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A Cry for Help: A Case Report ofA Cry for Help: A Case Report of
Suicidal Ideation in a Physician-Suicidal Ideation in a Physician-
mediated Forummediated Forum
Immaculada GRAU, Francisco J. GRAJALES III, Juan
Miguel Garrido,Enrique BUISAN, Antonio Delgado
Medicine 2.0 | Maastricht, NL | November 28th, 2010
• Forumclínic Background
• Study Objective
• Case Presentation
• Review of the literature
• Discussion
• Future directions
• Conclusions
OverviewOverview
MIE2009
Sarajevo
ForumclínicForumclínic’s Mission’s Mission
To improve the quality of care through
increased access to culturally sensitive
evidence-based information for Chronic
Diseases in Spanish and Catalan
audiences.
MIE2009
Sarajevo
IntroductionIntroduction
MIE2009
Sarajevo
Practical
Guide
MIE2009
Sarajevo
IntroductionIntroduction
MIE2009
Sarajevo
Ischemia
Diabetes
Chronic Obstructive Pulmonary Disease
Schizophrenia
Breast Cancer
Depression
Heart Disease
Arthritis and Osteoarthritis
Obesity
Bipolar Disorder
HIV/AIDS + Anorexia / Bulimia
Conditions Targeted
MIE2009
Sarajevo
News
MIE2009
Sarajevo
Videos
MIE2009
Sarajevo
The Forum
MIE2009
Sarajevo
Conversations
MIE2009
Sarajevo
MIE2009
Sarajevo
User Growth
MIE2009
Sarajevo
User Demographics
MIE2009
Sarajevo
Audience
MIE2009
Sarajevo
ObjectiveObjective
To present a clinical case of a suicidal-
valediction patient.
To review service provider and clinicians’
ethical expectations in similar situations.
MIE2009
Sarajevo
Case ReportCase Report
• 29 year old Hispanic male c reported
Dx of schizophrenia
• Self-reported a Hx of failed suicide
attempts
• Requested advice on how to commit
suicide with OTC or Rx medication
MIE2009
Sarajevo
Case ReportCase Report
Failed Suicide
Juanito 2010/11/27
“Yesterday, 2010/11/26, I was supposed
to have died. Unfortunately, my
family found me unconscious and
called an ambulance. They took me to
the hospital and suctioned my
stomach. I didn’t die this time, but I
will not give up trying.
MIE2009
Sarajevo
Case ReportCase Report
…I know that I must die and I will
succeed even if I have to try a new
method. My thing is taking pills, and I
believe this is how I should die. I
want to make it clear to everyone in
this forum that Schitzophrenia is not
a mental condition, we are just
passer bys in this world.
MIE2009
Sarajevo
Case ReportCase Report
…I would like to tell you a lot of things,
but I think its silly now so I would like
to say my final goodbye. If I post here
again it is because I have not died
yet, but that I am still trying to say
goodbye”
MIE2009
Sarajevo
Information AvailableInformation Available
• First and last name (optional)
• Gender & DOB
• Occupation
• Last level of completed education
• Email
• User type (Pt, Fm, Clinician, Other)
• Country, city, and approx. population
• Number of people in home
• + Postings (variable)
MIE2009
Sarajevo
Forumclinic PolicyForumclinic Policy
• We provide information not medical
advice
• The forum moderator must intervene
• Forum evaluations every 48 hours
• Inform patients upon registration and
(inappropriate) posts
• Comprehensive use of disclaimers
MIE2009
Sarajevo
What HappenedWhat Happened
• Nine postings prior to the clinician
intervening
• Information provided by the
community was comprehensive
• BIG QUESTION: How should we deal
with this?
MIE2009
Sarajevo
ReviewReview
Objective: What evidence, guidance,
or recommendations does the
literature provide for similar
situations?
Sources: 1) Peer-review Literature
2) Ethics and Professional Codes 3)
Broad web-search 4) Snowballed
information
MIE2009
Sarajevo
ReviewReview
Findings:
1.Literature base is tiny
2.Most does not apply to our case
3.Those that do, come from
telemedicine and email
MIE2009
Sarajevo
Ferguson and EysenbachFerguson and Eysenbach
Patient-clinician interactions can be
classified in two types:
• Type A or Type I interactions occur in
the Absence of a pre-existing patient-
clinician relationship.
