Living Successfully with Bipolar Disorder - Webinar with Dr. Erin Michalak
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On March 31st 2014 - following the inaugural World Bipolar Day - Dr. Erin Michalak, Associate Professor of Psychiatry, hosted a live webinar to explore findings from CREST.BD's current Delphi Self-Management study. During the webinar Dr. Michalak discussed the study's participatory methods, shared some of the demographic data and research findings from Phase 1 of the study, as well as discussed the team's experiences with using Delphi Consensus methods. We've recently launched Round 2 of our Delphi study to our 150 survey panel members. In this 30 minute webinar you'll learn more about the findings of this unique international study, how the findings will be used to improve wellness in bipolar disorder, and how to get involved in CREST.BD's community-engaged research. Don't forget to check out the Storify from our World Bipolar Day #bipolarchat on March 30th 2014! http://sfy.co/tSZU
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Living Successfully with Bipolar Disorder - Webinar with Dr. Erin Michalak
- 1. Welcome to our 2014 Webinar Series Living Successfully with Bipolar Disorder: Tips from the Experts The broadcast will begin at 11am PDT March 31st 2014. Thank you for your patience Featuring Sara Lapsley and Dr. Erin Michalak In Collaboration with
- 2. 2014 Webinar Series Instructions for Audio & Chat Enable Speakers Enable Microphone Chat Box!
- 3. Living Successfully with Bipolar Disorder: Tips from the Experts Erin Michalak Associate Professor, Department of Psychiatry, UBC Leader, CREST.BD Sara Lapsley Counsellor and Group Clinician, Forensic Psychiatric Hospital Peer Researcher, CREST.BD
- 6. Objectives: Introduction to CREST.BD Self-management in BD Discussion of how CREST.BD has applied Delphi methods in the context of a 'community-based participatory research' approach What we’ve learned so far Q&A
- 7. Objectives: Introduction to CREST.BD Self-management in BD Discussion of how CREST.BD has applied Delphi methods in the context of a 'community-based participatory research' approach What we’ve learned so far Q&A
- 8. Strategic Vision for Research and Knowledge Exchange Effective psychosocial research and knowledge exchange in BD is critical. CREST.BD advances BD psychosocial research and application of research in Canada and internationally. In doing so, we optimise health and QoL and diminish stigma for people with BD across the lifespan.
- 9. CREST.BD
- 10. Methods •Membership: academic researchers, people with BD, family members, healthcare providers •Multidisciplinary: psychology, psychiatry, criminology, nursing, gerontology, genetic counselling, social work, OT •Expertise: wide range of BD specialisation •Focus: integrated knowledge exchange •Emphasis: community-based participatory research framework
- 13. Objectives: Introduction to CREST.BD Self-management in BD Discussion of how CREST.BD has applied Delphi methods in the context of a 'community-based participatory research' approach What we’ve learned so far Q&A
- 14. Previous research • First study of wellness strategies used by people with BD • Strategies to stay well: - acceptance of diagnosis - mindfulness education - identifying triggers/warning signs - sleep/stress management - lifestyle changes - treatment access - stay well plans Russell and Browne (2005) Staying well with bipolar disorder. Aust N Z J Psychiatry; 39(3):187-93. Russell and Browne (2005) Staying well with BD. Aust N Z J Psychiatry; 39(3):187-93.
- 15. Wellness in BD study Study Aim – To identify self-management strategies used by people living well with BD Methods - Purposeful sampling used to identify: ~ People with BD Type I/II (N = 32) ~ Median Age: 41 13 yrs ~ 63% female ~ 78% BD I ~ Functioning well Individual interviews or focus groups, thematic analysis. Suto et al. (2010) JAD, 124 (1-2):76-84; Murray et al (2011) Clinical Psychology and Psychotherapy, 18:95-109. Clinical Psychology and Psychotherapy, 18:95-109.
