4. Everyone needs To feel loved and valued To be able to trust To have honest communication To have hopes and goals To express his personality To have dignity To be given respect and choice To have peace of mind To have physical care and comfort
5. The person who is ill relates to Spouse caregiver Siblings, parents Colleagues peers Children Close friends church Nurse at work Hospital doctors, nurses, team Community health worker Other PLWHA’s Extended family
6.
7. The comprehensive care team managing the patient Spouse/partner Other family and friends Community services Spiritual Care givers Occupational therapist Physiotherapist Doctors Nurses Counsellor Nutritionist
Ali came to the Mildmay Centre three years ago, with advanced TB, severe oral candidiasis, emaciation and peripheral neuropathy so painful that it prevented him from walking. He arrived in a wheelchair, convinced that he did not have long to live and that we were not going to be able to make a difference. He received no ARV’s, but only the treatment he needed for his TB, candidiasis, pain control for his peripheral neuropathy, nutritional advice, counselling and pastoral care. A program of rehabilitation was started with the physiotherapist and occupational therapist when he had begun to recover somewhat. Approximately 18 months later, when he was back at work, supporting his children at school, he was ‘lucky’ enough to be offered sponsorship to start on ARV’s. He now takes these and is monitored at The Centre.The photo shows him at The Mildmay Centre having his regular physical therapy . He is an active member of an income-generating club of clients. Without the initial basic, holistic care, Ali would not have survived to receive his chance for ARV’s.