Risk Communication and Medical Decision Making

Informed Medical Decisions Foundation
Informed Medical Decisions FoundationAssistant Director, Communications um Informed Medical Decisions Foundation
Risk Communication and Medical Decision Making Gerd Gigerenzer Max Planck Institute for Human Development Berlin
Statistical Illiteracy Results in Thousands of Abortions:  The British Contraceptive Pill Scare News: „ 100%“ Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007.  Psychological Science in the Public Interest .
Collective Statistical Illiteracy in Health Care ,[object Object],[object Object],[object Object],[object Object],[object Object]
I Politicians Collective Statistical Illiteracy
" I had prostate cancer, five, six years ago. My chances of surviving prostate cancer and thank God I was cured of it, in the United States, 82 percent. My chances of surviving prostate cancer in England, only 44 percent under socialized medicine.” Rudy Giuliani, New Hampshire radio advertisement, October 2007
Lead Time Bias Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007.  Psychological Science in the Public Interest .
II Physicians Collective Statistical Illiteracy
  Participants: 31 urologists   Setting: Continuing education  When the (same) information about PSA tests was framed as: Survival rates:  71%  recommend screening Mortality rates:  10%  recommend screening  When asked, what does lead-time-bias mean?  84% did not know   (Wegwarth, Gaissmaier & Gigerenzer, 2010)  Uninformed decision making appears to be the rule .  Costs of PSA mass screening: first year  $12 – 28 billion (US)   Do Physicians Understand 5-Year Survival Rates?
Gynecologists’ (n = 160) estimates of  p(breast cancer | positive mammogram) 10 Before training 90 81 1 Estimates in % Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007.  Psychological Science in the Public Interest .
Gynecologists can learn quickly: Translate conditional probabilities into natural frequencies 90 81 10 1 Before training  After training Estimates in % Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007.  Psychological Science in the Public Interest .
Gynecologists‘ understanding of a  relative risk reduction  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007.  Psychological Science in the Public Interest .
III Patients Collective Statistical Illiteracy
PERCEIVED BENEFITS OF  MAMMOGRAPHY SCREENING Out of 1000 women 50+ who regularly participate in screening, how many fewer will die of breast cancer in comparison to those who do not participate?   Gigerenzer, Mata, & Frank  JNCI  2009  evidence
PERCEIVED BENEFITS OF  MAMMOGRAPHY SCREENING Out of 1000 women 50+ who regularly participate in screening, how many fewer will die of breast cancer in comparison to those who do not participate? Gigerenzer, Mata, & Frank  JNCI  2009  evidence
What Does the Public Know about the Benefits  of Breast and Prostate Cancer Screening?
Exploiting   Collective Statistical Illiteracy
Unwarranted enthusiasm for treatment: Reduction from 2.8 to 1.5 per 100
Confusion about progress against cancer.  Unwarranted enthusiasm for medical center. One of the most prestigious cancer centers in the US: M. D. Anderson
BMJ, JAMA,  and  The Lancet , 2004-2006: In 1 out of 3 cases was mismatched framing used (mostly relative risks for benefits of treatments, and absolute risks for harms)  Sedrakyan & Shih 2007  Medical Care Mismatched Framing: Report benefits in  BIG  numbers and harms in SMALL numbers
Reputation The case of the “German Cancer Aid” (Deutsche Krebshilfe). Revenues 1974-2005 from donations: 1,3 billion Euros How Can We Steer Institutions Towards Transparent Health Information?
Benefits?   Mortality   NO INFORMATION  NO INFORMATION Breast cancer mortality  up to 30%;   from 4 to 3 in 200 women   98%  survival rate Harms? False alarms  NO INFORMATION  5 of 6 positive women don’t    have cancer; 1 gets a biopsy Overtreatment   NO INFORMATION  1 in 8 women with cancer Radiation-induced cancer  barely significant  harms smaller than benefits  A positive test means:   NO INFORMATION  1 in 6 women has cancer years up to 5/2009    12/2009 In late 2009, the GERMAN CANCER AID’s pamphlets on breast cancer screening switched to more transparent and complete information presentation
Collective Statistical Illiteracy   in Health ,[object Object],[object Object],[object Object],[object Object],More: Gigerenzer 2002. Calculated Risks.  Simon & Schuster. Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007.  Psychological Science in the Public Interest
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Risk Communication and Medical Decision Making

  • 1. Risk Communication and Medical Decision Making Gerd Gigerenzer Max Planck Institute for Human Development Berlin
  • 2. Statistical Illiteracy Results in Thousands of Abortions: The British Contraceptive Pill Scare News: „ 100%“ Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007. Psychological Science in the Public Interest .
