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“It‟s what matters to me that counts” – keeping
the person at the heart of the services we
deliver
Real Change




“When people not used to speaking out are heard by people
not used to listening, then real change is made”
(John O‟Brien, undated)
Improved confidence and skills




                                                     Improved symptoms

Improved mobility
Smale et al (1993)
Thistle’s journey towards
          a person centred approach

15 years ago Thistle Foundation became serious about
commitment to person centred services. Social care world
changing rapidly:
•     large institutions closing
•     people previously considered too disabled or too
      challenging returning to the community
•     existing services not able to respond to needs and
      many new provider organisations emerged
So…

Thistle acted decisively and radically to survive in new
world:
• Implemented complete service restructure and redesign:
  residential homes closed, people supported in own
  homes, including people with much more complex
  medical and social needs
• Expected staff to work in new ways, grappling with
  concepts such as empowerment and inclusion
• Invested heavily in the development of new accredited
  training programme for support staff
HEC in Person Centred Approaches


• From 2002, over 600 support workers (in Thistle and
  other agencies) undertook this course, accredited by
  Queen Margaret University

• Course synthesised ideas from person centred
  therapeutic approaches (Carl Rogers) with person
  centred planning tools and concepts originating in
  North America and Canada (Michael Smull; John O‟Brien
  and others)
Fast forward: What worked well?


• Course very successful, winning several awards
• Led to many positive changes in work practice resulting
  in better outcomes for people using services
• Workers very focussed on building best possible
  relationship with person being supported
• Experiential nature of learning worked: workers learned
  much from sharing in consistent cohorts
• Length of course (two years part time) helped to process
  learning and embed practice change
What else?

• Workers embraced modules relating to self awareness

• Workers became more reflective - aware of values,
  prejudices, strengths and development needs – and able
  to work on these

• Workers understood what is meant by active listening
What didn’t work so well?



In a number of cases, while huge beneficial impact on
course participants, this not translated into equally
 positive changes in quality of life of someone using service
Which meant that...

• Workers did not always recognise development and
  maintenance of „right relationship‟ was for clear purpose -
  to be able to recognise and work towards personal
  outcomes
• Sometimes when workers attempted this, focus was on
  outputs rather than outcomes
• Some workers stuck in „helper mode‟, thinking they knew
  what was in person‟s best interests based on own values
  and judgements
Putting our learning into practice


All staff development activities delivered by Thistle
emphasise the concept of:

         A person centred relationship with intent
Person centred approach – a trinity

                           Identifying and
                         realising personal
                             outcomes
                       (aka personalisation)




    A relationship based                   A focus on assets and
   on the core conditions                   positive reputations
What does a person centred approach
      mean in practice at Thistle?

Workers must be able to...

• Keep person at centre – and in control - of process

• Build strong, real and respectful relationships with
  person using the service

• Focus on person‟s assets and strengths

• Involve family and friends as partners
Cont‟d


Workers must be able to...

• Focus on what‟s important TO person...........while also
  paying attention to what‟s important FOR person [ health
  and safety and safeguard positive reputations]

• Intentionally sustain and build connections in community

• Go beyond conventional service responses

• Continue to listen and learn with person
Simultaneously…

Organisational systems and processes:
• Strategic direction must reflect outcomes
• Language must be used consistently
• Person centred relationships must be modelled
• Policies and procedures need to be responsive to
  individual needs, as well as fulfilling statutory
  requirements
• Participative leadership needs to move from rhetoric to
  reality
• Cross organisational working groups can help e.g.
  Personal Outcomes Group
One of the things that is
     making a significant difference…



Using Talking Points framework helps to embed link
between person centred relationships and working towards
personal outcomes
Talking Points –
      A Personal Outcomes Approach

• Outcomes are the end results of support and/or
  service(s) in the person‟s life

• 15 years of research identified a framework of inter-
  related outcomes relating to:

   • Quality of Life (getting or maintaining it)
   • Process (interaction between staff and person)
   • Change (for a better life)
Outcomes for people we support


Quality of life   Process         Change
•Feeling safe     •Listened to    •Improved
•Having things to •Having a say   confidence /
do                •Treated with
                                  morale
•Seeing people    respect         •Improved skills

