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Exponential-Big-Data

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Exponential-Big-Data

  1. 1. The Internet of Human Beings Nov 9-12 , 2014 | California Exponential Big Data = Self Organizing Genomes With Real Time Consent Alice Rathjen © 2014 -
  2. 2. Gene Patents De-Identified Data Governments Jurisdiction – with some govts owning/selling their populations genomes Self- Organizing Genomes with Real time Consent 1st Genome Alice Rathjen © 2014 - 2nd Genome 3rd Genome 4th Genome The Evolution of Our Digital Humanity Digital Citizenship & Human Autonomy The Emergence of Digital Human Rights
  3. 3. The Current Web The Future Web Mobile Internet of Things Search E Commerce Social Biological Network - Internet of Human Beings The Old Web Health Care IT & the Future Web Health Records Evolve Into Biological Domains Exponential Growth in Data from the Body Alice Rathjen © 2013 -
  4. 4. What Happens Once Genetic Data is Added to a Health Record? Health Record Genetic Dataset “Sticky” Universal Health Record Alice Rathjen © 2013 -
  5. 5. Health Data Becomes Identifiable Big Data = Big Liability Health Record Genetic Dataset De- identified Data De-Identified Data Alice Rathjen © 2013 -
  6. 6. Solution : Health IT Network = Biological Domain Registrar Health Record Genetic Dataset Portable Patient Health Record (patient picks trusted registrar) Alice Rathjen © 2013 - Real Time Consent
  7. 7. Future Health Record Human = Node On The Network Biometric Map of the Body Map of Genome(s) Lifestyle, Environment Patient Centric Bi-Directional Information Flow Alice Rathjen © 2014 -
  8. 8. The Human Body & Genome In Time & Space Alice Rathjen © 2014 - Real Time Consent Data Organized by Biometric, with Location & Time Patient Raw Data Stored Separately Dynamic Interpretation & Reports Needs to be able to Scale Indefinitely
  9. 9. Dynamic Health Information Quality Rating Quality of Science Medical Utility Viewing Risk (Graded) A,B,C,D,F W = Withdrawn , I = Incomplete (by Scientific Community) (by Health Care Providers/ Payers) E = Everyone PG = Physician Guidance R = Restricted (Medical Ethics, Counselor) Category Rating (Five Star Rating) (i.e.Movie Rating) Alice Rathjen © 2013 -
  10. 10. User Accounts Biological Domains Old Big Data vs. New Big Data just data JUST DATA Alice Rathjen © 2013 -

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