Family with a disabled child 2009

1. Family with a child with disability SEMINAR « The Family at the Heart of the Social Work in Europe » ARRAS, FRANCE 18th -22nd .03.2009 Magdalena Skiba Polish Association for Persons with Mental Disability – Gdansk Branch

2. Review of the legislation in Poland <ul><li>National level , </li></ul><ul><li># parliamentary legislation – acts and resolutions </li></ul><ul><li># governmental legislation – directives (executory legislation to the acts) and strategy documents </li></ul><ul><li>Regional level – regional resolutions of the regional parliament </li></ul><ul><li>Local (city, commune) level – local resolutions of the city or commune councils </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

3. Review of the binding law connected with children rights and family protection in Poland <ul><ul><li>National level , </li></ul></ul><ul><li># National Action Plan for Children 2004-2012 “Poland for Children” </li></ul><ul><li># National Strategy for Youth 2003- 2012 </li></ul><ul><li># National Strategy of Social Policy 2007-2013 </li></ul><ul><li># Social Welfare Act (12 March 2004) </li></ul><ul><li># Family Benefits Act (28 Nov2003) </li></ul><ul><li># Educational System Act </li></ul><ul><li># Family Abuse Prevention Act (29 July 2005) </li></ul><ul><li># Family Code – regulating the court competences and proceeding </li></ul><ul><li># several directives of the Council of Ministers, Ministry of Social Policy, Ministry of Justice </li></ul><ul><li> Regional level </li></ul><ul><li># Regional Social Policy Strategy </li></ul><ul><li>Local ( G dansk ) level </li></ul><ul><li># Family Support Programme (2006-2009) </li></ul><ul><li># Gdansk of Equal Chances (2004-2015) </li></ul><ul><li># Gdansk Development Strategy to 2015 </li></ul><ul><li># Blue Line – Abuse Combating Procedures </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009 UN Convention on the Rights of the Child (20 Nov 1989) Polish Convention on the Rights of the Child National Rights of the Child Ombudsman

4. "The Family at the Heart of the Social Work in Europe" Arras 2009 Family in the social policy and legislation FAMILY ABUSE PREVENTION Family Benefits Act PROTECTION OF A SINGLE PARENT POVERTY COMPATING. SUPPORT FOR THE POOREST FAMILIES FINANCIAL SUPPORT TO THE FAMILIES WITH CHILDREN Social Welfare Act Alimentary Fund National Action Plan for Children Education Act Rehabilitation Act. EQUALIZATION OF OPPORTUNITIES Family Abuse Prevention Act CHILD PREVENTION RIGHTS OF A CHILD Court procedures and competences

5. Appearance of a disability, especially intellectual disability of a child <ul><li>exerts a strong negative influence on the functioning of the family , </li></ul><ul><li>doesn’t strengthen, on the contrary, impairs family relations, </li></ul><ul><li>causes emotional disorders, frustrations and </li></ul><ul><li>disturbs relationship between the parents of a child </li></ul><ul><li>If all these are not remedied the family stays in a state of a permanent crisis which may lead to an eventual breakdown of the family. </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

6. Factors influencing the condition of the family after the child’s disability occurrence : <ul><li>“ Quality” of the family relations before the disability appears, especially “quality” of the relations between spouses (partners) (their mutual trust, intimacy, closeness, good communication) </li></ul><ul><li>A disabled child : type and severity of the disability, age which the disability appears in, progress or lack of progress in the development and rehabilitation of a child, </li></ul><ul><li>Financial and social status of the family </li></ul><ul><li>Parent’s education level and the ir previous contact with disability </li></ul><ul><li>Presence of other children in the family </li></ul><ul><li>Re sponse of the rest of the extended family, friends, neigbours and other people to the disability of a child </li></ul><ul><li>Direct, immediate support from the professionals and from the local community (early intervention) after the disability occurs. </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

7. Early intervention means early, multi-disciplinary (medical, psychological and educational), integrated and specialized impact on children with anomalous development combined with the support for their families. <ul><li>Early intervention includes: </li></ul><ul><li>Early, multidisciplinary diagnosis and assessment of a child, whose psycho-motoric development is irregular in several spheres, since birth till 7 years of age </li></ul><ul><li>Early, multidisciplinary, continuous and complex therapy according to the individual needs of a child </li></ul><ul><li>Constant evaluation meant by monitoring development and progress of a child and modifying a therapy programme </li></ul><ul><li>Psychological support and raising of knowledge and competences of parents, concerning the specific needs of their disabled child. </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