• Type B or type II interactions occur
when there is a pre-existing (Bona
fide) patient-clinician relationship.
MIE2009
Sarajevo
EysenbachEysenbach
MIE2009
Sarajevo
EysenbachEysenbach
MIE2009
Sarajevo
Question?Question?
Do professionally mediated forums,
which are virtual communities
establish a bona-fide patient-
clinician relationship?
MIE2009
Sarajevo
• New platform using SAAS
• Automatic (semantic) recognition of suicidal
and similar messages using crawlers
• JMIR case report and review paper
Future Directions
MIE2009
Sarajevo
• QALY, costing, and ROI analyses
• Guidelines for new physicians
• Ethical guidelines for grey areas
• Multivariate analyses of moderator
interaction dynamics
Future Research
MIE2009
Sarajevo
• Clinician-moderated forums are legitimate and
challenging spaces for patient engagement.
• The case presented reveals some of the
many ethical and legal challenges that may
arise in physician-specialist moderated
forums on an ongoing basis.
• The Forumclínic approach has proven useful
in cases of suicidal valediction.
Conclusions
MIE2009
Sarajevo
• The peer-review evidence-base for clinical
guidance in moderated forums is very small.
• At present, the resilience of the current
approach will be tested as litigation arises.
• Further research is required in order to
establish a series of best-practice guidelines
for similar situations.
Conclusions
MIE2009
Sarajevo
Spain
• Hospital Clínic de Barcelona
• Funación BBVA
• Fundació Clínic per la Recerca Biomedica
Canada
• Western Regional Training Centre for Health
Services Research
• Dean Giustini - @giustini
Acknowledgments
Further Info
@leika_bcn
igrau@clinic.ub.es
@ciscogiii
cisco@franciscograjales.com
www.forumclinic.org
Anonymous Feedback
http://franciscograjales.com/quality-improvement/
Questions?
References
[1] Jacobs, Douglas; Brewer, Margaret. APA Practice Guideline Provides
Recommendations for Assessing and Treating Patients with Suicidal
Behaviours. Psychiatric Annals, May 2004.
http://www.webcitation.org/5uayCMcC2
[2] Eysenbach, Gunther. Towards ethical guidelines for dealing with
unsolicited patient emails and giving teleadvice in the absence of a pre-
existing patient-physician relationship systematic review and expert survey. J
Med Internet Res (2000) vol. 2 (1) pp. E1.
[3] Ferguson T. Digital doctoring--opportunities and challenges in electronic
patient-physician communication [editorial] JAMA. 1998 Oct 21;280(15):1361–2
[4] Hrynaszkiewicz, Ian; Norton, Melissa; Vickers, Andrew; Altman, Douglas.
Preparing raw clinical data for publication: guidance for journal editors,
authors, and peer reviewers. BMJ (2010) vol. 340 pp. c181

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A Cry for Help: A Case Report of Suicidal Ideation in a Physician-mediated Forum

Editor's Notes

  1. based on the WHO premise of Social Determinants of Health – increased health education and interaction leads to better health
  2. 300,000 DVDs 30K in each condition 27K in SPANISH 3 IN CATALAN
  3. ...and here for breast cancer.
  4. Forumclinic is a set of audiovisual material (DVDs and Website) in both Spanish and Catalan that was launched in January 2007 with the purpose of improving the quality of life of chronically ill patients. Based on the premise that by having a better understanding of their disease patients can become more autonomous, the project aims to encourage patient involvement in the clinical decision-making process along with the health care team. Priority has been given to diseases of higher prevalence and wider social impact.
  5. And - here we have the results of the applied selection criteria, these 10 conditions: 7 of which are up and running on our website, with 3 more ‘ in production ’ .
  6. ...and here for breast cancer.
  7. ...and here for breast cancer.
  8. ...and here for breast cancer.
