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Marie Ennis-O’Connor 
DotMED The Creative Medicine Conference #DotMED14
@JBBC
“Everything we see hides another thing”
How can we open ourselves up to seeing more?
Story
“We use them to derive meaning 
from experience and to pass along knowledge, values, and wisdom.” 
@LouiseAronson
Stories are how we shape our world The way we understand our lives and identities
“Story was crucial to our evolution— more so than opposable thumbs. 
Opposable thumbs let us hang on; story told us what to hang on to.” 
Lisa Cron
“Stories seem to contain that timeless thread of human connection. This is what our brains were wired for reaching out and interacting with others.”
PNAS.org: Speaker–listener neural coupling underlies successful communication by Greg J. Stephens, Lauren J. Silbert and Uri Hasson
Your Brain On Story
https://www.youtube.com/watch?v=q1a7tiA1Qzo
Empathy is an essential step towards compassion
Can story be the bridge to build empathy and compassion in medicine?
Story
“Story becomes the ground that patients and healthcare professionals travel together.” 
@JBaruchMD
What happens when the patient narrative doesn’t match the physician’s version?
Conflicting illness stories will hinder treatment because the meaning we give to our illness is significant in terms of compliance, managing our illness, and contributing to our well-being.
“Seriously ill people are wounded not just in body but in voice.” 
Illness Is A Call For Stories 
narrative wreckage
A patient isn’t a disease with a body attached but a life into which a disease has intruded.
“When doctors can see illness from their patients' eyes they become better doctors.” 
Ronald Drusin, MD, vice dean for education at Columbia's College of Physicians and Surgeons
To understand a narrative of illness is to understand what it means to be human.
Sayantani DasGupta 
@sayantani16 
“Long before doctors had anything of interest in their black bags – no MRIs, no lab tests, no all body CAT scans – what they had was the ability to show up, what they had was the ability to listen, and bear witness to someone’s life, death, illness, suffering, and everything else that comes in between.”
“The simple yet complex art of listening is, in and of itself, a clinical intervention. 
Listening constitutes the very heart and soul of the clinical encounter..”” 
“Please Hear What I'm Not Saying: The Art of Listening in the Clinical Encounter” Mary T Shannon. Perm J. 2011 Spring; 15(2): e114–e117.
Medicine is inherently stamped with narrative.
Patients and doctors tell two different stories
http 
Health care is supposed to build on the story with each contact, but if we don’t know the story, each contact becomes a closed episode of its own, disconnected from every other episode. Fragmentation results as the outcome of a nonstoried approach to health care. 
Narrative Medicine: Relationships, Stories, and Healing 
Lewis Mehl-Madrona MD
“The ability to acknowledge, absorb, interpret, and act on the stories and plights of others.” 
Rita Charon 
Narrative Medicine
Charon R. Narrative medicine. New 
“A medicine practiced without a genuine awareness of what patients go through may fulfil its technical goals but it is an empty medicine, or at best, half a medicine.” 
Charon R. Narrative medicine. New York: Oxford University Press; 2006
Narrative medicine represents a storied understanding of health. It’s a return to listening to the patient’s story.
Saving and prolonging life incur an obligation to accompany patients on their illness journeys. Thomas R. Egnew. Suffering, Meaning, and Healing: Challenges of Contemporary Medicine. Annals of Family Medicine. 2009.
"The doctor is the patient’s only familiar in a foreign country"
“I want my patients' passions listed on their charts. Because if that's not there, then the only thing I read is ‘endometrial cancer,’ carpal-tunnel syndrome, fibromyalgia, chronic fatigue, and mother died when she was 40 of breast cancer. I don't want to look at this person and simply think, she's doomed. I want to know what her passion is in life. Who is this person sitting in front of me?” 
Pamela Wible @pamelawiblemd
“Not every patient can be saved, but his illness may be eased by the way the doctor responds to him—and in responding to him the doctor may save himself….” Anatole Broyard

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How storytelling can build empathy and compassion in medicine

  • 1. Marie Ennis-O’Connor DotMED The Creative Medicine Conference #DotMED14
  • 3. “Everything we see hides another thing”
  • 4. How can we open ourselves up to seeing more?
