Family retreat training 2012

WELCOME TO CAMP!

Saturday, August 11, 12

Let’s Get to
Know One
Another!


Why
Are
We
Here?
Judy Siegle


Family
Perspectives
Dads, Moms, Campers, Siblings


Siblings - What is a “Glass Child”?


How You Can Help...


Sibling Event

✤ Be sure to encourage the siblings in
your Retreat Family to attend the
Sibling Event on Friday afternoon.

✤ Fairhills Golf Club Water Slide!


STMS!

✤ Lindsay Jemtrud and Mandy
Johnson share their experiences at
STMS.


Nuts & Bolts:
Rules to Retreat By
Dan Vance


Disability
Training
Brodie Wheaton


God’s View of Disability
“ For you formed my inward parts; you knitted me together in my mother’s womb. I praise
you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it
very well. My frame was not hidden from you, when I was being made in secret, intricately
woven in the depths of the earth. Your eyes saw my unformed substance; in your book were
written, every one of them, the days that were formed for me, when as yet there was none of
them.” Psalm 139:12-16


God’s View of Disability
And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born
blind? Jesus answered, “It was not that this man sinned, or his parents, but that the works of
God might be displayed in him.”


Disability vs. Handicap

✤ DISABILITY ✤ HANDICAP
“a physical or mental impairment” “any encumbrance”

✤ Paralysis ✤ Flat tire on a wheelchair
✤ Down Syndrome ✤ Steps to a church
✤ Autism ✤ Curb without a ramp
✤ Deafness
✤ Blindness


Disability Stats

✤ 63% unemployment rate

✤ 4 out of 5 marriages end in divorce

✤ Highest cause of suicide among
teens


What is Your View of Disability?

Let’s Discuss:

✤ What do you think of parking spaces reserved for
disabled people?

✤ What would your life look like if you were suddenly
disabled?

✤ Are you anxious about this week and unsure of how
to act or what to say?


Introducing Rosanne!


Communication
✤ Don’t talk “down” to a person,
assuming that they cannot
understand you. No baby talk.

✤ Talk directly to the person with
the disability, not to the parent,
attendant, or family member. For
example, don’t say “What does he
want to eat?”

✤ Look directly at the person you
are talking with to let them know
that you are listening.

✤ Speak clearly. Avoid talking too
fast or mumbling.


Communication

✤ Avoid talking too loudly. A lower voice can often be easier to understand.

✤ If you are having difﬁculty understanding someone, ask them to clarify or repeat
what you think you understood. “Did I hear you say you want to go on a walk?”
or “I’m sorry. I didn’t understand that. Can you tell me again?” Don’t nod your
head and smile without understanding their need.

✤ BE PATIENT! This is especially important for someone who has difﬁculty
speaking. Do not rush the person you are speaking with. Give them the time they
need to communicate.


Non-Verbal Communication

✤ GOLDEN RULE: Do not assume that if a person is “non-verbal” they
cannot understand you or communicate with you. You will often ﬁnd
that your friend can understand much more than they can express
verbally.

✤ Place yourself in a position that will make the person you are speaking
with most comfortable.

✤ Find creative ways to communicate. Try hand squeezes, nods, pictures.
Watch for sign language or listen for noises.

✤ Use “yes” or “no” questions. It may be easier for them.


People-First
Language

“People-ﬁrst
language” refers
to a way to talk
about people. In
this case, people
with disabilities.


People-First
Language
The basic idea is to name the
person ﬁrst and the condition
second.

For example, say "people with
disabilities" rather than "disabled
people" in order to emphasize that
they are "people ﬁrst".

“The boy with Down Syndrome”
vs. “The Downs Boy”

“The girl with Autism” vs. “The
Autistic girl”


Terminology to
Avoid

✤ Your words matter. You never
know who could be hurt or
offended by the words that you
choose.

✤ Your attitude will speak louder
than your words. There is grace
when you un-intentionally say the
“wrong” thing.


Terminology to Avoid

✤ “Disabled” - Use “person affected by disability”

✤ Never say “slow,” “retarded,” or “dumb.” Do not refer to disabilities as “birth
defects.”

✤ Avoid “handicap.” When referring to a bathroom stall or parking spot use
“accessible.”

✤ Do not refer to someone as “conﬁned” to a wheelchair or “wheelchair bound.” In
reality, a wheelchair liberates the person using it.

✤ Avoid saying “problem” or asking “What’s wrong with her?”


Terminology to Avoid

✤ Avoid negative words that imply tragedy such as “afﬂicted with,” “suffers
from,” “victim,” or “prisoner.”

✤ Do not use “special” to mean “segregated”. For example, the “special school” or
“special bus.”

