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ETHICS IN QUALITATIVE
     RESEARCH
       BY: FAROUQ AYIWOROH
       UNIVERSITY OF GUELPH
   EDRD6000 QUALITATIVE ANALYSIS
         MARCH 15 TH 2013
LEARNING OUTCOME
   • Brief Overview of Qualitative Research
• Know key Unethical Qualitative Researches
                Conducted
• Understand key Ethical Issues & Principles in
             Qualitative Research
HANCOCK (1998) ARGUES THAT
   QUALITATIVE RESEARCH INVOLVES
           THE FOLLOWING
  • Understanding opinions, experiences, feelings of individuals or
    communities to produce subjective data to make generalizations
  • Exploring social phenomenon or issues by examining people or
                 communities in their natural settings
• Describing cultures, social stratifications and social groups in their
                            natural settings
• Exploring relationships between individuals or communities, cultural
                norms, and economic and political ideas
MAJOR TYPES OF QUALITATIVE
          RESEARCH DESIGNS
  • Phenomenology - literally, the study of phenomena; describing
       situations or something that exists as part of our world
• Ethnography - the scientific study of human social phenomena and
  communities, involves the descriptive study of culture and people,
  traditions and norms as they are in specific geographical locations
   • Grounded theory - using empirical data without preconceived
  theories, involves the development of new theories by collecting and
                  analysis of data about a phenomenon
• Case study - in-depth study of a particular situation or an intensive
                     analysis of an individual unit
                           (Hancock, 1998)
CORE RESEARCH ETHICAL PRINCIPLES
             & ISSUES
Core ethical principles and issues of qualitative research include
   respect to persons, concern for welfare, informed consent
    process, confidentiality and anonymity, and privacy (Orb,
 Eisenhauer & Wynaden, 2001; Tri-Council Policy Statement:
     Ethical Conduct for Research Involving Humans, 2010)
QUALITATIVE RESEARCH ETHICAL
     PRINCIPLES & ISSUES
   • Informed                               • Confidentiality
     Consent
     Process


                  Respect
                              Beneficence
                for Persons




                              Concern for
                  Justice
                               Welfare

   • Privacy                                • Anonymity
ACCORDING TO ORB, EISENHAUER &
        WYNADEN (2001)
Ethics in qualitative research involves avoiding harm
in research. Qualitative researchers are responsible
  for ensuring that they adhere to the guidelines of
    ethical principles and issues of their research
SOME KEY UNETHICAL ISSUES IN
 QUALITATIVE RESEARCH HISTORY
• Tuskegee Syphilis Study of 1932 to 1972 (Orb, Eisenhauer &
                       Wynaden, 2001)


• Nuremberg Code of 1946 to 1949 (Fouka & Mantzorou, 2011)


          • Milgram’s Obedience Experiment; 1963
RESPECT FOR PEOPLE OR
              PARTICIPANTS
 • Recognition and ensuring participants right to informed consent,
  consent may be given in written format, verbally and audio-taped, or
                              videotaped
  • Informed Consent is a procedure by which participants choose
   whether or not to participate in a research, consent is ongoing, can
         be revoked at any time during the research or study
• Consent is direct when the agreement is obtained directly from the
  participants. It is indirect or third party when it is given by someone
       other than the person to be involved in the research study
                 (Orb, Eisenhauer & Wynaden, 2001)
ELEMENTS OF CONSENT; CAPACITY,
 INFORMATION, AND VOLUNTARINESS
     (FOUKA & MANTZOROU, 2011)
• Capacity: participants ability to acquire, retain, and evaluate
     information; participants are deemed competent or
             incompetent based on their capacity
• Information: effectively communicated to participants, both
    substance and manner. Consent must be written in the
          language that participants can understand
• Voluntariness: participants ability to exercise the free power
    of choice without the intervention of force, fraud, deceit,
  duress, or other forms of constraint or coercion; any undue
      influence would violate the principle of voluntariness
BENEFICENCE & CONCERN FOR
    WELFARE OF PARTICIPANTS

• Beneficence as an ethical principle in qualitative research
    means preventing harm and doing good for others in
       research (Orb, Eisenhauer & Wynaden (2001)
 • Beneficence and Welfare of participants include issues
      such as the impact of the research on participants
  physically, psychological, spiritually, economic, and socially
      (Tri-Council Policy Statement: Ethical Conduct for
               Research Involving Humans, 2010)
PRIVACY, CONFIDENTIALITY, &
             ANONYMITY

