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Policy Update:
The Affordable Care Act and the
     Ryan White Program
   Philadelphia EMA Planning Council
             August 9, 2012
    Presented by Matthew McClain
August 2012                                Policy Update   2




 Today’s Topics
              Affordable Care Act
              Medicaid expansion
              Essential Health Benefits

              Ryan White Program
              FY 2013 Appropriations
              Reauthorization

                        Actions and Resources
August 2012                                     Policy Update   3




 Today’s Handouts
1.       CAEAR Coalition Comments on the Future of the Ryan
         White Program (July 31, 2012)
2.       Ryan White Work Group Comments on Next Steps for the
         Ryan White Program (July 31, 2012)
3.       AIDS Budget and Appropriations Coalition: FY 2013
         Appropriations for HIV/AIDS Programs (August 2, 2012)
4.       NHeLP 50 Reasons for Medicaid Expansion (August 2,
         2012)
5.       Urban Institute: Considerations in Assessing State-
         Specific Fiscal Effects of the ACA’s Medicaid Expansion
August 2012    AACO Director’s Meeting Federal Policy Update   4




The HIV Health Care Environment
August 2012                      Policy Update   5




Affordable    Patient Protection and
              Affordable Care Act as amended
Care
              by the Health Care and
Act           Education Reconciliation Act
              (March 2010)

              National Federation of
              Independent Business versus
              Sebelius (June 28, 2012)
August 2012                       Policy Update   6




               First Supreme Court decision
What            on ACA
Happened       Individual mandate is valid
               Insurers must abandon pre-
                existing condition exclusions
                and lifetime caps on coverage
               Essential health benefits
                upheld
               Curbs the power of Federal
                government to enforce the
                Medicaid expansion
August 2012                           Policy Update   7




Implications for Medicaid Expansion States
 Supreme Court did not    Federal match will be
  strike the Medicaid       100% initially then 90%
  expansion nor make it     (now 57%)
  optional                 States that expand must
 Many implementation       comply with all
                            mandatory provisions
  questions, some of
                            such as reasonable
  which the President
                            promptness and due
  and HHS will address      process
August 2012                              Policy Update   8




Implications for States Failing to Expand
 States that do not          States not allowed to
  expand must still cover      expand to <138% FPL
  all individuals under        and get the ACA match
  133% FPL and meet           Uninsured people with
  other ACA and Medicaid       incomes below FPL are
  Act requirements             ineligible for health
 Maintain Medicaid            exchange subsidies
  eligibility criteria and    Must extend Medicaid
  MAGI as of March 2010        coverage to low income
                               children aged 6-19 years
August 2012                                           Policy Update   9




Uninsured                                          Currently
                                                                    Total
                         Newly Eligible                            Eligible
Adults with                                         Eligible
                                                                  Uninsured

Incomes                <138%          <100%         <138%             <138%
                        FPL            FPL           FPL               FPL
Below 138%                  15.0          11.4            4.3               19.4
              US
FPL by                    million       million       million             million

Medicaid      PA         520,000      398,000         92,000          613,000

Eligibility   NJ         307,000      245,000         42,000          349,000
Status        Source: The Urban Institute Health Policy Center
August 2012                         Policy Update   10




               Ensure that a comprehensive
Reform
                Essential Health Benefits package
Priorities
               Ensure access to essential
for People      services covering the gaps
Living with    Ensure smooth transition for
HIV/AIDS        vulnerable populations
and HIV        Prepare service organizations for
Advocates       a changing healthcare landscape
               Make Medicaid managed care
                work for people with HIV
August 2012            Policy Update   11




 Coverage Options by 2014
August 2012                       Policy Update   12




Essential      • Qualified Health Plans offered
Health           through Exchanges
Benefits       • State Medicaid programs for
Highlights       newly eligible beneficiaries
               • Basic Health Plans for people
                 between 133%-200% FPL
               • No higher premiums based on
                 health status or gender
               • No cost sharing for preventive
                 services
August 2012                         Policy Update   13



