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PERINATAL LOSS AND GRIEF
                   Erin Kelly
                   Veronica Lopez
Tribute to my miscarriage




                            2
EXPECTED INDIVIDUAL STUDENT LEARNING OUTCOMES

• Define perinatal loss
• Define the different types and frequency of
  occurrence
• Identify risk factors for perinatal loss
• Identify signs and symptoms of perinatal loss
• Describe emotional responses
• Describe the process of grief and mourning
• Nursing diagnoses and interventions

                                                  3
DEFINITION
 per·i·na·tal loss
 [per-uh-neyt-l] [laws, los]
 –noun
The nonvoluntary end of a pregnancy from conception,
during pregnancy, and up to 28 days of the newborn’s
life. Also referred to as pregnancy loss.




                                                       4
TYPES

• Ectopic Pregnancy

• Miscarriage

• Stillbirth

• Neonatal Death


                      5
ECTOPIC PREGNANCY
• Implantation occurs outside of the uterus
• The baby (fetus) cannot survive
• Caused by a condition that blocks or slows the
  movement of a fertilized egg through the
  fallopian tube to the uterus (hormonal factors,
  smoking)
• Signs: abdominal pain, GI symptoms, vaginal
  bleeding, weakness, dizziness, fainting
• Diagnosis: pelvic exam, ultrasound,
  measurement of hCG levels
• Risk Factors: multiple sex partners, Age >35, In
  vitro fertilization
• Most common complication is rupture with
  internal hemorrhage


                                                     6
MISCARRIAGE
• Most common type of pregnancy loss often referred to as
  “spontaneous abortion” or SAB
  ▫ 10-25% of clinically recognized pregnancies will end in miscarriage
• Occurs in ≤20 weeks gestation
• Most often the cause cannot be identified
  ▫ Chromosomal abnormalities, hormonal problems, lifestyle, maternal
    age, maternal trauma
• Warning signs: mild to severe back pain, weight loss, white-pink
  mucus, true contractions, brown or bright red vaginal bleeding,
  tissue with clot like material passing through the vagina
• Types: Threatened, Incomplete, Complete, Missed, Recurrent
• Blighted Ovum
  ▫ Fertilized egg attaches to the uterine wall but the embryo DOES NOT
    develop

                                                                          7
STILLBIRTH
• Late pregnancy loss
• Occurs >20 weeks gestation
• 1 in 160 pregnancies
• The majority take place before labor
• Causes: placental problems, birth
  defects, growth restriction, infections
• Risk Factors: Age >35, malnutrition,
  inadequate prenatal care, smoking,
  drug and alcohol abuse
• Prevention: daily kick counts, avoid
  certain substances, contact HCP if
  notice vaginal bleeding
                                            8
NEONATAL DEATH
• Loss occurring from birth to 28 days of life
   ▫ The baby has demonstrated signs of life including
     breathing, heart beating, pulsations of umbilical cord,
     and movement of voluntary muscles
• Most common cause is premature birth (before 37
  weeks gestation)
   ▫   RDS (Respiratory Distress Syndrome)
   ▫   Intraventricular Hemorrhage
   ▫   Infection
   ▫   Necrotizing Enterocolitis
• Other Causes: birth defects (heart, lung, brain,
  spine), complications of pregnancy, complications
  involving the placenta, infections, asphyxia

                                                               9
FREQUENCY
• Perinatal Loss occurs in 1 million women every year
  in the United States
  ▫ It is very common
• Early Losses(≤20 weeks): up to 25% of all
  conceptions
• Late Losses (>20 weeks): 2%-4% of pregnancies
• Rates of pregnancy loss have remained the same,
  but stillbirth rates have declined

                                                        10
EMOTIONAL RESPONSES
• Research findings indicate that there are differences in grief
  responses according to sex.
• Mothers often experience intense responses, including
  extreme sadness; guilt; suicidal ideation; and feelings of
  emptiness, isolation, irritability, and anger.
• Some mothers had difficulty being around pregnant women
  and infants or in situations such as holiday celebrations that
  reminded them of what might have been had their infant
  survived.
• Fathers also experience a range of feelings, including
  isolation, restlessness, anger, sadness, and powerlessness.
• Fathers are often concerned for their partner’s emotional
  well-being.
                                                                   11
TREATMENT
• Hormone Therapy
  ▫ Progesterone
• If Maternal Autoimmune or clotting disorders are
  known, Heparin or other drugs can be administered
• Emotional Treatment
• Prevention Measures: exercise, healthy eating,
  manage stress, folic acid supplements, quit smoking



