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Newly Diagnosed Dementia Family Support Seminar

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An informative seminar for families who are struggling with a loved one’s Alzheimer’s or related dementia.

Notes are written on each of the slides and are available upon request.

Veröffentlicht in: Bildung, Gesundheit & Medizin
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Newly Diagnosed Dementia Family Support Seminar

  1. 1. Coping with the diagnosis An informative seminar for families who are struggling with a loved one’s Alzheimer’s or related dementia Created by: Amanda Kanners
  2. 2. The Guide to Coping with Alzheimer’s & dementia  What are the types of dementia?  What are the stages of Alzheimer’s disease?  Is dementia genetically inherited?  How do I talk to them about their diagnosis?  Why is “no” their new favorite word and how can I turn it into a yes?  Who should they spend time with?  How do I deal with delusions and hallucinations?  How should I manage wandering?  How can I help someone in late stage dementia?
  3. 3. An accurate diagnosis is key Knowledge of the proper diagnosis can help family members better understand and cope with their situation. Photo by: 45th Ward Mom (c) 2014 Photo by: Anglicanmainstream.net
  4. 4. First off… what is dementia? “Dementia is an umbrella term for any disease or disorder that will cause problems with brain functioning such as confusion, memory loss, or loss of problem solving ability.” (Home Instead, 2014) Dementia Lewy Body
  5. 5. Alzheimer’s Disease  Most common type of dementia  Symptoms develop slowly, getting worse over time  Early-stage symptoms  Later-stage symptoms
  6. 6. Vascular dementia  Second most common type of dementia  Different causes than Alzheimer’s Disease  Different onset of symptoms than Alzheimer’s Disease
  7. 7. Mixed dementia  Unknown prevalence  More than one type of dementia occur at the same time in the brain  Causes and symptoms depend on the types of dementia that are occurring simultaneously  Most common combination of Mixed dementia
  8. 8. Dementia with Lewy Bodies Third most common type of dementia Cause currently unknown Common symptoms Photo from: Huffpost Healthy Living
  9. 9. Frontotemporal dementia  Most common type of dementia in individuals under the age of 65  Early onset  Very different early-stage symptoms  Family history Photo from: frontemporaldementia.info
  10. 10. What are the stages of Alzheimer’s disease? Photo from Net Resources International
  11. 11. Is dementia inherited? Don’t panic! Not all types of dementia are genetic, other factors can actually be greater contributors. Early-onset dementia is more inheritable Later-onset dementia is less inheritable Photo from colormerouge.com
  12. 12. “Whatever you do, don’t tell mom about her Alzheimer’s disease!” Most physicians and specialists believe it is a patient’s right to be fully informed about their situation. Photo from natcom.org
  13. 13. Ok… so how do I talk to them about their diagnosis? 1. Research the type of dementia they have been diagnosed with. 2. Allow the physician to explain the situation to your loved one. They are trained for this and have most likely done it many times. 3. Be empathetic, upbeat, and supportive. 4. Answer any questions your loved one asks, but stress the positive 5. Assure them that you will be traveling the journey with them.
  14. 14. How can I turn a NO into a YES? When we are asked to do something we don’t understand or we don’t feel comfortable with, how do we respond? Photo from karengately.wordpress.com
  15. 15. Third time’s the charm  Try three times in three different ways 1. Ask them in the same way that you have always asked them. “Dad, it is a beautiful day outside. Let’s go outside and watch the birds.” 2. Use some information from their life story to make a more personal request. “Dad, let’s go outside and feed the birds. I need you to help me fill your bird feeder, and I know you are the best at it!” 3. Take their hand and use visual cues. Add an incentive or a favorite reward to increase likelihood of a yes. “Dad, it is really beautiful outside today. Let’s go outside and bird watch. [pause] I’d really appreciate your help, and afterwards we can go get some chocolate ice cream.”
  16. 16. Coping Together  “We want to be with other people who have the disease, people like us.” (Chicago Tribune, 2014.)  Supper clubs, Wild Bunch, and other support groups. Members of the Wild Bunch, formed in 2010. Photo from the Chicago Tribune
  17. 17. Delusional, suspicious and hallucinating  Delusions: firmly held beliefs in things that are not actually real. Although their delusions are not grounded in reality, the situations are very real to the person with dementia.  Suspicions: can stem from delusions and cause mistrust in those around them. This often leads to accusations of theft, infidelity or other types of improper behavior.  Hallucinations: the person with dementia may see, hear, smell, taste or feel something that is not actually there. These are false perceptions of objects or events that do really exist involving the senses. Photos from Alzheimer’s Association
  18. 18. “The cleaning lady stole my wallet” Accusations  Forgetfulness “I don’t know who you are” Mistaken Identity  Forgetfulness “I just had my 35th birthday last week” Flashbacks  Forgetfulness “My neighbor keeps stealing my petunias” And then some are just mysterious…
  19. 19. How do I react? Do not take it personally! Follow these tips:  Do not overreact or get upset at your family member.  Acknowledge their concern and ask questions to gain more information about the concern.  Do not argue. Remember that this is their reality.  With mistaken identity you can try offering gentle cues.  Time heals all.  Hallucinations are a slightly different story.
  20. 20. Where did she wander to now? “I just turned my back for a minute and mom had wandered off. She usually walks so slowly, but when she wanted to get away she became a track star!” (Home Instead Inc., 2014) 6 in 10 persons with dementia wander… Why? Forgetfulness “What time is it? Am I missing work?” Fear “Where am I? This place isn’t safe.”
  21. 21. How can I keep them safe?  Make your home safe.  Recognize patterns and triggers.  Know your loved one’s wandering habits and plan outings based on them.  Always plan for the worst. Consider registering your loved one with MedicAlert + Safe Return
  22. 22. How can I help my loved one who is in a later stage?  Always preserve your loved one’s dignity  Gentle physical contact  Take care of yourself Photo from Bath-Knight Blog  Manage pain  Spend time outside when possible  Hospice care
  23. 23. Stimulate the senses Engaging the senses engages the brain and keeps your loved one roused Taste: hydration, food Vision: nature scenes Hearing: soft music Touch: animal therapy, warm towels, soft massage Smell: aroma therapy Photo from newyorktimes.com
  24. 24. References: Alzheimer’s Association. (2014). Seven stages of Alzheimer’s. Retrieved on January 28, 2014 from: http://www.alz.org/alzheimers_disease_stages_of_ alzheimers.asp Graham, J. (2014). Alzheimer’s supper club. Chicago Tribune: Health & Family. Printed on Wednesday, January 29, 2014. (Print). HCR ManorCare. (2014). Arden Courts. Retrieved on February 3, 2014 from: http://www.arden-courts.com Home Instead Inc. (2014). Retrieved on January 28, 2014 from: http:// www.helpforalzheimers families.com Net Resources International. (2012). What are the stages of Alzheimer’s? Retrieved on January 29, 2014 from: http://www.drugdevelopmenttechnology.com/projects/semagacestat/semagacestat2.html
  25. 25. Photo references: 45th Ward Mom Frontotemporal Dementia.info Alzheimer’s Association Huffpost Healthy Living Anglican Mainstream In Her Chucks Bath-Knight Blog Karen Gately Wordpress Chicago Tribune National Communication Association Clip Art CNN Health Color Me Rouge Net Resources International New York Times