                Ambulatory services
Required
                Emergency services
Essential       Hospitalization
Health          Maternity/newborn care
Benefits        Mental health and substance use
                 disorder services
                Prescription drugs
                Rehabilitative services
                Laboratory services
                Prevention, wellness, and chronic
                 disease management services
                Pediatric services
August 2012                         Policy Update   14




EHB             Unlimited access to antiretroviral
                 drugs and viral hepatitis
Package          medications
that Meets      Unlimited access to
the Care         HIV/infectious disease specialists
and             Case management

Treatment       Mental health and substance
                 abuse services
Needs of        Preventive and wellness services
PLWHA           Laboratory testing
                Services needed to meet national
                 standards of HIV care
August 2012                       Policy Update   15




EHB Process     By September 28, 2012, States
                 must tell Federal government
                 which benchmark plan it
                 selected and what additions
                 are needed to meet EHB and
                 non-discrimination mandates
                 of ACA
                HHS will review the plan to
                 assure it meets the
                 requirements
August 2012                       Policy Update   16




Questions       What are the most important
Regarding        benefits for PLWHA?
EHBs to         Which plans will be
Meet the         considered?
Needs of        What benefits do those plans
PLWHA            currently offer?
                What are the concerns?
                Which plan looks best?
                What needs to be added?
August 2012                        Policy Update   17




               Ryan White HIV/AIDS Treatment
Ryan            Extension Act of 2009 (Public Law
White           111-87, October 30, 2009).
Program        First enacted in 1990 as the Ryan
                White Comprehensive AIDS
                Resources Emergency Act.
               Amended and reauthorized 4 times-
                1996, 2000, 2006, and 2009
               Current law expires in 13 months
                but does not sunset, permitting
                appropriations and implementation
                after September 30, 2013
August 2012                                   Policy Update   18




Status of     Program
                         FY2012 FY2013        FY2013          FY2013
                        (millions) Obama       Need           Senate
HIV/AIDS
              RWP         $ 2.392 +$ 80.0     +$ 483.0         +$ 30.0
FY 2013
              CDC          $ 1.11   +$36.0    +$ 684.0             +$ 2.0
Appropria-
              HOPWA       $ 332.0    -$ 2.0     +$ 48.0            -$ 2.0
tions
August 2012                          Policy Update   19




HIV Care      • What is the future of the Ryan
                White Program?
Advocacy
              • What will bridge services from the
Questions       expiration of RW in 2013 to when
                coverage starts in 2014?
              • Will RW need to focus on what and
                who won’t be covered such as
                wrap-around/support services,
                undocumented persons, accessing
                the new system, and quality?
August 2012                         Policy Update   20




               RWP providers will be
Ryan
                increasingly dependent on 3rd
White and       party payment (51% now to as
ACA             much as 80% with ACA)
               Number of entirely uninsured
                RWP clients should decrease
                dramatically
               Gaps to be determined will
                remain: e.g. uninsured, those not
                enrolled, insurance coverage
                gaps, ineligibles, HIV prevention
                services
August 2012            AACO Director’s Meeting Federal Policy Update   21


CAEAR Coalition Guiding Principles for
Reauthorization
Open access to quality health care
Ensure continuity of care
Fortify resources and increase client
 capacity
Maintain and strengthen flexibility and
 adaptability
August 2012                         Policy Update   22




Principle 1:    Access and accountability
Open            Cultural competency
Access to       Quality medical training
Quality
Health
Care
August 2012                         Policy Update   23




Principle 2:    Aligning and integrating
Ensure           systems of care
Continuity      Linkage to appropriate care
of Care         Reducing HIV-related health
                 disparities
August 2012                         Policy Update   24




Principle 3:    Sufficient funding and effective
Fortify          distribution of resources
Resources       Infrastructure and essential
and              support services
Increase        Workforce development
                     August 2012

Client          Organizational and network
Capacity         capacity
August 2012                          Policy Update   25




