5. Background
• The G8 summit on dementia was much
promoted ‘to put dementia on top of the
world agenda’.
6. Methods
• an online survey using “SurveyMonkey”
• recruited off my Twitter accounts @legalaware and
@dementia_2014, and there were 96 respondents.
• responses to individual items varied from 63 to 96.
Exclusions
• Persons with dementia were directed to a different link (of the
same survey.)
7.
8. Results
Media coverage
• Overall, most people had not caught any of the
news coverage on the TV (56%) or radio (55%).
• But most had caught the coverage on the internet,
for example Facebook or Twitter (66%)
• Most people did not think the summit was a “game
changer” (53% compared to 16%; with the rest
saying ‘don’t know’)
• The vast majority thought the subject matter was
significant (82%) (n = 90).
9. In terms of language, the respondents were
consistent in not viewing the response against
dementia
• as a “fight” (61%),
• a “war” (84%)
• a “battle” (72%)
• “epidemic” (70%)
• “turning the tide (56%)
[n ranging from 83 to 86]
10. • 91% of people thought it was appropriate
to talk of ‘living with dementia’ in the early
stage (n = 85)
• 82% of people did not think it was more
appropriate to talk of people ‘suffering
from dementia’ at this early stage (n = 86)
22. Conclusions
• it would be interesting to know of any in-
house reports from other organisations e.g.
patient representative groups, Big Pharma,
carers and the medical profession
• results taken cumulatively demonstrate a
very unhealthy picture of the public’s
perception in the dementia agenda in
England, who calls the shots, and who
benefited from #G8dementia
• responses indicate that the #G8dementia
summit was a very poor representation of
‘living well with dementia’
