outcomes of the declaration:-
1. I have personal choice and control or influence
over decisions about me
2. I know that services are designed around me and
my needs
3. I have support that helps me live my life
4. I have the knowledge and know-how to get what I
need
5. I live in an enabling and supportive environment
where I feel valued and understood
6. I have a sense of belonging and of being a valued
part of family, community and civic life
7. I know there is research going on which delivers a
better life for me now and hope for the future.
@DementiaStudies
Search for Association for Dementia Studies

8. © The Association for Dementia Studies
Early interventions and Primary
Care
• Lead on Timely Diagnosis
Recommendations for EU ALCOVE
programme
• Development of Primary Care Dementia
competencies
• In-depth evaluation of the Worcestershire
Early Intervention Dementia Service & the
Dementia Adviser Service
• Specialist Education Modules in Early
interventions & primary care
• PhD research on Early Cognitive Change
Living well with dementia
•Supporting people from all communities to live
well with dementia
•ESRC Seminar Series: Age, Race and Ethnicity
•Connecting Communities Programme
evaluation
•Innovative interventions to support people
and their families, including new service model
for RSAS.
•Development and evaluation of MEETING DEM
in UK, Italy & Poland JPND/ESRC funded
• Research network and conferences in
creative therapies and dementia.
• Understanding Dementia and sight loss:
For more information please contact: dementia@worc.ac.uk, call us on 01905 542531 or visit our website at
http://www.worcester.ac.uk/association-for-dementia-studies.html
Association for Dementia Studies
Director - Professor Dawn Brooker
Excellence in person-centred care in
care homes
• PIECE-dem observational framework for
advanced dementia
• CHOICE – organisational culture and care
experiences in care homes
• ‘Care Fit for VIPS’ free web-based toolkit for
care homes www.carefitforvips.co.uk
• Specialist education modules in care home
leadership and dementia specialists
• FITS – Focussed Interventions in Training and
Support to reduce anti-psychotic prescribing;
funded by the Alzheimer’s Society
ADS is a multi-professional group of
educationalists, researchers and practitioners
with many years of experience in the field of
person-centred dementia care and support.
The perspective of people living with dementia,
their families and their carers are intrinsic to
the work of ADS at all stages.
We make a cutting edge contribution to
developing evidence-based practical ways of
working with people living with dementia, their
families, friends and carers that enable them to
live well.
We do this primarily through research,
education, scholarship and policy advice. We
draw on and contribute to the international
evidence base for person-centred dementia
care. Using this evidence we deliver education
programmes that empower people to provide
skilled, competent and compassionate care
Dementia-friendly hospital care
• Development and evaluation of a suite of
interventions including a care bundle approach
with the Royal Wolverhampton Hospitals Trust
• Steering group membership of the National
Audit of Dementia
• Partners in NIHR Delirium Programme and PIE
observation tool
• Dementia Leadership and Specialist education
modules in acute and community hospital
dementia care.
• End of life care evaluation
Supporting choice and control at home
and in supported housing
• The Enriched Opportunities Programme
• The ASSET project – adult social care in housing with
care schemes
• PhDs on direct payments in rural areas and on
home-based support in Israel

9. Recent highlights
• The Hennell Award: Celebrating excellence
and innovation in dementia care
• Kings Fund – Enhancing the Healing
Environment
• TAnDem – Alzheimer’s Society funding DTC
with University of Nottingham
• Stand by Me – eLearning with Skills for Health
– Launch due 23 April 2015

10. Research Outputs
11994211043111667212932410073122177002460200
2…
0
5
10
15
20
25
30
35
40
45
Journal papers Books Book chapters Research reports Presentations Posters
2010/11
2011/12
2012/13
2013/14

11. Future Developments
• Remap work activities to new clusters
– Home, Communities and Diversity: living well &
adjusting post diagnosis
– Skilled Care and Leadership for Complex Care
Services
– Enriching Lives in dementia through Creativity,
Arts, Nature and Sport
– Person Centred Design & Technology

12. Bespoke innovative
education programmes
in developing areas:
Action Learning Sets
Dementia expertise
embedded in FD, UG &
PG provision
University accredited
modules and named
awards in dementia
Vehicles for change,
products & people;
1 2
3 4
ADS Education and
Development
University of Worcester
Association for Dementia Studies

13. ADS TIERED MODEL OF DEMENTIA Leadership
Managing
Dementia Care
Services
( Leadership for managers)
Dementia Specialist Practitioner
(Coaching & leading at the individual
service user level)
FUNDAMENTALS IN DEMENTIA CARE (ALL STAFF)
Managers choose
specialists to act as a co-
partners in leading and
embedding change
Start the
education
programme with
the Managers

14. © The Association for Dementia Studies
Dementia Studies
Foundation Degree
• First cohort started September 2014.
• Its contents are informed by key stakeholders,
for example, people with dementia and family
carers, and employers.
• The Foundation Degree employs the latest
research and employ work-based placements to
underpin learning.
• LINK members actively participate in teaching
students.

15. © The Association for Dementia Studies
University Modules
• Level 6
• Dementia care in an Acute setting
• Dementia care in a community setting (from Oct
2015)
• Level 7
• Leading Person Centred Services for People Living
with Dementia
• Interventions in Dementia
• Teaching and Educating Dementia to Staff and
Students in dementia care
• Admiral Nurses

16. Nottingham - Worcester Doctoral Training
Centre - The Arts and Dementia (TAnDem)
• 3 PhD Studentships (2 based at Worcester and 1 at
Nottingham University)
• The Alzheimer’s Society has funded 8 Doctoral Training
Centres in various aspects of dementia to help to
increase research knowledge and capacity in this vital
area. TAnDem is the name of the Doctoral Training
Centre (DTC) that has been funded to focus on studying
The Arts and Dementia. It is a partnership between the
Association for Dementia Studies at the University of
Worcester and the Centre for Dementia, University of
Nottingham.

17. © The Association for Dementia Studies
TEDS – Teaching and Educating
Dementia Studies

19. The Five W of TEDS
Who?
What?
Why?
Where?
How?

20. Who?
Who should attended?
Do we have initial requirements?
Who will they be teaching?

21. What?
What should be the learning outcomes?
What is the balance between -
Dementia?
Teaching emotionally challenging topics?
How to develop ‘dementia threads?’

22. Why?
• Why is this needed?
• Why would people decide to take part in this?

23. Where?
Where should we be recruiting for?
UoW?
Lead trainers in health and care organisations?
Other Universities?

24. How?
• How can we assess the learning on the
module?
• How should the course be structures? How
many days?
• How can we support people on this module?

25. Group Work
Short Descriptive
Learning outcomes
Course structure/s
Assessment tools (formative/summative)
Recruitment plan
Reading List

26. Association for Dementia Studies
Email: dementia@worc.ac.uk
www.worcester.ac.uk/dementia
www.facebook.com/pages/Association-for-
Dementia-Studies/171299572976302
@DementiaStudies