                                                        12
GRIEF AND MOURNING
• When a baby dies, parents must work through profound
  grief related to the loss of their child along with the loss
  of their hopes and dreams for that child and their family.
• Grief is individual in nature.
• Stages of grief:
  ▫ Avoidance, disbelief, shock.
  ▫ Pain, physical discomforts, depression, difficulty
    concentrating, anger at self or partner, guilt.
  ▫ Acceptance and adaptation. Grief persists, but a sense of
    balance is achieved.
                                                                 13
NURSING DIAGNOSIS I
• Ineffective sexuality pattern r/t to self-esteem
  disturbance resulting from pregnancy loss and
  anxiety about future pregnancies.




                                                     14
NURSING INTERVENTIONS
• After establishing a relationship with the patient, give
  them permission to openly discuss issues dealing with
  sexuality. Ask specific questions, starting with general
  ones before getting personal.
• Use assessment questions and standardized instruments
  to assess sexual problems.
• Encourage the patient to discuss concerns with their
  partner.
• Assess psychological function such as anxiety,
  depression, and low self-esteem.
• Discuss alternative sexual expressions for altered body
  functioning or structure.
                                                             15
NURSING DIAGNOSIS II
• Complicated grieving r/t to sudden loss of pregnancy,
  fetus, or child.




                                                          16
NURSING INTERVENTIONS
• Assess the patient’s state of grieving.
  ▫ Tools: Texas Revised Inventory of Grief (TRIG), Pathological Grief
    Items (PGI), Hogan Grief Reaction Checklist (HGRC).
• Develop a trusting relationship with patient by using presence
  and therapeutic techniques.
• Identify problems of eating and sleeping; ensure that basic
  human needs are being met.
• Determine whether the patient is experiencing depression,
  suicidal tendencies, or other emotional disorders.
• Educate the patient and their support systems on the grieving
  process and how it is individual.
• Refer for appropriate support.
                                                                         17
OTHER IMPORTANT INTERVENTIONS
• Allow parents to express their feelings by being present and
  listening.
• Express empathy and condolences. If the baby had been
  named, refer to them by that name.
• AVOID clichés: “at least you are young, you can have another
  baby.”
• Provide anticipatory guidance and educate about the process
  of grieving and what to expect physically and emotionally.
• Refer parents to community services and support groups that
  may assist in facilitating the grief process.
• Provide parents with memorabilia related to their baby, such
  as pictures, blankets, a cap, lock of hair, ID bracelet and crib
  card, foot/hand prints.
• It is important to keep in mind that grief is individual.
  (culture, religion, personal experience, beliefs, etc..)
                                                                     18
NURSING JOURNAL ARTICLE
 Supporting Parents After Stillbirth or Newborn Death. There is much
                          that nurses can do.
                          Karen Kavanaugh, PhD, RN, FAAN,
                              and Teresa Moro, AM, LSW
• Most widely known theory of grief: Kubler-Ross model
• Swanson’s middle-range theory of caring.
• Nonverbal support is communicated through eye contact, attentive listening,
  and concerned facial expressions.
• Eliciting, listening to, and respecting parents’ needs and wishes must be
  paramount.
• Parents, siblings (regardless of age), friends, and extended family members
  should have unrestricted time with the infant before and after the death and
  the opportunity to perform caregiving activities, such as bathing and dressing.
• Nurses themselves need to be informed and provide written information
  about burial, autopsy, and organ donation options within their institution and
  community.
• Follow-up visits are an important aspect of care, and phone calls should be
  made within one week of a loss and again several weeks later.
• Nurses may also grieve. Working with many bereaved families in a short
  period of time can lead to chronic, compounded grief, which may limit nurses’
  ability to continue caring for these families.
                                                                                    19
20

