1.
PATIENTS AS PARTNERS
Evaluating international patient
experiences of
Public Patient Involvement
& discussing the potential
to embed PPI in
Irish healthcare reform.
CarolMunt

2.
Somewhere there’s a person with a good idea

3.
“Most brilliance arises
from ordinary people
working together in
extraordinary ways”

4.
http://pxjournal.org/journal/al.org/journal/

5.
Leading Together - Oxford Academic Health Science Network
www.oxfordahsn.org/.../leading-together

6.
UCL Centre for
Co-production in
Health Research

7.
Always Events®

8.
Caring, Learning and Growing

9.
Always Events®
Caring, Learning and Growing
PSYPHER
Psychosis Service for Young
People Hull and East Riding
The story of our
Co-designed Always Events® so
far…

10.
Met with clients to develop a
questionnaire in their words
asking what improvements
people would like to see at
PSYPHER.
Collated feedback. Involving
clients and family members
to decide the importance of
improvements identified.
Co-designed change area:
Personalised discharge letters
Met with client group to
develop how they would like
to see their letters.
Shared improvements with
team and letters began being
delivered.
Measured outcomes of
clients receiving letters and
ensure this is continued in
practice .
PSYPHER

11.
Thank you
munt12@aol.com
@muntma

12.
The BERYL INSTITUTE is the global community of
practice dedicated to improving the patient
experience through collaboration and shared
knowledge. We define the patient experience as the
sum of all interactions, shaped by an organization's
culture, that influence patient perceptions across
the continuum of care.
http://pxjournal.org/journal/al.org/journal/

13.
What did UCL learn?
Ideas vs. reality be adaptable
Removal of barriers is key
Traditional approach to planning doesn’t work
Time for relationship building & decisions
Culture change - adoption of this way of
working takes time and patience
Senior management support is important
Peer support is key when learning
Payment of those involved
We are one team – different expertise

14.
What Are Always Events®
A brief reminder of what an always event is..
Always events should be a clear, action-oriented set of
behaviours that: Provide a foundation for partnering with
patients and their families; Ensures optimal patient
experience and improved outcomes which are sustainable.
A fundamental principle in co-designing
Always Events® is to move from “Doing for
patients” to “Doing with patients”
Caring, Learning and Growing

15.
Caring, Learning and Growing
Humbernhsft
www.humber.nhs.uk
Co-production and Patient Experience
Using Always event® framework
Mandy Dawley
Head of Patient and Carer Experience and Engagement
Tom Nicklin
Patient experience Champion- Peer Support Worker
Charlotte Watson
Staff patient experience champion- Associate practitioner

16.
Any Questions? Contact us.
Caring, Learning and Growing
Contact Details:
Patient and Carer Experience Team: hnf-tr.patientandcarerexperience@nhs.net
Or telephone: 01482 389167
Lesley Kitchen: Team Leader -PSYPHER
Tel: (01482) 336786 or Email: lkitchen1@nhs.net
Charlotte Watson: Associate practitioner- PSYPHER
Tel: (01482) 336786 or Email: charlottewatson1@nhs.net
Tom Nicklin: Peer Support Worker/ Patient experience champion: tom.nicklin@nhs.net
For further information on Always Events® and how to get involved please contact the
patient experience team at england.peadmin@nhs.net

17.
The impact and value of involvement and co-production..
www.kingsfund.org.uk/audio-video/carol-munt-impact-patient...
Carol Munt, Patient Leader, discusses how co-production has improved
experience and outcomes for patients and service users. This presentation was
filmed at our conference, How to involve and co-produce with patients and
communities, on 1 November 2016 (now used by the Open University) .
Oxford Academic Health Science Network
Leading Together
www.oxfordahsn.org/.../leading-together
The organisations behind Leading Together are the Oxford Academic Health
Science Network, NHS England South and the NHS Thames Valley and Wessex
Leadership Academy. The Leading Together programme is run by TPC Health.
UCL Centre for Co-Production in Health Research
n.pascal@ucl.ac.uk

18.
The Health Foundation proposes that co production is central to how the Co-
creating Health (CCH) initiative works.
This report presents a descriptive model of the skills of clinicians and patients, and the
context and outcomes of co-productive consultations.
personcentredcare.health.org.uk/.../what_is_co-production.pdf
Co-production has historical roots in civil rights and social care in the USA. In the UK, co-
production in healthcare and social services has gone beyond models of service user
consultation towards developing a model of service delivery intended to impact on
service users and on wider social systems.
Collaborative co-production requires users to be experts in their own circumstances and
capable of making decisions, while professionals must move from being fixers to
facilitators. To be truly transformative, co-production requires a relocation of power
towards service users. This necessitates new relationships with front-line professionals
who need training to be empowered to take on these new roles.
Patient centredness describes the relationship between clinicians and patients as a
meeting of two experts, each with their respective knowledge and skills.
There has been far more emphasis on research and practice on elaborating the clinicians’
skills in the co-productive consultation than there has been on the skills of the patient.

19.
The Dementia Guide for Carers and Care Providers offers practical information for
anyone caring for a person with dementia and has been developed by our Thames
Valley team in collaboration with healthcare professionals, educators and carers. The
guide aims to support an understanding of the progressive nature of dementia and the
challenges a person caring for someone with dementia may experience. Its focus is on
living well with dementia.
The guide - shares information that will help support the journey of those with
dementia, once they have been diagnosed; acts as a tool for carers and care
providers, working together and using the guide establish greater knowledge and
understanding of what is required when a person is diagnosed with dementia;
answers questions from carers and care providers about services that will be required
to support them and the person they are caring for; provides information in a
language that is understandable to all, highlighting that dementia is everyone’s
business, emphasising that the person with dementia is central and that they should
receive the advice and support they need to live well.
If you have an eReader, the Dementia Guide for Carers and Care Providers eBook is
available for free from iBooks, the Kindle Store and Smashwords or alternatively as an
app through the Apple App Store.

20.
Leading Together - Oxford Academic Health Science
Network
www.oxfordahsn.org/.../leading-together
The organisations behind Leading Together are the Oxford
Academic Health Science Network, NHS England South and
the NHS Thames Valley and Wessex Leadership Academy
Further information: ppiee@oxfordahsn.org Follow us on
Twitter: @LTP_OxfordAHSN.

21.
On 28 November, senior leaders at Oxford
Health graduated from the 2018 Leading
Together Programme for learning
disabilities. The development course is
designed to bring together members of the
public with healthcare professionals to
reflect, learn and work at a strategic level.