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Carol Munt - 'patients as partners'

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Carol Munt - 'patients as partners'

  1. 1. PATIENTS AS PARTNERS Evaluating international patient experiences of Public Patient Involvement & discussing the potential to embed PPI in Irish healthcare reform. CarolMunt
  2. 2. Somewhere there’s a person with a good idea
  3. 3. “Most brilliance arises from ordinary people working together in extraordinary ways”
  4. 4. http://pxjournal.org/journal/al.org/journal/
  5. 5. Leading Together - Oxford Academic Health Science Network www.oxfordahsn.org/.../leading-together
  6. 6. UCL Centre for Co-production in Health Research
  7. 7. Always Events®
  8. 8. Caring, Learning and Growing
  9. 9. Always Events® Caring, Learning and Growing PSYPHER Psychosis Service for Young People Hull and East Riding The story of our Co-designed Always Events® so far…
  10. 10. Met with clients to develop a questionnaire in their words asking what improvements people would like to see at PSYPHER. Collated feedback. Involving clients and family members to decide the importance of improvements identified. Co-designed change area: Personalised discharge letters Met with client group to develop how they would like to see their letters. Shared improvements with team and letters began being delivered. Measured outcomes of clients receiving letters and ensure this is continued in practice . PSYPHER
  11. 11. Thank you munt12@aol.com @muntma
  12. 12. The BERYL INSTITUTE is the global community of practice dedicated to improving the patient experience through collaboration and shared knowledge. We define the patient experience as the sum of all interactions, shaped by an organization's culture, that influence patient perceptions across the continuum of care. http://pxjournal.org/journal/al.org/journal/
  13. 13. What did UCL learn? Ideas vs. reality be adaptable Removal of barriers is key Traditional approach to planning doesn’t work Time for relationship building & decisions Culture change - adoption of this way of working takes time and patience Senior management support is important Peer support is key when learning Payment of those involved We are one team – different expertise
  14. 14. What Are Always Events® A brief reminder of what an always event is.. Always events should be a clear, action-oriented set of behaviours that: Provide a foundation for partnering with patients and their families; Ensures optimal patient experience and improved outcomes which are sustainable. A fundamental principle in co-designing Always Events® is to move from “Doing for patients” to “Doing with patients” Caring, Learning and Growing
  15. 15. Caring, Learning and Growing Humbernhsft www.humber.nhs.uk Co-production and Patient Experience Using Always event® framework Mandy Dawley Head of Patient and Carer Experience and Engagement Tom Nicklin Patient experience Champion- Peer Support Worker Charlotte Watson Staff patient experience champion- Associate practitioner
  16. 16. Any Questions? Contact us. Caring, Learning and Growing Contact Details: Patient and Carer Experience Team: hnf-tr.patientandcarerexperience@nhs.net Or telephone: 01482 389167 Lesley Kitchen: Team Leader -PSYPHER Tel: (01482) 336786 or Email: lkitchen1@nhs.net Charlotte Watson: Associate practitioner- PSYPHER Tel: (01482) 336786 or Email: charlottewatson1@nhs.net Tom Nicklin: Peer Support Worker/ Patient experience champion: tom.nicklin@nhs.net For further information on Always Events® and how to get involved please contact the patient experience team at england.peadmin@nhs.net
  17. 17. The impact and value of involvement and co-production.. www.kingsfund.org.uk/audio-video/carol-munt-impact-patient... Carol Munt, Patient Leader, discusses how co-production has improved experience and outcomes for patients and service users. This presentation was filmed at our conference, How to involve and co-produce with patients and communities, on 1 November 2016 (now used by the Open University) . Oxford Academic Health Science Network Leading Together www.oxfordahsn.org/.../leading-together The organisations behind Leading Together are the Oxford Academic Health Science Network, NHS England South and the NHS Thames Valley and Wessex Leadership Academy. The Leading Together programme is run by TPC Health. UCL Centre for Co-Production in Health Research n.pascal@ucl.ac.uk
  18. 18. The Health Foundation proposes that co production is central to how the Co- creating Health (CCH) initiative works. This report presents a descriptive model of the skills of clinicians and patients, and the context and outcomes of co-productive consultations. personcentredcare.health.org.uk/.../what_is_co-production.pdf Co-production has historical roots in civil rights and social care in the USA. In the UK, co- production in healthcare and social services has gone beyond models of service user consultation towards developing a model of service delivery intended to impact on service users and on wider social systems. Collaborative co-production requires users to be experts in their own circumstances and capable of making decisions, while professionals must move from being fixers to facilitators. To be truly transformative, co-production requires a relocation of power towards service users. This necessitates new relationships with front-line professionals who need training to be empowered to take on these new roles. Patient centredness describes the relationship between clinicians and patients as a meeting of two experts, each with their respective knowledge and skills. There has been far more emphasis on research and practice on elaborating the clinicians’ skills in the co-productive consultation than there has been on the skills of the patient.
  19. 19. The Dementia Guide for Carers and Care Providers offers practical information for anyone caring for a person with dementia and has been developed by our Thames Valley team in collaboration with healthcare professionals, educators and carers. The guide aims to support an understanding of the progressive nature of dementia and the challenges a person caring for someone with dementia may experience. Its focus is on living well with dementia. The guide - shares information that will help support the journey of those with dementia, once they have been diagnosed; acts as a tool for carers and care providers, working together and using the guide establish greater knowledge and understanding of what is required when a person is diagnosed with dementia; answers questions from carers and care providers about services that will be required to support them and the person they are caring for; provides information in a language that is understandable to all, highlighting that dementia is everyone’s business, emphasising that the person with dementia is central and that they should receive the advice and support they need to live well. If you have an eReader, the Dementia Guide for Carers and Care Providers eBook is available for free from iBooks, the Kindle Store and Smashwords or alternatively as an app through the Apple App Store.
  20. 20. Leading Together - Oxford Academic Health Science Network www.oxfordahsn.org/.../leading-together The organisations behind Leading Together are the Oxford Academic Health Science Network, NHS England South and the NHS Thames Valley and Wessex Leadership Academy Further information: ppiee@oxfordahsn.org Follow us on Twitter: @LTP_OxfordAHSN.
  21. 21. On 28 November, senior leaders at Oxford Health graduated from the 2018 Leading Together Programme for learning disabilities. The development course is designed to bring together members of the public with healthcare professionals to reflect, learn and work at a strategic level.

