Driving Behavioral Change for Information Management through Data-Driven Gree...
Key Recommendations for Health Information Privacy Reform
1. For Your Information: Australian Privacy Law and Practice – key recommendations for health information privacy reform Professor Rosalind Croucher President, ALRC 1
2. Time line 1982 – FOI Act (Cth) 1983 – Archives Act (Cth) 1988 – Privacy Act (Cth) 2000 – Privacy (Private Sector) 2
3. Time line 2004 – Privacy Commissioner review of private sector provisions 2005 – Senate Legal and Constitutional Affairs Committee inquiry into Privacy Act 2006 – Privacy Act amendments to include ‘genetic information’ 3
4. Time line 2006 – January referral to ALRC 2006 – COAG agrees to national approach 2008 – May, ALRC report 2009 – October, Government response 2009 – Dec, COAG agreement re e-health 4
5. Time line 2010 – Privacy Commissioner into Office of the Australian Information Commissioner 2010 – Health Identifiers Bill 2011 – June, Draft Australian Privacy Principles 5
7. Terms of Reference the effectiveness of privacy laws in Australia given: rapid advances in information, communication, storage, surveillance and other technology possible changing community perceptions around privacy expansion of state & territory activity in this area
23. Part K – Protecting a Right to Personal Privacy3 volumes, 74 chapters, 295 recommendations
24. Key Recommendations Rationalisation of the Privacy Principles Greater national harmonisation – same privacy principles to apply across Australia Fewer exemptions Greater enforcement powers for the OPC Mandatory data breach notification Cause of action for serious invasions of privacy
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26. Ensuring that the Privacy Act is not an impediment to appropriate information sharing among health care professionals
35. Health Identifiers National shared system Underpinned by enabling legislation Build on Medicare infrastructure Consent of individual not required to assign UHI (unique healthcare identifier) 19
36. Health Identifiers Control use Subject to privacy principles Sanctions – criminal offences Purpose – sharing of healthcare info for management of patients 20
37. For information about ALRC work, copies of speeches and presentations ALRC website – all papers available online (free): www.alrc.gov.au Email: info@alrc.gov.au GPO Box 3708, Sydney 2001 21