•Staying as well  •Responded to   •Improved

as you can        •Reliability
                                  mobility
•Living where                     •Reduced

and as you want                   symptoms
•Dealing with

stigma/discrimin
ation
Supporting person to
        identify and realise outcomes

•Holding good conversations (include people who don‟t
communicate verbally), actively listening to find out what
really matters to the person in life – the outcomes

•Working with person's outcomes to identify what activities,
supports and/or services are required to realise them over
agreed timescale

•Maximising person‟s own assets, strengths, skills, and
involvement in realising their outcomes along with family,
community etc.
What kind of outcomes?
Input           Process            Outputs          Outcomes
Joe, Joe‟s      Meet Joe, listen   Training         Joe wants to
SW,             to him, find out   certificates;    do something
Employment      what he can do,    supported        with his time to
Advisor,        what he‟s          paid or unpaid   feel good and
Supported       interested in      job              to increase his
Employment      doing ; book                        skills.
service         training
                courses.
Ann, Ann‟s      Meet Ann, listen Plan for Ann‟s     Ann wants to
family, Ann‟s   to her hopes,    supported self     stop worrying
SW, Heart       discuss how      management         about
Failure Nurse   everyone can                        diagnosis and
                support Ann to                      get back to
                live her life                       doings things
                                                    she enjoys
What are we learning?


• The personal outcomes journey takes time
• Don‟t start with paperwork
• Improve practice before proving practice
• To measure the difference made, get a baseline
• Common language in recording is essential for
  consistency
• Workers need ongoing support and feedback
• Record all contributions (not attributions) to outcomes –
  not just Thistle service
A cautionary reminder…




“The overwhelming evidence is that what people do for
themselves and with others – not services – delivers the
bulk of social outcomes”

Routledge and Witton, 2010
Contact us
Thistle Foundation:

Nikki Bruce Nikki.Bruce@thistle.org.uk
Learning and Development Manager

Gail Cunningham Gail.Cunningham@thistle.org.uk
Research and Development Coordinator

Joint Improvement Team:
Chris Bruce Chris.bruce@scotland.gsi.gov.uk
Lead on Outcomes

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Parallel Session 4.2 ‘It’s What Matters to me that Counts’ – Keeping the Person at the Heart of the Services we Deliver

