Don’t miss our upcoming webinars: Subscribe today! In this webinar: According to the Canadian Cancer Society, one of two Canadians will be affected by cancer and 9 of 10 Canadians who have cancer are over the age of 50. This session explores whether the Canadian health system is ready to provide quality cancer care to older Canadians who are most affected by cancer. In particular, the presentation covers the following topics: • An overview of national cancer trends • A summary of the findings from a recent survey on cancer of 4,000 CARP members • Perspectives on the issue from CCSN • A discussion about what is required to ensure that Canada is ready to meet the growing challenge of treating cancer appropriately The webinar was hosted by Bill Dempster from 3Sixty Public Affairs, who will review the data related to the burden of cancer in Canada and outline the trends. He will be joined by a well-known health policy and public relations leader, Don Sancton, who will summarize the key findings from a recent CARP survey examining Canadians’ knowledge of and experience with cancer and its treatment. That will be followed by a discussion with CCSN’s Jackie Manthorne on what is needed to ensure that the health system is prepared to deal effectively with what is coming. Finally, the moderator facilitate an interactive question and answer session. Moderator profile • Bill Dempster, co-founder of 3Sixty Public Affairs Inc., is an in-demand health and pharmaceutical policy expert who works with a range of clients to navigate complex political, policy, regulatory and reimbursement challenges in the Canadian life sciences field Panelist profiles • Don Sancton, Senior Associate and communications expert with 3Sixty Public Affairs • Jackie Manthorne, President and CEO of CSSN, published author, winner of the Jack Shapiro Lifetime Achievement Award, and student at Thorneloe University School of Theology View the youtube video: https://youtu.be/WzckNgHczDI To learn more about CCSN, visit us at survivornet.ca Follow CCSN on social media: Twitter - https://twitter.com/survivornetca Facebook - https://www.facebook.com/CanadianSurvivorNet Instagram: https://www.instagram.com/survivornet_ca/ Pinterest - https://www.pinterest.com/survivornetwork

1. Is Canada’s
Cancer System
prepared to
provide quality
cancer care to
older Canadians?
CCSN Webinar | June 13, 2019

2. Don Sancton
Panelists
Moderator
Bill Dempster
Jackie Manthorne
Senior Associate &
Communications Expert at
3Sixty Public Affairs
Senior Associate
3Sixty Public Affairs
President and CEO of the
Canadian Cancer Survivor
Network
2

3. What we’ll discuss…
3
1. Cancer trends
2. CARP cancer survey
3. Select survey results:
a) Perspectives on the healthcare system
b) Views on health system and need for
investments
c) Knowledge of cancer burden and
treatments
4. Discussion

4. 1. Cancer trends
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5. Increasing burden of cancer will lead to increase pressure on
health systems
• Nearly 81,000 deaths from cancer each year1
• 1 in 4 is expected to die of cancer1
$7.5 billion in total costs3
Increase in new cancer cases over 15 years (2015-2030)2
1. Cancer Cancer Society statistics: http://www.cancer.ca/en/cancer-information/cancer-101/cancer-statistics-at-a-glance/?region=on;
2. Canadian Cancer Society press release: http://www.cancer.ca/en/about-us/for-media/media-releases/national/2015/canadian-cancer-statistics-2015/?region=on;
3. Claire de Oliveira, "The economic burden of cancer care in Canada: a population-based cost study", CMAJ: http://cmajopen.ca/content/6/1/E1.full
200,000 new cases of cancer every year1
1 in 2 Canadians will be diagnosed with cancer1
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6. Huge demographic shift…
A key driver in increase in cancer incidence
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• Already more Canadians
over age 65 than under
15
• Within a decade, seniors
will comprise a quarter
of the population
• Growing population that
is most affected by
cancer
* Canadian Cancer Society’s Advisory Committee on Cancer Statistics. Canadian Cancer Statistics 2016. Toronto, ON: Canadian Cancer Society; 2016.
*

7. Aging population per province: Percentage change of
over-65 population between 2017–28
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Source: The Conference Board of Canada

