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#OAWeekPhilly
#SocialQI:
Simple Solutions for
Improving Your Healthcare
            Presented by:
      Brian S. McGowan, PhD
           @briansmcgowan
          www.SOCIALQI.com


                               www.socialQI.com
           October 25th 2012
#OAWeekPhilly
Outline
1. Redefining Quality
2. Why Does Healthcare Quality Suffer
3. Introducing SocialQI
  – One Part – Social Network Science
  – One Part – Behavioral Science
4. Impacting the Mega-silos of Healthcare:
   #3 - Biomedical Research Science
5. How Does SocialQI Become the New Norm
   in Healthcare?
                                        www.socialQI.com
#OAWeekPhilly
Redefining
Healthcare Quality

#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
www.socialQI.com
#OAWeekPhilly
My Father’s Health Journey




                             www.socialQI.com
#OAWeekPhilly
My Father’s Record




                     www.socialQI.com
#OAWeekPhilly
Why Does Healthcare
Quality Suffer?

#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
    Problem #1: Variation




                                                    www.socialQI.com
http://www.healthcarereportcard.illinois.gov/maps
#OAWeekPhilly
                                                    www.socialQI.com
http://www.healthcarereportcard.illinois.gov/maps
#OAWeekPhilly
Problem #2: Failure to Advance




                           www.socialQI.com
#OAWeekPhilly
Problem #3: Overload & Filter Failures




                               www.socialQI.com
#OAWeekPhilly
Problem #4: Lack of Information




“Despite recent improvement in timely publication,
fewer than half of trials funded by NIH are published in a
peer reviewed biomedical journal indexed by Medline
within 30 months of trial completion. Moreover, after a
median of 51 months after trial completion, a third of
trials remained unpublished.”
                                             www.socialQI.com
#OAWeekPhilly
Introducing
#socialQI

#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
SocialQI




           www.socialQI.com
#OAWeekPhilly
One Part -
Social Network Science

#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
Social Network Science




  Sidewalk Experiment   Six Degrees of Separation



                                      www.socialQI.com
#OAWeekPhilly
Social Network Science




                         www.socialQI.com
#OAWeekPhilly
Social Network Science




http://www.nejm.org/doi/full/10.1056/NEJMsa066082   www.socialQI.com
#OAWeekPhilly
Social Network Science




                         www.socialQI.com
#OAWeekPhilly
Social Network Science
Unconnected   Bucket Brigade   Telephone Chain    Military Brigades




                                                 www.socialQI.com
#OAWeekPhilly
Social Network Science




                         www.socialQI.com
#OAWeekPhilly
Social Network Science




                         www.socialQI.com
#OAWeekPhilly
Moving to
‘Communities
of Practice’
models:
1. Collective Intent
2. Share Praxis




         www.socialQI.com
#OAWeekPhilly
One Part -
Behavioral Science

#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
Motivation x Ability x Triggers




                             www.socialQI.com
#OAWeekPhilly
Motivation x Ability x Triggers




                             www.socialQI.com
#OAWeekPhilly
Social Network Science +
Behavioral Science =
SocialQI


#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
  Crowd Accelerated Improvement




                       Crowd

            Light              Desire
http://bit.ly/txvpUP            www.socialQI.com
#OAWeekPhilly
What does this look like in science?




                            www.socialQI.com
#OAWeekPhilly
Impacting the Mega-silos
of Healthcare:
#3 - Biomedical Research Science

Exploring Chapters 6 and 10
#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                 www.socialQI.com
                  October 2012
#OAWeekPhilly
1. Scientists conduct their research as covert
   projects, leading to a culture of closed
   science
2. The system is often manipulated to benefit
   the scientist and not the science
3. The existing publishing model is an abject
   failure, driving closed access to medical
   information and wasting time, energy, and
   ultimately lives.
                                       www.socialQI.com
#OAWeekPhilly
1 - Closed Science
                   1610:
   “smaismrmilmrpoetaleumibunenugttauiras”

  “Altissimum planetam tergeminum observavi”

                  “the highest of the planets
                (Saturn) to be three-formed.”

