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THERAPEUTIC REPRODUCTION
AND HUMAN DIGNITY, F. SORROW
         The Human Body and the Market

                  Shushan Harutyunyan
                            CEU, 2013
ADVANCES OF BIOTECHNOLOGY?!

      What we think about the intersection of reproduction-assisting
      technologies and the crisis in human organ donation?



          What’s the line between ethically permissible and ethically
          impermissible uses of reproductive technology?
`


          How we think of dichotomies between “reproductive” and “therapy”?



      What about the “family” VS “state” that permit the distinctions of what
      is good and what is bad about reproductive technology?
WHO WE ARE AS INDIVIDUALS AND WHO WE ARE AS SPECIES?




   “Savior sibling” as an act of love and           Reproductive cloning as an affront to
    responsible parenting (assumptions about          human dignity (human clones luck in
    parental motives and devotion questionable)       connection to two genetic parents )
Pro’s                                                    Concerns


   If parents have the authority to “volunteer”        Creating a child to donate non-generating
    an existing child as a bone morrow donor             organs is unacceptable “in view of the risks
    for a sibling, it is also acceptable that they       involved for the donor child”.
    create a child as a bone morrow for a
    sibling”.                                           Savior siblings would not enjoy “full respect
                                                         for their personal uniqueness and dignity”.

   Psychological benefits the donor receives           “We should be reluctant to see ourselves as
    from helping the sick sibling, benefits that         people who may appropriately dictate such a
                                                         crustal part of the identity of our child (least
    range from contributing to the family                we turn human reproduction) into a form of
    stability and survival to the boost in self-         manufacture and open the door to a new
    esteem gained from having a power to heal            eugenics.
    that other luck.
                                                        We should consider whether assigning the
                                                         role of savor to a child as a condition for its
                                                         existence is an appropriate exercise of human
                                                         reproduction potential.
THE HUMAN DIGNITY AND NEW TECHNOLOGIES (CLONING)

   Problems with Cloning and Embryonic Stem Cells (The justification put
    forward for destructive/experimental cloning is that by destroying cloned
    embryos we will obtain embryonic stem cells for use in treating those with
    conditions such as Parkinson's).

   Our Life-Affirming Position (We welcome the development of ethically
    acceptable treatments for conditions such as Parkinson’s, and are greatly
    encouraged by research on adult stem cells, which can be extracted without
    killing anyone, have already produced successful treatments for a range of
    conditions, and have none of the potential tumour-forming problems that are
    inherent to embryonic stem cells).

   The Law on Cloning (Therapeutic cloning is governed by the Human
    Fertilisation and Embryology Act 1990. The Act was amended by Parliament
    in January 2001 to include cloning research. In the UK, researchers are
    allowed to use eggs left over from IVF treatment programmes to create cloned
    human embryos for embryonic stem cell research. They do this using
    reproductive cloning techniques. The UK permits this provided the embryo is
    not allowed to develop for longer than 14 days.
HUMAN DIGNITY IN SCIENCE / POLICY DEBATES

   “Practices which are contrary to human dignity, such as
    reproductive cloning of human beings, shall not be permitted.
    States and competent international organizations are invited to
    co-operate in identifying such practices and in taking, at
    national or international level, the measures necessary to
    ensure that the principles set out in this Declaration are
    respected.” Human Dignity, UNESCO Universal Declaration
    on the Human Genome and Human Rights which state in article
    11

   BUT Dignity of the Individual or of Society?! It is frequently
    argued, for instance, that reproduction should occur by chance
    and through natural selection. This argument may be based
    upon religious lines, which defer to a supernatural or higher
    power for choice, or to natural selection and the importance of
    ensuring continued human diversity. More convincing for some
    are arguments against
   the commoditisation of life.
THE VIRTUE OF BEING HUMAN? HUMAN DIGNITY IN POLICY DEBATES


   Human dignity becomes more questionable when it is used as a form of general
    condemnation for two principal reasons: one concerning regulatory effectiveness
    and the other regulatory legitimacy.

   The most modern societies are pluralistic, and accordingly, consensus is difficult to
    obtain, whether about human dignity or other complex social and ethical issues
    introduced by scientific innovations. There is not even agreement about the
    foundation of human dignity- whether it is faith-based or secular- let alone what
    human dignity entails.

   Concerns about the uses for dignity are magnified when dignity is used as the
    justification for a State’s use of its coercive criminal law powers to prohibit particular
    avenues of scientific inquiry. This is the most extreme collision between the
    autonomy of individuals engaged in scientific inquiry, either as researchers or
    participants and freedom from the coercive power of the state based on a
    constraining vision of human dignity.
SO HOW WE GOING TO LIVE WITH “THIS”?