• Privacy, confidentiality, and anonymity issues
  are closely connected with concern for welfare
                  of participants
• Privacy, confidentiality, and anonymity have
     become an increasingly valued right in
  qualitative research (Richards & Schwartz,
                      2002)
DEALING WITH PRIVACY,
   CONFIDENTIALITY, & ANONYMITY
• Maintaining the principle of beneficence and concern for
  welfare of participants means that researchers must be
     aware of the potential consequences of revealing
                    participants’ identities
• The use of pseudonyms is recommended when dealing
            with confidentiality and anonymity
• Total privacy is virtually nonexistent so participants are
  required on occasion to yield a certain amount of privacy
                  for one reason or another
FAIRNESS & EQUITY IN QUALITATIVE
           RESEARCH
• Researchers shall not exclude participants in a qualitative
    research on the basis of their ethnicity, gender, race,
             culture, age, or sexual orientation
 • Qualitative researchers are required to address the fair
     inclusion or exclusion of individuals and equitable
                   treatment of participants
(Tri-Council Policy Statement: Ethical Conduct for Research
                  Involving Humans, 2010)
COMMENTS ON QUALITATIVE
       RESEARCH ETHICS
    • Qualitative researchers need to handle capacity, a key component of
    informed consent carefully because the age of majority depends on where
     the research is being done. For example the age of majority in Canada is
      different from other countries. In Ontario the legal age of driving a motor
                         vehicle is lower in rural communities


• You are doing a study on teenage pregnancies in Congo, Africa. You find that
    many of the young women you interview bring up stories of sexual trauma
  they have experienced, including rape. There are instances that the interview
  became upsetting to both you and the participant. Your research ethics board
    has already approved your informed consent form to talks about the risk of
     feeling uncomfortable with some of the questions. But the responses are
     overwhelming than you expected. What do you do? Should you stop the
      interviews and revise your consent form or should you report this to the
                              research ethics board?
CONCLUSION
   • Power and relationship issues between researchers and
     participants are primary to consider in qualitative research
 • Qualitative researchers are responsible for ethical principles
                   and issues of their research
 • Qualitative researchers need to know their participants, know
         what risk are involved and how to minimize them
• Key qualitative research principles and issues are intertwined; if
    you are in doubt contact your research ethics board (REB)
• Key qualitative ethical principles and issue include Respect for
  Persons, Concern for Welfare, Beneficence, Justice, Informed
       consent, Privacy and Anonymity, and Confidentiality
REFERENCES
Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and
Social Sciences and Humanities Research Council of Canada, Tri-Council Policy Statement: Ethical Conduct for
Research Involving Humans. (December 2010)
Hancock, B. (1998). Trent Focus for Research and Development in Primary Health Care: An Introduction to
Qualitative Research. Trent Focus
Georgia Fouka, G., Mantzorou, M. (2011).What are the Major Ethical Issues in Conducting Research? Is there a
Conflict between the Research Ethics and the Nature of Nursing? Health Science Journal Volume 5, Issue 1.
pp:3-14 E-ISSN:1791-809X
Orb, A., Eisenhauer, L., Wynaden, D. (2001). Ethics in Qualitative Research: Journal of Nursing Scholarship.
33:1, 93-96
Richards, H.M,. Schwartz, L.J. (2002). Ethics in qualitative research: are there special issues for health care
services research? Family practice; Volume 19. No. 2. pp. 135 – 139
How important are ethics in our society image retrieved from:
http://www.mdsg.umd.edu/programs/research/reu/ethics/index.html
Joy of tech image, code of ethics logo, ethical research logo from: https://www.google.ca: Google images

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Farouq Ayiworoh Ethics in Qualitative Research