8. Support for the f amily with a disabled child includes : <ul><ul><li>Psychological support and if necessary psychotherapy and psychiatric intervention </li></ul></ul><ul><ul><li>raising of knowledge and competences of parents in different forms like briefing, teaching, workshops, seminars etc. </li></ul></ul><ul><ul><li>Toy and book library, rehabilitation equipment and aids rental, </li></ul></ul><ul><ul><li>Long and short term respite care, </li></ul></ul><ul><ul><li>Social help and aid , </li></ul></ul><ul><ul><li>Informa tion, counselling, guidance service s </li></ul></ul><ul><ul><li>Transport </li></ul></ul><ul><ul><li>Mutual support groups for the families with the similar problems </li></ul></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

9. "The Family at the Heart of the Social Work in Europe" Arras 2009 The designers and providers of human services affect the daily experiences and the future prospects of the people, families, and communities who rely on them. Their p olicies and daily practice influence… ** where a person who depends on services lives, learns, works, and plays ** what activities fill the person’s da ily life ** who the person gets to know and where the person belongs ** the way the person and others understand who the person is

10. The forms of support for the families with a disabled member have to refer to all of the life’s spheres and have to enable the access to: <ul><li>health care, education, social benefits and housing </li></ul><ul><li>special aids and rehabilitation equipment </li></ul><ul><li>social rehabilita tion and daily activity for those who cannot work </li></ul><ul><li>vocational rehabilitation and training, employment and support in job placement </li></ul><ul><li>advocacy, personal assistance and legal protection </li></ul><ul><li>meaningfull and active leasure time activities </li></ul><ul><li>services in the community, participation in culture, sports and recreation </li></ul><ul><li>respite care </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

11. "The Family at the Heart of the Social Work in Europe" Arras 2009 When someone depends on services for housing, necessary personal assistance, and daily occupation over a long period of time , as many people with severe disabilities do, services b ecome life defining. The fundamental question for those concerned with high quality services for people with severe disabilities is … How can we use our resources to assist the people who rely on us to live better lives?

12. Support of people with disability and their families carried out by PSOUU in Gdansk "The Family at the Heart of the Social Work in Europe" Arras 2009 Supported employment SEA Social vocational rehabilitation OTW Community Support DAC Edu cation E-RC Early intervention EIC Person with disability and his/her family Supported living Residential house Respite care Leasure time activities Home services Respite care

13. "The Family at the Heart of the Social Work in Europe" Arras 2009 <ul><li>INSTITUTIONS and PROGRAMMES </li></ul><ul><li>RUN by the ASSO C IATION </li></ul><ul><li>** E arly Intervention Cent re </li></ul><ul><li>** Education - Rehabilitation Centr e </li></ul><ul><li>** Occupational Therapy Workshop </li></ul><ul><li>** D aily Activity Centr e </li></ul><ul><li>** “Promyk” Art Gallery </li></ul><ul><li>** „Vita Activa” Orchestra </li></ul><ul><li>** Supported Employment Agency “BIZON” </li></ul><ul><li>** Leasure time activity Club </li></ul><ul><li>** Supported Living House </li></ul><ul><li>** Home and respite care services </li></ul>

14. Early Intervention Centr e <ul><li>for children from 0-7 years of age. </li></ul><ul><li>Helpless parents of little children exposed, for different reasons to mental retardation and handicap can find support, diagnosis, stimulation, rehabilitation and education here. </li></ul><ul><li>As of today 12 20 families </li></ul><ul><li>receive services. </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

15. Rehabilitation-Education Developmental Centre <ul><ul><li>for 6 8 severely, multiply disabled children, </li></ul></ul><ul><ul><li>aged 7-24, who, due to their condition, </li></ul></ul><ul><ul><li>have not received special forms </li></ul></ul><ul><ul><li>of education and rehabilitation </li></ul></ul><ul><ul><li>in the public sector . </li></ul></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