                 Rights of Parents When an Infant Dies
• To be given the opportunity to see, hold, and touch their                              Rights of the Infant
   infant at any time before and after death, within reason.             • To be recognized as a person who was born and
• To have photographs taken of their infant, and made available            has died.
   to the parents or held in a secure place until the parents            • To be named.
   wish to see them.                                                     • To be seen, touched, and held by the family.
• To be given as many mementos as possible—for example,                  • To have the end of life acknowledged.
   crib card, baby beads, ultrasound or other photos, lock of            • To be put to rest with dignity.
   hair, foot- and handprints, and measurement records.
• To name their child and bond with him or her.
• To observe cultural and religious practices.
• To be cared for by empathetic staff who will respect their feelings,
   thoughts, beliefs, and individual requests.
• To be with each other throughout hospitalization as much as
  possible.
• To be given time alone with their infant, allowing for individual
  needs.
• To request an autopsy. In the case of miscarriage, to request
   to have or not to have an autopsy or pathology examination
   as determined by applicable law.
• To have information presented in understandable terminology
  regarding their infant’s status and cause of death, including
  autopsy and pathology reports and medical records.
• To plan a farewell ritual, burial, or cremation in compliance
  with local and state regulations and according to their personal
  beliefs or religious or cultural traditions.
• To be provided with information on resources that assist in the
  healing process—for example, support groups, counseling,
  reading material, and perinatal loss newsletters.
INTERVIEWS
•   How many times have you experienced a perinatal loss?
•   How far along were you?
•   Was there a specific cause?
•   How did you feel when you first found out you were
    pregnant?
•   How did you feel when you found out there was a loss?
•   What is/was the hardest part?
•   How has your life changed since it happened?
•   What did you do to cope?
•   What are you doing now?

                                                            21
RESOURCES FOR THOSE SUFFERING
• http://angelbabymemorials.blogspot.com/

• Pregnancy Loss and Infant Death Alliance
  ▫ www.plida.org

• RTS Perinatal Bereavement Program
  ▫ www.bereavementprogram.com

• Associated for Death Education and Counseling
  ▫ www.adec.org
                                                  22
What is the MAIN cause of perinatal loss?

A. Genetic Issues
B. Lifestyle Choices (ie: drugs and alcohol)
C. Hormone Levels
D. Chromosomal Abnormalities
E. All of the above, there is no main cause.


                                               23
TRUE OR FALSE

Grief is sequential.

Most common type of pregnancy loss is miscarriage.

Perinatal loss is uncommon.

Nurses also grieve for their patient.




                                                     24
QUESTIONS?
SOURCES
Ackley, B.J., & Ladwig, G.B. (2011). Nursing diagnosis handbook: an
  evidence-based guide to planning care. St. Louis, MO: Mosby Inc.

Chapman, L, & Durham, R. (2010). Maternal-newborn nursing: the
  critical components of nursing care. Philadelphia, PA: F.A. Davis
  Company.

Kavanaugh, K., & Moro, T. (2006). Supporting parents after stillbirth or
  newborn death. American Journal of Nursing, 106(9), 74-79.

Loss and grief. (2008, October). Retrieved from
  http://www.marchofdimes.com/baby/loss_miscarriage.html