  9. BOTTOM LINE = WE GIVE INFORMATION, NOT ADIVCE
  10. WE PROVIDE INFORMATION, NOT MEDICAL ADVICE
  11. 6 Month analysis
  12. After swallowing a number of pills, he was found by his family and transported to hospital. Upon discharge, he presented to the forum requesting advice on the most effective suicidal dose of easily accessible medication. The forum community immediately responded in an empathetic manner and coached the patient to seek medical attention. By the time the forum moderator was informed, the advice given by the Schizophrenia forum community was so comprehensive that the forum moderator had relatively little to add.
  13. Ayer 10 de mayo de 2010 se suponia ke tendria ke haber muerto. Lamentablemente llegaron mi familia y llamaron una ambulancia donde me limpiaron el estomago con una sonda, osea un fracaso de suicidio pero no me voy a dar porvencido. Se que tengo ke morir y lo voy a lograr aunke sea por otros medios pero lo mio son las pastillas y creo ke esa es la muerte que debo tener. Quiero dejar en claro a todos ke la esquizofrenia no es un enfermedad mental solo somos emisarios de este mundo. Me gustaria decirles muchas cosas que se pero creo ke no tendria sentido asi ke ahora me despido. Si vuelvo a escribir aqui es que aun no he muerto pero sino solo les puedo decir Adios pd. si alguien se apiada de mi ke me digan cuales son las dosis letales de pastillas para morir.
  14. Ayer 10 de mayo de 2010 se suponia ke tendria ke haber muerto. Lamentablemente llegaron mi familia y llamaron una ambulancia donde me limpiaron el estomago con una sonda, osea un fracaso de suicidio pero no me voy a dar porvencido. Se que tengo ke morir y lo voy a lograr aunke sea por otros medios pero lo mio son las pastillas y creo ke esa es la muerte que debo tener. Quiero dejar en claro a todos ke la esquizofrenia no es un enfermedad mental solo somos emisarios de este mundo. Me gustaria decirles muchas cosas que se pero creo ke no tendria sentido asi ke ahora me despido. Si vuelvo a escribir aqui es que aun no he muerto pero sino solo les puedo decir Adios pd. si alguien se apiada de mi ke me digan cuales son las dosis letales de pastillas para morir.
  15. Ayer 10 de mayo de 2010 se suponia ke tendria ke haber muerto. Lamentablemente llegaron mi familia y llamaron una ambulancia donde me limpiaron el estomago con una sonda, osea un fracaso de suicidio pero no me voy a dar porvencido. Se que tengo ke morir y lo voy a lograr aunke sea por otros medios pero lo mio son las pastillas y creo ke esa es la muerte que debo tener. Quiero dejar en claro a todos ke la esquizofrenia no es un enfermedad mental solo somos emisarios de este mundo. Me gustaria decirles muchas cosas que se pero creo ke no tendria sentido asi ke ahora me despido. Si vuelvo a escribir aqui es que aun no he muerto pero sino solo les puedo decir Adios pd. si alguien se apiada de mi ke me digan cuales son las dosis letales de pastillas para morir.
  16. What do you do?
  17. Review: According to Ferguson and Eysenbach, clinical interactions through electronic media are classified according to the absence or presence of a bona fide patient-physician relationship. Although it may be argued that forums can create legitimate patient-physician relationships, a comprehensive use of clinician and patient education, disclaimers, and police and patient contact have proven useful for Forumclinic in ethically- and legally-challenging situations.
  18. based on the WHO premise of Social Determinants of Health – increased health education and interaction leads to better health
  19. Not enough for a systematic review
  20. Not enough for a systematic review
  21. Towards ethical guidelines for dealing with unsolicited patient emails and giving teleadvice in the absence of a pre-existing patient-physician relationship
  22. based on the WHO premise of Social Determinants of Health – increased health education and interaction leads to better health
  23. based on the WHO premise of Social Determinants of Health – increased health education and interaction leads to better health
  24. based on the WHO premise of Social Determinants of Health – increased health education and interaction leads to better health
  25. Other Research: QALY, costing, and ROI analyses Guidelines for new physicians Ethical guidelines for grey areas Multivariate analyses of moderator interaction dynamics