Nielsen: “Reinventing Discovery”            www.socialQI.com
#OAWeekPhilly
 1 - Closed Science
 1997:
  “…one in three respondents were denied research results
 requested from a fellow university scientist in the previous
                         three years”
 2002:
  “nearly half of geneticists stated that at least once in the
      prior three years they had been denied access to
    additional information, data, or materials regarding
                     published research”
 2012:
   “one-third of NIH-funded trials remained unpublished
             fifty-one months after completion.”
JAMA 277, no. 15 (1997):1224-1228; JAMA 287, no. 4 (2002):473-480;
                                                                     www.socialQI.com
BMJ 344 (January 3, 2012), doi: 10.1136/bmj.d7292
#OAWeekPhilly
    2 - Benefitting the scientist, not the science

    1. The Multiplier: “Associate yourself with three or four
          similar academics, preferably at other institutions”

    2. The Rapid Data Gatherer: “They get some research
          output, which helps them, but you get access to their data

    3. The Repeater: “Publish the same basic paper in multiple
          journals”

    4. The Avoider: “On no account do anything else”

Mark Smithers, “Playing the Game, Publishing or Perishing in
Higher Education,” Learning and Educational Technology in Higher Education
(blog), November 14, 2011, accessed September 5, 2012, http://bit.ly/s0GH2y   www.socialQI.com
#OAWeekPhilly
3 - Closed Access
1. Provide a mechanism to ensure broad reach to new
   findings
2. Document priority claim (who discovered what first)
3. Maintain quality thorough peer review
4. Ensure appropriate archival and provide a fixed
   archival version for future reference
5. Provide an important way for scientists to navigate
   the increasing volume of published material

                                            www.socialQI.com
#OAWeekPhilly
1. Build better models for sharing
2. Integrate new models for
   reputation and recognition
3. Stop feeding the monster

                              www.socialQI.com
#OAWeekPhilly
  1- Rise of the Open Access model




Laakso and Björk BMC Medicine 2012, 10:124. http://bit.ly/TN1445   www.socialQI.com
#OAWeekPhilly
  1- Rise of the Open Access model




Laakso and Björk BMC Medicine 2012, 10:124. http://bit.ly/TN1445   www.socialQI.com
#OAWeekPhilly
  2 -Birth of Altmetrics
  NO ONE CAN READ EVERYTHING. We rely on filters to
  make sense of the scholarly literature, but the
  narrow, traditional filters are being swamped.
  However, the growth of new, online scholarly
  tools allows us to make new filters; these
  altmetrics reflect the broad, rapid impact of
  scholarship in this burgeoning ecosystem. We
  call for more tools and research based on
  altmetrics.
http://altmetrics.org/manifesto/         www.socialQI.com
#OAWeekPhilly
  2 - Birth of Altmetrics
  • Peer-review has served scholarship well, but is beginning to
    show its age. It is slow, encourages conventionality, and
    fails to hold reviewers accountable.
  • Citation counting measures are useful, but not sufficient.
    …Citation measures are narrow; influential work may
    remain uncited….they neglect impact outside the academy,
    and also ignore the context and reasons for citation.
  • The Impact Factor, which measures journals’ average
    citations per article, is often incorrectly used to assess the
    impact of individual articles. It’s troubling that the exact
    details of the JIF are a trade secret, and that significant
    gaming is relatively easy.

http://altmetrics.org/manifesto/                      www.socialQI.com
#OAWeekPhilly
2- Birth of Altmetrics