- 16. Sleep, rest, diet and exercise Regular monitoring and adjustment Reflective, meditative, spiritual practices Understanding BD, educating others Connecting with others Enacting a plan Results: Categories of self-management
- 17. Sleep, rest, diet and exercise Regular monitoring and adjustment Reflective, meditative, spiritual practices Understanding BD, educating others Connecting with others Enacting a plan - acceptance of diagnosis - mindfulness education - identifying triggers/warning signs - sleep/stress management - lifestyle changes - treatment access - stay well plans
- 19. Gaps and limitations • Methodological limitations • Where are we getting our evidence? • Little known about strategies for hypo/mania
- 20. Objectives: Introduction to CREST.BD Self-management in BD Discussion of how CREST.BD has applied Delphi methods in the context of a 'community-based participatory research' approach What we’ve learned so far Q&A
- 21. Study objective: To generate knowledge on what self- management strategies work best for: - Keeping balance in mood - Stopping progression in hypomania and mania
- 22. CREST.BD definition of ‘self-management’ • Plans and/or routines that a person with BD uses to promote health and QoL • Healthcare providers can provide information about self-management strategies • Friends, family or caregivers can be involved in developing strategies and supporting their use • Outside of hospital settings, it is typically the person with BD who chooses, enacts their approach to self-management and tailors their self- management strategies • Encompass a wide range of plans, activities or routines, e.g., optimising sleep or eating habits, pursuing leisure activities, engaging in relaxation practices
- 24. Phase 1 Grey Literature Search Materials NOT published in academic journals Videos Conference Proceedings Blogs Websites Government Documents Books
- 25. Phase 1 Grey Literature Search Materials NOT published in academic journals
- 26. Phase 1 Grey Literature Search Materials NOT published in academic journals Videos Conference Proceedings Blogs Websites Government Documents Books
- 29. Survey Phase 3a Consent Form Sample Question
- 33. Objectives: Introduction to CREST.BD Self-management in BD Discussion of how CREST.BD has applied Delphi methods in the context of a 'community-based participatory research' approach What we’ve learned so far Q&A
- 34. Round 1 Results Gender & Age Female 70% Male 30% Female 78% Male 22% Healthcare Providers: Community Members: • 79 female • 22 male, mean age 43 (range 19-68) • 101 total • 35 female • 15 male, mean age 47 (range 24-81) • 51 total
- 35. Round 1 Results Community members, diagnosis • Type I: 49 respondents • Type II: 48 respondents • Other: 9 respondents “Other” included: Unknown (2), NOS (5), Forgot (2) Type I 46% Type II 45% Other 9% 0%
- 36. Round 1 Results Healthcare providers, discipline 22% 2% 26% 0% 50% Psychiatrist (11) Nurse Practitioner (1) Psychologist (13) Family physician (0) Other (25) “Other” included: Occupational Therapist (5), Social Worker (4), Psychotherapist (2), Mental Health Worker (2), Did not specify (2), Researcher (2), Peer Support Worker, Nurse, Genetic Counsellor, Nurse Educator, Family Counsellor, CBT & EMDR Therapist.
- 37. Respondents by geography “Other” included: Australia, France, Hong Kong, Italy, New Zealand, Spain, Sweden, Turkey, United Kingdom, Yemen. 0 10 20 30 40 50 60 70 80 90 Canada United States Other* Number of respondents
- 38. Looking at “Other” Geographies • 3% of CMs (n=6) from other geographies • These were Australia, France, Italy & UK Healthcare provider respondents were more diverse than community member respondents • 20% of healthcare providers (n=10) from geographies other than US/Canada • These were Australia, HK, NZ, Spain, Swed en, Turkey, UK & Yemen
- 39. Round 1 Results SMS ratings There was a very high level of consensus between both panels on the ratings Strategies about early warning signs were prominent for Stopping Progression Strategies about relationships and emotions were prominent for Maintaining Balance Strategies for Maintaining Balance were rated higher than those for Stopping Progression
- 40. Round 1 Results And while there was consensus… …there were also interesting, though slight, differences between the opinions of the panels. HCPs had more strategies for Stopping Progression in their top quartile than CMs did CMs rated strategies about social supports lower than HCPs for both MB and SP
- 41. Round 1 Results What about low-rated strategies? The lowest-rated strategy for both panels was “Take St. John’s Wort” Strategies that referenced spirituality received low ratings from panels Strategies about regulating diet generally did not rate highly in either panel No strategies on parenting and only one on sex in the highest quartile for either panel
- 42. Choosing which SMSs to include in Round 2 • Strategies for Maintaining Balance received higher ratings than those for Stopping Progression • We decided to choose an equal number of both types of strategy
- 43. Top Strategies • We chose the strategies in the top quartile (highest 25%) for both Maintaining Balance and Stopping Progression • This gave us an equal number of both types of strategy
- 44. Choosing which SMSs to include in Round 2 • Round 1: 436 strategies • Round 2: 154 strategies • 70 strategies for both Maintaining Balance and Stopping Progression • 42 each for only MB or SP • Approximately 15 to 20 minutes to complete
- 45. Delphi Survey Round 2: Live Today!
- 51. With thanks to… Our 152 Delphi participants – you rock!
- 52. Objectives: Introduction to CREST.BD Self-management in BD Discussion of how CREST.BD has applied Delphi methods in the context of a 'community-based participatory research' approach What we’ve learned so far Q&A
- 54. Next up in our 2014 Webinar Series That’s Just Crazy Talk: Using theatre to address bipolar stigma April 30th 2014 Registration will open soon! Featuring Victoria Maxwell and Dr. Erin Michalak
- 55. 2014 Webinar Series Instructions for Audio & Chat Enable Speakers Enable Microphone Chat Box!