   Rethinking human?!

   Get use to?!

 Reframing the bodily self not to be
  the actual reference for identifying
  the present time??
 Rethinking of what we exactly count
  as life?!
SOURCES
   Human Rights and Human Dignity An Appeal to Separate theConjoined
    Twins, Schroeder, 2012 http://link.springer.com/article/10.1007%2Fs10677-011-9326-3
   Human Dignity: In danger of Banality? (The case ofcloning), Knoppers, Bartha-
    Maria http://ehis.ebscohost.com/eds/pdfviewer/pdfviewer?sid=3889bbe6-e531-4f5e-8007-
    287aa012183c%40sessionmgr11&vid=2&hid=116
   When Human Dignity is not Enough: Embryonic Stem CellResearch and Human Cloning in Canada - Tania
    Bubela and Timothy Caulfield;
    UBCPress http://francestanford.stanford.edu/sites/francestanford.stanford.edu/files/Bubela.pdf
    Section 2 (Ethics and Cloning, Human dignity) at “Is HumanReproductive Cloning Inevitable: Future Options for
    UN Governance” Report, ChamundeeswariKuppuswamy, Darryl Macer, Mihaela Serbulea and Brendan
    Tobin, 2007 http://www.ias.unu.edu/resource_centre/Cloning_9.20B.pdf
   Human Dignity and Human Rights as a Common Ground for aGlobal Bioethics, Journal of Medicine and
    Philosophy, 2009http://www.academia.edu/457873/Human_Dignity_and_Human_Rights_As_a_Common_Groun
    d_for_a_Global_Bioethics
   Human Cloning and Human Dignity: The Report of thePresident's Council on
    Bioethics http://ehis.ebscohost.com/eds/detail?sid=aabeb1dd-39c4-4bd5-8c74-
    bb793ecf8929%40sessionmgr11&vid=1&hid=15&bdata=JnNpdGU9ZWRzLWxpdmU%3d#db=edsjag&AN=edsja
    g.10.2307.3528433
   Human cloning: Category, dignity, and the role
    ofbioethics, Shuster http://ehis.ebscohost.com/eds/pdfviewer/pdfviewer?sid=62afc08e-abc9-4dad-81b9-
    bae587d70dcb%40sessionmgr11&vid=2&hid=116
THANK YOU

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Therapeutic Reproduction and Human Dignity