                         www.socialQI.com
#OAWeekPhilly
 3 - Stop feeding the monster
 • Cost of Knowledge petition:
 “Timothy Gowers of the University of Cambridge, who won the Fields
 Medal for his research, . . . asked for a boycott in a blog post on
 January 21, and [within nine days], on the boycott’s Web site The Cost
 of Knowledge, nearly 1,900 scientists have signed up, pledging not to
 publish, referee, or do editorial work for any Elsevier journal.”
 • University Policy Revisions:
 “ . . . non-exclusive right to make available copies of scholarly articles
 written by its faculty. . . . The University authorizes professors to post
 copies of their articles on their own web sites or on University web
 sites, or in other not-for-a-fee venues. . . . The main effect of this new
 policy is to prevent [faculty] from giving away all their rights when they
 publish in a journal.”
Fischman, “Elsevier Publishing Boycott Gathers Steam Among Academics,” The Chronicle of Higher
Education: Wired Campus (blog), January 30, 2012 http://bit.ly/AvsPlo; Creagh, “Princeton goes open
access to stop staff handing all copyright to journals – unless waiver granted,” September 28, 2011   www.socialQI.com
http://bit.ly/qPjfBB
#OAWeekPhilly
  “It no longer seems to be a question whether OA
  is a viable alternative to the traditional
  subscription model for scholarly journal
  publishing; the question is rather when OA
  publishing will become the mainstream model.”




Laakso and Björk BMC Medicine 2012, 10:124. http://bit.ly/TN1445   www.socialQI.com
#OAWeekPhilly
How Does SocialQI
Become the New Norm
in Healthcare?

#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012
#OAWeekPhilly
                  What Is              vs   What Could Be
              •    Weight Watchers          •   Quantified Selfers
  Patient &
  Wellness
              •    Alcoholics Anonymous     •   ACOR
Communities   •    ‘being a patient’        •   Patients Like Me
              •    Isolation                •   #S4PM


              •    Knowledge is power       •   #meded, #MDchat
  Medical
Communities
              •    Free-agent learners      •   Delta Exchange
              •    CME credit gathering     •   OzmosisESP
              •    Failed Ed. Design        •   Rapid Learning Systems


              •    ‘Dose of Science’        •   Mendeley
Biomedical
Research      •    Publish or Perish        •   Sage BioNetworks
Communities   •    Traditional Publishing   •   Altmetrics
              •    Impact Factor            •   Open Access
                                                     www.socialQI.com
#OAWeekPhilly
Lesson 1: Rely on better technology
1. Integration: Real sustainable success will only
   come from our ability to engineer systems
   that integrate into existing activities
2. Open and Connected: Information flow & big
   data analytics must
3. Social: Over time knowledge will move from
   the individuals within the community
   (knowledge capital) to be shared across the
   community (social capital)
                                        www.socialQI.com
#OAWeekPhilly
Lesson 1: Rely on better technology
4. Incentivizes: ultimately comes down to our
   ability to tap into the “what's in it for them”
   of the community
5. Controlled: evolve simple, standard tools to
   govern the inflow and outflow thresholds
6. Culture: consider ways to scale up culture to
   enable increasing larger (but productive)
   communities to form
                                         www.socialQI.com
#OAWeekPhilly
Lesson 2: Evolve a new skillset
1. Credibility & Reputation: Increasingly
   contribution to learning and improvement
   will define one’s professional reputation
   within the community
2. Filtering & Search: We can’t just release the
   bottleneck of information without the new
   systems to govern the flow…or folks will
   drowned

                                       www.socialQI.com
#OAWeekPhilly
Lesson 2: Evolve a new skillset
• Providing Feedback: for true collaboration, getting
  along should never be as important as getting things
  done
• Self-assessment: we must engage the system with
  our eyes wide open…digital nature allows reflection
  and social nature allows norming
• Critical thinking & decision making: requires us to
  know what we know, understand what we don’t
  know, and not to be paralyzed by the reality that we
  rarely have all of the information we need
                                            www.socialQI.com
#OAWeekPhilly
Summary
      Problems              SocialQI Solutions

  Quality Variation       Shared best practices

  Failure to Advance         Peer Norming &
                              Transparency

     Information             New systems for
Overload/Filter Failure    simplifying learning

 Lack of Information      New culture of sharing
                                      www.socialQI.com
#OAWeekPhilly
About the book title: #socialQI