Principle 4:    ACA transition flexibility
Maintain        Support local control
and
Strengthen
Flexibility
and
Adapta-
bility
August 2012                        Policy Update   26




Local         • Use existing data systems (e.g.,
Activities      unduplicated RWP client data
to Prepare      analysis of insurance status)
for ACA       • Maximize 3rd party billing
and Ryan      • Understand gaps in coverage
White         • Participate in national and
Reauthor-       state advocacy group processes
ization         and decisions (e.g., CAEAR
                Coalition and PA Health
                Choices Work Group)
August 2012                       Policy Update   27




Act Now       • Improve provider and
                organizational knowledge and
                skills (e.g., RWP monitoring
                standards, Medicaid
                participation, patient
                navigation, medical case
                management)
              • Improve consumer knowledge
                and skills (e.g., rights,
                responsibilities, eligibility,
                program navigation)
August 2012                             Policy Update   28




General Resources
• HealthCare.gov     • Trust for America’s Health
• WhiteHouse.gov     • National Association of County
• HHS.gov             and City Health Officials
• Families USA      • Association of State and
• Urban Institute
                      Territorial Health Officials
                    • National Association of
• Kaiser Foundation
                      Community Health Centers
• National Health
                    • State Healthcare Access
  Law Program
                      Research Project
August 2012                            Policy Update   29




HIV-Specific Resources
• AIDS.gov                 • CAEAR Coalition
• Treatment Access         • National Association of
  Expansion Project          State and Territorial
• Treatment Action Group     AIDS Directors
• HIVhealthreform.org      • AIDS United
• Federal AIDS Policy      • HIV Medicine
  Partnership                Association
                           • Coalition for a National
                             AIDS Strategy
August 2012                        Policy Update   30




              Thank you!
               Matthew McClain
              AIDSpolicy@aol.com

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Policy Update: The Affordable Care Act and the Ryan White Program, presented by Matthew McClain