16. Family support – in the Centre consists of: <ul><li>Assessment of a child and p roviding parent s with comprehensive information about therapeutical and educational program of their child </li></ul><ul><li>Parent’s Club – support group for parents run by psychologists. </li></ul><ul><li>Consultations with specialists. </li></ul><ul><li>I nformation exchange between staff of the Center and parents on the d aily basis. </li></ul><ul><li>Medical c onsultations in the Center. </li></ul><ul><li>A ssistance for parents in accordance to help them with formal procedures connected with disability of their child. </li></ul><ul><li>Fitting up the rehabilitation equipment and special aids . </li></ul><ul><li>Organization of the leasure time activities. </li></ul><ul><li>Organization of the financial and in kind support (clothes, weelchairs, furnitures, etc.) </li></ul><ul><li>Integration of the family environment – ceremonies and events inside and outside the Center. </li></ul><ul><li>Special transport provision </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

17. Family support – home services <ul><li>Education and rehabilitation at home in case of the bad health condition. </li></ul><ul><li>Respite care: casual and short term program s at the family home. </li></ul><ul><li>Personal assistance for the summer vacation trips and stays. </li></ul><ul><li>Support for parents during the participant’s hospitalization </li></ul><ul><li>Actions and interventions of social worker </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

18. Daily Activity Centr e <ul><ul><ul><li>where 20 adults with severe intellectual disability have their daily occupational, art and music therapy activities and social rehabilitation. </li></ul></ul></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

19. Occupational Therapy Workshop <ul><ul><li>for 55 adults with intellectual disability vocational training, self service skills training, rehabilitation, day care and recreation are provided there. </li></ul></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

20. The “Promyk” Art Gallery <ul><ul><li>T he first in our country cultural establishment which promotes achievements of artists with intellectual disability. </li></ul></ul><ul><ul><li>P rofessionally prepared exhibitions allow to see a person with di s ability through his or her abilities and talents. </li></ul></ul><ul><ul><li>The gallery runs a data-base of the artists with intellectual disability. </li></ul></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

21. „ Vita Activa” Orchestra <ul><li>and it’s conductor M iros l awa Lipińska </li></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

22. Special Programmes <ul><ul><li>promoting the idea of the full participation in the social life and at the same time educating society in the positive approach to a disable person with regard to his or hers needs and abilities. </li></ul></ul><ul><ul><li>Some of the best known include: </li></ul></ul><ul><ul><li>T he World not Known Enough - international festival of theatrical, musical, fine arts achievements of people with intellectual disabilities , </li></ul></ul><ul><ul><li>Sport e vents, “Big Brother Bid Sister”, a rt auctions , Carnival Parties, leasure time activities, holiday camps, seminars & trainings </li></ul></ul>"The Family at the Heart of the Social Work in Europe" Arras 2009

23. Seminars and trainings "The Family at the Heart of the Social Work in Europe" Arras 2009

24. Supported Employment Agency (BIZON) "The Family at the Heart of the Social Work in Europe" Arras 2009 At the job site s

25. "The Family at the Heart of the Social Work in Europe" Arras 2009

26. Polish Association for Persons with Mental Disability- Gdańsk Branch Polskie Stowarzyszenie na Rzecz Osób z Upośledzeniem Umysłowym (PSOUU) - Koło w Gdańsku ul.Tysiąclecia 13a 80-351 Gdańsk, Poland E-mail : [email_address] www.psouu.gda.pl Phone : (0) 58 553 02 61, Fax: (0) 58 553 25 11 <ul><li>Aby wstawić logo twojej firmy na tym slajdzie </li></ul><ul><li>Z menu Wstaw </li></ul><ul><li>Wybierz „Rysunek” </li></ul><ul><li>Umieść plik twojego logo </li></ul><ul><li>Kliknij przycisk OK </li></ul><ul><li>Aby zmienić wymiary logo </li></ul><ul><li>Kliknij wewnątrz logo. Kwadraciki, które pojawią się obok logo, są nazywane „uchwytami rozciągania”. </li></ul><ul><li>Użyj tego do zmiany rozmiarów obiektu. </li></ul><ul><li>Jeśli przytrzymasz klawisz Shift przed użyciem uchwytów rozmiaru, zostaną zachowane proporcje obiektu o zmienianych wymiarach. </li></ul>THANK YOU VERY MUCH

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