Providing Services to People Living with Alzheimer's (January 2020)

1. LIBRARY SERVICES FOR
PEOPLE LIVING WITH
ALZHEIMER’S
Dr.Timothy J. Dickey
American Library Association
Jan. 15, 2020

2. Outline
 Introduction to Alzheimer’s Dementia
 Associated Information Needs &
Traditional Library Resources
 The Caregiver Experience & Library
Resources
 Library Programming for those Living
with Alzheimer’s
Dr.Timothy J. Dickey
ALA, Jan. 2020

3. INTRODUCTIONTO
ALZHEIMER’S
DEMENTIA

4. Definitions & Scope
Dementia-FriendlyWyoming
Dr.Timothy J. Dickey
ALA, Jan. 2020

5. Alzheimer’s & Related Dementias
Alzheimer’s Facts & Figures, 2019
5.8
million
Dr.Timothy J. Dickey
ALA, Jan. 2020

6. Alzheimer’s Risk Factors
 Advanced age
 Family history
 Genetic markers
 Environmental and lifestyle aspects
Positive effects – Lifelong learning, and
Social activity
Dr.Timothy J. Dickey
ALA, Jan. 2020

7. Warning Signs
1. Memory loss
2. Challenges in planning
3. Difficulty completing tasks
4. Confusion with time/ place
5. Spatio-visual difficulty
6. Problems with words
7. Misplacing things
8. Decreased judgment
9. Withdrawal
10. Changes in mood
www.alz.org/10signs ; Image: Sober Rabbit, CCL @flick.com
Dr.Timothy J. Dickey
ALA, Jan. 2020

8. Stages of Alzheimer’s
[PRE-CLINICAL: 20 yrs.?]
Mild Cognitive Impairment (MCI)
 Mild Alzheimer’s dementia
 Moderate Alzheimer’s dementia
 Severe Alzheimer’s dementia
http://www.alz.org/alzheimers_disease_stages_of_alzheimers.asp
Dr.Timothy J. Dickey
ALA, Jan. 2020

9. The Caregiver community
https://www.caregiver.org

10. ASSOCIATED
INFORMATION NEEDS

11. Medical information needs
Images CCL: Engineering @ Cambridge; Craig Moe @Flickr.com
Dr.Timothy J. Dickey
ALA, Jan. 2020

12. Financial needs
Image CCL: RikkisRefuge Other @Flickr.com
Dr.Timothy J. Dickey
ALA, Jan. 2020

13. Legal & Ethical needs
www.NAELA.org; www.americanbar.org; www.nhpco.org
Dr.Timothy J. Dickey
ALA, Jan. 2020

14. Emotional needs
 Understanding
 Compassion
 Communication
 Appropriate materials
 Appropriate programming
Dr.Timothy J. Dickey
ALA, Jan. 2020

15. THE JOURNEY,AND
THE CAREGIVER
EXPERIENCE

16. Dementia Caregivers
https://www.caregiver.org

17. Tasks of the caregiver
 Instrumental Activities of Daily Living
 Medication assistance
 Personal ADLs
 Managing behavioral symptoms
 Finding and using support groups
 Making arrangements for care
 Hiring and supervising other caregivers
 Managing other health conditions
 Managing “getting through the day”
 Additional family responsibilities
 Providing emotional support
Alzheimer’s Facts & Figures, 2019
Dr.Timothy J. Dickey
ALA, Jan. 2020

18. Resources – Non-fiction
T. Dickey, The Science of Alzheimer’s Bibliography
Bibliography For Alzheimer’s Caregivers
Dr.Timothy J. Dickey
ALA, Jan. 2020

19. Resources – Memoirs
T. Dickey, Alzheimer’s Fiction and Memoirs Bibliography
Dr.Timothy J. Dickey
ALA, Jan. 2020

20. Resources – Fiction
T. Dickey, Alzheimer’s Fiction and Memoirs Bibliography
Dr.Timothy J. Dickey
ALA, Jan. 2020

21. LIBRARY
PROGRAMMING FOR
THOSE LIVING WITH
ALZHEIMER’S

22. Mental Stimulation & Collections
Dr.Timothy J. Dickey
ALA, Jan. 2020

23. Social Interaction
http://www.bifolkal.org
Dr.Timothy J. Dickey
ALA, Jan. 2020

24. Memory Cafés
http://www.librarymemoryproject.org
www.memorycafedirectory.com
Dr.Timothy J. Dickey
ALA, Jan. 2020

25. Tales & Travel
CCL: http://talesandtravelmemories.com
Dr.Timothy J. Dickey
ALA, Jan. 2020

26. Mental Stimulation & Music
https://www.youtube.com/watch?v=fyZQf0p73QM
http://www.MusicandMemory.org
Dr.Timothy J. Dickey
ALA, Jan. 2020

27. Museum Programs
https://www.columbusmuseum.org; www.moma.org/meetme
Dr.Timothy J. Dickey
ALA, Jan. 2020

28. The list goes on…
o Games &Technology
o Memory Garden
o Memory Connection Ctr.
o Music Programs
o Meditation Programs
o LibraryTours
o Pets and Stuffed Animals
o …?
http://www.memorablepets.com
www.rcwegman.com

29. Dementia-Friendly Staff
http://www.dfamerica.org © 2016
Dr.Timothy J. Dickey
ALA, Jan. 2020

30. RESOURCES
 Alzheimer’s Association (www.alz.org)
 IGARD (ALA group,
www.ala.org/ascla/interestgroups/igard)
 IFLA (www.ifla.org)
◦ Guidelines for Library Services to Persons with
Dementia (2007)
 Family Caregiver Alliance
(www.caregiver.org)
 RUSA (www.ala.org/rusa)
◦ Guidelines for Library & Information Services to Older
Adults
Dr.Timothy J. Dickey
ALA, Jan. 2020

31. RESOURCES
 AARP (www.aarp.org)
 National Council on Aging (www.ncoa.org)
 Reaching Across IL Library System RAILS; and other local
and statewide collaborations
 Senior Service Associates (www.seniorservicesassoc.org)
 Senior.com (for facilities location)
 Senior Living Source (http://www.seniorlivingsource.org)
 Senior Living (www.seniorliving.org)
 Visiting Nurses’ Associations
 Care Facilities themselves
 T. Dickey, Alzheimer’s Fiction and Memoirs Bibliography
 T. Dickey, The Science of Alzheimer’s Bibliography
 T. Dickey, For Alzheimer’s Caregivers Bibliography

32. RESOURCES

33. Questions?
Other Program Ideas?
TDICKEY1@KENT.EDU