  • 1. ETHICS IN QUALITATIVE RESEARCH BY: FAROUQ AYIWOROH UNIVERSITY OF GUELPH EDRD6000 QUALITATIVE ANALYSIS MARCH 15 TH 2013
  • 2. LEARNING OUTCOME • Brief Overview of Qualitative Research • Know key Unethical Qualitative Researches Conducted • Understand key Ethical Issues & Principles in Qualitative Research
  • 3. HANCOCK (1998) ARGUES THAT QUALITATIVE RESEARCH INVOLVES THE FOLLOWING • Understanding opinions, experiences, feelings of individuals or communities to produce subjective data to make generalizations • Exploring social phenomenon or issues by examining people or communities in their natural settings • Describing cultures, social stratifications and social groups in their natural settings • Exploring relationships between individuals or communities, cultural norms, and economic and political ideas
  • 4. MAJOR TYPES OF QUALITATIVE RESEARCH DESIGNS • Phenomenology - literally, the study of phenomena; describing situations or something that exists as part of our world • Ethnography - the scientific study of human social phenomena and communities, involves the descriptive study of culture and people, traditions and norms as they are in specific geographical locations • Grounded theory - using empirical data without preconceived theories, involves the development of new theories by collecting and analysis of data about a phenomenon • Case study - in-depth study of a particular situation or an intensive analysis of an individual unit (Hancock, 1998)
  • 5. CORE RESEARCH ETHICAL PRINCIPLES & ISSUES Core ethical principles and issues of qualitative research include respect to persons, concern for welfare, informed consent process, confidentiality and anonymity, and privacy (Orb, Eisenhauer & Wynaden, 2001; Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, 2010)
  • 6. QUALITATIVE RESEARCH ETHICAL PRINCIPLES & ISSUES • Informed • Confidentiality Consent Process Respect Beneficence for Persons Concern for Justice Welfare • Privacy • Anonymity
  • 7. ACCORDING TO ORB, EISENHAUER & WYNADEN (2001) Ethics in qualitative research involves avoiding harm in research. Qualitative researchers are responsible for ensuring that they adhere to the guidelines of ethical principles and issues of their research
  • 8. SOME KEY UNETHICAL ISSUES IN QUALITATIVE RESEARCH HISTORY • Tuskegee Syphilis Study of 1932 to 1972 (Orb, Eisenhauer & Wynaden, 2001) • Nuremberg Code of 1946 to 1949 (Fouka & Mantzorou, 2011) • Milgram’s Obedience Experiment; 1963
  • 9. RESPECT FOR PEOPLE OR PARTICIPANTS • Recognition and ensuring participants right to informed consent, consent may be given in written format, verbally and audio-taped, or videotaped • Informed Consent is a procedure by which participants choose whether or not to participate in a research, consent is ongoing, can be revoked at any time during the research or study • Consent is direct when the agreement is obtained directly from the participants. It is indirect or third party when it is given by someone other than the person to be involved in the research study (Orb, Eisenhauer & Wynaden, 2001)
  • 10. ELEMENTS OF CONSENT; CAPACITY, INFORMATION, AND VOLUNTARINESS (FOUKA & MANTZOROU, 2011) • Capacity: participants ability to acquire, retain, and evaluate information; participants are deemed competent or incompetent based on their capacity • Information: effectively communicated to participants, both substance and manner. Consent must be written in the language that participants can understand • Voluntariness: participants ability to exercise the free power of choice without the intervention of force, fraud, deceit, duress, or other forms of constraint or coercion; any undue influence would violate the principle of voluntariness
  • 11. BENEFICENCE & CONCERN FOR WELFARE OF PARTICIPANTS • Beneficence as an ethical principle in qualitative research means preventing harm and doing good for others in research (Orb, Eisenhauer & Wynaden (2001) • Beneficence and Welfare of participants include issues such as the impact of the research on participants physically, psychological, spiritually, economic, and socially (Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, 2010)
  • 12. PRIVACY, CONFIDENTIALITY, & ANONYMITY • Privacy, confidentiality, and anonymity issues are closely connected with concern for welfare of participants • Privacy, confidentiality, and anonymity have become an increasingly valued right in qualitative research (Richards & Schwartz, 2002)
  • 13. DEALING WITH PRIVACY, CONFIDENTIALITY, & ANONYMITY • Maintaining the principle of beneficence and concern for welfare of participants means that researchers must be aware of the potential consequences of revealing participants’ identities • The use of pseudonyms is recommended when dealing with confidentiality and anonymity • Total privacy is virtually nonexistent so participants are required on occasion to yield a certain amount of privacy for one reason or another
  • 14. FAIRNESS & EQUITY IN QUALITATIVE RESEARCH • Researchers shall not exclude participants in a qualitative research on the basis of their ethnicity, gender, race, culture, age, or sexual orientation • Qualitative researchers are required to address the fair inclusion or exclusion of individuals and equitable treatment of participants (Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, 2010)
  • 15. COMMENTS ON QUALITATIVE RESEARCH ETHICS • Qualitative researchers need to handle capacity, a key component of informed consent carefully because the age of majority depends on where the research is being done. For example the age of majority in Canada is different from other countries. In Ontario the legal age of driving a motor vehicle is lower in rural communities • You are doing a study on teenage pregnancies in Congo, Africa. You find that many of the young women you interview bring up stories of sexual trauma they have experienced, including rape. There are instances that the interview became upsetting to both you and the participant. Your research ethics board has already approved your informed consent form to talks about the risk of feeling uncomfortable with some of the questions. But the responses are overwhelming than you expected. What do you do? Should you stop the interviews and revise your consent form or should you report this to the research ethics board?
  • 16. CONCLUSION • Power and relationship issues between researchers and participants are primary to consider in qualitative research • Qualitative researchers are responsible for ethical principles and issues of their research • Qualitative researchers need to know their participants, know what risk are involved and how to minimize them • Key qualitative research principles and issues are intertwined; if you are in doubt contact your research ethics board (REB) • Key qualitative ethical principles and issue include Respect for Persons, Concern for Welfare, Beneficence, Justice, Informed consent, Privacy and Anonymity, and Confidentiality
  • 17. REFERENCES Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada, Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans. (December 2010) Hancock, B. (1998). Trent Focus for Research and Development in Primary Health Care: An Introduction to Qualitative Research. Trent Focus Georgia Fouka, G., Mantzorou, M. (2011).What are the Major Ethical Issues in Conducting Research? Is there a Conflict between the Research Ethics and the Nature of Nursing? Health Science Journal Volume 5, Issue 1. pp:3-14 E-ISSN:1791-809X Orb, A., Eisenhauer, L., Wynaden, D. (2001). Ethics in Qualitative Research: Journal of Nursing Scholarship. 33:1, 93-96 Richards, H.M,. Schwartz, L.J. (2002). Ethics in qualitative research: are there special issues for health care services research? Family practice; Volume 19. No. 2. pp. 135 – 139 How important are ethics in our society image retrieved from: http://www.mdsg.umd.edu/programs/research/reu/ethics/index.html Joy of tech image, code of ethics logo, ethical research logo from: https://www.google.ca: Google images