  • 6. “We use them to derive meaning from experience and to pass along knowledge, values, and wisdom.” @LouiseAronson
  • 7. Stories are how we shape our world The way we understand our lives and identities
  • 8. “Story was crucial to our evolution— more so than opposable thumbs. Opposable thumbs let us hang on; story told us what to hang on to.” Lisa Cron
  • 9. “Stories seem to contain that timeless thread of human connection. This is what our brains were wired for reaching out and interacting with others.”
  • 10. PNAS.org: Speaker–listener neural coupling underlies successful communication by Greg J. Stephens, Lauren J. Silbert and Uri Hasson
  • 11. Your Brain On Story
  • 13. Empathy is an essential step towards compassion
  • 14.
  • 15. Can story be the bridge to build empathy and compassion in medicine?
  • 16. Story
  • 17. “Story becomes the ground that patients and healthcare professionals travel together.” @JBaruchMD
  • 18. What happens when the patient narrative doesn’t match the physician’s version?
  • 19. Conflicting illness stories will hinder treatment because the meaning we give to our illness is significant in terms of compliance, managing our illness, and contributing to our well-being.
  • 20. “Seriously ill people are wounded not just in body but in voice.” Illness Is A Call For Stories narrative wreckage
  • 21.
  • 22. A patient isn’t a disease with a body attached but a life into which a disease has intruded.
  • 23.
  • 24. “When doctors can see illness from their patients' eyes they become better doctors.” Ronald Drusin, MD, vice dean for education at Columbia's College of Physicians and Surgeons
  • 25. To understand a narrative of illness is to understand what it means to be human.
  • 26.
  • 27. Sayantani DasGupta @sayantani16 “Long before doctors had anything of interest in their black bags – no MRIs, no lab tests, no all body CAT scans – what they had was the ability to show up, what they had was the ability to listen, and bear witness to someone’s life, death, illness, suffering, and everything else that comes in between.”
  • 28.
  • 29. “The simple yet complex art of listening is, in and of itself, a clinical intervention. Listening constitutes the very heart and soul of the clinical encounter..”” “Please Hear What I'm Not Saying: The Art of Listening in the Clinical Encounter” Mary T Shannon. Perm J. 2011 Spring; 15(2): e114–e117.
  • 30. Medicine is inherently stamped with narrative.
  • 31. Patients and doctors tell two different stories
  • 32. http Health care is supposed to build on the story with each contact, but if we don’t know the story, each contact becomes a closed episode of its own, disconnected from every other episode. Fragmentation results as the outcome of a nonstoried approach to health care. Narrative Medicine: Relationships, Stories, and Healing Lewis Mehl-Madrona MD
  • 33. “The ability to acknowledge, absorb, interpret, and act on the stories and plights of others.” Rita Charon Narrative Medicine
  • 34. Charon R. Narrative medicine. New “A medicine practiced without a genuine awareness of what patients go through may fulfil its technical goals but it is an empty medicine, or at best, half a medicine.” Charon R. Narrative medicine. New York: Oxford University Press; 2006
  • 35. Narrative medicine represents a storied understanding of health. It’s a return to listening to the patient’s story.
  • 36. Saving and prolonging life incur an obligation to accompany patients on their illness journeys. Thomas R. Egnew. Suffering, Meaning, and Healing: Challenges of Contemporary Medicine. Annals of Family Medicine. 2009.
  • 37. "The doctor is the patient’s only familiar in a foreign country"
  • 38. “I want my patients' passions listed on their charts. Because if that's not there, then the only thing I read is ‘endometrial cancer,’ carpal-tunnel syndrome, fibromyalgia, chronic fatigue, and mother died when she was 40 of breast cancer. I don't want to look at this person and simply think, she's doomed. I want to know what her passion is in life. Who is this person sitting in front of me?” Pamela Wible @pamelawiblemd
  • 39. “Not every patient can be saved, but his illness may be eased by the way the doctor responds to him—and in responding to him the doctor may save himself….” Anatole Broyard