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Dr. Hasina Visram, MD, MSc
 To review Ottawa’s cultural demographics
 To highlight the impact of culture on diabetes
management
 To review strategies to improve cross cultural
diabetes care
 Canadian immigrants tend to settle in big cities.
 Compared to other cities, immigrants who settle in
Ottawa are typically more educated, earn higher
wages, and have higher levels of employment.
 Ottawa receives the highest percentage of refugees
and family-related immigration of any major
Canadian centre.
 Recent immigrants (settled within 10 years) - make
up 6.8% of the population.
 18% of Ottawa’s population was born outside of
Canada.
 Third-largest West Indian community, and
the second-fastest growing after Toronto.
 Fourth- largest African community, and the
second-fastest growing after Calgary.
 Chinese community is the smallest of
Canada's five largest centres, but the
country's fastest-growing.
 Fourth-largest Middle Eastern community.
 Our European community is the smallest of
Canada's five largest cities.
 Qualitative interview based studies
 UK, United States
 South Asian, Hispanic, Chinese and African
American populations
 Language
 Finances
 Diet
 Belief Systems
 Effects first generation immigrants more
 Poor fluency in English has been identified by
patients as a major barrier to accessing and
understanding basic health information
 Poor English also limited people’s willingness to
travel beyond the immediate neighborhood
 Impact on food shopping, exercise, daily living
Interpreters
Preferred professional translators over family
 Power dynamic of having parents depend on
children to translate
 Translation of medical terms
 Same gender interpreter preferred
 Not the only player
 Only providing advice in an Asian
language was ineffective as an
educational intervention to
encourage dietary modification in
South Asian patients with diabetes
in Leicester.
 UK Study interview based study
 Caucasian British patients as well as South
Asians suggested that information offered
about their condition could be difficult to
understand.
 White male, interview no. 20: ‘‘If they talked in layman’s I
would, knowing what they say what these tablets are for.
It’s when they start using the technical terms . . .’
Health literacy is distinct from language fluency
and refers to “an individual’s ability to read,
understand, and use healthcare information to
make effective healthcare decisions and follow
instructions for treatment.”
 Low health literacy is more prevalent among
marginalized populations
◦ A study of 408 patients with type 2 diabetes identified that
52% of Hispanic patients versus 15% of non-Hispanic white
patients had inadequate health literacy, as assessed with
the English or Spanish version of the short-form Test of
Functional Health Literacy in Adults.
◦ In a survey of 22 Hispanic patients with diabetes, 91% were
unfamiliar with the term A1c.
◦ A crosssectional survey of 30 Puerto Rican adults with type
2 diabetes found that only 37% were able to identify a
normal blood glucose level, and 33% could not identify
long-term complications related to diabetes.
 Strong English skills in the immigrant population
do not ensure strong health literacy
How confident are you filling out medical forms by yourself?
How would you rate your ability to read medical forms?
 Almost 60% of Hispanic adults with diabetes have
an annual income below $20,000 compared with
approximately 28% of non-Hispanic whites with
diabetes.
 In a survey of 44 low-income Mexican-Americans
with type 2 diabetes, cost was identified as a
reason some patients reduced their dosage or
frequency of insulin therapy.
 Cost cited as a barrier to treatment in 24% of
Hispanic patients with diabetes versus 8% of non-
Hispanic whites.
 General diabetic population in South
Auckland surveyed.
◦ Covered by government programs
◦ Annual out of pocket costs ranged from $191 -
$329
◦ 18-49% reported costs led to less blood glucose
monitoring
◦ 11-47% said finances impacted use of oral
medications
◦ 8-52% said that cost impacted insulin therapy
 Diet specific concerns
◦ High fat content of some Indian curries
◦ High sugar/calorie Indian desserts
◦ Role of rice in Chinese cuisine
◦ Role of balance in Chinese cuisine
 Incorporation in to a way of life
◦ Travel
◦ Visiting family
◦ Shared meals
 45 African American patients through
discussion groups:
◦ Four areas impacting diet – habitual (meal plans
lacking in taste), economic (cost of low fat, low
sugar, fresh items), social (lack of family support,
family pressure to cook preferred meals),
conceptual (understanding food labels).
