The document discusses the user's experience with their disability and how the environment is often not accessible or inclusive for those with disabilities. It explores the user's favorite accessible places and how their daily life requires dependence on others and careful planning. The user also shares ideas for a flexible material-based structure that could create a more open, transparent and adaptable living space.
3. Body Material Body
ability meaning opportunity
disability significance collaborator
handicap association partner
diversity memory inspiration
individual understanding guide
general thoughts mentor
normal ideas dweller
ideal enemy
universal friend
specific peer
emotional specialist
sensory resource
physical employer
cognitive informant
adaptability expert
equality drag
dignity
responsibility
tolerance
addiction
personality
identity
inclusion
challenged
condition
fear
time/lifetime
Normal Fear
Le Corbusiers Le Modulur based on the average len- An article from the Swedish newspaper Dagens Nyheter, about ignorance to
ght of 175 cm, later 183 cm. If that is tthe definition various types of disabilities and whether people with disabilities can or should
Words from the first day of normal not many of us would be included. work at the Swedish television.
7. Favourite place in Bergen
First meeting
Summary
You have to know the way around town and find spaces that are accessible and stick to them, otherwise you will get
into trouble straight away and there will be a lot of detours just to get through. Spacous, flat and open is keywords for
a good place if you use a wheelchair. Spaces with these qualities makes it much easier to move, which can be quite hard
at times. If the weather is bad, specially in the winter your ability to get outside is equal to zero.
With my disability I have to depend on others. Living with routines makes the daily life work. But making something
spontaneus is hard, you have to plan your everyday life.
The environment is not designed for everyone, you always feel that you are one of the others. And even sometimes that
you are a problem that needs special solutions. Often the design separates the walking and not-walking with stairs and
ramp, which just separates peoples with disabilites from others and makes you stand out from the rest.
My favourite place is near the sea, where I can hear the gulls cry, feel the sent of the salty water, this brings me back to
my childhood, when I used to spend my summers close to the sea. This is my dream but hard to achieve. Denmark is
one of my favourite places. It’s close to the water, it’s flat and dense, perfect conditions for good accessibility.
8. Spinal muscular atrophy
Type II
Spinal muscular atrophy is characterized by equilateral muscle weakness and progressive muscle atrophy. The muscles are limp,
weak and shows signs of atrophy, especially in shoulders, torso and pelvic muscles and sometimes also in the tongue. The sense
of feeling is normal.
Spi
is more affected than the fine motor ability. Tremors in the fingers and hands are very common. Sometimes the respiratory func-
tion is reduced due to the disease. Other common complications of SMA II is for example scoliosis.
There is no cure for the disease, treatment instead focuses on alleviating symptoms and compensate for impairments. SMA II deve-
lops gradually. Physiotherapy is used as a preventive measure.
9. Kitchen
Bedroom
Terrace Living room
Bathroom
Guest room
Entrance
Garage
Dream house
Old house in Haugesund
16. Material
Sheets
As a wheelchair user you sometimes can feel trapped behind four solid walls. A material that is flexible,
formable and light. A material that is shielded but without shutting the environment out and without totally
closing the space.
The user can feel that she has the power over the material, that it is flexible and can adapt to her needs.
Sheets as an object gives the sense of safety, associated with the feeling when you cuddle up in you bed at
night. An intimate material, soft and protective.
The material also evoke memories from a hot summer day with the sheets hanging from a clothes line floa-
ting in the wind. Almost like a sailcloth far out in the sea. A sense of freedom.
17. Shape and space
Sheets
A test seeing what you can do by using the sheets in itself as the construction only supported by hooks in the edges. By tie
the sheets together with one knot the shape is more stretched and stronger in its construction. By tie the sheets with one
large knot in the middle and then tie them together in the previous way the shape becomes more loose and more round in
it’s shape.