                            www.socialQI.com
#OAWeekPhilly
Q and A


#SocialQI:
Simple Solutions for
Improving Your Healthcare
                                www.socialQI.com
                 October 2012

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McGowan - #socialqi simple solutions for improving your healthcare - PSCG's oaweekprogram Final

  • 1. #OAWeekPhilly #SocialQI: Simple Solutions for Improving Your Healthcare Presented by: Brian S. McGowan, PhD @briansmcgowan www.SOCIALQI.com www.socialQI.com October 25th 2012
  • 2. #OAWeekPhilly Outline 1. Redefining Quality 2. Why Does Healthcare Quality Suffer 3. Introducing SocialQI – One Part – Social Network Science – One Part – Behavioral Science 4. Impacting the Mega-silos of Healthcare: #3 - Biomedical Research Science 5. How Does SocialQI Become the New Norm in Healthcare? www.socialQI.com
  • 3. #OAWeekPhilly Redefining Healthcare Quality #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 5. #OAWeekPhilly My Father’s Health Journey www.socialQI.com
  • 7. #OAWeekPhilly Why Does Healthcare Quality Suffer? #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 8. #OAWeekPhilly Problem #1: Variation www.socialQI.com http://www.healthcarereportcard.illinois.gov/maps
  • 9. #OAWeekPhilly www.socialQI.com http://www.healthcarereportcard.illinois.gov/maps
  • 10. #OAWeekPhilly Problem #2: Failure to Advance www.socialQI.com
  • 11. #OAWeekPhilly Problem #3: Overload & Filter Failures www.socialQI.com
  • 12. #OAWeekPhilly Problem #4: Lack of Information “Despite recent improvement in timely publication, fewer than half of trials funded by NIH are published in a peer reviewed biomedical journal indexed by Medline within 30 months of trial completion. Moreover, after a median of 51 months after trial completion, a third of trials remained unpublished.” www.socialQI.com
  • 14. #OAWeekPhilly SocialQI www.socialQI.com
  • 15. #OAWeekPhilly One Part - Social Network Science #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 16. #OAWeekPhilly Social Network Science Sidewalk Experiment Six Degrees of Separation www.socialQI.com
  • 20. #OAWeekPhilly Social Network Science Unconnected Bucket Brigade Telephone Chain Military Brigades www.socialQI.com
  • 23. #OAWeekPhilly Moving to ‘Communities of Practice’ models: 1. Collective Intent 2. Share Praxis www.socialQI.com
  • 24. #OAWeekPhilly One Part - Behavioral Science #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 25. #OAWeekPhilly Motivation x Ability x Triggers www.socialQI.com
  • 26. #OAWeekPhilly Motivation x Ability x Triggers www.socialQI.com
  • 27. #OAWeekPhilly Social Network Science + Behavioral Science = SocialQI #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 28. #OAWeekPhilly Crowd Accelerated Improvement Crowd Light Desire http://bit.ly/txvpUP www.socialQI.com
  • 29. #OAWeekPhilly What does this look like in science? www.socialQI.com
  • 30. #OAWeekPhilly Impacting the Mega-silos of Healthcare: #3 - Biomedical Research Science Exploring Chapters 6 and 10 #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 31. #OAWeekPhilly 1. Scientists conduct their research as covert projects, leading to a culture of closed science 2. The system is often manipulated to benefit the scientist and not the science 3. The existing publishing model is an abject failure, driving closed access to medical information and wasting time, energy, and ultimately lives. www.socialQI.com
  • 32. #OAWeekPhilly 1 - Closed Science 1610: “smaismrmilmrpoetaleumibunenugttauiras” “Altissimum planetam tergeminum observavi” “the highest of the planets (Saturn) to be three-formed.” Nielsen: “Reinventing Discovery” www.socialQI.com
  • 33. #OAWeekPhilly 1 - Closed Science 1997: “…one in three respondents were denied research results requested from a fellow university scientist in the previous three years” 2002: “nearly half of geneticists stated that at least once in the prior three years they had been denied access to additional information, data, or materials regarding published research” 2012: “one-third of NIH-funded trials remained unpublished fifty-one months after completion.” JAMA 277, no. 15 (1997):1224-1228; JAMA 287, no. 4 (2002):473-480; www.socialQI.com BMJ 344 (January 3, 2012), doi: 10.1136/bmj.d7292
