Providing Services to People Living with Alzheimer's: Resources (January 2020)

1. LIBRARY SERVICES FOR PEOPLE
LIVING WITH ALZHEIMER’S
Dr. Timothy J. Dickey
ALA eLearning
Jan. 15, 2020
GENERAL RESOURCES:
Alzheimer’s Association (www.alz.org)
Alzheimer’s Disease Facts and Figures 2019
(https://alz.org/media/Documents/alzheimers-facts-and-figures-2019-r.pdf)
Know the 10 Signs (https://alz.org/10-signs-symptoms-alzheimers-dementia.asp)
Caregiver Center (http://www.alz.org/help-support/caregiving)
IGARD (ALA / ASGCLA interest group for Alzheimer’s and related dementias),
(http://www.ala.org/ascla/interestgroups/igard)
IFLA (www.ifla.org), Guidelines for Library Services to Persons with Dementia (2007)
(https://www.ifla.org/files/assets/hq/publications/professional-report/104.pdf)
National Center on Caregiving: Family Caregiver Alliance (https://www.caregiver.org)
RUSA, Guidelines for Library & Information Services to Older Adults
(http://www.ala.org/rusa/guidelines/guidelines-by-topic)
AARP (www.aarp.org)
National Council on Aging (https://www.ncoa.org/)
Reaching Across IL Library System RAILS
(https://www.railslibraries.info/community/groups/serving-patrons-dementia-group ); and
other local and statewide collaborations
(webinar: https://www.youtube.com/watch?v=DlSjev7GdW4 )
Senior Service Associates (www.seniorservicesassoc.org)
Senior.com (for facilities location and products)
Senior Living Source (http://www.seniorlivingsource.org)
Senior Living (www.seniorliving.org)
Visiting Nurses’ Associations
Care Facilities themselves
T. Dickey, Alzheimer’s Fiction and Memoirs Bibliography (in BiblioCommons for sharing)
_____, The Science of Alzheimer’s Bibliography
_____, For Alzheimer’s Caregivers Bibliography
ASSOCIATED INFORMATION NEEDS:
Consumer Health databases:
EBSCO’s Consumer Health Complete (https://www.ebsco.com/products/research-
databases/consumer-health-complete )
ProQuest Health & Medicine (http://www.proquest.com/libraries/public/health-medicine)
The National Library of Medicine’s MedLine (https://medlineplus.gov ) and PubMed;
NetWellness (http://www.netwellness.org )
Healthcare.gov (https://www.healthcare.gov )

2. LIBRARY SERVICES FOR PEOPLE
LIVING WITH ALZHEIMER’S
Dr. Timothy J. Dickey
ALA eLearning
Jan. 15, 2020
Financial, Legal & Ethical information:
National Academy of Elder Law Attorneys (https://www.NAELA.org)
National Elder Law Foundation (American Bar Association) (http://www.nelf.org)
National Hospice and Palliative Care Organization (http://www.nhpco.org)
Grief hotline (http://www.widownet.org)
Print resources on the Science of Alzheimer’s:
Amen, Daneiel. Memory Resuce. (Tyndale Momentum, 2017).
Bredesen, Dale E. The End of Alzheimer’s: The First Program to Prevent and Reverse
Cognitive Decline. (Avery, 2017).
Furman, Richard. Defeating Dementia: What You Can Do to Prevent Alzheimer’s and
Other Forms of Dementia. (Revell, 2018).
Jebelli, Joseph. In Pursuit of Memory: The Fight Against Alzheimer’s. (Little, 2017).
Kapsambelis, Niki. The Inheritence: A Family on the Front Lines of the Battle Against
Alzheimer’s Disease. (Simon & Schuster, 2017).
Powell, Tia. Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to
End. (Avery, 2019)
Sacks, Oliver. Everything in Its Place. (Knopf, 2019).
Sherzai, Dean. The Alzheimer’s Solution: A Breakthrough Program to Prevent and
Reverse the Symptoms of Cognitive Decline. (Harper, 2017).
Shenk, David. The Forgetting: Alzheimer’s Portrait of an Epidemic. (Doubleday, 2001).
Memoirs and Fiction resources:
Block, Stefan Merrill. The Story of Forgetting. (Random House, 2008).
Borrie, Cathy. The Long Hello: Memory, my Mother, and Me. (Arcade Publishing, 2016).
Hanstedt, Constance. Don’t Leave Yet: How my Mother’s Alzheimer’s Opened my Heart.
(She Writes Press, 2015).
Harvey, Samantha. The Wilderness. (Nan Talese, 2009).
Hepworth, Sally. The Things We Keep. (St. Martin’s, 2015).
Kozol, Jonathan. The Theft of Memory: Losing My Father One Day at a Time. (Crown
Publishers, 2015).
Leavitt, Sarah. Tangles: A Story about Alzheimer’s, my Mother, and Me. (Skyhorse,
2012).
Moody, Tyora. When Memories Fade. (Urban Christian, 2013).
O’Brien, Greg. On Pluto: Inside the Mind of Alzheimer’s. (Codfish Press, 2016).
Rill, Eric. An Absent Mind. (Lake Union, 2015).
Saunders, Gerda. Memory’s Last Breath: Field Notes on my Dementia. (Hachette, 2017).
Schnurbush, Barbara. Striped Shirts and Flowered Pants. (Magination Press, 2007).
Smith, B. Before I Forget. (Harmony, 2016).
Summit, Pat Head. Sum It Up: 1,098 Victories, a Couple of Irrelevant Losses, and A Life
in Perspective. (Crown, 2013).

3. LIBRARY SERVICES FOR PEOPLE
LIVING WITH ALZHEIMER’S
Dr. Timothy J. Dickey
ALA eLearning
Jan. 15, 2020
SELECTED PROGRAMS:
Alzheimer’s Poetry Project (http://www.alzpoetry.com/)
Dementia-Friendly America (http://www.dfamerica.org)
Fidget Quilts donated from local quilting club
(https://americanlibrariesmagazine.org/2018/03/01/community-fabric-fidget-quilts)
Memorable Pets (stuffed animals and dolls: www.memorablepets.com)
Memory Cafés (www.memorycafedirectory.com), and the Library Memory Project
(http://www.librarymemoryproject.org)
Memory Garden (https://www.chicagotribune.com/suburbs/aurora-beacon-news/chi-ugc-article-
parker-garden-latest-philanthropic-additio-2014-03-17-story.html)
MOMA Alzheimer’s Project (www.moma.org/meetme), and Columbus Museum of Art
(https://www.columbusmuseum.org/joy-imaginations)
Movies & Memories (http://www.marc.org/Community/KC-Communities-for-All-
Ages/About/Events/Age-Positive-Conference.html#movies)
Music & Memory (http://www.MusicandMemory.org ;
https://www.youtube.com/watch?v=fyZQf0p73QM)
Reminiscence Kits: Bi-Folkal Productions (Madison WI, http://www.bifolkal.org), Winslow in
the U.K. (www.winslowresources.com), and Best Alzheimer’s Products (http://best-
alzheimers-products.com, an online commercial clearing house).
Tales & Travel (http://talesandtravelmemories.com)