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Redes	
  sociales	
  en	
  cuidados	
  
palia.vos	
  
Las	
  dificultades	
  de	
  un	
  entorno	
  de	
  aislamiento	
  y	
  
prejuicios	
  
¿Qué	
  está	
  pasando?	
  
Fuentes	
  fiables	
  en	
  la	
  red	
  
Webs	
  especializadas	
  de	
  su	
  patología	
  escritas	
  
por	
  expertos.	...
¿Qué	
  ocurre	
  en	
  las	
  
comunidades	
  virtuales	
  de	
  
pacientes?	
  
1.	
  Intercambio	
  de	
  información	
  
2.	
  Compar.r	
  experiencias	
  
hMp://www.spine-­‐health.com/	
  
La	
  importancia	
  de	
  
la	
  narración	
  online	
  
(diarios,	
  blogs,	
  etc)	
  
3.	
  Conectar	
  con	
  otras	
  personas	
  
Redes	
  de	
  contactos	
  y	
  citas	
  
4.	
  Apoyo	
  emocional	
  
5.	
  ¿Alguien	
  me	
  en.ende?	
  
h8p://www.healingwell.com/	
  
6.	
  Ayudar	
  a	
  otros	
  
Voluntarios	
  y	
  personas	
  que	
  han	
  
superado	
  la	
  enfermedad	
  
¿Qué	
  efectos	
  .enen	
  las	
  redes	
  
sociales	
  en	
  los	
  pacientes?	
  
1.	
  Op.mismo	
  y	
  esperanza.	
  
[leer	
  a	
  otros	
  que	
  han	
  pasado	
  por	
  lo	
  
mismo	
  y	
  lo	
  han...
3.	
  Bienestar	
  social.	
  
[conocer	
  a	
  personas	
  sin	
  prejuicios	
  y	
  
me	
  comprenden:	
  “familia	
  vi...
5.	
  Autocuidados.	
  
[compar.r	
  prác.cas	
  y	
  trucos,	
  
adherencia	
  “social”	
  al	
  tratamiento]	
  
	
  
6....
Apenas	
  existe	
  evidencia	
  sobre	
  el	
  
efecto	
  en	
  la	
  mejora	
  en	
  la	
  patología	
  
por	
  el	
  us...
Las	
  redes	
  sociales	
  también	
  .enen	
  sus	
  problemas	
  
•  Falta	
  de	
  contacto	
  asico	
  
•  Desconfianza	
  ante	
  iden.dades	
  falsas	
  
•  Facilidad	
  de	
  llegar	
 ...
1. ¿Es	
  necesario	
  crear	
  una	
  red	
  social	
  
enfocada	
  a	
  tus	
  pacientes	
  y	
  familiares?	
  
2. Anal...
Nadie	
  quiere	
  
estar	
  [ni	
  sen.rse]	
  solo	
  
1.  Ziebland	
  S,	
  Wyke	
  S.	
  Health	
  and	
  Illness	
  in	
  a	
  Connected	
  World:	
  How	
  Might	
  Sharing	...
Miguel Ángel Máñez
Twitter: @manyez
Mail: manyez @ gmail.com
http://saludconcosas.blogspot.com
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
Redes sociales y cuidados paliativos
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Redes sociales y cuidados paliativos

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Presentación realizada en las I Jornadas Cuidados paliativos 2.0 celebradas en Alicante el 10/05/2014

