Design vs.Cancer: Patients Win UXDC 2017
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This 10 minute talk concluded with a panel with two other presenters. How do you make an impact on people’s lives in three weeks? I was selected to work on a pro-bono project to help health providers in Ethiopia, Nigeria and Uganda to increase the availability and lower the cost of cancer treatments. We were challenged to create a fully functioning software solution that would meet the needs of health care workers in forecasting the need for chemotherapy during the 3-week timeline. I’ll share the experience of working on a fast-paced project with a cross-functional team in this session. We worked closely with the American Cancer Society, Clinton Health Access Initiative, NCCN and oncologists to create the ChemoQuant solution.
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Design vs.Cancer: Patients Win UXDC 2017
- 1. UXDC 2017 Carol Smith @carologic Design vs. Cancer: Patients Win
- 2. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 IBM Health Corps • Engage communities. • Harness data. • Transform health. • American Cancer Society - Global • NCCN (cancer treatment guidelines) • Global health partners – CHAI – Ministries of Health in Ethiopia, Nigeria, Uganda https://www.ibmhealthcorps.org/
- 3. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 1 UX, 2 SW engineers, a technologist, a visualization architect and a business consultant move into a house…
- 4. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Reasons for success in 3 weeks 1. Clear problem definition 2. Availability of experts 3. Close contact with team and users
- 5. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Sub-Saharan Africa • Lower-income countries • Fewer hospitals • Fewer doctors • Fewer medicines and equipment • Even where services exist, people are unable to afford them
- 6. Problem: Cancer looks different in lower-income countries People present late for treatment Outcomes are poorAccess to treatment is limited
- 7. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Lack of awareness of signs/symptoms Stigma Inability to get to health facility Cancer treatment Lack of diagnostic capacity Lack of access to treatment Communities Leaking pipeline to treatment
- 8. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Availability to experts • NCCN advisors – Guidelines supervisor – Pharmacist • Nurse oncologists • Academics • Watson for Oncology team
- 9. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Experts Built Logic Maps
- 10. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Close contact = living together + VizD “Delivering high value in a short time: co-location, agile and design thinking” Blog entry by Carol Smith: https://ibmhealthcorpsblog.wordpress.com/2016/09/
- 11. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Kanban – visible work
- 12. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Users – storyboarding, interviews…
- 13. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Rough, quick prototypes and discussions
- 14. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Final pieces: Everyone did data entry
- 15. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 ChemoQuant: Forecasting Tool
- 16. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Distribution of cancer across population
- 17. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 List of treatments to purchase
- 18. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Lack of awareness of signs/symptoms Stigma Inability to get to health facility Cancer treatment Lack of diagnostic capacity Access to treatment Communities Impact
- 19. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 3 reasons for success 1. Clear problem definition 2. Availability to experts 3. Close contact with team and users
- 20. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Work continues…
- 21. ACS partners in the fight for more birthdays 21
- 22. IBM Watson / Design vs. Cancer: Patients Win @carologic / UXDC 2017 @UXDC #UXDC2017 Contact Carol in/CarolJSmith @Carologic slideshare.net/carologic
- 23. Lightning Round: Design in Healthcare • Erin Golden • Panel Moderator • Carol Smith • Design vs. Cancer: Patients Win • Erika Harvey • Putting the Nurse into Healthcare • Fatih Demir and Isa Jahnke • Design Principles for Augmented Reality MCI Systems
Hinweis der Redaktion
- NCCN - National Comprehensive Cancer Network IBM Health Corps Unlock the power of data to: improve health outcomes help eliminate health disparities deliver lasting change across the globe. Partner Organization Increase the availability and lower the cost of cancer treatments. Few cancer patients in sub Saharan Africa receive chemotherapy IBM support creation of chemotherapy forecasting tool
- Sabine (technologist), Gert (business consultant), Graham (visualization architect), Nicholas (SWE), me, Tom (SWE)
- American Cancer Society’s notes: Cancer looks very different in lower-income countries and these differences are important to understand. People present very late to health facilities for treatment. And when they do come to health facilities, access to treatment is very limited and the vast majority do not get treatment. As a result, cancer outcomes are very poor. 80-90% of people are in advanced stages by the time they present to a cancer treatment facility. Why? Well for one, there is low awareness about cancer in the general population and among medical providers. It is common for patients to be treated for months or years for other conditions before cancer is suspected. There is also a lot of stigma and fear around cancer and that causes people to delay seeking treatment if they suspect they may have cancer. The stigma and fear is driven by the very high mortality rates and the tremendous suffering that people associate with cancer. Finally, there is limited access to high-quality healthcare. Lower-income countries simply have fewer hospitals and fewer doctors. And those hospitals and doctors have fewer medicines and equipment. Even where services do exist, many people are unable to afford them.
- American Cancer Society’s notes (modified for UXDC audience): It’s easy to be overwhelmed by the multiple barriers and we need a way to think more constructively about the challenges A story for illustration: A young boy named Paul has eye cancer, but was delayed in getting treatment. The first delays were caused by having been treated initially with eye drops because of a lack of awareness of signs and symptoms of cancer. Then, as his disfigurement increased, he faced stigma and fear in his community. His inability to get to a health facility, or one that could help him, was a tremendous barrier. And when he did get to one, there were additional barriers due to the lack of diagnostic capacity and lack of access to treatment. Layered across the entire continuum are challenges due to limited budgets of ministries of health, the fact that even nominal costs are prohibitive to people, including tests, medicines, transportation, and lodging. And the lack of trained human resources, including doctors, nurses, and technologists. All along this continuum, people leak out of the pipeline, either giving up or dying before they get to treatment. And for us, this continuum suggests a sequencing. Before we put a lot more water in the pipe, we should move backwards from the end, patching up the holes along the way. So we start at the places where patients have made it all of the way to the end and then cannot access treatment. In Paul’s case, the final barrier was $15 for radiotherapy. So we start there and make sure that everyone who has a cancer diagnosis and is at the national hospital for treatment can get it. And then, when we’ve done that, we start to tackle diagnostic capacity. Improvements in diagnosis will push more people along the continuum, ready for treatment. And we’ll keep going like this until we are working in communities, raising awareness about cancer and it’s signs and symptoms. And we’ll always need to address these cross-cutting barriers: Limited budgets in ministries of health Nominal costs are prohibitive: tests, medicines, transport, lodging Lack of trained human resources
- Still need to address these cross-cutting barriers: Limited budgets in ministries of health Nominal costs are prohibitive: tests, medicines, transport, lodging Lack of trained human resources