 Similar barriers in South Asian and Somali
populations
 Added cost of culturally comfortable food (ie.
Bangladeshi vegetables)
 Disease states are an action by God
◦ Individuals have little control over the course
Social stigma of illness
 Effects diet in group settings
 Deterrent to insulin treatment
Infancy of western medicine
 Concerns regarding side effects
 Beliefs about efficacy
Culturally Oriented Clinical Encounter
Culturally sensitive and relevant programs
 Location
 Timing
 Program development
 Presenters
 Participants
1. Caballero A. Cultural Competence in Diabetes Mellitus Care: An Urgent Need. Insulin 2007; 2(2): 80-91.
2. Campos CMPH. Addressing Cultural Barriers to the Successful Use of Insulin in Hispanics with Type 2 Diabetes. South Med J 2007;100:812-
20.
3. Chesla CADNSC, F.A.A.N., Chun KMPHD, Kwan CMLPHD. Cultural and Family Challenges to Managing Type 2 Diabetes in Immigrant Chinese
Americans. Diabetes Care 2009;32:1812-6.
4. Dutton GR1, Johnson J, Whitehead D, Bodenlos JS1, Brantley PJP. Barriers to Physical Activity Among Predominantly Low-Income African-
American Patients With Type 2 Diabetes. Diabetes Care 2005;28:1209-10.
5. Grace C, Begum R, Subhani S, Kopelman P, Greenhalgh T. Prevention of type 2 diabetes in British Bangladeshis: qualitative study of
community, religious, and professional perspectives. BMJ 2008;337:1094-100.
6. Ho E, James J. Cultural Barriers to Initiating Insulin Therapy in Chinese People With Type 2 Diabetes Living in Canada. Canadian Journal of
Diabetes. 2006;30(4):390-396.
7. Karter A, Stevens M, Herman W, Ettner S, Marrero D, Safford M, Engelgau M, Curb J, Brown A. Out-of-Pocket Costs and Diabetes Preventive
Services. Diabetes Care 2003;26:2294–2299.
8. Law M, Cheng L, Dhalla I, Heard D, Morgan S. The effect of cost on adherence to prescription medications in Canada. CMAJ 2012.
DOI:10.1503/cmaj.111270
9. Lawton J, Ahmad N, Hanna L, Douglas M, Hallowell N. 'I can't do any serious exercise': barriers to physical activity amongst people of
Pakistani and Indian origin with Type 2 diabetes. Health Educ Res 2006;21:43-54.
10. Ngo-Metzger Q, Massagli MP, Clarridge BR, et al. Linguistic and cultural barriers to care. Journal of General Internal Medicine 2003;18:44-
52.
11. Powers BJMHS, Trinh JV, Bosworth HB. Can This Patient Read and Understand Written Health Information? JAMA 2010;304:76-84.
12. Sriskantharajah J, Kai J. Promoting physical activity among South Asian women with coronary heart disease and diabetes: what might help?.
Fam Pract 2007;24:71-6.
13. Stone M, Pound E, Pancholi A, Farooqi A, Khunti K. Empowering patients with diabetes: a qualitative primary care study focusing on South
Asians in Leicester, UK. Fam Pract 2005;22:647-52.
14. Vijan S, Stuart NS, Fitzgerald JT, et al. Barriers to following dietary recommendations in Type 2 diabetes. Diabetic Med 2005;22:32-8.
15. Wallin, AnneMarie L, Monica A, Gerd RNT. Diabetes: a cross-cultural interview study of immigrants from Somalia. J Clin Nurs
2007;16:305-14.

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Dr Hasina Visram: Cultural Barriers to Diabetes Management

  • 2.  To review Ottawa’s cultural demographics  To highlight the impact of culture on diabetes management  To review strategies to improve cross cultural diabetes care
  • 3.