  • 1. THERAPEUTIC REPRODUCTION AND HUMAN DIGNITY, F. SORROW The Human Body and the Market Shushan Harutyunyan CEU, 2013
  • 2. ADVANCES OF BIOTECHNOLOGY?! What we think about the intersection of reproduction-assisting technologies and the crisis in human organ donation? What’s the line between ethically permissible and ethically impermissible uses of reproductive technology? ` How we think of dichotomies between “reproductive” and “therapy”? What about the “family” VS “state” that permit the distinctions of what is good and what is bad about reproductive technology?
  • 3. WHO WE ARE AS INDIVIDUALS AND WHO WE ARE AS SPECIES?  “Savior sibling” as an act of love and  Reproductive cloning as an affront to responsible parenting (assumptions about human dignity (human clones luck in parental motives and devotion questionable) connection to two genetic parents )
  • 4. Pro’s Concerns  If parents have the authority to “volunteer”  Creating a child to donate non-generating an existing child as a bone morrow donor organs is unacceptable “in view of the risks for a sibling, it is also acceptable that they involved for the donor child”. create a child as a bone morrow for a sibling”.  Savior siblings would not enjoy “full respect for their personal uniqueness and dignity”.  Psychological benefits the donor receives  “We should be reluctant to see ourselves as from helping the sick sibling, benefits that people who may appropriately dictate such a crustal part of the identity of our child (least range from contributing to the family we turn human reproduction) into a form of stability and survival to the boost in self- manufacture and open the door to a new esteem gained from having a power to heal eugenics. that other luck.  We should consider whether assigning the role of savor to a child as a condition for its existence is an appropriate exercise of human reproduction potential.
  • 5. THE HUMAN DIGNITY AND NEW TECHNOLOGIES (CLONING)  Problems with Cloning and Embryonic Stem Cells (The justification put forward for destructive/experimental cloning is that by destroying cloned embryos we will obtain embryonic stem cells for use in treating those with conditions such as Parkinson's).  Our Life-Affirming Position (We welcome the development of ethically acceptable treatments for conditions such as Parkinson’s, and are greatly encouraged by research on adult stem cells, which can be extracted without killing anyone, have already produced successful treatments for a range of conditions, and have none of the potential tumour-forming problems that are inherent to embryonic stem cells).  The Law on Cloning (Therapeutic cloning is governed by the Human Fertilisation and Embryology Act 1990. The Act was amended by Parliament in January 2001 to include cloning research. In the UK, researchers are allowed to use eggs left over from IVF treatment programmes to create cloned human embryos for embryonic stem cell research. They do this using reproductive cloning techniques. The UK permits this provided the embryo is not allowed to develop for longer than 14 days.
  • 6. HUMAN DIGNITY IN SCIENCE / POLICY DEBATES  “Practices which are contrary to human dignity, such as reproductive cloning of human beings, shall not be permitted. States and competent international organizations are invited to co-operate in identifying such practices and in taking, at national or international level, the measures necessary to ensure that the principles set out in this Declaration are respected.” Human Dignity, UNESCO Universal Declaration on the Human Genome and Human Rights which state in article 11  BUT Dignity of the Individual or of Society?! It is frequently argued, for instance, that reproduction should occur by chance and through natural selection. This argument may be based upon religious lines, which defer to a supernatural or higher power for choice, or to natural selection and the importance of ensuring continued human diversity. More convincing for some are arguments against  the commoditisation of life.
  • 7. THE VIRTUE OF BEING HUMAN? HUMAN DIGNITY IN POLICY DEBATES  Human dignity becomes more questionable when it is used as a form of general condemnation for two principal reasons: one concerning regulatory effectiveness and the other regulatory legitimacy.  The most modern societies are pluralistic, and accordingly, consensus is difficult to obtain, whether about human dignity or other complex social and ethical issues introduced by scientific innovations. There is not even agreement about the foundation of human dignity- whether it is faith-based or secular- let alone what human dignity entails.  Concerns about the uses for dignity are magnified when dignity is used as the justification for a State’s use of its coercive criminal law powers to prohibit particular avenues of scientific inquiry. This is the most extreme collision between the autonomy of individuals engaged in scientific inquiry, either as researchers or participants and freedom from the coercive power of the state based on a constraining vision of human dignity.
  • 8. SO HOW WE GOING TO LIVE WITH “THIS”?  Rethinking human?!  Get use to?!  Reframing the bodily self not to be the actual reference for identifying the present time??  Rethinking of what we exactly count as life?!
  • 9. SOURCES  Human Rights and Human Dignity An Appeal to Separate theConjoined Twins, Schroeder, 2012 http://link.springer.com/article/10.1007%2Fs10677-011-9326-3  Human Dignity: In danger of Banality? (The case ofcloning), Knoppers, Bartha- Maria http://ehis.ebscohost.com/eds/pdfviewer/pdfviewer?sid=3889bbe6-e531-4f5e-8007- 287aa012183c%40sessionmgr11&vid=2&hid=116  When Human Dignity is not Enough: Embryonic Stem CellResearch and Human Cloning in Canada - Tania Bubela and Timothy Caulfield; UBCPress http://francestanford.stanford.edu/sites/francestanford.stanford.edu/files/Bubela.pdf  Section 2 (Ethics and Cloning, Human dignity) at “Is HumanReproductive Cloning Inevitable: Future Options for UN Governance” Report, ChamundeeswariKuppuswamy, Darryl Macer, Mihaela Serbulea and Brendan Tobin, 2007 http://www.ias.unu.edu/resource_centre/Cloning_9.20B.pdf  Human Dignity and Human Rights as a Common Ground for aGlobal Bioethics, Journal of Medicine and Philosophy, 2009http://www.academia.edu/457873/Human_Dignity_and_Human_Rights_As_a_Common_Groun d_for_a_Global_Bioethics  Human Cloning and Human Dignity: The Report of thePresident's Council on Bioethics http://ehis.ebscohost.com/eds/detail?sid=aabeb1dd-39c4-4bd5-8c74- bb793ecf8929%40sessionmgr11&vid=1&hid=15&bdata=JnNpdGU9ZWRzLWxpdmU%3d#db=edsjag&AN=edsja g.10.2307.3528433  Human cloning: Category, dignity, and the role ofbioethics, Shuster http://ehis.ebscohost.com/eds/pdfviewer/pdfviewer?sid=62afc08e-abc9-4dad-81b9- bae587d70dcb%40sessionmgr11&vid=2&hid=116