✤ Don't portray people with disabilities as overly courageous, brave, or
superhuman. This makes it sound like it is unusual for people with disabilities to
have talents, skills, or to live life like everyone else.


Weird Glasses People


People with disabilities are- first and foremost- people!
Promote understanding, respect, and dignity.


Autism
Spectrum Disorder

✤ Autism is a developmental disability that appears in the ﬁrst 3 years of life, and
affects the brain's development of social and communication skills.

✤ No two people are the same! “if you’ve seen one child with autism, you’ve
seen one child with autism.” You will learn your camper’s disability and
behavior best as you get to know them better.

✤ Autism has no cure and is a life-long disability

✤ 1 out of 88 children in US diagnosed; more common in boys


Autism Characteristics
✤ Noticeable physical over-activity or extreme under-activity. Frustration with
changes in routine. Inform them of what to expect.

✤ May be overly sensitive to light, sounds, and touch. Can get over-stimulated.

✤ Non-responsive to verbal cues with little eye contact. Can not read body
language, jokes or sense of humor. Be patient and let them express themselves if
they are able to. May also be non-verbal.

✤ When acting out they don’t necessarily get that they are behaving
inappropriately.

✤ May have poor body control but are often fearless. Often displays repetitive
behaviors (spinning, rocking, ﬂipping ﬁngers)

✤ Easily distracted. Maybe be obsessively attracted to an object.

Asperger’s

✤ Asperger’s is a variant of autism.

✤ Difficulty interacting with peers.
(reciprocity)

✤ All-absorbing, narrow interest in
one or two specific subjects.

✤ Difficult communication. No eye
contact. May have monotone or fast
speaking voice.

✤ Move clumsily, with poor
coordination.


Best Practices

✤ Be intentional about including them. Sit next to them. Talk to them. Tell stories.
Pray for them, with them. Assume they “get” everything. Don't leave them out.

✤ Meltdowns are often caused by an inability to process what's happening in
surroundings or inability to transition. Resolve in a safe, quiet place. Don’t over-
talk the issue.

✤ Visit the Activity Tent for sensory toys and activities. Find out if they have a
favorite toy for transitions.

✤ Stay patient, consistent and calm!


“Dancing With Max” Emily Colson


Visual Impairment
A loss of vision resulting in a signiﬁcant limitation of visual
capability that cannot be corrected by conventional means.

✤ Introduce yourself every time you speak to a person with a visual impairment so
that they know who they are talking to.

✤ Don’t be overly sensitive about using common phrases, such as “See you later.”

✤ Always ASK FIRST if you can help someone when it looks like they may need it.
Don’t push someone where they are going. Instead, offer your arm as assistance.


Wheelchair
Users
✤ Sit down when conversing with
someone in a wheelchair, whenever
possible.

✤ A person’s chair is an extension of
their body. Don’t invade someone’s
space by leaning on their chair or
resting on push handles.

✤ Don’t assume someone using a
wheelchair needs help. If you see
someone struggling, ASK before
helping or pushing.


Cerebral Cerebral palsy is a broad term used to describe
conditions whereby brain trauma adversely affects a
Palsy child's motor abilities.

✤ Variation in muscle tone - either too stiff or too floppy. May be limited to one side
or it may affect the whole body.

✤ Lack of muscle coordination. Difficulty walking. Scissor-like gait.

✤ Excessive drooling or difficulty swallowing.

✤ Difficulty with precise motions, such as picking up a crayon or spoon.

✤ May also have difficulty with vision or hearing, intellectual disabilities, seizures,
abnormal pain perception, dental problems or urinary incontinence.


Fun in the Bounce House


Down A genetic condition in which a person has
47 chromosomes instead of the usual 46.
That extra chromosome affects the way the
Syndrome body and brain develops.

✤ Short attention span and distractibility.

✤ May have difﬁculty with hearing or expressing
themselves.

✤ Obsessive attachment to objects

✤ Very affectionate

✤ May be stubborn

✤ Include them in all activities. Be patient.

✤ Visit the Activity Tent if you need some
activities or if attention span is short.


In Closing

There are many ways that you can
touch the life of your camper:

✤ You can sit and listen as they express
their frustrations or hurts, blessing
them by giving them a
compassionate ear that hears.

✤ You can lovingly feed them and wipe
their chin, expressing that you care.

✤ You can run and giggle and skip and
hold hands. Perhaps you will
experience a childlike faith once
again.


We have a major role in camp...
to allow the Lord to work in and
through us.

• Joni and Friends was founded upon
this principle. Joni Eareckson Tada
dove into a lake over 40 years ago…
and here we are today. God used
Joni’s diving accident and paralysis
to launch an international disability
ministry that has encouraged and
changed millions of people around
the world.

• What will God enable us to do this
week? Get ready for Him to use you!


Ministry Group
Connect


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