8. 2. CARP cancer survey
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9. Survey on cancer and seniors
with nearly 4,000 respondents
• Survey was conducted by CARP (Canadian
Association of Retired Persons) and supported by
Merck
• Survey was conducted from January 23 to February
13, 2019 and attracted 3,962 respondents
• The survey included questions in several areas of
cancer care and we will focus today on the following
three areas:
1. Knowledge of cancer burden and treatments
2. Perspectives on the healthcare system and
clinical trials
3. Views on health system planning and
investment
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10. 10
3. Drill-Down on key survey results:
a) Knowledge of cancer burden and
treatments

11. Vast majority
of respondents
unaware of
impact of
cancer
Respondents are unaware of the burden of cancer:
• 3% correctly said an 80% increase in cancer cases is
expected from 2003-2028
• 14% correctly said cancer is the leading cause of death in
Canada
• 19% correctly said 1 in 2 Canadians can expect to get
cancer
• 31% correctly said 25% of Canadians will die of cancer
Respondents are unaware of the burden of lung cancer:
• 13% correctly said lung cancer is the most diagnosed
cancer
• 27% correctly said lung cancer is the leading cause of
cancer deaths
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12. Respondents still
much more
familiar with
basic cancer
treatments than
new therapies
• 95% are familiar with surgery, chemotherapy and
radiation as cancer treatments
• 50% are familiar with immunotherapy
• 49% correctly said immunotherapy refers to “A drug
that harnesses the body’s own immune system to
detect and kill the cancer cells”
– 39% had no answer (22% don’t know what it
means, 17% had never heard of it)
– 7% confused it with vaccines
– 6% think it works by destroying the immune
system
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13. Respondents are interested in learning more
about cancer
“Very informative
presentation. Look
forward to seeing more
surveys emphasizing
the importance of
knowledge.”
“Wow, I thought I knew
the answers to the first
set of questions but only
got one right! Seems we
need more exposure to
those stats.”
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14. 14
3. Drill-Down on key survey results:
b) Perspectives on the healthcare
system and clinical trials

15. Almost half (48%) of cancer treatments/surgery were started
more than one month after diagnosis
11%
40%
29%
19%
2%
<1 week
1-4 weeks
Waiting now
1-2
months
>2 months
15
Wait time from diagnosis
to surgery or treatment:

16. Screening tests for breast, colon and prostate cancer have been
well used
• 32% have had a CT scan to detect a cancer
• To detect colon cancer
– 70% have had a colonoscopy
– 65% have done a stool test
• To detect lung cancer
– 33% have had a chest x-ray
• Of women
– 73% have had a mammogram to detect breast cancer
– 68% have had a pap smear to detect cervical cancer
• Of men
– 63% have had a digital exam to detect prostate cancer
• 1.5% have had a vaccination to prevent cervical and other
cancers
%
based on
3,116 responses
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17. 3 of 4 (76%) cancer patients were never offered the
chance to take part in a clinical trial
76%
5%
4%
2%
13%
Yes, but didn’t want to participate
Yes, but not eligible to enrol
No, never
offered
Yes and received
treatment
Yes, but rejected after enrolling
Q: Were you ever offered to take part in a clinical trial?
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18. Almost 3 of 5 (59%) of those who have been in clinical trials
have found the experience positive or very positive
36% 23% 28% 6% 7%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
VERY POSITIVE POSITIVE NEUTRAL
VERY
NEGATIVE
Q: If you took part in a clinical trial, describe your experience
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NEGATIVE

19. Clinical trials are very well perceived, with only 1 in 20
(5%) likely to say no to participating in one
38% 41% 4%
1%
16%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
TAKE PART
ENTHUSIASTICALLY
HESITANT
BUT YES
CONSIDER
BUT NO
DEFINITE
NO
FOLLOW
DOCTOR’S
ADVICE
Q: If you had cancer and were offered participation in a clinical trial, how would you react?
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20. Comments also show positive perception of clinical trials
and new treatments
• “I researched and asked for referral for the clinical trial.”
• “A friend with stage 4 breast cancer was part of a drug trial and has been
cancer-free for over 15 years.”
• “Immunotherapy new treatment saved my life!”
• “My best friend was given a clinical trial treatment and it was successful.”
• “I dropped out of a trial that could have led to an autologous stem cell
transplant. My daughter was fortunate to receive immunotherapy.”
• “My granddaughter received the most amazing treatment at Sick Kids. She
was in a trial for CAR-T cell therapy after her third relapse from leukemia and
is now strong and healthy and still getting great checkups.”
• “Cancer drug supplied by Bayer on a compassionate basis to Princess
Margaret Hospital and in turn to me. Note: cost would be approx. $37,000
yearly. Thanks Bayer.”
• “Trial demanded travel to downtown Toronto everyday for a couple of months
and the expense was too much.”
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21. 21
3. Drill-Down on key survey results:
c) Views on health system planning
and investment