                                                                           26

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Perinatal Loss And Grief

  • 1. PERINATAL LOSS AND GRIEF Erin Kelly Veronica Lopez
  • 2. Tribute to my miscarriage 2
  • 3. EXPECTED INDIVIDUAL STUDENT LEARNING OUTCOMES • Define perinatal loss • Define the different types and frequency of occurrence • Identify risk factors for perinatal loss • Identify signs and symptoms of perinatal loss • Describe emotional responses • Describe the process of grief and mourning • Nursing diagnoses and interventions 3
  • 4. DEFINITION per·i·na·tal loss [per-uh-neyt-l] [laws, los] –noun The nonvoluntary end of a pregnancy from conception, during pregnancy, and up to 28 days of the newborn’s life. Also referred to as pregnancy loss. 4
  • 5. TYPES • Ectopic Pregnancy • Miscarriage • Stillbirth • Neonatal Death 5
  • 6. ECTOPIC PREGNANCY • Implantation occurs outside of the uterus • The baby (fetus) cannot survive • Caused by a condition that blocks or slows the movement of a fertilized egg through the fallopian tube to the uterus (hormonal factors, smoking) • Signs: abdominal pain, GI symptoms, vaginal bleeding, weakness, dizziness, fainting • Diagnosis: pelvic exam, ultrasound, measurement of hCG levels • Risk Factors: multiple sex partners, Age >35, In vitro fertilization • Most common complication is rupture with internal hemorrhage 6
  • 7. MISCARRIAGE • Most common type of pregnancy loss often referred to as “spontaneous abortion” or SAB ▫ 10-25% of clinically recognized pregnancies will end in miscarriage • Occurs in ≤20 weeks gestation • Most often the cause cannot be identified ▫ Chromosomal abnormalities, hormonal problems, lifestyle, maternal age, maternal trauma • Warning signs: mild to severe back pain, weight loss, white-pink mucus, true contractions, brown or bright red vaginal bleeding, tissue with clot like material passing through the vagina • Types: Threatened, Incomplete, Complete, Missed, Recurrent • Blighted Ovum ▫ Fertilized egg attaches to the uterine wall but the embryo DOES NOT develop 7
  • 8. STILLBIRTH • Late pregnancy loss • Occurs >20 weeks gestation • 1 in 160 pregnancies • The majority take place before labor • Causes: placental problems, birth defects, growth restriction, infections • Risk Factors: Age >35, malnutrition, inadequate prenatal care, smoking, drug and alcohol abuse • Prevention: daily kick counts, avoid certain substances, contact HCP if notice vaginal bleeding 8
  • 9. NEONATAL DEATH • Loss occurring from birth to 28 days of life ▫ The baby has demonstrated signs of life including breathing, heart beating, pulsations of umbilical cord, and movement of voluntary muscles • Most common cause is premature birth (before 37 weeks gestation) ▫ RDS (Respiratory Distress Syndrome) ▫ Intraventricular Hemorrhage ▫ Infection ▫ Necrotizing Enterocolitis • Other Causes: birth defects (heart, lung, brain, spine), complications of pregnancy, complications involving the placenta, infections, asphyxia 9
  • 10. FREQUENCY • Perinatal Loss occurs in 1 million women every year in the United States ▫ It is very common • Early Losses(≤20 weeks): up to 25% of all conceptions • Late Losses (>20 weeks): 2%-4% of pregnancies • Rates of pregnancy loss have remained the same, but stillbirth rates have declined 10
  • 11. EMOTIONAL RESPONSES • Research findings indicate that there are differences in grief responses according to sex. • Mothers often experience intense responses, including extreme sadness; guilt; suicidal ideation; and feelings of emptiness, isolation, irritability, and anger. • Some mothers had difficulty being around pregnant women and infants or in situations such as holiday celebrations that reminded them of what might have been had their infant survived. • Fathers also experience a range of feelings, including isolation, restlessness, anger, sadness, and powerlessness. • Fathers are often concerned for their partner’s emotional well-being. 11
  • 12. TREATMENT • Hormone Therapy ▫ Progesterone • If Maternal Autoimmune or clotting disorders are known, Heparin or other drugs can be administered • Emotional Treatment • Prevention Measures: exercise, healthy eating, manage stress, folic acid supplements, quit smoking 12
  • 13. GRIEF AND MOURNING • When a baby dies, parents must work through profound grief related to the loss of their child along with the loss of their hopes and dreams for that child and their family. • Grief is individual in nature. • Stages of grief: ▫ Avoidance, disbelief, shock. ▫ Pain, physical discomforts, depression, difficulty concentrating, anger at self or partner, guilt. ▫ Acceptance and adaptation. Grief persists, but a sense of balance is achieved. 13
  • 14. NURSING DIAGNOSIS I • Ineffective sexuality pattern r/t to self-esteem disturbance resulting from pregnancy loss and anxiety about future pregnancies. 14
  • 15. NURSING INTERVENTIONS • After establishing a relationship with the patient, give them permission to openly discuss issues dealing with sexuality. Ask specific questions, starting with general ones before getting personal. • Use assessment questions and standardized instruments to assess sexual problems. • Encourage the patient to discuss concerns with their partner. • Assess psychological function such as anxiety, depression, and low self-esteem. • Discuss alternative sexual expressions for altered body functioning or structure. 15
  • 16. NURSING DIAGNOSIS II • Complicated grieving r/t to sudden loss of pregnancy, fetus, or child. 16