Veröffentlicht in: Gesundheitswesen
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  • DOWNLOAD THAT BOOKS INTO AVAILABLE FORMAT (2019 Update) ......................................................................................................................... ......................................................................................................................... Download Full PDF EBOOK here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download Full EPUB Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download Full doc Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download PDF EBOOK here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download EPUB Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download doc Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... ......................................................................................................................... ................................................................................................................................... eBook is an electronic version of a traditional print book that can be read by using a personal computer or by using an eBook reader. (An eBook reader can be a software application for use on a computer such as Microsoft's free Reader application, or a book-sized computer that is used solely as a reading device such as Nuvomedia's Rocket eBook.) Users can purchase an eBook on diskette or CD, but the most popular method of getting an eBook is to purchase a downloadable file of the eBook (or other reading material) from a Web site (such as Barnes and Noble) to be read from the user's computer or reading device. Generally, an eBook can be downloaded in five minutes or less ......................................................................................................................... .............. Browse by Genre Available eBooks .............................................................................................................................. Art, Biography, Business, Chick Lit, Children's, Christian, Classics, Comics, Contemporary, Cookbooks, Manga, Memoir, Music, Mystery, Non Fiction, Paranormal, Philosophy, Poetry, Psychology, Religion, Romance, Science, Science Fiction, Self Help, Suspense, Spirituality, Sports, Thriller, Travel, Young Adult, Crime, Ebooks, Fantasy, Fiction, Graphic Novels, Historical Fiction, History, Horror, Humor And Comedy, ......................................................................................................................... ......................................................................................................................... .....BEST SELLER FOR EBOOK RECOMMEND............................................................. ......................................................................................................................... Blowout: Corrupted Democracy, Rogue State Russia, and the Richest, Most Destructive Industry on Earth,-- The Ride of a Lifetime: Lessons Learned from 15 Years as CEO of the Walt Disney Company,-- Call Sign Chaos: Learning to Lead,-- StrengthsFinder 2.0,-- Stillness Is the Key,-- She Said: Breaking the Sexual Harassment Story That Helped Ignite a Movement,-- Atomic Habits: An Easy & Proven Way to Build Good Habits & Break Bad Ones,-- Everything Is Figureoutable,-- What It Takes: Lessons in the Pursuit of Excellence,-- Rich Dad Poor Dad: What the Rich Teach Their Kids About Money That the Poor and Middle Class Do Not!,-- The Total Money Makeover: Classic Edition: A Proven Plan for Financial Fitness,-- Shut Up and Listen!: Hard Business Truths that Will Help You Succeed, ......................................................................................................................... .........................................................................................................................
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  • DOWNLOAD THAT BOOKS INTO AVAILABLE FORMAT (2019 Update) ......................................................................................................................... ......................................................................................................................... Download Full PDF EBOOK here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download Full EPUB Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download Full doc Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download PDF EBOOK here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download EPUB Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... Download doc Ebook here { http://bit.ly/2m6jJ5M } ......................................................................................................................... ......................................................................................................................... ................................................................................................................................... eBook is an electronic version of a traditional print book that can be read by using a personal computer or by using an eBook reader. (An eBook reader can be a software application for use on a computer such as Microsoft's free Reader application, or a book-sized computer that is used solely as a reading device such as Nuvomedia's Rocket eBook.) Users can purchase an eBook on diskette or CD, but the most popular method of getting an eBook is to purchase a downloadable file of the eBook (or other reading material) from a Web site (such as Barnes and Noble) to be read from the user's computer or reading device. Generally, an eBook can be downloaded in five minutes or less ......................................................................................................................... .............. Browse by Genre Available eBooks .............................................................................................................................. Art, Biography, Business, Chick Lit, Children's, Christian, Classics, Comics, Contemporary, Cookbooks, Manga, Memoir, Music, Mystery, Non Fiction, Paranormal, Philosophy, Poetry, Psychology, Religion, Romance, Science, Science Fiction, Self Help, Suspense, Spirituality, Sports, Thriller, Travel, Young Adult, Crime, Ebooks, Fantasy, Fiction, Graphic Novels, Historical Fiction, History, Horror, Humor And Comedy, ......................................................................................................................... ......................................................................................................................... .....BEST SELLER FOR EBOOK RECOMMEND............................................................. ......................................................................................................................... Blowout: Corrupted Democracy, Rogue State Russia, and the Richest, Most Destructive Industry on Earth,-- The Ride of a Lifetime: Lessons Learned from 15 Years as CEO of the Walt Disney Company,-- Call Sign Chaos: Learning to Lead,-- StrengthsFinder 2.0,-- Stillness Is the Key,-- She Said: Breaking the Sexual Harassment Story That Helped Ignite a Movement,-- Atomic Habits: An Easy & Proven Way to Build Good Habits & Break Bad Ones,-- Everything Is Figureoutable,-- What It Takes: Lessons in the Pursuit of Excellence,-- Rich Dad Poor Dad: What the Rich Teach Their Kids About Money That the Poor and Middle Class Do Not!,-- The Total Money Makeover: Classic Edition: A Proven Plan for Financial Fitness,-- Shut Up and Listen!: Hard Business Truths that Will Help You Succeed, ......................................................................................................................... .........................................................................................................................
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Redes sociales y cuidados paliativos