22. Less than half (47%) believe the health system is well
equipped and treats cancer efficiently
47%
29%
11%
13%
Well
equipped and
treats cancer
efficientlySlow but
most get
treated well
in the end
Slow or inefficient
& many don’t get
best treatment they
deserve
Q: When it comes to dealing with cancer, the medical system is…
Almost 1 in 4 (24%) say
the system’s problems
result in patients not
receiving optimal care
22
+
Totally overwhelmed
so many don’t get best
or timely treatment

23. More than half (52%) do not think the health system is
ready to face the future wave of cancer patients
2% 19% 27% 44% 8%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
VERY
READY
READY NEUTRAL NOT READY
NOT READY
AT ALL
Q: With cancer rates increasing as a result of a growing and aging population, how ready
do you think your provincial health system is to respond to the needs of cancer patients?
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52%

24. 9 out of 10 respondents (90%) think cancer should be a top
priority of their public health system
63% 27%
3.3%
0.4%
6.7%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
STRONGLY AGREE AGREE
NEUTRAL
DISAGREE
STRONGLY
DISAGREE
Q. Ensuring better screening and timely treatment of cancer should be
a top priority of my provincial or territorial health system
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90%

25. More than 9 out of 10 respondents (91%) believe health
systems should make new investments to be better prepared
to treat cancer
54% 37% 4% 4.5%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
STRONGLY AGREE AGREE
NEUTRAL
DISAGREE
0.5%
STRONGLY
DISAGREE
91%
Q. With cancer rates increasing as a result of a growing and aging population, governments
should plan ahead and make additional investments to ensure the health system can keep
up with the demand and provide timely access to cancer treatments and services
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26. Most comments indicating
need to better prepare
health system
• “They need to prepare now!”
• “Little evidence of a coherent system.”
• “Health system is not prepared for the dementia tsunami. This
should be a top priority as well as cancer.”
• “When cancer was a possibility, the steps to treatment were swift.
I am so very grateful.”
• “Wait times need to be decreased.”
• “The system is already overloaded.”
• “Cutbacks and/or no new funding will and does hinder the future
of our healthcare system which we are blessed to have.”
• “I think the health system is aware and is prepared to deal with
this disease.”
• “It is inconceivable that in the Canadian health system all costs
related to the treatment of cancer are not covered by public health
insurance.”
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27. 4. Discussion
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28. A few kick-off questions…
• What is your reaction to survey results? Were you surprised?
• What is needed to ensure that the health system is prepared to
deal effectively with what is coming?
• What role can the federal government play on this issue given
there is an upcoming election?
• You were on Parliament Hill this week to raise awareness of this
issue. What was the reaction from parliamentarians?
• How do you suggest patients get engaged on this issue in the
context of the upcoming federal election?
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29. Shop4Charity
Thank you so much for tuning into our webinar
today. If you enjoyed it and would like to
further support CCSN, please consider
participating in our Shop4Charity initiative!
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30. Canadian Cancer Survivor Network
1750 Courtwood Crescent, Suite 210
Ottawa, ON K2C 2B5
Telephone: 613-898-1871
E-mail: jmanthorne@survivornet.ca or mforrest@survivornet.ca
Website: www.survivornet.ca
Blog: http://jackiemanthornescancerblog.blogspot.com/
Twitter: @survivornetca
Facebook: www.facebook.com/CanadianSurvivorNet
Pinterest: http://pinterest.com/survivornetwork/
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