The document discusses clinical research registries at King Faisal Specialist Hospital & Research Center. It outlines the importance of research data for health planning and improvements. It describes trends in web-based clinical registries and geospatial analysis tools used in registries like the Saudi National Diabetes Registry. The presentation aims to showcase demonstration software called SuperView and SuperWeb that provide centralized access and analysis of registry data including mapping and reporting capabilities.

1. Clinical Informatics Clinical Research (Registries) Ms. ShaziaNazSubhani Head- Registries Core Facility Technical Specialist Biostatistics Epidemiology & Scientific Computing Department King Faisal Specialist Hospital & Research Center ssubhani@kfshrc.edu.sa

3. Clinical Research

4. The Importance of Research Data

5. Trends in Health Research

6. Web-Based Registries

7. Geospatial Analysis (GIS)

8. Examples

9. What are we trying to achieve?

10. SuperView

13. Research is essential to guide improvements in health systemsand develop new initiatives.

14. Improving knowledge and understanding

15. Spin-off research projects

16. Health planning

17. Resource allocation

18. Evaluation of clinical and public health programs

20. National Diabetes Registry

21. National Congenital Heart Defects Registry

22. National Epilepsy Registry

23. National Neural Tube Defects Registry

24. National Family Safety Registry

26. Thromboembolic Disorders

27. Neuromuscular Diseases

28. Venous Thrombosis and Familial ThrombophilliaData Entry Data Updates Search Results Charts Data Export Statistical Reports Data Auditing

30. Search Engine

31. Charts Generation

34. Single patient information List of all patients in Al Kharjcity Geospatial Analysis – Saudi National Diabetes Registry

35. Geospatial Analysis – Saudi National Diabetes Registry Designed web-interface for the Saudi National Diabetes Registry. Live data projection as maps with the help of ESRI ArcIMS 9.3.1

36. Retinopathy Distribution among Diabetic Patients

37. Regular Insulin - Distribution among Diabetic Patients

38. Geospatial Analysis – Age Distribution of Diabetic Patients

40. Customizable

41. Map Tools

44. assists policy and decision makers to

45. make accurate and timely decisions

46. allocate required resources

47. take necessary measurements to address health problems.What are we aiming to achieve?

48. National Center for Health Statistics Vision Statement: The National Center for Health Statistics (NCHS) will expand the availability of research data for dynamic analysis and reporting using high technology platforms. Geographical distribution of data as maps along with tabulations and charting will be available with data filters for narrowing down the inquiries supporting important decisions.

50. To provide state of the art repository of information on various disease registries and national projects.

52. Our imagination is the only limit to what we can hope to have in the future. ~ Charles F. Kettering Ability is of little account without opportunity ~ Napoleon

53. KFSH Register Data SuperVIEW Demo – for Public

54. KFSH Register Data SuperVIEW Demo – for Public

55. KFSH Register Data SuperVIEW Demo – for Public

56. KFSH Register Data SuperVIEW Demo – for Public

57. KFSH Register Data SuperVIEW Demo – for Public

58. KFSH Register Data SuperVIEW Demo – for Public

59. KFSH Register Data SuperVIEW Demo – for Public

60. KFSH Register Data SuperWEB Demo – for Researchers

61. KFSH Register Data SuperWEB Demo – for Researchers

62. KFSH Register Data SuperWEB Demo – for Researchers

63. Registries Core Facility Web-site: http://rc.kfshrc.edu.sa/rcf Some useful demos of Superview: http://superstar.spacetimeresearch.com

65. Management Automation

66. System-Wide Modifications

67. Quick Measuring of Data

68. Timely Decision Making