Biobanks: Patients’ Role and Expectations
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Fabrizia BIGNAMI, PhD Eurordis Therapeutic Development Director. EuroBioBank Administrative Coordinator. www.eurordis.org www.eurobiobank.org
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Biobanks: Patients’ Role and Expectations
- 1. Fabrizia BIGNAMI, PhD Eurordis Therapeutic Development Director EuroBioBank Administrative Coordinator www.eurordis.org www.eurobiobank.org Biobanks: Patients’ Role and Expectations
- 2. Outline 1. The EuroBioBank network: when patients take the initiative 2. Patients as actors in research 3. Patients' expectations from BBMRI 4. Patients' contribution to BBMRI
- 11. Patients as actors in the BBMRI The BBMRI Stakeholders’ Forum: a good starting point A more direct and official involvement of patients in specific BBMRI activities should be systematically seek identifying most appropriate patients’ representatives for each activity.
- 12. Thank you ! www.eurobiobank.org [email_address] [email_address] EURORDIS Plateforme Maladies Rares 102 rue Didot – Paris 75014 – France Tel + 33 1 56 53 52 10 Fax + 33 1 56 53 52 15