  • 4.  Canadian immigrants tend to settle in big cities.  Compared to other cities, immigrants who settle in Ottawa are typically more educated, earn higher wages, and have higher levels of employment.  Ottawa receives the highest percentage of refugees and family-related immigration of any major Canadian centre.  Recent immigrants (settled within 10 years) - make up 6.8% of the population.  18% of Ottawa’s population was born outside of Canada.
  • 5.  Third-largest West Indian community, and the second-fastest growing after Toronto.  Fourth- largest African community, and the second-fastest growing after Calgary.  Chinese community is the smallest of Canada's five largest centres, but the country's fastest-growing.  Fourth-largest Middle Eastern community.  Our European community is the smallest of Canada's five largest cities.
  • 6.
  • 7.
  • 8.
  • 9.
  • 10.
  • 11.  Qualitative interview based studies  UK, United States  South Asian, Hispanic, Chinese and African American populations
  • 12.  Language  Finances  Diet  Belief Systems
  • 13.
  • 14.  Effects first generation immigrants more  Poor fluency in English has been identified by patients as a major barrier to accessing and understanding basic health information  Poor English also limited people’s willingness to travel beyond the immediate neighborhood  Impact on food shopping, exercise, daily living
  • 15. Interpreters Preferred professional translators over family  Power dynamic of having parents depend on children to translate  Translation of medical terms  Same gender interpreter preferred
  • 16.  Not the only player  Only providing advice in an Asian language was ineffective as an educational intervention to encourage dietary modification in South Asian patients with diabetes in Leicester.
  • 17.  UK Study interview based study  Caucasian British patients as well as South Asians suggested that information offered about their condition could be difficult to understand.  White male, interview no. 20: ‘‘If they talked in layman’s I would, knowing what they say what these tablets are for. It’s when they start using the technical terms . . .’
  • 18. Health literacy is distinct from language fluency and refers to “an individual’s ability to read, understand, and use healthcare information to make effective healthcare decisions and follow instructions for treatment.”
  • 19.  Low health literacy is more prevalent among marginalized populations ◦ A study of 408 patients with type 2 diabetes identified that 52% of Hispanic patients versus 15% of non-Hispanic white patients had inadequate health literacy, as assessed with the English or Spanish version of the short-form Test of Functional Health Literacy in Adults. ◦ In a survey of 22 Hispanic patients with diabetes, 91% were unfamiliar with the term A1c. ◦ A crosssectional survey of 30 Puerto Rican adults with type 2 diabetes found that only 37% were able to identify a normal blood glucose level, and 33% could not identify long-term complications related to diabetes.  Strong English skills in the immigrant population do not ensure strong health literacy
  • 20. How confident are you filling out medical forms by yourself? How would you rate your ability to read medical forms?
  • 21.
  • 22.  Almost 60% of Hispanic adults with diabetes have an annual income below $20,000 compared with approximately 28% of non-Hispanic whites with diabetes.  In a survey of 44 low-income Mexican-Americans with type 2 diabetes, cost was identified as a reason some patients reduced their dosage or frequency of insulin therapy.  Cost cited as a barrier to treatment in 24% of Hispanic patients with diabetes versus 8% of non- Hispanic whites.
  • 23.  General diabetic population in South Auckland surveyed. ◦ Covered by government programs ◦ Annual out of pocket costs ranged from $191 - $329 ◦ 18-49% reported costs led to less blood glucose monitoring ◦ 11-47% said finances impacted use of oral medications ◦ 8-52% said that cost impacted insulin therapy
  • 24.
  • 25.
  • 26.
  • 27.
  • 28.