  • 34. #OAWeekPhilly 2 - Benefitting the scientist, not the science 1. The Multiplier: “Associate yourself with three or four similar academics, preferably at other institutions” 2. The Rapid Data Gatherer: “They get some research output, which helps them, but you get access to their data 3. The Repeater: “Publish the same basic paper in multiple journals” 4. The Avoider: “On no account do anything else” Mark Smithers, “Playing the Game, Publishing or Perishing in Higher Education,” Learning and Educational Technology in Higher Education (blog), November 14, 2011, accessed September 5, 2012, http://bit.ly/s0GH2y www.socialQI.com
  • 35. #OAWeekPhilly 3 - Closed Access 1. Provide a mechanism to ensure broad reach to new findings 2. Document priority claim (who discovered what first) 3. Maintain quality thorough peer review 4. Ensure appropriate archival and provide a fixed archival version for future reference 5. Provide an important way for scientists to navigate the increasing volume of published material www.socialQI.com
  • 36. #OAWeekPhilly 1. Build better models for sharing 2. Integrate new models for reputation and recognition 3. Stop feeding the monster www.socialQI.com
  • 37. #OAWeekPhilly 1- Rise of the Open Access model Laakso and Björk BMC Medicine 2012, 10:124. http://bit.ly/TN1445 www.socialQI.com
  • 38. #OAWeekPhilly 1- Rise of the Open Access model Laakso and Björk BMC Medicine 2012, 10:124. http://bit.ly/TN1445 www.socialQI.com
  • 39. #OAWeekPhilly 2 -Birth of Altmetrics NO ONE CAN READ EVERYTHING. We rely on filters to make sense of the scholarly literature, but the narrow, traditional filters are being swamped. However, the growth of new, online scholarly tools allows us to make new filters; these altmetrics reflect the broad, rapid impact of scholarship in this burgeoning ecosystem. We call for more tools and research based on altmetrics. http://altmetrics.org/manifesto/ www.socialQI.com
  • 40. #OAWeekPhilly 2 - Birth of Altmetrics • Peer-review has served scholarship well, but is beginning to show its age. It is slow, encourages conventionality, and fails to hold reviewers accountable. • Citation counting measures are useful, but not sufficient. …Citation measures are narrow; influential work may remain uncited….they neglect impact outside the academy, and also ignore the context and reasons for citation. • The Impact Factor, which measures journals’ average citations per article, is often incorrectly used to assess the impact of individual articles. It’s troubling that the exact details of the JIF are a trade secret, and that significant gaming is relatively easy. http://altmetrics.org/manifesto/ www.socialQI.com
  • 41. #OAWeekPhilly 2- Birth of Altmetrics www.socialQI.com
  • 42. #OAWeekPhilly 3 - Stop feeding the monster • Cost of Knowledge petition: “Timothy Gowers of the University of Cambridge, who won the Fields Medal for his research, . . . asked for a boycott in a blog post on January 21, and [within nine days], on the boycott’s Web site The Cost of Knowledge, nearly 1,900 scientists have signed up, pledging not to publish, referee, or do editorial work for any Elsevier journal.” • University Policy Revisions: “ . . . non-exclusive right to make available copies of scholarly articles written by its faculty. . . . The University authorizes professors to post copies of their articles on their own web sites or on University web sites, or in other not-for-a-fee venues. . . . The main effect of this new policy is to prevent [faculty] from giving away all their rights when they publish in a journal.” Fischman, “Elsevier Publishing Boycott Gathers Steam Among Academics,” The Chronicle of Higher Education: Wired Campus (blog), January 30, 2012 http://bit.ly/AvsPlo; Creagh, “Princeton goes open access to stop staff handing all copyright to journals – unless waiver granted,” September 28, 2011 www.socialQI.com http://bit.ly/qPjfBB