  • 1. Policy Update: The Affordable Care Act and the Ryan White Program Philadelphia EMA Planning Council August 9, 2012 Presented by Matthew McClain
  • 2. August 2012 Policy Update 2 Today’s Topics Affordable Care Act Medicaid expansion Essential Health Benefits Ryan White Program FY 2013 Appropriations Reauthorization Actions and Resources
  • 3. August 2012 Policy Update 3 Today’s Handouts 1. CAEAR Coalition Comments on the Future of the Ryan White Program (July 31, 2012) 2. Ryan White Work Group Comments on Next Steps for the Ryan White Program (July 31, 2012) 3. AIDS Budget and Appropriations Coalition: FY 2013 Appropriations for HIV/AIDS Programs (August 2, 2012) 4. NHeLP 50 Reasons for Medicaid Expansion (August 2, 2012) 5. Urban Institute: Considerations in Assessing State- Specific Fiscal Effects of the ACA’s Medicaid Expansion
  • 4. August 2012 AACO Director’s Meeting Federal Policy Update 4 The HIV Health Care Environment
  • 5. August 2012 Policy Update 5 Affordable Patient Protection and Affordable Care Act as amended Care by the Health Care and Act Education Reconciliation Act (March 2010) National Federation of Independent Business versus Sebelius (June 28, 2012)
  • 6. August 2012 Policy Update 6  First Supreme Court decision What on ACA Happened  Individual mandate is valid  Insurers must abandon pre- existing condition exclusions and lifetime caps on coverage  Essential health benefits upheld  Curbs the power of Federal government to enforce the Medicaid expansion
  • 7. August 2012 Policy Update 7 Implications for Medicaid Expansion States  Supreme Court did not  Federal match will be strike the Medicaid 100% initially then 90% expansion nor make it (now 57%) optional  States that expand must  Many implementation comply with all mandatory provisions questions, some of such as reasonable which the President promptness and due and HHS will address process
  • 8. August 2012 Policy Update 8 Implications for States Failing to Expand  States that do not  States not allowed to expand must still cover expand to <138% FPL all individuals under and get the ACA match 133% FPL and meet  Uninsured people with other ACA and Medicaid incomes below FPL are Act requirements ineligible for health  Maintain Medicaid exchange subsidies eligibility criteria and  Must extend Medicaid MAGI as of March 2010 coverage to low income children aged 6-19 years
  • 9. August 2012 Policy Update 9 Uninsured Currently Total Newly Eligible Eligible Adults with Eligible Uninsured Incomes <138% <100% <138% <138% FPL FPL FPL FPL Below 138% 15.0 11.4 4.3 19.4 US FPL by million million million million Medicaid PA 520,000 398,000 92,000 613,000 Eligibility NJ 307,000 245,000 42,000 349,000 Status Source: The Urban Institute Health Policy Center
  • 10. August 2012 Policy Update 10  Ensure that a comprehensive Reform Essential Health Benefits package Priorities  Ensure access to essential for People services covering the gaps Living with  Ensure smooth transition for HIV/AIDS vulnerable populations and HIV  Prepare service organizations for Advocates a changing healthcare landscape  Make Medicaid managed care work for people with HIV
  • 11. August 2012 Policy Update 11 Coverage Options by 2014
  • 12. August 2012 Policy Update 12 Essential • Qualified Health Plans offered Health through Exchanges Benefits • State Medicaid programs for Highlights newly eligible beneficiaries • Basic Health Plans for people between 133%-200% FPL • No higher premiums based on health status or gender • No cost sharing for preventive services
  • 13. August 2012 Policy Update 13  Ambulatory services Required  Emergency services Essential  Hospitalization Health  Maternity/newborn care Benefits  Mental health and substance use disorder services  Prescription drugs  Rehabilitative services  Laboratory services  Prevention, wellness, and chronic disease management services  Pediatric services
  • 14. August 2012 Policy Update 14 EHB  Unlimited access to antiretroviral drugs and viral hepatitis Package medications that Meets  Unlimited access to the Care HIV/infectious disease specialists and  Case management Treatment  Mental health and substance abuse services Needs of  Preventive and wellness services PLWHA  Laboratory testing  Services needed to meet national standards of HIV care
  • 15. August 2012 Policy Update 15 EHB Process  By September 28, 2012, States must tell Federal government which benchmark plan it selected and what additions are needed to meet EHB and non-discrimination mandates of ACA  HHS will review the plan to assure it meets the requirements
  • 16. August 2012 Policy Update 16 Questions  What are the most important Regarding benefits for PLWHA? EHBs to  Which plans will be Meet the considered? Needs of  What benefits do those plans PLWHA currently offer?  What are the concerns?  Which plan looks best?  What needs to be added?
  • 17. August 2012 Policy Update 17  Ryan White HIV/AIDS Treatment Ryan Extension Act of 2009 (Public Law White 111-87, October 30, 2009). Program  First enacted in 1990 as the Ryan White Comprehensive AIDS Resources Emergency Act.  Amended and reauthorized 4 times- 1996, 2000, 2006, and 2009  Current law expires in 13 months but does not sunset, permitting appropriations and implementation after September 30, 2013