  • 29.  Diet specific concerns ◦ High fat content of some Indian curries ◦ High sugar/calorie Indian desserts ◦ Role of rice in Chinese cuisine ◦ Role of balance in Chinese cuisine
  • 30.  Incorporation in to a way of life ◦ Travel ◦ Visiting family ◦ Shared meals
  • 31.  45 African American patients through discussion groups: ◦ Four areas impacting diet – habitual (meal plans lacking in taste), economic (cost of low fat, low sugar, fresh items), social (lack of family support, family pressure to cook preferred meals), conceptual (understanding food labels).
  • 32.  Similar barriers in South Asian and Somali populations  Added cost of culturally comfortable food (ie. Bangladeshi vegetables)
  • 33.
  • 34.  Disease states are an action by God ◦ Individuals have little control over the course
  • 35. Social stigma of illness  Effects diet in group settings  Deterrent to insulin treatment
  • 36. Infancy of western medicine  Concerns regarding side effects  Beliefs about efficacy
  • 37.
  • 39.
  • 40. Culturally sensitive and relevant programs  Location  Timing  Program development  Presenters  Participants
  • 41.
  • 42. 1. Caballero A. Cultural Competence in Diabetes Mellitus Care: An Urgent Need. Insulin 2007; 2(2): 80-91. 2. Campos CMPH. Addressing Cultural Barriers to the Successful Use of Insulin in Hispanics with Type 2 Diabetes. South Med J 2007;100:812- 20. 3. Chesla CADNSC, F.A.A.N., Chun KMPHD, Kwan CMLPHD. Cultural and Family Challenges to Managing Type 2 Diabetes in Immigrant Chinese Americans. Diabetes Care 2009;32:1812-6. 4. Dutton GR1, Johnson J, Whitehead D, Bodenlos JS1, Brantley PJP. Barriers to Physical Activity Among Predominantly Low-Income African- American Patients With Type 2 Diabetes. Diabetes Care 2005;28:1209-10. 5. Grace C, Begum R, Subhani S, Kopelman P, Greenhalgh T. Prevention of type 2 diabetes in British Bangladeshis: qualitative study of community, religious, and professional perspectives. BMJ 2008;337:1094-100. 6. Ho E, James J. Cultural Barriers to Initiating Insulin Therapy in Chinese People With Type 2 Diabetes Living in Canada. Canadian Journal of Diabetes. 2006;30(4):390-396. 7. Karter A, Stevens M, Herman W, Ettner S, Marrero D, Safford M, Engelgau M, Curb J, Brown A. Out-of-Pocket Costs and Diabetes Preventive Services. Diabetes Care 2003;26:2294–2299. 8. Law M, Cheng L, Dhalla I, Heard D, Morgan S. The effect of cost on adherence to prescription medications in Canada. CMAJ 2012. DOI:10.1503/cmaj.111270 9. Lawton J, Ahmad N, Hanna L, Douglas M, Hallowell N. 'I can't do any serious exercise': barriers to physical activity amongst people of Pakistani and Indian origin with Type 2 diabetes. Health Educ Res 2006;21:43-54. 10. Ngo-Metzger Q, Massagli MP, Clarridge BR, et al. Linguistic and cultural barriers to care. Journal of General Internal Medicine 2003;18:44- 52. 11. Powers BJMHS, Trinh JV, Bosworth HB. Can This Patient Read and Understand Written Health Information? JAMA 2010;304:76-84. 12. Sriskantharajah J, Kai J. Promoting physical activity among South Asian women with coronary heart disease and diabetes: what might help?. Fam Pract 2007;24:71-6. 13. Stone M, Pound E, Pancholi A, Farooqi A, Khunti K. Empowering patients with diabetes: a qualitative primary care study focusing on South Asians in Leicester, UK. Fam Pract 2005;22:647-52. 14. Vijan S, Stuart NS, Fitzgerald JT, et al. Barriers to following dietary recommendations in Type 2 diabetes. Diabetic Med 2005;22:32-8. 15. Wallin, AnneMarie L, Monica A, Gerd RNT. Diabetes: a cross-cultural interview study of immigrants from Somalia. J Clin Nurs 2007;16:305-14.