Hinweis der Redaktion

  • Royal Berkshire Hospital Reading ran series of ‘training sessions’ for a pool of Patient Leaders.
  • CEO started using Patient leaders to buddy board members
  • Initially printed sections in A4 file and specific to family carers in Berkshire Healthcare area.
    App designed to be national and to cover care providers
    (i.e.paid carers)
  • Three year project to make this a reality and the official launch will be on October 22nd 2020
  • Mandy Dawley
    Head of patient experience

    Trust partnership
    Triangle model
    (Psychosis service for your people Hull and East Riding)

    Before our team were introduced to always events we did not have service users involved in making changes. Changes were mostly managerial/ MDT implemented changes. these changes often did not last long. Having service users voices heard has helped with proving longevity of change.

    Staff approach to making changes has shifted. We have moved on from making changes with little service user involvement, to involving service users from the very start. For example; service user and staff group co-producing the service improvement survey which is then disseminated to all service users.

    Since our personalised discharge letter has been developed:
    Become an ongoing journey throughout the individuals care at each intervention and CPA (Care programme approach).
    Staff are reporting they feel the changes are making collaborative work easier to track and reflect on. (Having a live journal/ timeline to reflect with service users.)
    Service users discharged reported finding it helpful. “A useful reminder of improvement since starting this service”.