  • 18. August 2012 Policy Update 18 Status of Program FY2012 FY2013 FY2013 FY2013 (millions) Obama Need Senate HIV/AIDS RWP $ 2.392 +$ 80.0 +$ 483.0 +$ 30.0 FY 2013 CDC $ 1.11 +$36.0 +$ 684.0 +$ 2.0 Appropria- HOPWA $ 332.0 -$ 2.0 +$ 48.0 -$ 2.0 tions
  • 19. August 2012 Policy Update 19 HIV Care • What is the future of the Ryan White Program? Advocacy • What will bridge services from the Questions expiration of RW in 2013 to when coverage starts in 2014? • Will RW need to focus on what and who won’t be covered such as wrap-around/support services, undocumented persons, accessing the new system, and quality?
  • 20. August 2012 Policy Update 20  RWP providers will be Ryan increasingly dependent on 3rd White and party payment (51% now to as ACA much as 80% with ACA)  Number of entirely uninsured RWP clients should decrease dramatically  Gaps to be determined will remain: e.g. uninsured, those not enrolled, insurance coverage gaps, ineligibles, HIV prevention services
  • 21. August 2012 AACO Director’s Meeting Federal Policy Update 21 CAEAR Coalition Guiding Principles for Reauthorization Open access to quality health care Ensure continuity of care Fortify resources and increase client capacity Maintain and strengthen flexibility and adaptability
  • 22. August 2012 Policy Update 22 Principle 1:  Access and accountability Open  Cultural competency Access to  Quality medical training Quality Health Care
  • 23. August 2012 Policy Update 23 Principle 2:  Aligning and integrating Ensure systems of care Continuity  Linkage to appropriate care of Care  Reducing HIV-related health disparities
  • 24. August 2012 Policy Update 24 Principle 3:  Sufficient funding and effective Fortify distribution of resources Resources  Infrastructure and essential and support services Increase  Workforce development August 2012 Client  Organizational and network Capacity capacity
  • 25. August 2012 Policy Update 25 Principle 4:  ACA transition flexibility Maintain  Support local control and Strengthen Flexibility and Adapta- bility
  • 26. August 2012 Policy Update 26 Local • Use existing data systems (e.g., Activities unduplicated RWP client data to Prepare analysis of insurance status) for ACA • Maximize 3rd party billing and Ryan • Understand gaps in coverage White • Participate in national and Reauthor- state advocacy group processes ization and decisions (e.g., CAEAR Coalition and PA Health Choices Work Group)
  • 27. August 2012 Policy Update 27 Act Now • Improve provider and organizational knowledge and skills (e.g., RWP monitoring standards, Medicaid participation, patient navigation, medical case management) • Improve consumer knowledge and skills (e.g., rights, responsibilities, eligibility, program navigation)
  • 28. August 2012 Policy Update 28 General Resources • HealthCare.gov • Trust for America’s Health • WhiteHouse.gov • National Association of County • HHS.gov and City Health Officials • Families USA • Association of State and • Urban Institute Territorial Health Officials • National Association of • Kaiser Foundation Community Health Centers • National Health • State Healthcare Access Law Program Research Project
  • 29. August 2012 Policy Update 29 HIV-Specific Resources • AIDS.gov • CAEAR Coalition • Treatment Access • National Association of Expansion Project State and Territorial • Treatment Action Group AIDS Directors • HIVhealthreform.org • AIDS United • Federal AIDS Policy • HIV Medicine Partnership Association • Coalition for a National AIDS Strategy
  • 30. August 2012 Policy Update 30 Thank you! Matthew McClain AIDSpolicy@aol.com

Editor's Notes

  1. SCOTUS accepted the States’ argument at face value without evidence of actual coercionSince its enactment the Medicaid law has included a provision that allows the Secretary of HHS to deny all or part of a non-compliant State’s federal funding. It has never been used to terminate the entirety of a Status’ funding. , as argued by Pennsylvania and 25 other States, ruling it is unduly coercive on the StatesLower courts will be hearing many coercion claims
  2. Example: Expanding coverage of community-based services and supports for people with disabilities and the eldgerly
  3. Example: Expanding coverage of community-based services and supports for people with disabilities and the eldgerlyExample is modified adjusted gross income provisionsHealth exchangesa are for people with incomes at or above 100% FPL or individual below 100% FPL who do not qualify for Medicaid due to their immigration status.
  4. SCOTUS accepted the States’ argument at face value without evidence of actual coercionSince its enactment the Medicaid law has included a provision that allows the Secretary of HHS to deny all or part of a non-compliant State’s federal funding. It has never been used to terminate the entirety of a Status’ funding. , as argued by Pennsylvania and 25 other States, ruling it is unduly coercive on the StatesLower courts will be hearing many coercion claims