This presentation was originally given at UPA 2012.
Description:
A case study detailing mobile usability testing methods, development of a controlled vocabulary, and delivery of personalized medical content
This 3-year project for Breastcancer.org set out to deliver personalized web content to breast cancer patients on their mobile devices. User research highlighted a critical challenge associated with capturing accurate diagnosis information from patients. The case study will include two unexpected but effective solutions to this problem.
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Designing a Mobile Experience for Breast Cancer Survivors
1. Designing a mobile user
experience for breast
cancer Survivors
Derek Olson, VP at Foraker Labs
2. Who is this guy?
Vice President of Foraker Labs, a web
and mobile application development
shop in Boulder, Colorado.
Leads the design and development of
award-winning iOS apps, web
apps, and websites
Provides usability, content strategy, and
information architecture guidance to
clients.
7. Vocabulary Development
Five vocabularies were developed to organize content.
Audience Clinical Characteristics
Patients End of Life Issues and Planning Clinical: Menopausal Status: Clinical: Lymph Nodes
Family & Friends Environmental Risk Factors Post-Menopausal Lymph Nodes Removed, 0 Involved
Press & Public Estrogen-Receptor Pre- or Peri-Menopausal Lymph Nodes Removed, 10+ Involved
Clinicians & Providers Downregulators Lymph Nodes Removed, 1-9 Involved
Worried Well Genetic Risk Factors Clinical: Cancer Type No Lymph Nodes Removed
Hormonal Therapy Ductal Carcinoma In Situ
Situation Hormonal Therapy Side Effects Inflammatory Breast Cancer Clinical: PR Status
Legal and Financial Invasive or Infiltrating Ductal Carcinoma Progesterone Receptor Negative
Asymptomatic Worried Lymphedema
End of Life Invasive or Infiltrating Lobular Carcinoma Cancer
Male Breast Cancer Lobular Carcinoma In Situ Progesterone Receptor Positive
Just Diagnosed Medical Screening and Testing
Metastatic Cancer Paget’s Disease Cancer
Menopausal Symptoms
Recovery and Renewal Moving On
Symptomatic Worried Clinical: Cancer Recurrence Clinical: ER Status
Non-Personalizable Local Estrogen Receptor Negative Cancer
Undergoing Treatment Nutrition
Waiting for Test Metastatic Estrogen Receptor Positive Cancer
Pain Regional
Results Pain Medications
Perspective Clinical: HER2/neu Status
Radiation Side Effects Clinical: Cancer Metastatic HER2/neu Negative Cancer
Clinical Radiation Therapy Metastatic HER2/neu Positive Cancer
Emotional Reconstruction Non-Metastatic
Practical Selective Estrogen Receptor Clinical: Family History and Genetics
Non-Personalizable Modulators Clinical: Cancer Stage Family History
Side Effects of Pain Medication Advanced BC Inherited Genetic Abnormality
Topic Surgery Early Stage BC
Aromatase Inhibitors Surgery Recovery Clinical: Sex
Chemotherapy Symptoms, Self-Detection and Clinical: Cancer Grade Female Breast Cancer
Chemotherapy Side Effects BSE High Grade Cancer Cell Growth Male Breast Cancer
Complementary Medicine and Targeted Therapy Low Grade Cancer Cell Growth
Treatments Targeted Therapy Side Effects
Dealing with Cancer Fear
Theme of this conference: leadershipIn usability, leadership means measurement... leads to stakeholder buy-in. never would have done the projects I'm talking about without huge stakeholder buy in on our ideas, and abilities to show measurable improvements.
Idea market.... Consensus on staekholder buy-in.
4 scariest words for most women (and men). Nearly all women report "going numb" upon hearing these words. 6-7 years ago we saw lots of new-diagnosis-related searching late at night, now this has moved to mobile browsing, perhaps in the parking lot of the hospital/cancer center.
Clear nav/ powerful search... Who cares! Information scent is worthless if your nose is plugged! (i.e. you don’t know what you’re looking for). User research: need for personalization. Problem: Very few people could accurately report their full diagnosis--which was critical to our ability to send relevant articles.
Pilot project in 2010, iPhone app: BC Dx Guide. iPhone app to allow users to input Dx info, and receive personalized content. 3 Goals:1) 24-7 reference, printed booklet. (mobile important)2) Store health records on the go, encourage questions for doctors3) Personalized articles
RISK MITIGATION #1: iPhone is there in your pocket… when you’re with the doctor.
2) Word List – more likely to ask question of your doctor if you understand acronyms, etc.
TRUSTeMobile certification beta participant
Breastcancer.org can explain important things like study size, corroboration with previous studies, absolute versus relative risk. We saw very deep engagement with this content in the metrics.
Personalization Engine – Rule creationMinimum criteria for matching an article to a user.
ER-, PR-, HER2/neu- = “Triple Negative Breast Cancer”. Ability to teach newly diagnosed women terminology to use in their information gathering, as a result of personalization.
Measurement of what a “good rule” is
URL builder made for tracking banner campaignsWorks for us, too!
Positivetrends for: Time on site, Bounce rate, Pages/visitPersonalization trend?Mobile trend?
Responsive design versus separate mobile site. When you can hide content and functionality, consider separate site. Examples of home page from each.
Article pages from each.
HUGE drop in bounce rate from mobile devices after launch.
Over 110,000 registered users, 90,000+ discussion topics, millions of posts, more than 500,000 visits per month. 25% mobile traffic.
Design “responds” to browser width, optimizing to remove need for zooming (spreading), and for horizontal scrolling. Finger-sized tap targets.
Ability to add Diagnosis and Treatment info to receive personalized articles. RISK MITIGATION #2: Signature lines provided crowd-sourced accuracy-check on reported diagnosis and treatment information.
Personalized articles based on Dx and Tx info... Anywhere. Also added feedback to help tune rules even further.
I got sick of using duct tape, document cameras, etc. So we built UX Recorder for iOS (come see us at the booth!)
Specialized browser that records on-screen activity and gestures, user's face, and audio.
During playback, gestures are indicated, as well as user's face.