1. Breakout‐ Region 9 & 10
12/08/09
Activities
‐ LEND PAC‐WEST conference calls
‐ Thinking of webinars
‐ Advisory groups to coordinate
‐ Workforce development
o Primarily screening
o Capacity building among professionals
o Advisory and steering committees
‐ Training
‐ Research
o Learn the Signs Act Early
o Co‐occurrence of ASD and FASD
o Intervention Research
o Guanfacine research
‐ WA‐ Community Asset Management
‐ OR‐ DBPs created ASD screening lecture training parents via webinar
‐ HI‐ Training PCPs now ADOS‐trained
‐ AK‐ Neurodevelopmental outreach clinics, streamline referrals
‐ CA‐ Ethnographic studies, oral health, ophtho
o 2 DBPs in every continuity clinic session
‐ TRAINING
o WA‐ Improving education for family trainees
Increased number of LEND trainees
New autism center @ Seattle Children’s (DBP fellows, interns, and LEND
trainees)
o OR‐ Autism parent training programs‐ rural
o AK‐ statewide Autism Institute
TASSE site‐ grant for behavior service supports
Collaborative system in early childhood
STATE POST‐SUMMIT ACCOMPLISHMENTS
‐ Region 9
o AZ, NV, CA, HI
o Provide technical assistance
o CELPA‐ State of CA divided
o Create a state coalition
o Attempt to organize an autism registry

2. o Professional Development Institute grant funds
o In CA, learning to work more closely between North CA and South CA
‐ Region 10
o WA‐ state implementation grant and LEND joined forces
COLLABORATIVE PRODUCT OR OUTCOME
‐ OR‐ Governor just started Autism Commission (screening, medical, school)
‐ WA‐ Policies‐working on access, capacity building, and expanding access to rural areas
‐ CA‐ Many activities, folks from UCEDD serve on state councils
o Creating screening plan
o Using telehealth to do outreach
‐ AK‐ Struggles with care providers and referrals
o High turnover rate in early care and education how to educate these folks? –
Learn the Signs Act Early
‐ Other‐ Part C on the chopping block in some states
‐ Shared interest in capacity building
‐ Collective interest in screening and intervention
‐ Family‐to‐Family one in every state. Possibility of collaborating to support this?
‐ Referral overload to DBPs
‐ Idea of WIC as a place for ASD screening? Video lectures, webinar
‐ Parent access/screening tool problems with families who struggle with things like this
‐ Problem of cultural miscommunication of signs
o Time if diagnosis differs across different ethnicities (CA, AK, HI, everywhere)
IDEAS
‐ What do we have to share?
‐ Repository of info, tools, and toys
‐ Use technical support centers‐ regional technical support
‐ Learn the Signs‐ English and Spanish
‐ Mass translation (electronically)
‐ SHARING INFO
‐ AMCHIP serves as resource center for state implementation grants‐ Can AMCHIP contribute
to repository?
‐ ITAC Website
‐ SPHARC‐ State Public Health Autism Resource Center
‐ Interest in sharing info via telehealth?
‐ Importance of establishing collaborative relationships
‐ PAC‐WEST LEND consortium
ACTION ITEMS
‐ 1) Resource Sharing

3. o SPHARC has public and private domains
o Idea of a searchable database/list, and can they do the search? There needs to be a
search function
o Partners for new projects‐ ability to find
‐ 2) Identify person to share resources
TARGET DATES AND POINT PERSON(S)
‐ ITAC and SPHARC‐ identify a point person to bring in these resources by January 2010.
SUPPORT NEEDS
‐ Repository of info, tools, etc.
‐ Resource sharing
‐ Relationship development