  • 1. “It‟s what matters to me that counts” – keeping the person at the heart of the services we deliver
  • 2. Real Change “When people not used to speaking out are heard by people not used to listening, then real change is made” (John O‟Brien, undated)
  • 3. Improved confidence and skills Improved symptoms Improved mobility
  • 4. Smale et al (1993)
  • 5. Thistle’s journey towards a person centred approach 15 years ago Thistle Foundation became serious about commitment to person centred services. Social care world changing rapidly: • large institutions closing • people previously considered too disabled or too challenging returning to the community • existing services not able to respond to needs and many new provider organisations emerged
  • 6. So… Thistle acted decisively and radically to survive in new world: • Implemented complete service restructure and redesign: residential homes closed, people supported in own homes, including people with much more complex medical and social needs • Expected staff to work in new ways, grappling with concepts such as empowerment and inclusion • Invested heavily in the development of new accredited training programme for support staff
  • 7. HEC in Person Centred Approaches • From 2002, over 600 support workers (in Thistle and other agencies) undertook this course, accredited by Queen Margaret University • Course synthesised ideas from person centred therapeutic approaches (Carl Rogers) with person centred planning tools and concepts originating in North America and Canada (Michael Smull; John O‟Brien and others)
  • 8. Fast forward: What worked well? • Course very successful, winning several awards • Led to many positive changes in work practice resulting in better outcomes for people using services • Workers very focussed on building best possible relationship with person being supported • Experiential nature of learning worked: workers learned much from sharing in consistent cohorts • Length of course (two years part time) helped to process learning and embed practice change
  • 9. What else? • Workers embraced modules relating to self awareness • Workers became more reflective - aware of values, prejudices, strengths and development needs – and able to work on these • Workers understood what is meant by active listening
  • 10. What didn’t work so well? In a number of cases, while huge beneficial impact on course participants, this not translated into equally positive changes in quality of life of someone using service
  • 11. Which meant that... • Workers did not always recognise development and maintenance of „right relationship‟ was for clear purpose - to be able to recognise and work towards personal outcomes • Sometimes when workers attempted this, focus was on outputs rather than outcomes • Some workers stuck in „helper mode‟, thinking they knew what was in person‟s best interests based on own values and judgements
  • 12. Putting our learning into practice All staff development activities delivered by Thistle emphasise the concept of: A person centred relationship with intent
  • 13. Person centred approach – a trinity Identifying and realising personal outcomes (aka personalisation) A relationship based A focus on assets and on the core conditions positive reputations
  • 14. What does a person centred approach mean in practice at Thistle? Workers must be able to... • Keep person at centre – and in control - of process • Build strong, real and respectful relationships with person using the service • Focus on person‟s assets and strengths • Involve family and friends as partners
  • 15. Cont‟d Workers must be able to... • Focus on what‟s important TO person...........while also paying attention to what‟s important FOR person [ health and safety and safeguard positive reputations] • Intentionally sustain and build connections in community • Go beyond conventional service responses • Continue to listen and learn with person
  • 16. Simultaneously… Organisational systems and processes: • Strategic direction must reflect outcomes • Language must be used consistently • Person centred relationships must be modelled • Policies and procedures need to be responsive to individual needs, as well as fulfilling statutory requirements • Participative leadership needs to move from rhetoric to reality • Cross organisational working groups can help e.g. Personal Outcomes Group
  • 17. One of the things that is making a significant difference… Using Talking Points framework helps to embed link between person centred relationships and working towards personal outcomes
  • 18. Talking Points – A Personal Outcomes Approach • Outcomes are the end results of support and/or service(s) in the person‟s life • 15 years of research identified a framework of inter- related outcomes relating to: • Quality of Life (getting or maintaining it) • Process (interaction between staff and person) • Change (for a better life)
  • 19. Outcomes for people we support Quality of life Process Change •Feeling safe •Listened to •Improved •Having things to •Having a say confidence / do •Treated with morale •Seeing people respect •Improved skills •Staying as well •Responded to •Improved as you can •Reliability mobility •Living where •Reduced and as you want symptoms •Dealing with stigma/discrimin ation
  • 20. Supporting person to identify and realise outcomes •Holding good conversations (include people who don‟t communicate verbally), actively listening to find out what really matters to the person in life – the outcomes •Working with person's outcomes to identify what activities, supports and/or services are required to realise them over agreed timescale •Maximising person‟s own assets, strengths, skills, and involvement in realising their outcomes along with family, community etc.
  • 21. What kind of outcomes? Input Process Outputs Outcomes Joe, Joe‟s Meet Joe, listen Training Joe wants to SW, to him, find out certificates; do something Employment what he can do, supported with his time to Advisor, what he‟s paid or unpaid feel good and Supported interested in job to increase his Employment doing ; book skills. service training courses. Ann, Ann‟s Meet Ann, listen Plan for Ann‟s Ann wants to family, Ann‟s to her hopes, supported self stop worrying SW, Heart discuss how management about Failure Nurse everyone can diagnosis and support Ann to get back to live her life doings things she enjoys
  • 22. What are we learning? • The personal outcomes journey takes time • Don‟t start with paperwork • Improve practice before proving practice • To measure the difference made, get a baseline • Common language in recording is essential for consistency • Workers need ongoing support and feedback • Record all contributions (not attributions) to outcomes – not just Thistle service
  • 23. A cautionary reminder… “The overwhelming evidence is that what people do for themselves and with others – not services – delivers the bulk of social outcomes” Routledge and Witton, 2010
  • 24. Contact us Thistle Foundation: Nikki Bruce Nikki.Bruce@thistle.org.uk Learning and Development Manager Gail Cunningham Gail.Cunningham@thistle.org.uk Research and Development Coordinator Joint Improvement Team: Chris Bruce Chris.bruce@scotland.gsi.gov.uk Lead on Outcomes