  1. 1. Redes  sociales  en  cuidados   palia.vos  
  2. 2. Las  dificultades  de  un  entorno  de  aislamiento  y   prejuicios  
  3. 3. ¿Qué  está  pasando?  
  4. 4. Fuentes  fiables  en  la  red   Webs  especializadas  de  su  patología  escritas   por  expertos.   Contenido  de  organizaciones  y  asociaciones   de  pacientes   Comunidades  virtuales   Webs  de  información  general  sobre  salud   1   2   3   4   Pa#ent  Power  2014  Survey  Results  Summary  
  5. 5. ¿Qué  ocurre  en  las   comunidades  virtuales  de   pacientes?  
  6. 6. 1.  Intercambio  de  información  
  7. 7. 2.  Compar.r  experiencias  
  8. 8. hMp://www.spine-­‐health.com/  
  9. 9. La  importancia  de   la  narración  online   (diarios,  blogs,  etc)  
  10. 10. 3.  Conectar  con  otras  personas  
  11. 11. Redes  de  contactos  y  citas  
  12. 12. 4.  Apoyo  emocional  
  13. 13. 5.  ¿Alguien  me  en.ende?  
  14. 14. h8p://www.healingwell.com/  
  15. 15. 6.  Ayudar  a  otros  
  16. 16. Voluntarios  y  personas  que  han   superado  la  enfermedad  
  17. 17. ¿Qué  efectos  .enen  las  redes   sociales  en  los  pacientes?  
  18. 18. 1.  Op.mismo  y  esperanza.   [leer  a  otros  que  han  pasado  por  lo   mismo  y  lo  han  superado]     2.  Bienestar  emocional   [reducción  de  ansiedad,  estrategias   de  mo.vación]  
  19. 19. 3.  Bienestar  social.   [conocer  a  personas  sin  prejuicios  y   me  comprenden:  “familia  virtual”]     4.  Estar  mejor  informado   [aprendizaje  constante  de  los   mejores  expertos  en  tu  patología]  
  20. 20. 5.  Autocuidados.   [compar.r  prác.cas  y  trucos,   adherencia  “social”  al  tratamiento]     6.  Relación  con  el  profesional   [el  paciente  gana  en  conocimiento  y   lo  comparte  con  su  profesional]  
  21. 21. Apenas  existe  evidencia  sobre  el   efecto  en  la  mejora  en  la  patología   por  el  uso  de  redes  sociales  
  22. 22. Las  redes  sociales  también  .enen  sus  problemas  
  23. 23. •  Falta  de  contacto  asico   •  Desconfianza  ante  iden.dades  falsas   •  Facilidad  de  llegar  a  contextos   agresivos   •  Lurkers  (mirones)   •  La  pobreza  del  mensaje  escrito   •  Infoxicación   •  Exposición  directa  ante  posibles   evoluciones  no  deseadas   •  Menor  compromiso:  ¿voluntarismo?  
  24. 24. 1. ¿Es  necesario  crear  una  red  social   enfocada  a  tus  pacientes  y  familiares?   2. Analiza  el  .po  de  paciente  al  que  te   diriges,  antes  de  definir  la  estrategia.   3. Las  redes  no  funcionan  (inicialmente)   de  forma  espontánea:  dinamizador.  
  25. 25. Nadie  quiere   estar  [ni  sen.rse]  solo  
  26. 26. 1.  Ziebland  S,  Wyke  S.  Health  and  Illness  in  a  Connected  World:  How  Might  Sharing  Experiences   on  the  Internet  Affect  People's  Health?  Milbank  Q  2012  Jun;90(2):219-­‐249.   2.  Mo  PK,  Coulson  NS.  Are  online  support  groups  always  beneficial?  A  qualita#ve  explora#on  of   the  empowering  and  disempowering  processes  of  par#cipa#on  within  HIV/AIDS-­‐related  online   support  groups.  Int  J  Nurs  Stud.  2013  Nov  26  S0020-­‐7489(13)00356-­‐8     3.  Setoyama  Y,  Yamazaki  Y,  Namayama  K.  Benefits  of  peer  support  in  online  Japanese  breast   cancer  communi#es:  differences  between  lurkers  and  posters.  J  Med  Internet  Res.   2011;13(4):e122.  doi:  10.2196/jmir.1696   4.  Dedding  C,  van  Doorn  R,  Winkler  L,  Reis  R.  How  will  e-­‐health  affect  pa#ent  par#cipa#on  in  the   clinic?  A  review  of  e-­‐health  studies  and  the  current  evidence  for  changes  in  the  rela#onship   between  medical  professionals  and  pa#ents.  Soc  Sci  Med  2011;72:49-­‐53   5.  Bartle8  YK,  Coulson  NS.  An  inves#ga#on  into  the  empowerment  effects  of  using  online  support   groups  and  how  this  affects  health  professional/pa#ent  communica#on.  Pa#ent  Educa#on  and   Counseling.  2011;83:113–119   6.  Merolli  M,  Gray  K,  Mar#n-­‐Sanchez  F.  Health  outcomes  and  related  effects  of  using  social  media   in  chronic  disease  management:  A  literature  review  and  analysis  of  affordances.  J  Biomed   Inform  2013  May  20   7.  Bender  JL,  Jimenez-­‐Marroquin  MC,  Jadad  AR.  Seeking  support  on  facebook:  a  content  analysis   of  breast  cancer  groups.  J  Med  Internet  Res.  2011  Feb;13(1):e16   Bibliograaa  recomendada  
  27. 27. Miguel Ángel Máñez Twitter: @manyez Mail: manyez @ gmail.com http://saludconcosas.blogspot.com

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