  • 3.
  • 4. I Politicians Collective Statistical Illiteracy
  • 5. " I had prostate cancer, five, six years ago. My chances of surviving prostate cancer and thank God I was cured of it, in the United States, 82 percent. My chances of surviving prostate cancer in England, only 44 percent under socialized medicine.” Rudy Giuliani, New Hampshire radio advertisement, October 2007
  • 6. Lead Time Bias Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007. Psychological Science in the Public Interest .
  • 7. II Physicians Collective Statistical Illiteracy
  • 8. Participants: 31 urologists Setting: Continuing education When the (same) information about PSA tests was framed as: Survival rates: 71% recommend screening Mortality rates: 10% recommend screening When asked, what does lead-time-bias mean? 84% did not know (Wegwarth, Gaissmaier & Gigerenzer, 2010)  Uninformed decision making appears to be the rule . Costs of PSA mass screening: first year $12 – 28 billion (US) Do Physicians Understand 5-Year Survival Rates?
  • 9. Gynecologists’ (n = 160) estimates of p(breast cancer | positive mammogram) 10 Before training 90 81 1 Estimates in % Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007. Psychological Science in the Public Interest .
  • 10. Gynecologists can learn quickly: Translate conditional probabilities into natural frequencies 90 81 10 1 Before training After training Estimates in % Gigerenzer, Gaissmaier, Kurz-Milcke, Schwartz, & Woloshin 2007. Psychological Science in the Public Interest .
  • 11.
  • 12. III Patients Collective Statistical Illiteracy
  • 13. PERCEIVED BENEFITS OF MAMMOGRAPHY SCREENING Out of 1000 women 50+ who regularly participate in screening, how many fewer will die of breast cancer in comparison to those who do not participate? Gigerenzer, Mata, & Frank JNCI 2009  evidence
  • 14. PERCEIVED BENEFITS OF MAMMOGRAPHY SCREENING Out of 1000 women 50+ who regularly participate in screening, how many fewer will die of breast cancer in comparison to those who do not participate? Gigerenzer, Mata, & Frank JNCI 2009  evidence
  • 15. What Does the Public Know about the Benefits of Breast and Prostate Cancer Screening?
  • 16. Exploiting Collective Statistical Illiteracy
  • 17. Unwarranted enthusiasm for treatment: Reduction from 2.8 to 1.5 per 100
  • 18. Confusion about progress against cancer. Unwarranted enthusiasm for medical center. One of the most prestigious cancer centers in the US: M. D. Anderson
  • 19. BMJ, JAMA, and The Lancet , 2004-2006: In 1 out of 3 cases was mismatched framing used (mostly relative risks for benefits of treatments, and absolute risks for harms) Sedrakyan & Shih 2007 Medical Care Mismatched Framing: Report benefits in BIG numbers and harms in SMALL numbers
  • 20. Reputation The case of the “German Cancer Aid” (Deutsche Krebshilfe). Revenues 1974-2005 from donations: 1,3 billion Euros How Can We Steer Institutions Towards Transparent Health Information?
  • 21. Benefits? Mortality NO INFORMATION NO INFORMATION Breast cancer mortality up to 30%; from 4 to 3 in 200 women 98% survival rate Harms? False alarms NO INFORMATION 5 of 6 positive women don’t have cancer; 1 gets a biopsy Overtreatment NO INFORMATION 1 in 8 women with cancer Radiation-induced cancer barely significant harms smaller than benefits A positive test means: NO INFORMATION 1 in 6 women has cancer years up to 5/2009 12/2009 In late 2009, the GERMAN CANCER AID’s pamphlets on breast cancer screening switched to more transparent and complete information presentation
  • 22.