What Key Factors Should Risk Officers Consider When Using Generative AI
Eysenbach: eHealth
1. Associate Professor Department of Health Policy, Management and Evaluation, University of Toronto; Senior Scientist , Centre for Global eHealth Innovation, Division of Medical Decision Making and Health Care Research; Toronto General Research Institute of the UHN, Toronto General Hospital, Canada Visiting Professor, Faculty of Behavioural Sciences University of Twente, The Netherlands Gunther Eysenbach MD MPH Gunther Eysenbach MD MPH State of the art of eHealth Research State of the art of eHealth Research
2.
3. Canada / Ontario Source: Wikipedia Pop. 31.6 Mio (Ontario: 12 Mio) (in Ontario)
5. Centre for Global eHealth Innovation, Toronto MISSION: “ To research how to help people access the information and services they need, when and where they need them, regardless of who they are”.
44. Medicine 2.0 (“next generation medicine”) Full paper will appear as: Gunther Eysenbach. Medicine 2.0. J Med Internet Res 2008 (in press) http://dx.doi.org/ 10.2196/jmir.1030 DOI: 10.2196/jmir.1030 Consumer / Patient Health Professionals Biomedical Researchers Science 2.0 Peer-review 2.0 Personal Health Record 2.0 Virtual Communities (peer-to-peer) Professional Communities (peer-to-peer) Health 2.0 HealthVault Google Health HealthBook Sermo WebCite CiteULike MDPIXX WiserWiki eDoctr BioWizard Dissect Medicine E-learning PLoS One BMC JMIR Wikis Blogs RSS RDF, Semantic Web Virtual Worlds Web 2.0 Technologies & Approaches Apomediation Participation Social Networking Collaboration XML AJAX Openess Revolution Health PatientsLikeMe PeerClip Connotea ALIVE HealthMap caBIG
45. Patient data External evidence General health information Personal health information Literature Mass Media Internet Health Record Relevant +credible Information Patient Patient accessible electronic health records Medical knowledge Disintermediation / Apomediation Physician (health professionals, librarians) as intermediary Irrelevant inaccurate Irrelevant Information “ Apomediaries”
48. People want to SHARE some of their personal information Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists J Med Internet Res 2007;9(2):e12 <URL: http://www.jmir.org/2007/2/e12/>
50. What does this all mean for health care / eHealth (1) ? “ [People from the] Google Generation are impatient and have zero tolerance for delay, information and entertainment needs must be fulfilled immediately ( e.g. Johnson, 2006: Shih and Allen 2006)” Information Behaviour of the Researcher of the Future – The Literature on Young People and Their Information Behavior URL:http://www.ucl.ac.uk/slais/research/ciber/downloads/GG%20Work%20Package%20II.pdf. Accessed: 2008-04-09. (Archived by WebCite ® at http://www.webcitation.org/5WxqwuH4g)
57. Challenge 2: Interdisciplinarity and information scatter (grey inserts are citing slides by David Ahern, Critical Issues in eHealth Research Conference, 2005) 1702 papers (2003/2004) indexed with “Internet”[Majr MeSH] were scattered across 685 (!) different journals Source: Eysenbach G, Norman C Introduction to CATCH-IT Reports: Critically Appraised Topics in Communication, Health Informatics, and Technology J Med Internet Res 2004;6(4):e49 <URL: http://www.jmir.org/2004/4/e49/>
58.
59.
60. Challenge 3: Ethical issues in qualitative research (informed consent, public vs private space) Eysenbach G, Till JE. Ethical issues in qualitative research on Internet communities. BMJ 2001; 323: 1103-1105
61. Eysenbach G, Till JE. Ethical issues in qualitative research on Internet communities. BMJ 2001; 323: 1103-1105
63. Challenge 4: Confounders “ After a median follow-up of three years, use of the Internet appears to be a prognostic factor for better overall survival (Fig. 1).” Weissenberger C et al. [rapid e-response to Eysenbach G. The impact of the Internet on cancer outcomes. CA Cancer J Clin 2003; 53(6): 356-371]
67. Challenge 6 Attrition, adoption, non-use of the intervention Eysenbach G The Law of Attrition J Med Internet Res 2005;7(1):e11 <URL: http://www.jmir.org/2005/1/e11/>
68.
69. Challenge 7: Standards Eysenbach G. J Med Internet Res 2004;6(3):e34 <http://www.jmir.org/2004/3/e34/> JMIR is championing consensus building around reporting standards of eHealth research
78. Partnership between eHealth Research Centre Twente and Centre for Global eHealth Innovation PhD student exchange Co-supervising students Project proposals (EU) Connected labs Prototype for a “Network of Centres of Excellence in eHealth Research”?
79. Take two in the morning and don’t ask questions Holy land of the knowing Hole of ignorance physician patient Eysenbach G, Jadad AR. Consumer health informatics in the internet age. <URL: http://www.jmir.org/2001/2/e19/> No trespassing
80. Let me educate* you *(ex ducere = to lead out) Hole of ignorance physician patient No trespassing without professional guidance Holy land of the knowing Eysenbach G, Jadad AR. Consumer health informatics in the internet age. <URL: http://www.jmir.org/2001/2/e19/>
81. WWW email Self-support physician patient Eysenbach G, Jadad AR. Consumer health informatics in the internet age. <URL: http://www.jmir.org/2001/2/e19/> No trespassing without professional guidance
82. Welcome! Watch your step Consumer Health Informatics physician patient Eysenbach G, Jadad AR. Consumer health informatics in the internet age. <URL: http://www.jmir.org/2001/2/e19/>