Enhancing carers and cared for peoples quality of life through developing carers’ digital and care - Waights
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The DISCOVER project aims to enhance the quality of life of both carers and cared for individuals by developing carers' digital and caring skills. The project involves partners from Greece, Spain, Holland, UK, and Ireland. Carers provide care for family, friends or neighbors and often experience issues like physical health problems, stress, anxiety and depression. Feedback from carers indicated the DISCOVER resources provided helpful new knowledge and many felt more supported in their caring roles and would recommend the program. Moving forward, DISCOVER seeks to work with other organizations while maintaining flexibility to tailor the program for each country.
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Enhancing carers and cared for peoples quality of life through developing carers’ digital and care - Waights
- 1. Enhancing carers' and cared for people's quality of life through developing carers’ digital and caring skills -The DISCOVER project Dr Verina Waights, The Open University
- 2. DISCOVER Pilot Site Pilot Site Pilot Site Pilot Site Partners: Greece (1), Spain (2), Holland (1), UK (3), and Ireland (1).
- 3. Family carers Caring for family, friends or neighbours not defined by gender, age, race, ethnicity, culture or economic grouping Long standing physical health problems, stress, anxiety and depression (Pinquart & Sorensen; 2003, Mencap 2013) Likely to be financially less well off or living in poverty Likely to be socially isolated due to caring role
- 5. Local and National Services My map of local services Websites of national organisations
- 7. Quick reads and videos
- 8. Reducing the risk of falls
- 9. Findings: knowledge and recommendations 0 20 40 60 80 100 more supported carer/care worker cared-for person employer Carers (%) Carers feel more supported/would recommend DISCOVER Family Employed 0 20 40 60 80 100 services websites computing skills technologies for care health Carers (%) Carers new knowledge Family Employed
- 10. Carer and Stakeholder views The amount of information in the resources is impressive… I will definitely be using it in my caring role Granddaughter carer, UK All of these [topics] are good for beginners [new carers]… these will help to solve problems as they arise. Older family carer, Netherlands It is an amazing concept, bringing it [Services etc] all together Carer outreach worker, UK DISCOVER can improve caregivers’ skills and the quality of the services Care manager, Spain I have learned a great deal of new information [about] the condition of the person I care for Caregiver, Greece
- 11. Findings -wellbeing Statement Over the last two weeks… Carers who felt this all or most of the time Carers who felt this only some of the time or never Family carers Employed carers Family carers Employed carers I have felt cheerful and in good spirits I have felt calm and relaxed I have felt active and vigorous I woke up feeling fresh and rested My daily life has been filled with things that interest me 44% 44% 39% 25% 35% 48% 43% 58% 26% 59% 26% 12% 13% 21% 17% 1% 8% 1% 1% 3%
- 12. Moving forward DISCOVER Core shape but flexibility to be tailored for each country Working with other organisations that support formal and informal carers Providing a specialist service that complements existing provision and can be embedded by provider Challenges Improving confidence of carers to use technologies Raising awareness of opportunities from being online/using telehealth and telecare
- 13. Using DISCOVER
Hinweis der Redaktion
- List of partners and their roles in the DISCOVER project A strong consortium of partners from five countries United Kingdom, Greece, Holland, Spain and Ireland Within the lifetime of the project we aim to have: Up to 120 carers testing in phase 1 + 400 carers trained across four countries in phase 2; United Kingdom, Holland, Spain and Greece, some carers become digital skills mentors for the older people they care for reaching approximately 200 older people. 1 -5 training organisations per country engaged 5-10 care organisations (third sector, commercial or municipal) per country engaged Using Living Lab methodology for consistent user-driven and iterative design
- burden of care significantly limits opportunities to engage in non-care activities mental health problems, higher rate of physical illnesses) Mencap 8 /10 caring for someone with LD experience high levels of stress 8/10 don’t get short breaks Limited time for non care activities (reduced work hours, unemployment, reduced career chances). Social isolation as not part of professional community Online information, advice and guidance and access to a community of peers and experts can help reduce this isolation eurostats However older people’s platform age einclusion maginalising people without compute literacy For informal carers particularly, the shear burden of care significantly limits opportunities to engage in non-care activities and they can experience feelings of isolation because they are not part of a professional community [1]. Online information, advice and guidance and access to a community of peers and experts can help reduce this isolation [1]. However, the European Older People’s Platform (AGE) commenting on future e-inclusion policy [6] specifically raised the issues of the maginalisation of people without the computer literacy to access services that are increasingly only accessed online and the need for constant renewal of knowledge driven by changing technologies and services.