  • 43. #OAWeekPhilly “It no longer seems to be a question whether OA is a viable alternative to the traditional subscription model for scholarly journal publishing; the question is rather when OA publishing will become the mainstream model.” Laakso and Björk BMC Medicine 2012, 10:124. http://bit.ly/TN1445 www.socialQI.com
  • 44. #OAWeekPhilly How Does SocialQI Become the New Norm in Healthcare? #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012
  • 45. #OAWeekPhilly What Is vs What Could Be • Weight Watchers • Quantified Selfers Patient & Wellness • Alcoholics Anonymous • ACOR Communities • ‘being a patient’ • Patients Like Me • Isolation • #S4PM • Knowledge is power • #meded, #MDchat Medical Communities • Free-agent learners • Delta Exchange • CME credit gathering • OzmosisESP • Failed Ed. Design • Rapid Learning Systems • ‘Dose of Science’ • Mendeley Biomedical Research • Publish or Perish • Sage BioNetworks Communities • Traditional Publishing • Altmetrics • Impact Factor • Open Access www.socialQI.com
  • 46. #OAWeekPhilly Lesson 1: Rely on better technology 1. Integration: Real sustainable success will only come from our ability to engineer systems that integrate into existing activities 2. Open and Connected: Information flow & big data analytics must 3. Social: Over time knowledge will move from the individuals within the community (knowledge capital) to be shared across the community (social capital) www.socialQI.com
  • 47. #OAWeekPhilly Lesson 1: Rely on better technology 4. Incentivizes: ultimately comes down to our ability to tap into the “what's in it for them” of the community 5. Controlled: evolve simple, standard tools to govern the inflow and outflow thresholds 6. Culture: consider ways to scale up culture to enable increasing larger (but productive) communities to form www.socialQI.com
  • 48. #OAWeekPhilly Lesson 2: Evolve a new skillset 1. Credibility & Reputation: Increasingly contribution to learning and improvement will define one’s professional reputation within the community 2. Filtering & Search: We can’t just release the bottleneck of information without the new systems to govern the flow…or folks will drowned www.socialQI.com
  • 49. #OAWeekPhilly Lesson 2: Evolve a new skillset • Providing Feedback: for true collaboration, getting along should never be as important as getting things done • Self-assessment: we must engage the system with our eyes wide open…digital nature allows reflection and social nature allows norming • Critical thinking & decision making: requires us to know what we know, understand what we don’t know, and not to be paralyzed by the reality that we rarely have all of the information we need www.socialQI.com
  • 50. #OAWeekPhilly Summary Problems SocialQI Solutions Quality Variation Shared best practices Failure to Advance Peer Norming & Transparency Information New systems for Overload/Filter Failure simplifying learning Lack of Information New culture of sharing www.socialQI.com
  • 51. #OAWeekPhilly About the book title: #socialQI www.socialQI.com
  • 52. #OAWeekPhilly Q and A #SocialQI: Simple Solutions for Improving Your Healthcare www.socialQI.com October 2012

Editor's Notes

  1.  
  2.  http://www.healthcarereportcard.illinois.gov/maps
  3. http://www.bmj.com/content/344/bmj.d7292.pdf%2Bhtml
  4. http://www.vosizneias.com/96473/2011/12/07/new-york-nyc-sidewalks-are-getting-more-crowded/http://www.skillsconverged.com/FreeTrainingMaterials/tabid/258/articleType/ArticleView/articleId/806/Team-Building-Exercise-Six-Degrees-of-Separation.aspx
  5. http://christakis.med.harvard.edu/pdf/publications/articles/128.pdf
  6. …number of connections…some algorithm…crowdsource rankings/ratings…types of “anonymity”…In the past, the filter was easier than the production, but now production is easier than filtering. …credibility helps with crowdsourcing…