  • 17. NURSING INTERVENTIONS • Assess the patient’s state of grieving. ▫ Tools: Texas Revised Inventory of Grief (TRIG), Pathological Grief Items (PGI), Hogan Grief Reaction Checklist (HGRC). • Develop a trusting relationship with patient by using presence and therapeutic techniques. • Identify problems of eating and sleeping; ensure that basic human needs are being met. • Determine whether the patient is experiencing depression, suicidal tendencies, or other emotional disorders. • Educate the patient and their support systems on the grieving process and how it is individual. • Refer for appropriate support. 17
  • 18. OTHER IMPORTANT INTERVENTIONS • Allow parents to express their feelings by being present and listening. • Express empathy and condolences. If the baby had been named, refer to them by that name. • AVOID clichés: “at least you are young, you can have another baby.” • Provide anticipatory guidance and educate about the process of grieving and what to expect physically and emotionally. • Refer parents to community services and support groups that may assist in facilitating the grief process. • Provide parents with memorabilia related to their baby, such as pictures, blankets, a cap, lock of hair, ID bracelet and crib card, foot/hand prints. • It is important to keep in mind that grief is individual. (culture, religion, personal experience, beliefs, etc..) 18
  • 19. NURSING JOURNAL ARTICLE Supporting Parents After Stillbirth or Newborn Death. There is much that nurses can do. Karen Kavanaugh, PhD, RN, FAAN, and Teresa Moro, AM, LSW • Most widely known theory of grief: Kubler-Ross model • Swanson’s middle-range theory of caring. • Nonverbal support is communicated through eye contact, attentive listening, and concerned facial expressions. • Eliciting, listening to, and respecting parents’ needs and wishes must be paramount. • Parents, siblings (regardless of age), friends, and extended family members should have unrestricted time with the infant before and after the death and the opportunity to perform caregiving activities, such as bathing and dressing. • Nurses themselves need to be informed and provide written information about burial, autopsy, and organ donation options within their institution and community. • Follow-up visits are an important aspect of care, and phone calls should be made within one week of a loss and again several weeks later. • Nurses may also grieve. Working with many bereaved families in a short period of time can lead to chronic, compounded grief, which may limit nurses’ ability to continue caring for these families. 19
  • 20. 20 Rights of Parents When an Infant Dies • To be given the opportunity to see, hold, and touch their Rights of the Infant infant at any time before and after death, within reason. • To be recognized as a person who was born and • To have photographs taken of their infant, and made available has died. to the parents or held in a secure place until the parents • To be named. wish to see them. • To be seen, touched, and held by the family. • To be given as many mementos as possible—for example, • To have the end of life acknowledged. crib card, baby beads, ultrasound or other photos, lock of • To be put to rest with dignity. hair, foot- and handprints, and measurement records. • To name their child and bond with him or her. • To observe cultural and religious practices. • To be cared for by empathetic staff who will respect their feelings, thoughts, beliefs, and individual requests. • To be with each other throughout hospitalization as much as possible. • To be given time alone with their infant, allowing for individual needs. • To request an autopsy. In the case of miscarriage, to request to have or not to have an autopsy or pathology examination as determined by applicable law. • To have information presented in understandable terminology regarding their infant’s status and cause of death, including autopsy and pathology reports and medical records. • To plan a farewell ritual, burial, or cremation in compliance with local and state regulations and according to their personal beliefs or religious or cultural traditions. • To be provided with information on resources that assist in the healing process—for example, support groups, counseling, reading material, and perinatal loss newsletters.
  • 21. INTERVIEWS • How many times have you experienced a perinatal loss? • How far along were you? • Was there a specific cause? • How did you feel when you first found out you were pregnant? • How did you feel when you found out there was a loss? • What is/was the hardest part? • How has your life changed since it happened? • What did you do to cope? • What are you doing now? 21
  • 22. RESOURCES FOR THOSE SUFFERING • http://angelbabymemorials.blogspot.com/ • Pregnancy Loss and Infant Death Alliance ▫ www.plida.org • RTS Perinatal Bereavement Program ▫ www.bereavementprogram.com • Associated for Death Education and Counseling ▫ www.adec.org 22
  • 23. What is the MAIN cause of perinatal loss? A. Genetic Issues B. Lifestyle Choices (ie: drugs and alcohol) C. Hormone Levels D. Chromosomal Abnormalities E. All of the above, there is no main cause. 23
  • 24. TRUE OR FALSE Grief is sequential. Most common type of pregnancy loss is miscarriage. Perinatal loss is uncommon. Nurses also grieve for their patient. 24
  • 26. SOURCES Ackley, B.J., & Ladwig, G.B. (2011). Nursing diagnosis handbook: an evidence-based guide to planning care. St. Louis, MO: Mosby Inc. Chapman, L, & Durham, R. (2010). Maternal-newborn nursing: the critical components of nursing care. Philadelphia, PA: F.A. Davis Company. Kavanaugh, K., & Moro, T. (2006). Supporting parents after stillbirth or newborn death. American Journal of Nursing, 106(9), 74-79. Loss and grief. (2008, October). Retrieved from http://www.marchofdimes.com/baby/loss_miscarriage.html 26